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International Pain School Palliative Care Type in your name Type in the name of your institution What is Palliative Care? WHO definition of palliative care • Active total care of the patient… • Begins at diagnosis, and continues regardless of whether or not a patient receives treatment directed at the disease • Health providers must evaluate and alleviate a child's physical, psychological, and social distress • Requires a broad interdisciplinary approach What is Palliative Care? “The art and science of patient and family-centered care aimed at attending to suffering, promoting healing and improving quality of life” The goal is to add life to the patient’s years, not simply years to the their life … Why is it so important? • We cannot cure or save everyone and we will all die someday. • When resources are limited or unavailable, every patient should have the benefit of symptom management, especially at the end of life. • Opioids should be available for all patients to help alleviate pain and suffering, although not currently the case. • Palliative care and symptom management does not require high-tech medicine, but may be achieved anywhere with education and dedication. Aspects of Palliative Care • Provide comfort • Foster interpersonal relationships • Emotional support • Social support • Spiritual support • Bereavement care Totality of Personhood Religion Culture Body Mind Spirit Society Education Goal: to attend to suffering, of any kind, and improve quality of life Barriers to High Quality Palliative Care • Personal – Emotionally difficult, taboos, resisting change • System – Access to services, reimbursement, fragmentation • Quality – Deficient education, lack of outcomes research • Technical – Lack of appropriate evaluation tools Integration of Palliative Care • Palliative care can be a part of symptom management from the time of diagnosis • When there are no curative options, focus medications and treatments on comfort only • Dosing of pain medication, such as opioids, has no upper limit-especially at then end of life • Treat all aspects of the patient as their greatest suffering may not be from physical pai Remember • Palliative Care and symptom management only requires attention to what the patient needs, regular re-assessment, and access to medication. • High-quality palliative care does not require any high-tech materials or equipment • Everyone can provide palliative care to those in need, especially at the end of life This talk was originally prepared by: Jamie Laubisch MD & Justin Baker MD Memphis, USA International Pain School Talks in the International Pain School include the following: Physiology and pathophysiology of pain Nilesh Patel, PhD, Kenya Assessment of pain & taking a pain history Yohannes Woubished, M.D, Addis Ababa, Ethiopia Clinical pharmacology of analgesics and non-pharmacological treatments Ramani Vijayan, M.D. Kuala Lumpur, Malaysia Postoperative – low technology treatment methods Dominique Fletcher, M.D, Garches & Xavier Lassalle, RN, MSF, Paris, France Postoperative– high treatment technology methods Narinder Rawal, M.D. PhD, FRCA(Hon), Orebro, Sweden Cancer pain– low technology treatment methods Barbara Kleinmann, MD, Freiburg, Germany Cancer pain– high technology treatment methods Jamie Laubisch MD, Justin Baker MD, Doralina Anghelescu MD, Memphis, USA Palliative Care Jamie Laubisch MD, Justin Baker MD, Memphis, USA Neuropathic pain - low technology treatment methods Maija Haanpää, MD, Helsinki & Aki Hietaharju, Tampere, Finland Neuropathic pain – high technology treatment methods Maija Haanpää, M.D., Helsinki & Aki Hietaharju, M.D., Tampere, Finland Psychological aspects of managing pain Etleva Gjoni, Germany Special Management Challenges Debra Gordon, RN, DNP, FAAN, Seattle, USA International Pain School The project is supported by these organizations: International Pain School More lectures and further information can be found on our project website. www.international-pain-school.org © 2013 international-pain-school.org