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National health data dictionary
Summary of updates since
Version 14.1
Feb 2009 to June 2009
© Australian Institute of Health and Welfare 2009
This work is copyright. Apart from any use as permitted under the Copyright Act 1968, no part may be
reproduced without prior written permission from the Australian Institute of Health and Welfare.
Requests and enquiries concerning reproduction and rights should be directed to the Head, Business
Promotion, Australian Institute of Health and Welfare, GPO Box 570, Canberra ACT 2601.
Any enquiries about or comments on this publication should be directed to:
METeOR and Metadata Unit
Australian Institute of Health and Welfare
GPO Box 570
Canberra ACT 2601
Email: [email protected]
Phone: (02) 6244 1222 Fax: (02) 6244 1299
ii
List of metadata items
Data element short names ................................................................................................................................ vi
Summary of updates to the National health data dictionary (NHDD) version 14.1 .................................. 1
National minimum data sets ............................................................................................................................. 6
Admitted patient care NMDS 2009-2010 ................................................................................................... 7
Admitted patient mental health care NMDS 2009-2010 ........................................................................ 10
Admitted patient palliative care NMDS 2009-10  ................................................................................... 13
Community mental health care NMDS 2009-2010 ................................................................................. 15
Government health expenditure NMDS 2009-2010  ............................................................................... 17
Residential mental health care NMDS 2009-2010  .................................................................................. 19
Data set specifications ...................................................................................................................................... 21
Breast cancer (Cancer registries) DSS  ...................................................................................................... 22
Cancer (clinical) DSS  .................................................................................................................................. 24
Data element clusters ....................................................................................................................................... 27
Government health expenditure organisation expenditure capital consumption data element cluster
........................................................................................................................................................................ 28
Government health expenditure organisation expenditure data element cluster ............................. 29
Government health expenditure organisation expenditure employee related data element cluster 
.......................................................................................................................................................................... 30
Government health expenditure organisation expenditure purchase of goods and services data
element cluster  ............................................................................................................................................ 31
Government health expenditure organisation revenue data element cluster  .................................... 32
Data elements .................................................................................................................................................... 33
Establishment—geographical location, code (ASGC 2008) NNNNN  ................................................. 34
Health industry relevant organisation—main activity type, code NNN  ........................................... 36
Occupied bed—hospital in the home care, average number of beds N[NNN.N]  ............................ 47
Organisation—capital consumption expenses, total Australian currency NNNNN.N  ................... 49
Person with cancer— Nil metastasis status, M stage (UICC TNM Classification of Malignant
Tumours, 6th ed) code XX  ......................................................................................................................... 51
Person with cancer—extent of primary cancer, TNM stage (UICC TNM Classification of Malignant
Tumours, 6th ed) code XXXX{[X]XX}  ...................................................................................................... 53
Person with cancer—histopathological grade, code N  ......................................................................... 55
Person with cancer—human epidermal growth factor receptor-2 test result, code N  ..................... 57
Person with cancer—human epidermal growth factor receptor-2 test type, code N  ....................... 60
Person with cancer—lymphovascular invasion, code N  ...................................................................... 62
Person with cancer—morphology of cancer, code (ICDO-3) NNNN/N  ........................................... 64
Person with cancer—neoadjuvant therapy indicator, code N  ............................................................. 67
Person with cancer—number of positive regional lymph nodes, total N[N]  .................................... 69
Person with cancer—number of positive sentinel lymph nodes, total code N[N]  ............................ 71
Person with cancer—number of regional lymph nodes examined, total code N[N]  ........................ 72
Person with cancer—number of sentinel lymph nodes examined, total code N[N]  ........................ 74
Person with cancer—oestrogen receptor assay result, code N  ............................................................ 75
Person with cancer—primary site of cancer, code (ICDO-3) ANN{.N[N]}  ........................................ 77
Person with cancer—primary tumour status, T stage (UICC TNM Classification of Malignant
Tumours, 6th ed) code XX[X]  ................................................................................................................... 79
 New Data item
 Revised data item
iv
Person with cancer—regional lymph node metastasis status, N stage (UICC TNM Classification of
Malignant Tumours, 6th ed) code XX ...................................................................................................... 81
Person with cancer—solid tumour size (at diagnosis), total millimetres NNN  ................................ 83
Person—area of usual residence, geographical location code (ASGC 2008) NNNNN  .................... 86
Service delivery outlet—geographic location, code (ASGC 2008) NNNNN  ..................................... 89
Classifications .................................................................................................................................................... 91
Australian Standard Geographical Classification 2008  ......................................................................... 92
International Union against Cancer (UICC) TNM Classification of Malignant Tumours 6th edition 
.......................................................................................................................................................................... 93
v
Data element short names
Geographical location of establishment .......................................................................................................... 34
Health industry relevant organisation type ................................................................................................... 36
Average available beds for hospital-in-the-home patients........................................................................... 47
Capital consumption expenses ......................................................................................................................... 49
Cancer staging—M stage code ......................................................................................................................... 51
Cancer staging—TNM stage grouping code .................................................................................................. 53
Histopathological grade .................................................................................................................................... 55
Human epidermal growth factor receptor-2 test result ................................................................................ 57
Human epidermal growth factor receptor-2 test type .................................................................................. 60
Lymphovascular invasion ................................................................................................................................. 62
Morphology of cancer........................................................................................................................................ 64
Neo-adjuvant therapy ....................................................................................................................................... 67
Regional lymph nodes positive ........................................................................................................................ 69
Number of positive sentinel lymph nodes ..................................................................................................... 71
Number of regional lymph nodes examined ................................................................................................. 72
Number of sentinel lymph nodes examined .................................................................................................. 74
Oestrogen receptor assay result ....................................................................................................................... 75
Primary site of cancer (ICDO-3 code) .............................................................................................................. 77
Cancer staging—T stage code .......................................................................................................................... 79
Cancer staging—N stage code .......................................................................................................................... 81
Tumour size at diagnosis (solid tumours) ...................................................................................................... 83
Area of usual residence ..................................................................................................................................... 86
Geographical location of service delivery outlet ........................................................................................... 89
vi
Summary of updates to the National health data
dictionary (NHDD) version 14.1
The purpose of this document is to inform users of updates to the NHDD version 14.1
published January 2009. This reflects changes to national health data standards between the
1st February 2009 and the 30 June 2009. One data set specification and seven data elements
have been added to the NHDD. Other changes include the revision of six national minimum
data sets, one data set specification, five data element clusters, sixteen data elements and two
classifications. As a result of standards being revised sixteen data elements, six national
minimum data sets, one data set specification and two classifications have been superseded.
No national standards have been retired since version 14.1 of the NHDD was published.
These new standards have been agreed and endorsed by the members of the National Health
Information Standards and Statistics Committee (NHISSC) and the National Electronic
Health Information Principal Committee (NEHIPC).
Summary table of updates to the NHDD version 14.1
Registration
status
National
Minimum Data
Sets
Data Set
Specifications
Data
element
clusters
Data elements
Classifications
Glossary
items
Standards
(new)
0
1
0
7
0
0
Standards
(revised)
6
1
5
16
2
0
Superseded
6
1
5
16
2
0
Retired
0
0
0
0
0
0
Revised National minimum data sets since 01/02/2009
NMDS
Description of change
Data elements revised
Data
elements
added
Data
elements
removed
Admitted patient care NMDS
2009-2010
Revision to one data element
Area of usual residence
Nil
Nil
Admitted patient mental health
care NMDS 2009-2010
Revision to one data element
Area of usual residence
Nil
Nil
Admitted patient palliative care
NMDS 2009-2010
Revision to one data element
Area of usual residence
Nil
Nil
Community mental health care
NMDS 2009-2010
Revision to one data element
Area of usual residence
Nil
Nil
Government health expenditure
NMDS 2009-2010
Revision to two data
elements
Health industry relevant
organisation type
Nil
Nil
Nil
Nil
Capital consumption
expenses
Residential mental health care
NMDS 2009-2010
 New Data item
Revision to one data element
 Revised data item
1
Area of usual residence
Revised Data set specifications since 01/02/2009
DSS
Description of change
Data elements revised
Data
elements
added
Data
elements
removed
Cancer (clinical) DSS
Revision to eleven data
elements
Cancer staging—M
stage code
Nil
Nil
Cancer staging—TNM
stage grouping code
Histopathological grade
Morphology of cancer
Regional lymph nodes
positive
Number of regional
lymph nodes examined
Oestrogen receptor
assay result
Primary site of cancer
(ICDO-3 code)
Cancer staging—T
stage code
Cancer staging—N
stage code
Tumour size at
diagnosis (solid
tumours)
New Data set specifications since 01/02/2009
Name
Description
Breast cancer (Cancer
registries) DSS
The breast cancer data set enables common, consistent and high quality breast cancer data
to be collected by State and Territory cancer registries and collated nationally. This data will
help inform research, policy, planning and guideline development work in the breast cancer
area.
Revised Data element clusters since 01/02/2009
Name
Description of change
Data elements revised
Data
elements
added
Data
elements
removed
Government health expenditure
organisation expenditure capital
consumption data element
cluster
Revision to two data
elements
Health industry relevant
organisation type
Nil
Nil
Government health expenditure
organisation expenditure data
element cluster
Revision to two data
elements
Nil
Nil
Capital consumption
expenses
Health industry relevant
organisation type
Capital consumption
expenses
2
Name
Description of change
Data elements revised
Data
elements
added
Data
elements
removed
Government health
expenditure organisation
expenditure employee
related data element cluster
Revision to one data
element
Health industry relevant
organisation type
Nil
Nil
Government health
expenditure organisation
expenditure purchase of
goods and services data
element cluster
Revision to one data
element
Health industry relevant
organisation type
Nil
Nil
Government health
expenditure organisation
revenue data element cluster
Revision to one data
element
Health industry relevant
organisation type
Nil
Nil
3
Revised data elements in NHDD since 01/02/2009
Short name
Technical name
Description of change
Geographical location of
establishment
Establishment—geographical location, code
(ASGC 2008) NNNNN
Value domain uses updated ASGC
2008 classification.
Health industry relevant
organisation type
Health industry relevant organisation—main
activity type, code NNN
Addition of category’ 204 Residential
age care’ to value domain and
associated guide for use changes.
Capital consumption expenses
Organisation—capital consumption
expenses, total Australian currency
NNNNN.N
Property changed from Depreciation
expenses for consistency with
definition, therefore changing the data
element concept and data element.
Cancer staging—M stage code
Person with cancer—distant metastasis
status, M stage (UICC TNM Classification of
Malignant Tumours, 6th ed) code XX
Value domain updated to 6th edition of
UICC TNM Classification of Malignant
Tumours. Guide for use updated to
clarify that TNM staging applies to solid
tumours, excluding brain tumours.
Cancer staging—TNM stage
grouping code
Person with cancer—extent of primary
cancer, TNM stage (UICC TNM
Classification of Malignant Tumours, 6th ed)
code XXXX{[X]XX}
Value domain updated to 6th edition of
UICC TNM Classification of Malignant
Tumours. Guide for use updated to
clarify that TNM staging applies to solid
tumours, excluding brain tumours.
Histopathological grade
Person with cancer—histopathological grade,
code N
Revision to definition for clarity. Guide
for use expanded to clarify coding rules
including breast cancer. Collection
methods updated to provide information
about cancer registries.
Morphology of cancer
Person with cancer—morphology of cancer,
code (ICDO-3) NNNN/N
Collection methods updated to provide
more comprehensive information for
cancer registries.
Regional lymph nodes positive
Person with cancer—number of positive
regional lymph nodes, total N[N]
Additional information added to the
Guide for use, including a reference to
TNM Classification of Tumours, 6th
Edition. Data element now using a
generic value domain which is reused
across a number of cancer data
elements.
Number of regional lymph nodes
examined
Person with cancer—number of regional
lymph nodes examined, total code N[N]
Additional information added to the
Guide for use, including a reference to
TNM Classification of Tumours, 6th
Edition.
Oestrogen receptor assay result
Person with cancer—oestrogen receptor
assay result, code N
Information about coding rules added to
Guide for use. Collection methods
updated to provide information about
cancer registries. Additional information
added to value domain clarifying use of
supplementary codes.
Primary site of cancer (ICDO-3
code)
Person with cancer—primary site of cancer,
code (ICDO-3) ANN{.N[N]}
Information about cancer registries and
coding rules added to Guide for use.
Cancer staging—T stage code
Person with cancer—primary tumour status,
T stage (UICC TNM Classification of
Malignant Tumours, 6th ed) code XX[X]
Value domain updated to 6th edition of
UICC TNM Classification of Malignant
Tumours. Guide for use updated to
clarify that TNM staging applies to solid
tumours, excluding brain tumours.
Cancer staging—N stage code
Person with cancer—regional lymph node
metastasis status, N stage (UICC TNM
Classification of Malignant Tumours, 6th ed)
code XX
Value domain updated to 6th edition of
UICC TNM Classification of Malignant
Tumours. Guide for use updated to
clarify that TNM staging applies to solid
tumours, excluding brain tumours.
Tumour size at diagnosis (solid
tumours)
Person with cancer—solid tumour size (at
diagnosis), total millimetres NNN
Guide for use expanded to include
detailed information about reporting
standards and coding rules.
 New Data item
 Revised data item
4
Short name
Technical name
Description of change
Area of usual residence
Person—area of usual residence,
geographical location code (ASGC 2008)
NNNNN
Value domain uses updated ASGC
2008 classification.
Geographical location of service
delivery outlet
Service delivery outlet—geographic location,
code (ASGC 2008) NNNNN
Value domain uses updated ASGC
2008 classification.
New data elements in NHDD since 01/02/2009
Short name
Technical name
Average available beds for hospital-in-thehome patients
Occupied bed—hospital in the home care, average number of beds
N[NNN.N]
Human epidermal growth factor receptor-2 test
result
Person with cancer—human epidermal growth factor receptor-2 test result,
code N
Human epidermal growth factor receptor-2 test
type
Person with cancer—human epidermal growth factor receptor-2 test type,
code N
Lymphovascular invasion
Person with cancer—lymphovascular invasion, code N
Neo-adjuvant therapy
Person with cancer—neoadjuvant therapy indicator, code N
Number of positive sentinel lymph nodes
Person with cancer—number of positive sentinel lymph nodes, total code
N[N]
Number of sentinel lymph nodes examined
Person with cancer—number of sentinel lymph nodes examined, total
code N[N]
Revised classification schemes since 01/02/2009
Name
Description of change
Australian Standard Geographical
Classification 2008
Australian Standard Geographical Classification 2008 replaces Australian
Standard Geographical Classification 2007.
International Union against Cancer (UICC)
TNM Classification of Malignant Tumours 6th
edition
International Union against Cancer (UICC) TNM Classification of Malignant
Tumours 6th edition replaces TNM Classification of Malignant Tumours 5th
edition.
 New Data item
 Revised data item
5
National minimum data sets
 New Data item
 Revised data item
6
Admitted patient care NMDS 2009-2010 
Identifying and definitional attributes
Metadata item type:
Data Set Specification
METeOR identifier:
374205
Registration status:
Health, Standard 04/02/2009
DSS type:
National Minimum Data Set (NMDS)
Scope:
The purpose of this National Minimum Data Set is to collect
information about care provided to admitted patients in
Australian hospitals.
The scope is episodes of care for admitted patients in all public
and private acute and psychiatric hospitals, free standing day
hospital facilities and alcohol and drug treatment centres in
Australia. Hospitals operated by the Australian Defence Force,
corrections authorities and in Australia's off-shore territories
may also be included. Hospitals specialising in dental,
ophthalmic aids and other specialised acute medical or surgical
care are included.
Hospital boarders and still births are not included as they are
not admitted to hospital. Posthumous organ procurement
episodes are also not included.
Collection and usage attributes
Statistical unit:
Episodes of care for admitted patients
Collection methods:
Data are collected at each hospital from patient administrative
and clinical record systems. Hospitals forward data to the
relevant state or territory health authority on a regular basis
(e.g. monthly).
National reporting arrangements:
State and territory health authorities provide the data to the
Australian Institute of Health and Welfare for national
collation, on an annual basis.
Periods for which data are collected and nationally collated
Financial years ending 30 June each year.
Implementation start date:
01/07/2009
Comments:
Scope links with other NMDS:
Episodes of care for admitted patients which occur partly or
fully in designated psychiatric units of public acute hospitals or
in public psychiatric hospitals:
 Admitted patient mental health care NMDS.
Episodes of care for admitted patients where care type is
palliative care:
 Admitted patient palliative care NMDS.
Glossary items
Some previous Knowledgebase data element concepts are
available in the METeOR glossary. Glossary items are available
online through links in the relevant metadata items. In addition
links to the glossary terms that are relevant to this National
Minimum Data Set are listed below:
Admission
Diagnosis
 New Data item
 Revised data item
7
Episode of acute care
Hospital boarder
Hospital-in-the-home care
Live birth
Neonate
Newborn qualification status
Organ procurement - posthumous
Same-day patient
Separation
Relational attributes
Related metadata references:
Supersedes Admitted patient care NMDS 2008-2009 Health,
Superseded 04/02/2009
Metadata items in this Data Set Specification
Metadata item
Obligation
-
Episode of admitted patient care (newborn)—number of
qualified days, total N[NNNN]
Conditional
1
-
Episode of admitted patient care—admission date,
DDMMYYYY
Mandatory
1
-
Episode of admitted patient care—admission mode, code N
Mandatory
1
-
Episode of admitted patient care—admission urgency status,
code N
Mandatory
1
-
Episode of admitted patient care—condition onset flag, code N
Mandatory
50
-
Episode of admitted patient care—diagnosis related group,
code (AR-DRG v5.1) ANNA
Mandatory
1
-
Episode of admitted patient care—intended length of hospital
stay, code N
Mandatory
1
-
Episode of admitted patient care—inter-hospital contracted
patient status, code N
Mandatory
1
-
Episode of admitted patient care—major diagnostic category,
code (AR-DRG v5.1) NN
Mandatory
1
-
Episode of admitted patient care—number of days of hospitalin-the-home care, total {N[NN]}
Mandatory
1
-
Episode of admitted patient care—number of leave days, total
N[NN]
Mandatory
1
-
Episode of admitted patient care—patient election status, code
N
Mandatory
1
-
Episode of admitted patient care—procedure, code (ACHI 6th
edn) NNNNN-NN
Mandatory
50
-
Episode of admitted patient care—referral source, public
psychiatric hospital code NN
Conditional
1
-
Episode of admitted patient care—separation date,
DDMMYYYY
Mandatory
1
-
Episode of admitted patient care—separation mode, code N
Mandatory
1
-
Episode of care—additional diagnosis, code (ICD-10-AM 6th
edn) ANN{.N[N]}
Mandatory
50
-
Episode of care—mental health legal status, code N
Mandatory
1
Seq
No.
 New Data item
 Revised data item
8
Max
occurs
-
Episode of care—number of psychiatric care days, total
N[NNNN]
Mandatory
1
-
Episode of care—principal diagnosis, code (ICD-10-AM 6th
edn) ANN{.N[N]}
Mandatory
1
-
Episode of care—principal source of funding, hospital code NN
Mandatory
1
-
Establishment—Australian state/territory identifier, code N
Mandatory
1
-
Establishment—organisation identifier (state/territory),
NNNNN
Mandatory
1
-
Establishment—region identifier, X[X]
Mandatory
1
-
Establishment—sector, code N
Mandatory
1
-
Hospital service—care type, code N[N].N
Mandatory
1
-
Injury event—activity type, code (ICD-10-AM 6th edn)
ANNNN
Mandatory
50
-
Injury event—external cause, code (ICD-10-AM 6th edn)
ANN{.N[N]}
Mandatory
50
-
Injury event—place of occurrence, code (ICD-10-AM 6th edn)
ANN{.N[N]}
Mandatory
50
-
Patient—hospital insurance status, code N
Mandatory
1
-
Person—area of usual residence, geographical location code
(ASGC 2008) NNNNN
Mandatory
1
-
Person—country of birth, code (SACC 2008) NNNN
Mandatory
1
-
Person—date of birth, DDMMYYYY
Mandatory
1
-
Person—Indigenous status, code N
Mandatory
1
-
Person—person identifier, XXXXXX[X(14)]
Mandatory
1
-
Person—sex, code N
Mandatory
1
-
Person—weight (measured), total grams NNNN
Conditional
1
 New Data item
 Revised data item
9
Admitted patient mental health care NMDS 2009-2010 
Identifying and definitional attributes
Metadata item type:
Data Set Specification
METeOR identifier:
374207
Registration status:
Health, Standard 04/02/2009
DSS type:
National Minimum Data Set (NMDS)
Scope:
The scope of this minimum data set is restricted to admitted
patients receiving care in psychiatric hospitals or in designated
psychiatric units in acute hospitals. The scope does not
currently include patients who may be receiving treatment for
psychiatric conditions in acute hospitals who are not in
psychiatric units.
Collection and usage attributes
Statistical unit:
Episodes of care for admitted patients
Collection methods:
Data are collected at each hospital from patient administrative
and clinical record systems. Hospitals forward data to the
relevant state or territory health authority on a regular basis (for
example, monthly).
National reporting arrangements:
State and territory health authorities provide the data to the
Australian Institute of Health and Welfare for national
collation, on an annual basis.
Periods for which data are collected and nationally collated:
Financial years ending 30 June each year.
Implementation start date:
01/07/2009
Comments:
Number of days of hospital in the home care data will be
collected from all states and territories except Western Australia
from 1 July 2001. Western Australia will begin to collect data
from a later date.
Scope links with other NMDSs:
Episodes of care for admitted patients which occur partly or
fully in designated psychiatric units of public acute hospitals or
in public psychiatric hospitals:
 Admitted patient care NMDS
 Admitted patient palliative care NMDS
Glossary items:
Some previous Knowledgebase data element concepts are
available in the METeOR glossary. Currently the metadata
search in METeOR does not cover glossary items, however
these items are available through links in the relevant metadata
items. In addition links to the glossary terms that are relevant to
this National Minimum Data Set are included here:
Resident
Residential mental health care service
Same-day patients
Separation
 New Data item
 Revised data item
10
Source and reference attributes
Submitting organisation:
National Health Information Group
Relational attributes
Related metadata references:
Supersedes Admitted patient mental health care NMDS 20082009 Health, Superseded 04/02/2009
Metadata items in this Data Set Specification
Metadata item
Obligation
-
Episode of admitted patient care (mental health care)—referral
destination, code N
Mandatory
1
-
Episode of admitted patient care—admission date,
DDMMYYYY
Mandatory
1
-
Episode of admitted patient care—diagnosis related group,
code (AR-DRG v5.1) ANNA
Mandatory
1
-
Episode of admitted patient care—major diagnostic category,
code (AR-DRG v5.1) NN
Mandatory
1
-
Episode of admitted patient care—number of leave days, total
N[NN]
Mandatory
1
-
Episode of admitted patient care—referral source, public
psychiatric hospital code NN
Mandatory
1
-
Episode of admitted patient care—separation date,
DDMMYYYY
Mandatory
1
-
Episode of admitted patient care—separation mode, code N
Mandatory
1
-
Episode of care—additional diagnosis, code (ICD-10-AM 6th
edn) ANN{.N[N]}
Mandatory
1
-
Episode of care—mental health legal status, code N
Mandatory
1
-
Episode of care—number of psychiatric care days, total
N[NNNN]
Mandatory
1
-
Episode of care—principal diagnosis, code (ICD-10-AM 6th
edn) ANN{.N[N]}
Mandatory
1
-
Establishment—organisation identifier (Australian),
NNX[X]NNNNN
Mandatory
1
-
Hospital service—care type, code N[N].N
Mandatory
1
-
Patient—previous specialised treatment, code N
Mandatory
1
-
Person—accommodation type (prior to admission), code N
Mandatory
1
-
Person—accommodation type (usual), code N[N]
Mandatory
1
-
Person—area of usual residence, geographical location code
(ASGC 2008) NNNNN
Mandatory
1
-
Person—country of birth, code (SACC 2008) NNNN
Conditional
1
-
Person—date of birth, DDMMYYYY
Mandatory
1
-
Person—Indigenous status, code N
Mandatory
1
-
Person—labour force status, acute hospital and private
psychiatric hospital admission code N
Mandatory
1
-
Person—labour force status, public psychiatric hospital
admission code N
Mandatory
1
-
Person—marital status, code N
Conditional
1
Seq
No.
 New Data item
 Revised data item
11
Max
occurs
-
Person—person identifier, XXXXXX[X(14)]
Mandatory
1
-
Person—sex, code N
Mandatory
1
 New Data item
 Revised data item
12
Admitted patient palliative care NMDS 2009-10 
Identifying and definitional attributes
Metadata item type:
Data Set Specification
METeOR identifier:
374209
Registration status:
Health, Standard 04/02/2009
DSS type:
National Minimum Data Set (NMDS)
Scope:
The scope of this data set is admitted patients receiving
palliative care in all public and private acute hospitals, and free
standing day hospital facilities. Hospitals operated by the
Australian Defence Force, correctional authorities and
Australia's external territories are not currently included.
Palliative care patients are identified by the data element
Hospital service—care type, code N[N].N.
Collection and usage attributes
Statistical unit:
Episodes of care for admitted patients
Collection methods:
National reporting arrangements:
State and territory health authorities provide the data to the
Australian Institute of Health and Welfare for national
collation, on an annual basis.
Periods for which data collected and collated nationally:
Financial years ending 30 June each year.
Implementation start date:
01/07/2009
Comments:
Scope links with other NMDSs
Episodes of care for admitted patients receiving palliative care
in all public and private acute hospitals and free standing day
hospital facilities:
 Admitted patient care NMDS.
 Admitted patient mental health care NMDS.
Source and reference attributes
Submitting organisation:
National Health Information Group
Relational attributes
Related metadata references:
Supersedes Admitted patient palliative care NMDS 2008-09
Health, Superseded 04/02/2009
Metadata items in this Data Set Specification
Metadata item
Obligation
-
Episode of admitted patient care—number of days of hospitalin-the-home care, total {N[NN]}
Mandatory
1
-
Episode of admitted patient care—separation date,
DDMMYYYY
Mandatory
1
-
Episode of admitted patient care—separation mode, code N
Mandatory
1
-
Episode of care—additional diagnosis, code (ICD-10-AM 6th
edn) ANN{.N[N]}
Mandatory
1
-
Episode of care—principal diagnosis, code (ICD-10-AM 6th
Conditional
1
Seq
No.
 New Data item
 Revised data item
13
Max
occurs
edn) ANN{.N[N]}
-
Episode of care—principal source of funding, hospital code NN
Mandatory
1
-
Establishment—organisation identifier (Australian),
NNX[X]NNNNN
Mandatory
1
-
Hospital service—care type, code N[N].N
Mandatory
1
-
Patient—previous specialised treatment, code N
Mandatory
1
-
Person—area of usual residence, geographical location code
(ASGC 2008) NNNNN
Mandatory
1
-
Person—country of birth, code (SACC 2008) NNNN
Mandatory
1
-
Person—date of birth, DDMMYYYY
Conditional
1
-
Person—Indigenous status, code N
Mandatory
1
-
Person—person identifier, XXXXXX[X(14)]
Conditional
1
-
Person—sex, code N
Mandatory
1
-
Episode of admitted patient care—admission date,
DDMMYYYY
Mandatory
1
-
Episode of admitted patient care—admission mode, code N
Mandatory
1
 New Data item
 Revised data item
14
Community mental health care NMDS 2009-2010 
Identifying and definitional attributes
Metadata item type:
Data Set Specification
METeOR identifier:
374216
Registration status:
Health, Standard 04/02/2009
DSS type:
National Minimum Data Set (NMDS)
Scope:
This NMDS includes data about service contacts provided by
specialised mental health services for patients/clients, other
than those admitted to psychiatric hospitals or designated
psychiatric units in acute care hospitals, and those resident in 24
hour staffed specialised residential mental health services.
Collection and usage attributes
Statistical unit:
Mental health service contact
Implementation start date:
01/07/2009
Relational attributes
Related metadata references:
Supersedes Community mental health care NMDS 2008-2009
Health, Superseded 04/02/2009
Metadata items in this Data Set Specification
Metadata item
Obligation
-
Episode of care—mental health legal status, code N
Mandatory
1
-
Episode of care—principal diagnosis, code (ICD-10-AM 6th
edn) ANN{.N[N]}
Mandatory
1
-
Establishment—Australian state/territory identifier, code N
Mandatory
1
-
Establishment—organisation identifier (Australian),
NNX[X]NNNNN
Mandatory
1
-
Establishment—organisation identifier (state/territory),
NNNNN
Mandatory
1
-
Establishment—region identifier, X[X]
Mandatory
1
-
Establishment—sector, code N
Mandatory
1
-
Mental health service contact—patient/client participation
indicator, yes/no code N
Mandatory
1
-
Mental health service contact—service contact date,
DDMMYYYY
Mandatory
1
-
Mental health service contact—service contact duration, total
minutes NNN
Mandatory
1
-
Mental health service contact—session type, code N
Mandatory
1
-
Person—area of usual residence, geographical location code
(ASGC 2008) NNNNN
Mandatory
1
-
Person—country of birth, code (SACC 2008) NNNN
Conditional
1
-
Person—date of birth, DDMMYYYY
Mandatory
1
-
Person—Indigenous status, code N
Mandatory
1
-
Person—marital status, code N
Mandatory
1
Seq
No.
 New Data item
 Revised data item
15
Max
occurs
-
Person—person identifier, XXXXXX[X(14)]
Mandatory
1
-
Person—sex, code N
Mandatory
1
 New Data item
 Revised data item
16
Government health expenditure NMDS 2009-2010 
Identifying and definitional attributes
Metadata item type:
Data Set Specification
METeOR identifier:
376403
Registration status:
Health, Standard 01/04/2009
DSS type:
National Minimum Data Set (NMDS)
Scope:
The scope of this dataset is direct government and governmentfunded expenditure on health and health–related goods and
services.
The purpose of this NMDS is to provide an enhanced
understanding of the overall financial resources (recurrent and
capital) used by the health system, and of unit costs and
performance; to enable greater comparability of health
expenditure data between jurisdictions and over time; and to
provide a more efficient compilation of national reports and
analyses on government funded health expenditure.
Collection and usage attributes
Statistical unit:
Providers of health or health related goods and services or nonhealth services that support the health services industry; health
or health related functions; and the sources of funds for these
providers or functions.
Guide for use:
The GHE NMDS consists of five mandatory data clusters and
one conditional data cluster.
The first two data elements named in each data cluster form
one of the two axes of a matrix that combine to provide all data
in Australian dollars.
Data are to be reported in Australian dollars except when
reporting the State/Territory identifier of the Jurisdiction.
Collection methods:
Data are collected by a number of providers from their
administrative systems and forwarded to the relevant state or
territory health authority on a regular basis (for example,
monthly).
Hospitals forward data obtained from patient administrative
and clinical record systems to the relevant state or territory
health authority on a regular basis (for example, monthly).
Other data are obtained either directly from annual reports or
through surveys.
National reporting arrangements:
State and Territory health authorities provide the data to the
Australian Institute of Health and Welfare for national
collation, on an annual basis.
Periods for which data are collected and nationally collated:
Financial years ending 30 June each year.
Implementation start date:
01/07/2009
Comments:
Scope links with other NMDSs:
 National Public Hospital Establishments NMDS
 Mental Health Establishments NMDS
Source and reference attributes
 New Data item
 Revised data item
17
Submitting organisation:
Health Expenditure Advisory Committee
Relational attributes
Related metadata references:
Supersedes Government health expenditure NMDS 2008-2009
Health, Superseded 03/12/2008
Metadata items in this Data Set Specification
Metadata item
Obligation
1
Government health expenditure organisation revenue data
element cluster
Mandatory
1
2
Government health expenditure organisation expenditure data
element cluster
Mandatory
1
3
Government health expenditure organisation expenditure
purchase of goods and services data element cluster
Mandatory
1
4
Government health expenditure organisation expenditure
employee related data element cluster
Mandatory
1
5
Government health expenditure organisation expenditure
capital consumption data element cluster
Mandatory
1
6
Government health expenditure function revenue data element
cluster
Conditional
1
7
Jurisdiction—Australian state/territory identifier, code N
Mandatory
1
Seq
No.
 New Data item
 Revised data item
18
Max
occurs
Residential mental health care NMDS 2009-2010 
Identifying and definitional attributes
Metadata item type:
Data Set Specification
METeOR identifier:
374223
Registration status:
Health, Standard 04/02/2009
DSS type:
National Minimum Data Set (NMDS)
Scope:
Episodes of residential care for residents in all governmentfunded residential mental health care services in Australia,
except those residential care services that are in receipt of
funding under the Aged Care Act and subject to
Commonwealth reporting requirements (i.e. report to the
System for the payment of Aged Residential Care (SPARC)
collection).
Collection and usage attributes
Statistical unit:
Episodes of residential care:
Statistical units are entities from or about which statistics are
collected, or in respect of which statistics are compiled,
tabulated or published.
Collection methods:
Data are collected at each service from resident administrative
and care related record systems. Services forward data to the
relevant state or territory health authority on a regular basis
(e.g. monthly).
National reporting arrangements:
State and territory health authorities provide the data to the
Australian Institute of Health and Welfare for national
collection, on an annual basis.
Western Australia will be able to only collect data for 2004-05
for those data elements that were included in the National
Health Data Dictionary version 12.
Government-operated services that employ mental health
trained staff on-site 24 hours per day are to be included from 1
July 2004.
Government-funded, non-government operated services and
non 24-hour staffed services can be included from 1 July 2004,
optionally.
For non 24-hour staffed services to be included they must
employ mental health-trained staff on-site at least 50 hours per
week with at least 6 hours staffing on any single day.
Periods for which data are collected and nationally collated:
Financial years ending 30 June each year. The reference period
starts on 1 July and ends on 30 June each year.
Implementation start date:
01/07/2009
Comments:
Some admitted patient care services may meet the definition of
a residential mental health service. However, as they are
admitted patient care services, relevant data on their patients
are reported to the National Minimum Data Set for Admitted
Patient Care.
Glossary items:
Some previous Knowledgebase data element concepts are
 New Data item
 Revised data item
19
available in the METeOR glossary. Currently the metadata
search in METeOR does not cover glossary items however these
items are available through links in the relevant metadata
items. In addition links to the glossary terms that are relevant to
this National minimum data set are included here:
Episode of residential care end
Episode of residential care start
Resident
Residential mental health care service
Relational attributes
Related metadata references:
Supersedes Residential mental health care NMDS 2008-2009
Health, Superseded 04/02/2009
Metadata items in this Data Set Specification
Metadata item
Obligation
-
Episode of care—additional diagnosis, code (ICD-10-AM 6th
edn) ANN{.N[N]}
Mandatory
1
-
Episode of care—mental health legal status, code N
Mandatory
1
-
Episode of care—principal diagnosis, code (ICD-10-AM 6th
edn) ANN{.N[N]}
Mandatory
1
-
Episode of residential care—episode end date, DDMMYYYY
Mandatory
1
-
Episode of residential care—episode end mode, code N
Mandatory
1
-
Episode of residential care—episode start date, DDMMYYYY
Mandatory
1
-
Episode of residential care—episode start mode, code N
Mandatory
1
-
Episode of residential care—number of leave days, total
N[NN]
Mandatory
1
-
Episode of residential care—referral destination (mental health
care), code N
Mandatory
1
-
Establishment—Australian state/territory identifier, code N
Mandatory
1
-
Establishment—organisation identifier (Australian),
NNX[X]NNNNN
Mandatory
1
-
Establishment—organisation identifier (state/territory),
NNNNN
Mandatory
1
-
Establishment—region identifier, X[X]
Mandatory
1
-
Establishment—sector, code N
Mandatory
1
-
Person—area of usual residence, geographical location code
(ASGC 2008) NNNNN
Mandatory
1
-
Person—country of birth, code (SACC 2008) NNNN
Conditional
1
-
Person—date of birth, DDMMYYYY
Mandatory
1
-
Person—Indigenous status, code N
Mandatory
1
-
Person—marital status, code N
Mandatory
1
-
Person—person identifier, XXXXXX[X(14)]
Mandatory
1
-
Person—sex, code N
Mandatory
1
-
Residential stay—episode start date, DDMMYYYY
Mandatory
1
Seq
No.
 New Data item
 Revised data item
20
Max
occurs
Data set specifications
 New Data item
 Revised data item
21
Breast cancer (Cancer registries) DSS 
Identifying and definitional attributes
Metadata item type:
Data Set Specification
METeOR identifier:
370008
Registration status:
Health, Standard 06/03/2009
DSS type:
Data Set Specification (DSS)
Scope:
This breast cancer data set is not mandated for collection but is
recommended as best practice if breast cancer data are to be
collected.
The data set would allow common, consistent and high quality
breast cancer data to be collected by State and Territory cancer
registries and collated nationally.
This data will help inform research, policy, planning and guideline
development work in the breast cancer area.
Breast cancer may be used as a forerunner for other cancers in
terms of establishing common data collections across cancer
registries.
This data set includes 20 items, with the inclusion of five new
standards and the addition of further detail to several existing
standards.
Collection and usage attributes
Guide for use:
Report each of the data elements in this data set once, and in no
particular order.
Collection methods:
State and Territory cancer registries collect data on incidence and
annually report data to the Australian Institute of Health and
Welfare.
Source and reference attributes
Submitting organisation:
National Breast and Ovarian Cancer centre (NBOCC)
Australasian Association of Cancer Registries (AACR)
Australian Institute of Health and Welfare (AIHW)
Steward:
Australasian Association of Cancer Registries (AACR)
Origin:
National Breast and Ovarian Cancer centre (NBOCC)
Australasian Association of Cancer Registries (AACR)
Australian Institute of Health and Welfare (AIHW)
Reference documents:
Johnson CH, Adamo M (eds.), SEER Program Coding and Staging
Manual 2007. National Cancer Institute, NIH Publication number
07-5581, Bethesda, MD 2007.
Metadata items in this Data Set Specification
Metadata item
Obligation
-
Patient—diagnosis date (cancer), DDMMYYYY
Mandatory
1
-
Person with cancer—distant metastasis status, M stage (UICC
TNM Classification of Malignant Tumours, 6th ed) code XX
Mandatory
1
-
Person with cancer—extent of primary cancer, TNM stage (UICC
TNM Classification of Malignant Tumours, 6th ed) code
XXXX{[X]XX}
Mandatory
1
Seq
No.
 New Data item
 Revised data item
22
Max
occurs
-
Person with cancer—histopathological grade, code N
Mandatory
1
-
Person with cancer—human epidermal growth factor receptor-2
test result, code N
Mandatory
1
-
Person with cancer—human epidermal growth factor receptor-2
test type, code N
Conditional
0
-
Person with cancer—laterality of primary cancer, code [N]
Mandatory
1
-
Person with cancer—lymphovascular invasion, code N
Mandatory
1
-
Person with cancer—morphology of cancer, code (ICDO-3)
NNNN/N
Mandatory
1
-
Person with cancer—most valid basis of diagnosis of a cancer,
code N
Mandatory
1
-
Person with cancer—neoadjuvant therapy indicator, code N
Mandatory
1
-
Person with cancer—number of positive regional lymph nodes,
total N[N]
Mandatory
1
-
Person with cancer—number of positive sentinel lymph nodes,
total code N[N]
Mandatory
1
-
Person with cancer—number of regional lymph nodes examined,
total code N[N]
Mandatory
1
-
Person with cancer—number of sentinel lymph nodes examined,
total code N[N]
Mandatory
1
-
Person with cancer—oestrogen receptor assay result, code N
Mandatory
1
-
Person with cancer—primary site of cancer, code (ICDO-3)
ANN{.N[N]}
Mandatory
1
-
Person with cancer—primary tumour status, T stage (UICC TNM
Classification of Malignant Tumours, 6th ed) code XX[X]
Mandatory
1
-
Person with cancer—regional lymph node metastasis status, N
stage (UICC TNM Classification of Malignant Tumours, 6th ed)
code XX
Mandatory
1
-
Person with cancer—solid tumour size (at diagnosis), total
millimetres NNN
Mandatory
1
 New Data item
 Revised data item
23
Cancer (clinical) DSS 
Identifying and definitional attributes
Metadata item type:
Data Set Specification
METeOR identifier:
342187
Registration status:
Health, Standard 06/03/2009
DSS type:
Data Set Specification (DSS)
Scope:
This Cancer (clinical) data set specification is not mandated for
collection but is recommended as best practice if cancer clinical
data are to be collected.
The Cancer (clinical) data set underpins the evaluation of cancer
treatment services and this can occur at a number of levels; the
individual clinician, the health care institution, at state or
territory level and ultimately at a national level.
Clinicians use such data for ongoing patient management and
the ability to link patient management to outcomes allows
treatments or outcomes to be identified and assessed.
Institutions can monitor through-put in their centres for
planning and resource allocation purposes to obtain optimum
return for cancer expenditure. End-points can be monitored to
ensure that objectives are being met.
The principal aim of good quality and consistent data is to
provide information that can lead to improved quality and
length of life for all patients by providing a systematic
foundation for evidence-based medicine, informing quality
assurance and improvement decisions and guiding successful
planning and evaluation of cancer control activities.
Collection and usage attributes
Collection methods:
This data set is primarily concerned with the clinical use of
cancer data. It can also be used by a wider range of health and
health-related establishments that create, use, or maintain
records on health-care clients.
Source and reference attributes
Submitting organisation:
National Cancer Control Initiative (NCCI)
Relational attributes
Related metadata references:
Supersedes Cancer (clinical) DSS Health, Superseded
06/03/2009
Metadata items in this Data Set Specification
Metadata item
Obligation
-
Cancer staging—cancer staging scheme source edition number,
code N[N]
Mandatory
1
-
Cancer staging—cancer staging scheme source, code N
Mandatory
1
-
Cancer staging—staging basis of cancer, code A
Mandatory
1
-
Cancer treatment—cancer treatment type, code N
Mandatory
1
-
Cancer treatment—intention of treatment, code N
Mandatory
1
Seq
No.
 New Data item
 Revised data item
24
Max
occurs
-
Cancer treatment—non-surgical cancer treatment completion
date, DDMMYYYY
Mandatory
1
-
Cancer treatment—non-surgical cancer treatment start date,
DDMMYYYY
Mandatory
1
-
Cancer treatment—outcome of treatment, code N.N
Mandatory
1
-
Cancer treatment—radiation dose received, total Gray N[NNNN]
Mandatory
1
-
Cancer treatment—radiotherapy treatment type, code N
Mandatory
1
-
Cancer treatment—surgical procedure date, DDMMYYYY
Mandatory
1
-
Cancer treatment—surgical procedure for cancer, procedure code
(ACHI 6th edn) NNNNN-NN
Mandatory
1
-
Cancer treatment—systemic therapy agent name (primary
cancer), antineoplastic drug code (Self-Instructional Manual for
Tumour Registrars Book 8 3rd edn) X[X(39)]
Mandatory
1
-
Cancer treatment—target site for cancer treatment, code (ICD-10AM 6th edn) ANN{.N[N]}
Mandatory
1
-
Cancer treatment—target site for cancer treatment, code (ICDO-3)
ANN
Mandatory
1
-
Establishment—organisation identifier (state/territory), NNNNN
Mandatory
1
-
Patient—diagnosis date (cancer), DDMMYYYY
Mandatory
1
-
Patient—diagnosis date (first recurrence of cancer), DDMMYYYY
Mandatory
1
-
Person (address)—address line, text [X(180)]
Mandatory
1
-
Person (name)—family name, text X[X(39)]
Mandatory
1
-
Person (name)—given name, text [X(40)]
Mandatory
1
-
Person with cancer—distant metastasis status, M stage (UICC
TNM Classification of Malignant Tumours, 6th ed) code XX
Mandatory
1
-
Person with cancer—extent of primary cancer, TNM stage (UICC
TNM Classification of Malignant Tumours, 6th ed) code
XXXX{[X]XX}
Conditional
1
-
Person with cancer—histopathological grade, code N
Conditional
1
-
Person with cancer—laterality of primary cancer, code [N]
Mandatory
1
-
Person with cancer—melanoma thickness (at diagnosis), total
millimetres NNN.NN
Conditional
1
-
Person with cancer—morphology of cancer, code (ICDO-3)
NNNN/N
Mandatory
1
-
Person with cancer—most valid basis of diagnosis of a cancer,
code N
Conditional
1
-
Person with cancer—number of positive regional lymph nodes,
total N[N]
Conditional
1
-
Person with cancer—number of regional lymph nodes examined,
total code N[N]
Conditional
1
-
Person with cancer—oestrogen receptor assay results, code N
Mandatory
1
-
Person with cancer—primary site of cancer, code (ICD-10-AM 6th
edn) ANN{.N[N]}
Mandatory
1
-
Person with cancer—primary site of cancer, code (ICDO-3)
ANN{.N[N]}
Mandatory
1
-
Person with cancer—primary tumour status, T stage (UICC TNM
Classification of Malignant Tumours, 6th ed) code XX[X]
Conditional
1
-
Person with cancer—progesterone receptor assay results, code N
Mandatory
1
 New Data item
 Revised data item
25
-
Person with cancer—region of first recurrence of cancer, code N
Conditional
1
-
Person with cancer—regional lymph node metastasis status, N
stage (UICC TNM Classification of Malignant Tumours, 6th ed)
code XX
Conditional
1
-
Person with cancer—solid tumour size (at diagnosis), total
millimetres NNN
Mandatory
1
-
Person—date of birth, DDMMYYYY
Conditional
1
-
Person—date of death, DDMMYYYY
Mandatory
1
-
Person—government funding identifier, Medicare card number
N(11)
Mandatory
1
-
Person—person identifier, XXXXXX[X(14)]
Mandatory
1
-
Person—sex, code N
Mandatory
1
 New Data item
 Revised data item
26
Data element clusters
 New Data item
 Revised data item
27
Government health expenditure organisation expenditure
capital consumption data element cluster 
Identifying and definitional attributes
Metadata item type:
Data Set Specification
METeOR identifier:
376401
Registration status:
Health, Standard 01/04/2009
DSS type:
Data Set Specification (DSS)
Scope:
The scope of this data cluster is direct government and
government-funded expenditure by a health industry relevant
organisation consisting of consumption of fixed capital
(depreciation). These are all either health and health–related
goods and services or non-health care goods and services to
support the health industry relevant organisation’s activities.
Collection and usage attributes
Guide for use:
Expenses are to be reported in millions to the nearest 100,000
e.g. $4.1 million.
Collection methods:
This data is collected according to the organisation's main
activity types and type of health or health related function
relevant to each State and Territory. This is supplied by the
Government Health Expenditure and specified in the reporting
guidelines as provided by the Australian Institute of Health and
Welfare.
Relational attributes
Related metadata references:
Supersedes Government health expenditure organisation
expenditure capital consumption data element cluster Health,
Superseded 01/04/2009
Implementation in Data Set
Specification:
Government health expenditure NMDS 2009-2010 Health,
Standard 01/04/2009
Implementation start date: 01/07/2009
Metadata items in this Data Set Specification
Metadata item
Obligation
1
Health industry relevant organisation—main activity type,
code NNN
Conditional
1
2
Organisation—type of health or health related function, code
NNN
Conditional
1
3
Organisation—capital consumption expenses, total Australian
currency NNNNN.N
Conditional
1
Seq
No.
 New Data item
 Revised data item
28
Max
occurs
Government health expenditure organisation expenditure
data element cluster 
Identifying and definitional attributes
Metadata item type:
Data Set Specification
METeOR identifier:
376888
Registration status:
Health, Standard 01/04/2009
DSS type:
Data Set Specification (DSS)
Scope:
The scope of this data cluster is direct government and
government-funded expenditure by a health industry relevant
organisation consisting mainly of wages, salaries and
supplements, superannuation employer contributions, workers
compensation premiums and payouts, purchases of goods and
services and consumption of fixed capital (depreciation). These
are all either health and health–related goods and services or
non-health care goods and services to support the health
industry relevant organisation’s activities.
Collection and usage attributes
Guide for use:
Expenses are to be reported in millions to the nearest 100,000
e.g. $4.1 million.
Collection methods:
This data is collected according to the organisation's main
activity types and type of health or health related function
relevant to each State and Territory. This is supplied by the
Government Health Expenditure and specified in the reporting
guidelines as provided by the Australian Institute of Health and
Welfare.
Relational attributes
Related metadata references:
Supersedes Government health expenditure organisation
expenditure data element cluster Health, Superseded
01/04/2009
Implementation in Data Set
Specification:
Government health expenditure NMDS 2009-2010 Health,
Standard 01/04/2009
Implementation start date: 01/07/2009
Metadata items in this Data Set Specification
Metadata item
Obligation
1
Health industry relevant organisation—main activity type,
code NNN
Mandatory
1
2
Organisation—type of health or health related function, code
NNN
Mandatory
1
3
Organisation—expenses, total Australian currency NNNNN.N
Mandatory
1
4
Organisation—capital consumption expenses, total Australian
currency NNNNN.N
Mandatory
1
5
Organisation—employee related expenses, total Australian
currency NNNNN.N
Mandatory
1
6
Organisation—purchase of goods and services, total Australian
currency NNNNN.N
Mandatory
1
Seq
No.
 New Data item
 Revised data item
29
Max
occurs
Government health expenditure organisation expenditure
employee related data element cluster 
Identifying and definitional attributes
Metadata item type:
Data Set Specification
METeOR identifier:
376897
Registration status:
Health, Standard 01/04/2009
DSS type:
Data Set Specification (DSS)
Scope:
The scope of this data cluster is direct government and
government-funded expenditure by a health industry relevant
organisation consisting mainly of wages, salaries and
supplements, superannuation employer contributions, and
workers compensation premiums and payouts. These are all
either health and health–related goods and services or nonhealth care goods and services to support the health industry
relevant organisation’s activities.
Collection and usage attributes
Guide for use:
Expenses are to be reported in millions to the nearest 100,000
e.g. $4.1 million.
Collection methods:
This data is collected according to the organisation's main
activity types and type of health or health related function
relevant to each State and Territory. This is supplied by the
Government Health Expenditure and specified in the reporting
guidelines as provided by the Australian Institute of Health and
Welfare.
Relational attributes
Related metadata references:
Supersedes Government health expenditure organisation
expenditure employee related data element cluster Health,
Superseded 01/04/2009
Implementation in Data Set
Specification:
Government health expenditure NMDS 2009-2010 Health,
Standard 01/04/2009
Implementation start date: 01/07/2009
Metadata items in this Data Set Specification
Metadata item
Obligation
1
Health industry relevant organisation—main activity type,
code NNN
Conditional
1
2
Organisation—type of health or health related function, code
NNN
Conditional
1
3
Organisation—employee related expenses, total Australian
currency NNNNN.N
Mandatory
1
Seq
No.
 New Data item
 Revised data item
30
Max
occurs
Government health expenditure organisation expenditure
purchase of goods and services data element cluster 
Identifying and definitional attributes
Metadata item type:
Data Set Specification
METeOR identifier:
376891
Registration status:
Health, Standard 01/04/2009
DSS type:
Data Set Specification (DSS)
Scope:
The scope of this data cluster is direct government and
government-funded expenditure by a health industry relevant
organisation consisting mainly of purchases of goods and
services. These are all either health and health–related goods
and services or non-health care goods and services to support
the health industry relevant organisation’s activities.
Collection and usage attributes
Guide for use:
Expenses are to be reported in millions to the nearest 100,000
e.g. $4.1 million.
Collection methods:
This data is collected according to the organisation's main
activity types and type of health or health related function
relevant to each State and Territory. This is supplied by the
Government Health Expenditure and specified in the reporting
guidelines as provided by the Australian Institute of Health and
Welfare.
Relational attributes
Related metadata references:
Supersedes Government health expenditure organisation
expenditure purchase of goods and services data element
cluster Health, Superseded 01/04/2009
Implementation in Data Set
Specification:
Government health expenditure NMDS 2009-2010 Health,
Standard 01/04/2009
Implementation start date: 01/07/2009
Metadata items in this Data Set Specification
Metadata item
Obligation
1
Health industry relevant organisation—main activity type,
code NNN
Conditional
1
2
Organisation—type of health or health related function, code
NNN
Conditional
1
3
Organisation—purchase of goods and services, total
Australian currency NNNNN.N
Mandatory
1
Seq
No.
 New Data item
 Revised data item
31
Max
occurs
Government health expenditure organisation revenue
data element cluster 
Identifying and definitional attributes
Metadata item type:
Data Set Specification
METeOR identifier:
376884
Registration status:
Health, Standard 01/04/2009
DSS type:
Data Set Specification (DSS)
Scope:
The scope of this data cluster is revenue relating to direct
government and government-funded expenditure by a health
industry relevant organisation.
Collection and usage attributes
Guide for use:
Revenues are to be reported in millions to the nearest 100,000
e.g. $4.1 million.
Collection methods:
This data is collected according to the organisation's source of
revenue and main activity types relevant to each State and
Territory. This is supplied by the Government Health
Expenditure and specified in the reporting guidelines as
provided by the Australian Institute of Health and Welfare.
Source and reference attributes
Submitting organisation:
Health Expenditure Advisory Committee
Relational attributes
Related metadata references:
Supersedes Government health expenditure organisation
revenue data element cluster Health, Superseded 01/04/2009
Implementation in Data Set
Specification:
Government health expenditure NMDS 2009-2010 Health,
Standard 01/04/2009
Implementation start date: 01/07/2009
Metadata items in this Data Set Specification
Metadata item
Obligation
1
Health industry relevant organisation—main activity type,
code NNN
Mandatory
1
2
Health industry relevant organisation—source of revenue,
public and private code NNN
Mandatory
1
3
Organisation—revenue, total Australian currency NNNNN.N
Conditional
99
Seq
No.
 New Data item
 Revised data item
32
Max
occurs
Data elements
 New Data item
 Revised data item
33
Establishment—geographical location, code (ASGC 2008)
NNNNN 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Geographical location of establishment
METeOR identifier:
374922
Registration status:
Health, Standard 04/02/2009
Definition:
The geographical location of the main administrative centre of
an establishment, as represented by a code.
Data Element Concept:
Establishment—geographic location
Value domain attributes
Representational attributes
Classification scheme:
Australian Standard Geographical Classification 2008
Representation class:
Code
Data type:
Number
Format:
NNNNN
Maximum character length:
5
Data element attributes
Collection and usage attributes
Guide for use:
The geographical location is reported using a five-digit
numerical code to indicate the Statistical Local Area (SLA)
within the reporting state or territory, as defined in the
Australian Standard Geographical Classification (ASGC)
(Australian Bureau of Statistics (ABS), catalogue number
1216.0). It is a composite of State identifier and SLA (first digit =
State identifier, next four digits = SLA).
The Australian Standard Geographical Classification (ASGC) is
updated on an annual basis with a date of effect of 1 July each
year.
The Australian Bureau of Statistics National Localities Index
(NLI) can be used to assign each locality or address in Australia
to an SLA. The NLI is a comprehensive list of localities in
Australia with their full code (including SLA) from the main
structure of the ASGC. For the majority of localities, the locality
name (suburb or town, for example) is sufficient to assign an
SLA. However, some localities have the same name. For most of
these, limited additional information such as the postcode or
state can be used with the locality name to assign the SLA.
In addition, other localities cross one or more SLA boundaries
and are referred to as split localities. For these, the more
detailed information of the number and street of the
establishment is used with the Streets Sub-index of the NLI to
assign the SLA.
Source and reference attributes
 New Data item
 Revised data item
34
Origin:
Australian Standard Geographical Classification (Australian
Bureau of Statistics Catalogue No. 1216.0)
Relational attributes
Related metadata references:
Is formed using Establishment—Australian state/territory
identifier, code N Health, Standard 01/03/2005
Supersedes Establishment—geographical location, code (ASGC
2007) NNNNN Health, Superseded 04/02/2009
Implementation in Data Set
Specifications:
Mental health establishments NMDS 2009-2010 Health,
Standard 03/12/2008
Implementation start date: 01/07/2009
Mental health establishments NMDS 2009-2010 No registration
status
Implementation start date: 01/07/2009
Mental health establishments NMDS 2010-2011 Health,
Standardisation pending 21/05/2009
Implementation start date: 01/07/2010
Information specific to this data set:
For the Mental health establishments National Minimum
Data Set reporting of this data element is mandatory for
non-government residential mental health services and
specialised mental health services provided by private
hospitals that receive state or territory government
funding.
Public hospital establishments NMDS 2009-2010 Health,
Standard 03/12/2008
Implementation start date: 01/07/2009
 New Data item
 Revised data item
35
Health industry relevant organisation—main activity type,
code NNN 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Health industry relevant organisation type
METeOR identifier:
372264
Registration status:
Health, Standard 01/04/2009
Definition:
Describes a health industry relevant organisation based on its
main activity, as represented by a code.
Data Element Concept:
Health industry relevant organisation—main activity type
Value domain attributes
Representational attributes
Representation class:
Code
Data type:
Number
Format:
NNN
Maximum character length:
3
Permissible values:
Value
Meaning
Main Health Care Services organisation
 New Data item
101
Hospital – public
102
Hospital – private (excluding private freestanding day hospital facility)
103
Hospital – private free-standing day hospital
facility (excluding private non free-standing
day hospital facility)
104
Residential facility – mental health care
105
Residential facility – other
106
Provider of ambulance service
107
Medical and diagnostic laboratory
108
Clinical practices – medical – general
109
Clinical practices – medical – specialist
110
Clinical practices – medical – other
111
Clinical practices – dental
112
Clinical practices – other
113
Community health facility – substance abuse
114
Community health facility – mental
115
Community health facility – other
116
Blood and organ bank
117
Retail sale/supplier of medical goods – optical
glasses and other vision products
118
Retail sale/supplier of medical goods – hearing
aids
119
Retail sale/supplier of medical goods –
 Revised data item
36
dispensing community pharmacist
120
Retail sale/supplier of medical goods – other
121
Public health program service provider
122
General health administration service provider
123
Private health insurance
188
Other Main Health Care Service providers
198
Regional health service not further defined
199
State/territory health authority not further
defined
Secondary/non-Health Care Services
organisation
201
Pharmaceutical industry
202
University
203
Non-health related insurance
204
Residential aged care facility
288
Other Secondary/non-Health Care Services
organisation
Collection and usage attributes
Guide for use:
 New Data item
Main Health Care Service organisation:
CODE 101 Hospital – public
An organisation comprised of a health care facility or group of
health care facilities established under Commonwealth, state or
territory legislation as a hospital or free-standing day hospital
facility and authorised to provide treatment and/or care to
patients. Comprises all health care facilities that are reported as
public hospitals to the Public Hospital Establishments National
Minimum Data Set (PHE NMDS). This includes organisations
such as rehabilitation hospitals, psychiatric hospitals,
mothercraft hospitals, and hospices and multi-purpose services
defined as hospitals. The list of public hospitals reported to the
PHE NMDS is available at
www.aihw.gov.au/publications/index.cfm in the Australian
Hospital Statistics annual report.
NOTE 1: Excludes providers of services where those services
are not captured in the hospital financial statements. For
example, the provider of a pathology or pharmacy service may
be co-located within the hospital, but as a private service, and
will pay the hospital for use of the site. The provider of this
pathology or pharmacy service would be recorded under codes
106 to 112.
CODE 102 Hospital – private (excluding private free-standing
day hospital facilities)
An organisation comprised of a health care facility or a group of
health care facilities established under Commonwealth, state or
territory legislation as a hospital and authorised to provide
treatment and/or care to patients.
Comprises hospitals that are NOT reporting to the PHE NMDS.
NOTE: State and territory data providers are to refer to the
Government Health Expenditure NMDS Collection Guidelines
for instructions on how to report expenditure for this category.
Excludes private free-standing day hospital facilities reported
 Revised data item
37
under code 103.
CODE 103 Hospital - private free-standing day facility
(excluding private non free-standing day hospital facilities)
An organisation comprised of one or more private free-standing
day hospital facilities which provide investigation and
treatment for acute conditions on a day-only basis and is
approved by the Commonwealth as a hospital for the purposes
of private health insurance benefits. The four main types of
private free-standing day hospitals are specialist endoscopy,
ophthalmic, plastic/cosmetic and general. Excludes private non
free-standing day hospital facilities reported under code 102.
CODE 104 Residential facility – mental health care
An organisation comprised of one or more specialised mental
health facilities primarily engaged in providing residential care
to persons requiring mental health diagnosis and treatment
combined with either nursing, supervisory or other types of
care as required (including medical) by the residents.
Excludes residential care facilities primarily providing aged
care or care for persons requiring treatment for alcohol or other
substance abuse or persons with a disability.
CODE 105 Residential facility – other
Includes all government-funded facilities primarily engaged in
providing residential care to persons requiring diagnosis and
treatment for alcohol and other substance abuse combined with
either nursing, supervisory or other types of care as required
(including medical) by the residents. Includes hospices that are
not defined as hospitals and respite and transitional care
services.
Excludes facilities primarily providing services to aged persons
or persons requiring mental health diagnosis and treatment.
Also excludes residential care facilities that report under the
Commonwealth, State and Territory Disability Agreement
where the primary purpose is care for persons with a disability.
CODE 106 Provider of ambulance service
Organisations primarily engaged in providing transportation of
patients by ground or air, along with health (or medical) care.
These services are often provided during a medical emergency
but are not restricted to emergencies. The vehicles are equipped
with lifesaving equipment operated by medically trained
personnel. Includes organisations providing public ambulance
services or flying doctor services such as Royal Flying Doctor
Service and Care Flight, and support programs to assist isolated
patients with travel to obtain specialised health care.
NOTE 2: Excludes providers of services where those services
are captured in public or private hospital financial statements.
For example, the provider of an ambulance, medical or
diagnostic laboratory, general practice, specialist medical,
dental or other health practitioner service may be located
within a hospital set of accounts and its expenditure recorded
on the hospital financial statement. The provider of the
ambulance or other service would then be recorded under code
101.
CODE 107 Medical and diagnostic laboratory
This item is not currently required to be reported by state and
territory health authorities.
 New Data item
 Revised data item
38
Organisations primarily engaged in providing analytic or
diagnostic services, including body fluid analysis and
diagnostic imaging, generally to the medical profession or the
patient on referral from a health practitioner. Includes
diagnostic imaging centres, dental or medical X-ray laboratories
ultrasound services, medical testing laboratories, medical
pathology laboratories, medical forensic laboratories, and X-ray
clinic services. Includes public and private medical and
diagnostic laboratories.
See NOTE 2 under code 106.
CODE 108 Clinical practices – medical – general
Organisations of registered medical practitioners holding the
degree of a Doctor of medicine or a qualification at a
corresponding level primarily engaged in the independent
practice of general medicine. These practitioners operate private
or group practices in their own offices (e.g., centres, clinics) or
in the facilities of others, such as hospitals or medical centres.
See NOTE 2 under code 106.
This item is not currently required to be reported by state and
territory health authorities.
CODE 109 Clinical practices – medical – specialist
This item is not currently required to be reported by state and
territory health authorities.
Organisations of health practitioners holding the degree of a
Doctor of medicine or a qualification at a corresponding level
primarily engaged in the independent practice of specialist
medicine or surgery, other than pathology and diagnostic
imaging services. These practitioners operate a wide range of
specialities in private or group practices in their own offices
(e.g., centres, clinics) or in the facilities of others, such as
hospitals or health maintenance type medical centres. Includes
for example:
 Anaesthetist service
 Dermatology service
 Ear, nose and throat specialist service
 Gynaecology service
 Neurology service
 Obstetrics service
 Paediatric service
 Psychiatry service
 Specialist medical clinic service

Specialist surgical service
See NOTE 2 under code 106.
CODE 110 Clinical practices – medical – other
This item is not currently required to be reported by state and
territory health authorities.
Includes organisations of physicians not able to be allocated to
Codes 108 or 109.
CODE 111 Clinical practices – dental
Organisations of registered health practitioners holding the
degree of Doctor of dental medicine or a qualification at a
corresponding level primarily engaged in the independent
practice of general or specialised dentistry or dental surgery.
 New Data item
 Revised data item
39
These practitioners operate private or group practices in their
own offices (e.g., centres, clinics) or in the facilities of others,
such as hospitals, medical centres or community health
facilities. They can provide either comprehensive preventive,
cosmetic, or emergency care, or specialise in a single field of
dentistry. Also included are dental hospitals providing
ambulatory services only. Includes for example:
 Cleft lip and palate services
 Community dental service
 Dental assessment and treatment
 Dental hospital (out-patient)
 Dental practice service
 Dental practitioner service
 Dental surgery service
 Endodontic service
 Oral and maxillofacial services
 Oral pathology service
 Oral surgery service
 Orthodontic service
 Pedodontic service
 Periodontic service
See NOTE 2 under code 106.
CODE 112 Clinical practices – other
This item is not currently required to be reported by state and
territory health authorities.
Organisations of independent health practitioners (other than
physicians and dentists), such as chiropractors, optometrists,
mental health specialists, physical, occupational, and speech
therapists and audiologists organisations primarily engaged in
providing ambulatory health care. These practitioners operate
private or group practices in their own offices (e.g., centres,
clinics) or in the facilities of others, such as hospitals or medical
centres. Includes for example:
 Acupuncture service
 Aromatherapy service
 Audiology service
 Chiropractic service
 Clinical psychology service
 Dental hygiene service
 Dietician service
 Hearing aid dispensing
 Homoeopathic service
 Midwifery service
 Naturopathic service
 Nursing service
 Occupational therapy service
 Optometrist
 Osteopathic service
 Podiatry service
 Speech pathology service
 New Data item
 Revised data item
40
 Therapeutic massage service
See NOTE 2 under code 106.
CODE 113 Community health facility – substance abuse
Organisations with health staff primarily engaged in providing
ambulatory services related to the diagnosis and treatment of
alcohol and other substance abuse. These are community-based
organisations that treat patients who do not require admitted
patient treatment. They may provide counselling staff and
information regarding a wide range of substance abuse issues
and/or refer patients to more extensive treatment program, if
necessary. Includes for example:
 Community based alcoholism treatment centres and clinics
(other than hospitals or residential care facilities);


Community based detoxification centre and clinics (other
than hospitals or residential care facilities);
Community based drug addiction treatment centres and
clinics (other than hospitals or residential care facilities);

Community based substance abuse treatment centres and
clinics (other than hospitals or residential care facilities).
CODE 114 Community health facility – mental
An organisation comprised of one or more specialised mental
health services or facilities with health staff primarily engaged
in providing ambulatory services related to the diagnosis and
treatment of mental health disorders. These specialised mental
health services generally treat patients who do not require
admitted patient treatment. However, these services do include
consultation/liaison services provided to admitted patients by
community mental health services. They may provide
counselling staff and information regarding a wide range of
mental health issues and/or refer patients to more extensive
treatment programs, if necessary. They may also provide
treatment both on and off site, for example through mobile
units. Includes only government-funded specialised mental
health services, such as community mental health centres and
clinics.
Includes expenditure on government-managed community
specialised mental health services, plus the cost of the grants to
non-government organisations that provide community
specialised mental health services, not the total expenditure by
these non-government organisations.
Excludes mental health clinics in hospitals and residential
mental health care facilities.
CODE 115 Community health facility – other
Organisations with health staff primarily engaged in providing
general or specialised ambulatory care. Centres or clinics of
health practitioners with the same degree or with different
degrees from more than one speciality practising within the
same establishment (i.e., physician and dentist) are included in
this item. Includes only government-funded community health
facilities such as:
 Community centres and clinics;
 General practitioner plus centres;
 Multi-speciality community clinics.
Excludes clinical practices that provide exclusively medical
 New Data item
 Revised data item
41
services or exclusively health services, ambulatory mental
health and substance abuse centres, and free-standing
ambulatory surgical centres (reported under codes 108 to 114)
and kidney dialysis centres and clinics (reported under codes
101 to 103 if part of a hospital or code 109 if they are freestanding ambulatory centres).
CODE 116 Blood and organ bank
This item is not currently required to be reported by state and
territory health authorities.
Organisations primarily engaged in collecting, storing and
distributing blood and blood products and storing and
distributing body organs.
CODE 117 Retail sale/supplier of medical goods – optical
glasses and other vision products
This item is not currently required to be reported by state and
territory health authorities.
Organisations primarily engaged in the retail sale of optical
glasses and other vision products to the general public for
personal or household consumption or utilisation. This includes
the fitting and repair provided in combination with sales of
optical glasses and other vision products.
Excludes organisations primarily engaged in providing
optometric services.
CODE 118 Retail sale/supplier of medical goods – hearing
aids
This item is not currently required to be reported by state and
territory health authorities.
Organisations primarily engaged in the sale of hearing aids to
the general public for personal or household consumption or
utilisation. This includes the fitting and repair provided in
combination with the sale of hearing aids.
Excludes organisations primarily engaged in hearing testing
where that also includes a component of hearing aid dispensing
and fitting.
CODE 119 Retail sale/supplier of medical goods – dispensing
community pharmacist
This item is not currently required to be reported by state and
territory health authorities.
Organisations primarily engaged in the retail sale of
pharmaceuticals to the general public for personal or household
consumption or utilisation. Instances when the processing of
medicine may be involved should be only incidental to selling.
This includes both medicines with and without prescription.
Excludes organisations listed under code 201.
CODE 120 Retail sale/supplier of medical goods – other
This item is not currently required to be reported by state and
territory health authorities.
Organisations primarily engaged in the sale of medical
appliances other than optical goods and hearing aids to the
general public with or without prescription for personal or
household consumption or utilisation. Included are:
 Organisations primarily engaged in the manufacture of
medical appliances but where the fitting and repair is
usually done in combination with manufacture of medical
 New Data item
 Revised data item
42
appliances.




Organisations engaged in the retail sale of other
miscellaneous medical goods to the general public for
personal or household consumption or utilisation (included
are sales other than by shops, such as electronic shopping
and mail-order houses).
Illustrative examples
sale of fluids (e.g. for home dialysis);
all other miscellaneous health and personal care stores;
all other sale of pharmaceuticals and medical goods;

electronic shopping and mail-order houses specialised in
medical goods.
CODE 121 Provision and administration of public health
program
Organisations engaged in government or private
administration and provision of public health programs such as
health promotion, organised screening, immunisation and
health protection programs.
CODE 122 General health administration
Organisations primarily engaged in the regulation of activities
of agencies that provide health care, overall administration of
health policy, and health insurance. This item comprises
government administration (excluding social security)
primarily engaged in the formulation and administration of
government policy in health and in the setting and enforcement
of standards for medical and paramedical personnel and for
hospitals, clinics, etc., including the regulation and licensing of
providers of health services. For example:
 Department of Health;
 Agencies for the regulation of safety in the workplace.
Excludes organisations primarily engaged in the provision and
administration of public health programs which is reported
under code 121.
CODE 123 Private health insurance provider
This item is not currently required to be reported by state and
territory health authorities.
 Organisations engaged in insurance of health (other than
social security funds and other social insurance funds) that
provide insurance cover for hospital, medical, dental,
pharmaceutical or funeral expenses. This includes
organisations primarily engaged in activities involved in or
closely related to the management of private health
insurance (activities of insurance agents, average and loss
adjusters and actuaries.
CODE 188 Main Health Care Service organisation - other
Organisations mainly engaged in providing health care services
that are not reported under codes 101 to 123. Includes health or
health-related call centres or e-health sites such as Poisons
Information Centre and centres that provide information on
alcohol and other drugs, mental health or other health issues.
CODE 198 Regional health service (not further defined)
Organisations at an area health service or regional level could
be a combination of categories 101 to 188 but which could not
be further disaggregated.
 New Data item
 Revised data item
43
CODE 199 State/territory health authority (not further
defined)
Organisations at the state or territory health authority level that
could be a combination of categories 101 to 188 but which could
not be further disaggregated.
Secondary/non-Health Care Service organisation
This item is not currently required to be reported by state and
territory health authorities.
CODE 201 Pharmaceutical industry
This item is not currently required to be reported by state and
territory health authorities.
Organisations primarily engaged in wholesaling human
pharmaceuticals, medicines, cosmetics, perfumes and toiletries.
Also included are units mainly engaged in wholesaling
veterinary drugs or medicines
Excludes organisations listed under code 119.
CODE 202 University
This item is not currently required to be reported by state and
territory health authorities.
Organisations primarily engaged in providing undergraduate
or postgraduate teaching but which also undertake health
research activities. Also includes organisations primarily
engaged in undertaking research in the agricultural, biological,
physical or social sciences. Units may undertake the research
for themselves or others.
Includes:
 Postgraduate school, university operation
 Research school, university operation
 Specialist institute or college
 Undergraduate school, university operation
 University operation
For reporting purposes includes only the health or health
related research component or other health services component
of these organisations' activities.
CODE 203 Non-health related insurance
This item is not currently required to be reported by state and
territory health authorities.
Units mainly engaged in providing general insurance cover
(except life and health insurance).
Includes:
 Motor vehicle third party insurance provision
 Worker’s compensation insurance provision
CODE 204 Residential aged care facility
This item is not currently required to be reported by state and
territory health authorities.
An organisation comprised of one or more government-funded
facilities primarily engaged in providing residential care to
aged persons and in receipt of funding under the Aged Care
Act and subject to Commonwealth reporting requirements (i.e.
report to the System for the payment of Aged Residential Care
(SPARC) collection.
Excludes facilities primarily providing services to persons
requiring mental health diagnosis and treatment. Also excludes
 New Data item
 Revised data item
44
residential care facilities that report under the Commonwealth,
State and Territory Disability Agreement where the primary
purpose is care for persons with a disability.
CODE 288 Secondary/non-Health Care Service organisation –
other
This item is not currently required to be reported by state and
territory health authorities.
This item comprises organisations that are not reported under
codes 201 to 203 which provide health care as secondary
providers or other providers. Included are providers of
occupational health care and home care provided by private
households.
Includes:
Occupational health care services not provided in separate
health care organisations (all industries);
 Military health services not provided in separate health care
organisations

Prison health services not provided in separate health care
organisations
 School health services
 Other providers n.e.c.
Other providers of services which support the health care
industry such as laundry or catering services.
Other providers of services unrelated to the health care
industry such as the building or automotive industry.
Source and reference attributes
Submitting organisation:
Health Expenditure Advisory Committee
Reference documents:
Organisation for Economic Cooperation and Development 2000.
A System of Health Accounts. Version 1.0. Paris: OECD.
Australian Bureau of Statistics 2006. Australian and New
Zealand Standard Industry Classification (ANZIC) Cat. no.
1292.0. Canberra: ABS.
RACGP 6 September 2005
<www.racgp.org.au/whatisgeneralpractice>
Data element attributes
Source and reference attributes
Submitting organisation:
Health Expenditure Advisory Committee
Relational attributes
Related metadata references:
Supersedes Health industry relevant organisation—main
activity type, code NNN Health, Superseded 01/04/2009
Implementation in Data Set
Specifications:
Government health expenditure organisation expenditure
capital consumption data element cluster Health, Standard
01/04/2009
Government health expenditure organisation expenditure data
element cluster Health, Standard 01/04/2009
Government health expenditure organisation expenditure
employee related data element cluster Health, Standard
 New Data item
 Revised data item
45
01/04/2009
Government health expenditure organisation expenditure
purchase of goods and services data element cluster Health,
Standard 01/04/2009
Government health expenditure organisation revenue data
element cluster Health, Standard 01/04/2009
 New Data item
 Revised data item
46
Occupied bed—hospital in the home care, average
number of beds N[NNN.N] 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Average available beds for hospital-in-the-home patients
METeOR identifier:
373955
Registration status:
Health, Standard 24/03/2009
Definition:
The number of beds used to care for hospital admitted patients in
their place of residence as a substitute for hospital accommodation,
calculated by dividing the number of days of hospital-in-the-home
care reported for the period by the number of days in the period.
Place of residence may be permanent or temporary.
Data Element Concept:
Occupied bed—hospital in the home care
Value domain attributes
Representational attributes
Representation class:
Average
Data type:
Number
Format:
N[NNN.N]
Maximum character length:
5
Unit of measure:
Bed
Collection and usage attributes
Guide for use:
Average available beds, rounded to the nearest decimal or whole
number.
Data element attributes
Collection and usage attributes
Guide for use:
Calculated by dividing the total hospital-in-the-home patient days
by the number of days in the period, e.g. in a normal year, a
hospital records 4000 hospital-in-the-home patient days – the
average hospital-in-the-home beds would be 4000/365 = 11.0.
Collection methods:
Beds exclusively or predominantly for overnight-stay admitted
care, beds exclusively or predominantly for same-day admitted
care, and non-special-care neonatal cots are collected and reported
in separate categories.
Hospitals should establish clear recording and reporting practices.
Criteria should exist to ensure that each available bed is counted
and that no available bed is counted more than once. A bed should
first be assessed as available and then categorised according to its
predominant use. For large hospitals a reconciliation of the sum of
the counts for the four available bed types and an unduplicated
establishment bed count is advisable.
Comments:
This data element is necessary to provide an indicator of the
availability and type of service for an establishment.
 New Data item
 Revised data item
47
Source and reference attributes
Submitting organisation:
 New Data item
Victorian Department of Human Services
 Revised data item
48
Organisation—capital consumption expenses, total
Australian currency NNNNN.N 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Capital consumption expenses
METeOR identifier:
376399
Registration status:
Health, Standard 01/04/2009
Definition:
Expenses of an organisation consisting of consumption of fixed
capital (depreciation), in Australian currency.
Data Element Concept:
Organisation—capital consumption expenses
Value domain attributes
Representational attributes
Representation class:
Total
Data type:
Currency
Format:
NNNNN.N
Maximum character length:
6
Unit of measure:
Australian currency (AU$)
Source and reference attributes
Submitting organisation:
Health Expenditure Advisory Committee
Data element attributes
Collection and usage attributes
Guide for use:
Data are collected and nationally collated for the reporting
period - the financial year ending 30th June each year.
Depreciation expenses are to be reported in millions to the
nearest 100,000 e.g. $4,064,000 should be reported as $4.1
million.
When revenue from transactions are offset against expenses
from transactions, the result equates to the net operating
balance in accordance with Australian Accounting Standards
Board 1049 (September 2006).
Depreciation represents the expensing of a long-term asset over
its useful life and is related to the basic accounting principle of
matching revenue and expenses for the financial period.
Depreciation charges for the current financial year only should
be shown as expenditure. Where intangible assets are amortised
(such as with some private hospitals) this should also be
included in recurrent expenditure.
Collection methods:
Depreciation expenses are to be reported for the Health industry
relevant organisation type and Type of health and health related
functions data elements.
Health industry relevant organisation type:
State and territory health authorities are NOT to report the
following codes:
 New Data item
 Revised data item
49
Codes 106–109; 111; 115–119; 123; 201 and 203
Type of health and health related functions:
State and territory health authorities are NOT to report the
following codes:
Codes 199; 299; 303–305; 307; 499; 503–504; 599; 601–603; 688;
699
Comments:
In accounting terms, expenses are consumptions or losses of
future economic benefits in the form of reductions in assets or
increases in liabilities of the entity (other than those relating to
distributions to owners) that result in a decrease in equity or net
worth during the reporting period.
Source and reference attributes
Submitting organisation:
Health Expenditure Advisory Committee
Origin:
Australian Bureau of Statistics: Government Finance Statistics
1998, Cat. No. 5514.0.
Australian Bureau of Statistics 2006. Australian System of
Government Finance Statistics: Concepts, sources and methods,
2005. Cat. no. 5514.0.55.001 Canberra: ABS.
Australian Accounting Standards Board 1049, September 2006,
<www.aasb.com.au>
Relational attributes
Related metadata references:
Supersedes Organisation—depreciation expenses, total
Australian currency NNNNN.N Health, Superseded
01/04/2009
Is used in the formation of Organisation—expenses, total
Australian currency NNNNN.N Health, Standard 05/12/2007
Implementation in Data Set
Specifications:
Government health expenditure organisation expenditure
capital consumption data element cluster Health, Standard
01/04/2009
Government health expenditure organisation expenditure data
element cluster Health, Standard 01/04/2009
 New Data item
 Revised data item
50
Person with cancer— Nil metastasis status, M stage
(UICC TNM Classification of Malignant Tumours, 6th ed)
code XX 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Cancer staging—M stage code
METeOR identifier:
341300
Registration status:
Health, Standard 06/03/2009
Definition:
Absence or presence of distant metastasis at the time of
diagnosis of the primary cancer, as represented by a code.
Data Element Concept:
Person with cancer—distant metastasis status
Value domain attributes
Representational attributes
Classification scheme:
International Union against Cancer (UICC) TNM Classification
of Malignant Tumours 6th edition
Representation class:
Code
Data type:
String
Format:
XX
Maximum character length:
2
Supplementary values:
Value
Meaning
88
Not applicable
Collection and usage attributes
Guide for use:
Valid M codes from the current edition of the UICC TNM
Classification of Malignant Tumours.
Refer to the TNM Supplement: A Commentary on Uniform
Use, 3rd Edition for coding rules.
Data element attributes
Collection and usage attributes
Guide for use:
TNM staging applies to solid tumours excluding brain tumours.
Choose the lower (less advanced) M category when there is any
uncertainty.
Collection methods:
From information provided by the treating doctor and recorded
on the patient's medical record.
Comments:
Cancer prognosis and survival can be related to the extent of
the disease at diagnosis. Survival rates are generally higher if
the disease is localised to the organ of origin compared with
cases in which the tumour has spread beyond the primary site.
Staging systems seek to classify patients having a similar
prognosis into groups or stages. TNM staging is an
internationally agreed staging classification system based on
the anatomical site of the primary tumour and its extent of
spread. The T component refers to the size of the tumour and
 New Data item
 Revised data item
51
whether or not it has spread to surrounding tissues. The N
component describes the presence or absence of tumour in
regional lymph nodes. The M component refers to the presence
or absence of tumour at sites distant from the primary site.
Source and reference attributes
Origin:
International Union Against Cancer (UICC)
Commission on Cancer, American College of Surgeons
Reference documents:
Sobin LH, Wittekind C. TNM Classification of Malignant
Tumours. 6th ed. Hoboken, New Jersey: John Wiley & Sons;
2002
Commission on Cancer Facility Oncology Registry Data
Standards (FORDS): Revised for 2004
Relational attributes
Related metadata references:
Supersedes Person with cancer—distant metastasis status, M
stage (UICC TNM Classification of Malignant Tumours 5th ed)
code XX Health, Superseded 06/03/2009
Is used in the formation of Person with cancer—extent of
primary cancer, TNM stage (UICC TNM Classification of
Malignant Tumours, 6th ed) code XXXX{[X]XX} Health,
Standard 06/03/2009
Implementation in Data Set
Specifications:
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
Cancer (clinical) DSS Health, Standard 06/03/2009
Conditional obligation::
Collection of this element is conditional on the disease site
being listed in the UICC TNM Classification.
Information specific to this data set:
For survival analysis adjusted by stage at diagnosis and
distribution of cancer cases by type and stage.
 New Data item
 Revised data item
52
Person with cancer—extent of primary cancer, TNM stage
(UICC TNM Classification of Malignant Tumours, 6th ed)
code XXXX{[X]XX} 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Cancer staging—TNM stage grouping code
METeOR identifier:
341304
Registration status:
Health, Standard 06/03/2009
Definition:
The anatomical extent of disease at diagnosis based on the
previously coded T, N and M stage categories, as represented
by a code.
Data Element Concept:
Person with cancer—extent of primary cancer
Value domain attributes
Representational attributes
Classification scheme:
International Union against Cancer (UICC) TNM Classification
of Malignant Tumours 6th edition
Representation class:
Code
Data type:
String
Format:
XXXX{[X]XX}
Maximum character length:
7
Supplementary values:
Value
Meaning
8888
Not applicable
9999
Unknown, Stage X
Collection and usage attributes
Guide for use:
Valid stage grouping codes from the current edition of the
UICC TNM Classification of Malignant Tumours.
Data element attributes
Collection and usage attributes
Guide for use:
TNM staging applies to solid tumours excluding brain tumours.
Refer to the TNM Supplement: A Commentary on Uniform
Use, 3rd Edition for coding rules.
Choose the lower (less advanced) T category when there is any
uncertainty.
Collection methods:
From information provided by the treating doctor and recorded
on the patient's medical record.
Relational attributes
Related metadata references:
 New Data item
Is formed using Person with cancer—primary tumour status, T
stage (UICC TNM Classification of Malignant Tumours, 6th ed)
code XX[X] Health, Standard 06/03/2009
Is formed using Person with cancer—distant metastasis status,
 Revised data item
53
M stage (UICC TNM Classification of Malignant Tumours, 6th
ed) code XX Health, Standard 06/03/2009
Is formed using Person with cancer—regional lymph node
metastasis status, N stage (UICC TNM Classification of
Malignant Tumours, 6th ed) code XX Health, Standard
06/03/2009
Supersedes Person with cancer—extent of primary cancer, TNM
stage (UICC TNM Classification of Malignant Tumours 5th ed)
code XXXX{[X]XX} Health, Superseded 06/03/2009
Implementation in Data Set
Specifications:
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
Cancer (clinical) DSS Health, Standard 06/03/2009
Conditional obligation:
Collection of this element is conditional on the disease site
being listed in the UICC TNM Classification.
Information specific to this data set:
For survival analysis adjusted by stage at diagnosis and
distribution of cancer cases by type and stage.
 New Data item
 Revised data item
54
Person with cancer—histopathological grade, code N 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Histopathological grade
METeOR identifier:
370019
Registration status:
Health, Standard 06/03/2009
Definition:
The histopathological grade or differentiation describes how
much the tumour resembles the normal tissue from which it
arose, as represented by a code.
For lymphohaematopoietic neoplasms (leukaemias and
lymphomas) this data element is used to denote cell lineage.
Data Element Concept:
Person with cancer—histopathological grade
Value domain attributes
Representational attributes
Representation class:
Code
Data type:
Number
Format:
N
Maximum character length:
1
Permissible values:
Supplementary values:
Value
Meaning
1
Grade 1: Low grade; well differentiated,
differentiated, NOS
2
Grade 2: Intermediate grade, moderately
differentiated, moderately well differentiated,
intermediate differentiation
3
Grade 3: High grade, poorly differentiated
4
Grade 4: Undifferentiated, anaplastic
5
T-cell: T-cell
6
B-cell: B-cell, Pre-B, B-Precursor
7
Null-cell: Null cell, Non T- non B
8
NK-cell: Natural killer cell
9
Grade/differentiation unknown: Grade/cell
type not determined, not stated or not
applicable
Data element attributes
Collection and usage attributes
Guide for use:
 New Data item
Only one code can be recorded.
When more than one grade is documented for the primary
tumour within the same specimen report, use the highest grade.
For example, if grade 2-3 is documented, record the grade as 3.
If the grades differ on multiple pathology reports for the same
tumour, use the value from the larger specimen (for example,
the grade from a surgical excision specimen would be used over
 Revised data item
55
the grade from a specimen from a diagnostic biopsy).
Breast cancer coding rules:
Use the Nottingham grade (Elston-Ellis modification of BloomRichardson grading system). This classification only uses
grades 1-3, 9.
For an invasive tumour with an in situ component, record the
grade for the invasive component only. If the grade of the
invasive component is not reported, record the grade as
unknown.
Collection methods:
Cancer registry use:
Collection of this data item should only be from notification
and pathology reports relating to initial diagnosis and not for
recurrent or metastatic disease.
Source and reference attributes
Origin:
World Health Organisation
Commission on Cancer American College of Surgeons
Reference documents:
World Health Organisation International Classification of
Diseases Oncology, Third edition (ICD-O-3) (2000)
Commission on Cancer, Standards of the Commission on
Cancer Registry Operations and Data Standards (ROADS)
Volume II (1998)
Johnson CH, Adamo M (eds.), SEER Program Coding and
Staging Manual 2007. National Cancer Institute, NIH
Publication number 07-5581, Bethesda, MD 2007.
Relational attributes
Related metadata references:
Supersedes Person with cancer—histopathological grade, code
N Health, Superseded 06/03/2009
Implementation in Data Set
Specifications:
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
Information specific to this data set:
Breast cancer coding rules:
Use the Nottingham grade (Elston-Ellis modification of
Bloom-Richardson grading system). This classification
only uses grades 1-3, 9.
For an invasive tumour with an in situ component, record
the grade for the invasive component only. If the grade of
the invasive component is not reported, record the grade
as unknown.
Cancer (clinical) DSS Health, Standard 06/03/2009
 New Data item
 Revised data item
56
Person with cancer—human epidermal growth factor
receptor-2 test result, code N 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Human epidermal growth factor receptor-2 test result
Synonymous names:
HER2 test result
METeOR identifier:
370572
Registration status:
Health, Standard 06/03/2009
Definition:
The result of a person's human epidermal growth factor
receptor-2 (HER2) test, as represented by a code.
Data Element Concept:
Person with cancer—human epidermal growth factor receptor-2
test result
Value domain attributes
Representational attributes
Representation class:
Code
Data type:
Number
Format:
N
Maximum character length:
1
Permissible values:
Supplementary values:
Value
Meaning
1
Positive
2
Negative
3
Equivocal
7
Unknown (test results not available)
8
Not applicable (test not done)
Collection and usage attributes
Guide for use:
 New Data item
Record the reported conclusion of the HER2.
If no conclusion is reported use the following guidelines (from
the National Breast and Ovarian Cancer Centre and Australian
Cancer Network’s pathology reporting guide (3rd ed.) for
breast cancer):
CODE 1 Positive
 For in situ hybridisation:
Result is more than 6 copies of the HER2 gene per nucleus
OR a ratio of HER2 gene signals to chromosome 17 signals
of more than 2.2.
 For Immunochemistry:
Result is described as 3+ or +++ OR >30% of cancer cells
show strong complete membrane staining without
cytoplasmic staining and without staining of normal tissue.
CODE 2 Negative
 For in situ hybridisation:
Result is less than 4 copies of the HER2 gene per nucleus
OR a ratio of HER2 gene signals to chromosome 17 signals
of less than 1.8.
 Revised data item
57

For Immunochemistry:
Result described as 0, 1+ or + OR <10% of cancer cells show
staining.
CODE 3 Equivocal
 For in situ hybridisation:
Result is an average of between 4 and 6 HER2 gene copies
per nucleus with a single probe OR a ratio of HER2 gene
signals to chromosome 17 signals in the range of 1.8-2.2.
 For Immunochemistry:
Result described as 2+ or ++ OR <10% of cancer cells show
strong complete membrane staining (rare) OR 10-30% of
cancer cells show weak to moderate complete membrane
staining OR Strong cytoplasmic staining is present, making
assessment of membrane staining difficult.
Supplementary codes
CODE 7 Unknown (test results not available)
Use this code when the test has been performed but the results
are not yet available for analysis.
CODE 8 Not applicable (test not done)
This code is used as a validation measure, to show that the
reason for the lack of results is due to the test not being
performed.
Data element attributes
Collection and usage attributes
Collection methods:
For cancer registries, collection of this data item should only be
from notification and pathology reports relating to initial
diagnosis and not for recurrent or subsequent metastatic
disease.
Where different values are available from multiple specimens,
the appropriate values to enter are selected according to the
following hierarchy of rules:
When multiple HER2 values are available, the value established
by the most accurate test is used as per the hierarchy: FISH >
CISH/SISH > IHC. (See Person with cancer—HER2 test type,
code N) If the HER2 values differ on multiple pathology reports
for the same tumour, use the value from the larger specimen.
For multifocal tumours, use the HER2 value from the largest
focus or from a metastatic deposit e.g. Lymph node metastasis.
A smaller focus that is HER2 positive may in fact be the source
of a metastasis and in this setting the patient would derive
benefit from the therapy offered as a result of HER2 positive
status.
Comments:
Human epidermal growth factor receptor-2 (HER2) promotes
the growth of cancer cells. HER2 is also known as c-erB-2 and
Her2/neu. Tumours that are HER2-positive tend to grow more
quickly than other types of cancer. HER2 status is an important
prognostic marker and predicts the response to several
therapies.
Source and reference attributes
Origin:
 New Data item
National Breast and Ovarian Cancer Centre (NBOCC)
 Revised data item
58
Australasian Association of Cancer Registries (AACR)
Australian Institute of Health and Welfare (AIHW)
Reference documents:
National Breast and Ovarian Cancer Centre and Australian
Cancer Network. The Pathology reporting of breast cancer. A
guide for pathologists, surgeons, radiologists and oncologists
(3rd edition). National Breast and Ovarian Cancer Centre, Surry
Hills, NSW, 2008.
Relational attributes
Implementation in Data Set
Specifications:
 New Data item
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
 Revised data item
59
Person with cancer—human epidermal growth factor
receptor-2 test type, code N 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Human epidermal growth factor receptor-2 test type
Synonymous names:
HER2 test type
METeOR identifier:
370607
Registration status:
Health, Standard 06/03/2009
Definition:
The type of test used to determine the results of human
epidermal growth factor receptor-2 (HER2) at the time of
diagnosis of the primary tumour, as represented by a code.
Data Element Concept:
Person with cancer—human epidermal growth factor receptor-2
test type
Value domain attributes
Representational attributes
Representation class:
Code
Data type:
Number
Format:
N
Maximum character length:
1
Permissible values:
Supplementary values:
Value
Meaning
1
Fluorescence in situ hybridisation (FISH)
2
Brightfield in situ hybridisation
3
Immunochemistry (IHC)
8
Other
9
Test type not stated or unknown
Collection and usage attributes
Guide for use:
CODE 2 Brightfield in situ hybridisation
Includes Chromogenic in situ hybridisation (CISH) and Silver
in situ hybridisation (SISH).
Data element attributes
Collection and usage attributes
Guide for use:
Record the test type corresponding to the test result recorded in
‘Person with Cancer - human epidermal growth factor receptor2 test result’.
Comments:
Immunochemistry (IHC) measures how much HER2 protein is
present in the tumour sample. Fluorescence in situ
hybridisation (FISH), chromogenic in situ hybridisation (CISH)
and silver in situ hybridisation (SISH) measure the amount of
amplification of the gene responsible for HER2. The type of
HER2 test used to determine HER2 status affects the accuracy
of the information.
 New Data item
 Revised data item
60
Source and reference attributes
Origin:
National Breast and Ovarian Cancer Centre (NBOCC)
Australasian Association of Cancer Registries (AACR)
Australian Institute of Health and Welfare (AIHW)
Relational attributes
Implementation in Data Set
Specifications:
 New Data item
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
 Revised data item
61
Person with cancer—lymphovascular invasion, code N 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Lymphovascular invasion
METeOR identifier:
370618
Registration status:
Health, Standard 06/03/2009
Definition:
The presence or absence of the invasion of cancer cells into
blood vessel(s) and/or the lymphatic system, as represented by
a code.
Data Element Concept:
Person with cancer—lymphovascular invasion
Value domain attributes
Representational attributes
Representation class:
Code
Data type:
Number
Format:
N
Maximum character length:
1
Permissible values:
Supplementary values:
Value
Meaning
1
Present
2
Absent
3
Suspicious
9
Not stated or unknown
Data element attributes
Collection and usage attributes
Guide for use:
The presence of lymphovascular invasion should be recorded as
Code 1, regardless of whether the extent of the invasion is
described or not.
Collection methods:
For cancer registries, collection of this data item should only be
from notification and pathology reports relating to initial
diagnosis and not for recurrent or metastatic disease.
If pathology report pertaining to initial diagnosis is for a
metastasis, and not the primary tumour, record as 9.
Comments:
Invasion of the lymphatics or blood vessels by cancer cells is an
important prognostic factor that indicates that the tumour is
likely to spread. This item is included in data items defined for
reporting in the pathology reporting guidelines as prepared by
the National Breast and Ovarian Cancer Centre and Australian
Cancer Network.
Source and reference attributes
Origin:
 New Data item
National Breast and Ovarian Cancer Centre (NBOCC)
Australasian Association of Cancer Registries (AACR)
Australian Institute of Health and Welfare (AIHW)
 Revised data item
62
Reference documents:
National Breast and Ovarian Cancer Centre and Australian
Cancer Network. The Pathology reporting of breast cancer. A
guide for pathologists, surgeons, radiologists and oncologists
(3rd edition). National Breast and Ovarian Cancer Centre, Surry
Hills, NSW, 2008.
Relational attributes
Implementation in Data Set
Specifications:
 New Data item
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
 Revised data item
63
Person with cancer—morphology of cancer, code (ICDO3) NNNN/N 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Morphology of cancer
METeOR identifier:
370023
Registration status:
Health, Standard 06/03/2009
Definition:
The histological classification of the cancer tissue
(histopathological type) and a description of the course of
development that a tumour is likely to take: benign or
malignant (behaviour), as represented by a code.
Data Element Concept:
Person with cancer—morphology of cancer
Value domain attributes
Representational attributes
Classification scheme:
International Classification of Diseases for Oncology 3rd edition
Representation class:
Code
Data type:
Number
Format:
NNNN/N
Maximum character length:
5
Collection and usage attributes
Guide for use:
ICDO morphology describes histology and behaviour as
separate variables, recognising that there are a large number of
possible combinations.
In ICDO, morphology is a 4-digit number ranging from 8000 to
9989, and behaviour is a single digit which can be 0, 1, 2, 3, 6 or
9.
Record morphology codes in accordance with ICDO coding
standards. Use the 5th-digit to record behaviour. The 5th-digit
behaviour code numbers used in ICDO are listed below:
0 Benign
1 Uncertain whether benign or malignant
 borderline malignancy
 low malignant potential
2 Carcinoma in situ
 intraepithelial
 non-infiltrating
 non-invasive
3 Malignant, primary site
6 Malignant, metastatic site
 malignant, secondary site
9 Malignant, uncertain whether primary or metastatic site
Source and reference attributes
Origin:
 New Data item
International Classification of Diseases for Oncology, Third
 Revised data item
64
Edition (ICDO-3)
Data element attributes
Collection and usage attributes
Collection methods:
Cancer registry use:
Collection of this data item should only be from notification
and pathology reports relating to initial diagnosis and not for
recurrent or metastatic disease.
Morphology information should be obtained from a pathology
report or pathology system, and recorded with/on the patient's
medical record and/or the hospital's patient administration
system. Additional information may also be sought from the
patient's attending clinician or medical practitioner.
If the morphology differs on multiple pathology reports for the
same tumour, use the value from the most representative
tumour specimen examined. For example, if tumour is
described as ductal on core biopsy but undifferentiated
carcinoma on the excision specimen the morphology would be
coded as undifferentiated carcinoma (a lower code) which has a
less favourable diagnosis.
Hospital morbidity use:
In hospitals, the morphology code is modified for use with ICD10-AM. The morphology code consists of histologic type (4
digits) and behaviour code (1 digit) ranging from 8000/0 to
9989/9.
Source and reference attributes
Origin:
World Health Organization
New South Wales Health Department
State and Territory Cancer Registries
Reference documents:
New South Wales Inpatient Statistics Collection Manual,
2000/2001
Esteban D, Whelan S, Laudico A and Parkin DM editors.
International Agency for Research on Cancer World Health
Organization and International Association of Cancer
Registries: Manual for cancer registry personnel. IARC
Technical Report No 10. Lyon: IARC,1995
Relational attributes
Related metadata references:
Supersedes Person with cancer—morphology of cancer, code
(ICDO-3) NNNN/N Health, Superseded 06/03/2009
Implementation in Data Set
Specifications:
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
Cancer (clinical) DSS Health, Standard 06/03/2009
Information specific to this data set:
This information is collected for the purpose of:
 classifying tumours into clinically relevant groupings
on the basis of both their morphology (cell type) and
their degree of invasion or malignancy as indicated by
the behaviour code component (the last digit of the
morphology code);
 New Data item
 Revised data item
65

 New Data item
monitoring the number of new cases of cancer for
planning treatment services.
 Revised data item
66
Person with cancer—neoadjuvant therapy indicator, code
N
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Neo-adjuvant therapy
METeOR identifier:
370014
Registration status:
Health, Standard 06/03/2009
Definition:
Whether a person with a solid tumour has received
neoadjuvant therapy, as represented by a code.
Data Element Concept:
Person with cancer—neoadjuvant therapy indicator
Value domain attributes
Representational attributes
Representation class:
Code
Data type:
Boolean
Format:
N
Maximum character length:
1
Permissible values:
Value
Meaning
1
Yes
2
No
Data element attributes
Collection and usage attributes
Guide for use:
To be reported when therapy is received after a diagnosis of
cancer and prior to primary surgical treatment.
This data item is used to flag cases in which tumour
descriptors, for example solid tumour size, may be inaccurate
due to shrinkage from neoadjuvant therapy.
Yes - indicates that the client has received neo-adjuvant therapy
after a diagnosis of cancer and prior to primary surgical
treatment
No - indicates that the client did not receive neo-adjuvant
therapy after a diagnosis of cancer and prior to primary surgical
treatment
For invasive breast cancer information is obtained from:
 Clinical notes on pathology report mentions that patient
underwent chemotherapy prior to surgery


 New Data item
Microscopy section of pathology report describes tumour
changes as a result of neoadjuvant therapy (coder may be
alerted to look for this detail by a long interval between
biopsy and wider excision)
Hospital notification indicates that admission if for
chemotherapy only (and admission date is before that for
surgery)
 Revised data item
67
Comments:
Preoperative chemotherapy and/or radiotherapy may be
received after a diagnosis of cancer but before surgical
treatment.
The effects of chemotherapy and/or radiotherapy prior to
surgery will shrink the tumour, and so the size of the tumour
found from the subsequent surgical excision will be smaller
than the original size of the tumour at the time of diagnosis.
This impacts on the TNM-T and staging classification, and is
important to take into account for analysis and research.
Source and reference attributes
Origin:
National Breast and Ovarian Cancer Centre (NBOCC)
Australasian Association of Cancer Registries (AACR)
Australian Institute of Health and Welfare (AIHW)
Reference documents:
Johnson CH, Adamo M (eds.), SEER Program Coding and
Staging Manual 2007. National Cancer Institute, NIH
Publication number 07-5581, Bethesda, MD 2007.
Relational attributes
Implementation in Data Set
Specifications:
 New Data item
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
 Revised data item
68
Person with cancer—number of positive regional lymph
nodes, total N[N] 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Regional lymph nodes positive
METeOR identifier:
370027
Registration status:
Health, Standard 06/03/2009
Definition:
The total number of regional lymph nodes reported as
containing tumour after examination by a pathologist.
Data Element Concept:
Person with cancer—number of positive regional lymph nodes
Value domain attributes
Representational attributes
Representation class:
Total
Data type:
Number
Format:
N[N]
Maximum character length:
3
Supplementary values:
Value
Meaning
997
Number of lymph nodes unknown
Data element attributes
Collection and usage attributes
Guide for use:
A list of which lymph nodes are defined as regional lymph
nodes for each cancer site may be found in the TNM
Classification of Tumours, 6th Edition, UICC.
Number includes all positive nodes regardless of whether
removed/examined at a single or multiple procedures e.g. for
breast cancer, record the sum of positive nodes detected in node
sampling/sentinel node biopsy and those removed at axillary
clearance.
For cancer registries, collection of this data item should only be
from notification and pathology reports relating to initial
diagnosis and not for recurrent or metastatic disease.
Source and reference attributes
Origin:
Australian Cancer Network
Commission on Cancer American College of Surgeons
Reference documents:
Australian Cancer Network The pathology reporting of breast
cancer. A guide for pathologists, surgeons and radiologists
Second Edition Sydney (2001)
Commission on Cancer, Standards of the Commission on
Cancer Registry Operations and Data Standards (ROADS)
Volume II (1998)
Johnson CH, Adamo M (eds.), SEER Program Coding and
Staging Manual 2007. National Cancer Institute, NIH
 New Data item
 Revised data item
69
Publication number 07-5581, Bethesda, MD 2007.
Relational attributes
Related metadata references:
See also Person with cancer—number of regional lymph nodes
examined, total N[N] Health, Superseded 06/03/2009
Supersedes Person with cancer—number of positive regional
lymph nodes, total N[N] Health, Superseded 06/03/2009
Implementation in Data Set
Specifications:
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
Cancer (clinical) DSS Health, Standard 06/03/2009
 New Data item
 Revised data item
70
Person with cancer—number of positive sentinel lymph
nodes, total code N[N] 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Number of positive sentinel lymph nodes
METeOR identifier:
370549
Registration status:
Health, Standard 06/03/2009
Definition:
The total number of sentinel lymph nodes reported as
containing tumour after examination by a pathologist.
Data Element Concept:
Person with cancer—number of positive sentinel lymph nodes
Value domain attributes
Representational attributes
Representation class:
Total
Data type:
Number
Format:
N[N]
Maximum character length:
3
Supplementary values:
Value
Meaning
997
Number of lymph nodes unknown
Data element attributes
Collection and usage attributes
Collection methods:
For cancer registries:
Collection of this data item should only be from notification
and pathology reports relating to initial diagnosis and not for
recurrent or metastatic disease.
Comments:
Sentinel lymph nodes are the first nodes that filter fluid
draining away from the area of cancer. The number of lymph
nodes with metastasis is important for cancer staging
Source and reference attributes
Origin:
National Breast and Ovarian Cancer Centre (NBOCC)
Australasian Association of Cancer Registries (AACR)
Australian Institute of Health and Welfare (AIHW)
Reference documents:
Johnson CH, Adamo M (eds.), SEER Program Coding and
Staging Manual 2007. National Cancer Institute, NIH
Publication number 07-5581, Bethesda, MD 2007.
Relational attributes
Implementation in Data Set
Specifications:
 New Data item
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
 Revised data item
71
Person with cancer—number of regional lymph nodes
examined, total code N[N] 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Number of regional lymph nodes examined
METeOR identifier:
370032
Registration status:
Health, Standard 06/03/2009
Definition:
The total number of a person's regional lymph nodes examined
by the pathologist.
Data Element Concept:
Person with cancer—number of regional lymph nodes
examined
Value domain attributes
Representational attributes
Representation class:
Total
Data type:
Number
Format:
N[N]
Maximum character length:
2
Supplementary values:
Value
Meaning
997
Number of lymph nodes unknown
Data element attributes
Collection and usage attributes
Guide for use:
A list of which lymph nodes are defined as regional lymph
nodes for each cancer site may be found in the TNM
Classification of Tumours, 6th Edition, UICC.
The number includes all nodes examined regardless of whether
removed/examined at a single or multiple procedures e.g. for
breast cancer, record the sum of regional lymph nodes
examined from node sampling/sentinel node biopsy and
axillary clearance.
The number of regional lymph nodes is cumulative from all
procedures that removed lymph nodes through the completion
of surgeries for the treatment of the cancer.
Breast cancer:
Regional lymph nodes include all ipsilateral axillary, ipsilateral
infraclavicular/subclavicular, ipsilateral internal mammary and
ipsilateral supraclavicaular nodes. All other nodes (including
contralateral internal mammary nodes) are considered to be
distant metastases and should not be recorded in this data item.
Definitions from UICC TNM Classification of Malignant
Tumours 6th Edition.
Collection methods:
For cancer registries, collection of this data item should only be
from notification and pathology reports relating to initial
diagnosis and not for recurrent or metastatic disease.
 New Data item
 Revised data item
72
Source and reference attributes
Origin:
Australian Cancer Network
Commission on Cancer American College of Surgeons
Reference documents:
Australian Cancer Network The pathology reporting of breast
cancer. A guide for pathologists, surgeons and radiologists
Second Edition Sydney (2001)
Commission on Cancer, Standards of the Commission on
Cancer Registry Operations and Data Standards (ROADS)
Volume II (1998)
Johnson CH, Adamo M (eds.), SEER Program Coding and
Staging Manual 2007. National Cancer Institute, NIH
Publication number 07-5581, Bethesda, MD 2007.
Relational attributes
Related metadata references:
See also Person with cancer—number of positive regional
lymph nodes, total N[N] Health, Superseded 06/03/2009
Supersedes Person with cancer—number of regional lymph
nodes examined, total N[N] Health, Superseded 06/03/2009
Implementation in Data Set
Specifications:
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
Information specific to this data set:
Breast cancer:
Regional lymph nodes include all ipsilateral axillary,
ipsilateral infraclavicular/subclavicular, ipsilateral internal
mammary and ipsilateral supraclavicaular nodes. All other
nodes (including contralateral internal mammary nodes)
are considered to be distant metastases and should not be
recorded in this data item. Definitions from UICC TNM
Classification of Malignant Tumours 6th Edition.
Cancer (clinical) DSS Health, Standard 06/03/2009
 New Data item
 Revised data item
73
Person with cancer—number of sentinel lymph nodes
examined, total code N[N] 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Number of sentinel lymph nodes examined
METeOR identifier:
370558
Registration status:
Health, Standard 06/03/2009
Definition:
The total number of a person's sentinel lymph nodes examined
by the pathologist.
Data Element Concept:
Person with cancer—number of sentinel lymph nodes
examined
Value domain attributes
Representational attributes
Representation class:
Total
Data type:
Number
Format:
N[N]
Maximum character length:
3
Supplementary values:
Value
Meaning
997
Number of lymph nodes unknown
Data element attributes
Collection and usage attributes
Collection methods:
For cancer registries, collection of this data item should only be
from pathology reports relating to initial diagnosis and not for
recurrent or metastatic tumour.
Comments:
Sentinel lymph nodes are the first nodes that filter fluid
draining away from the area of cancer. The presence of cancer
cells in the lymph nodes indicates that cancer cells have already
spread outside the primary site and may have spread to other
areas of the body. This is important for cancer staging and
treatment options.
Source and reference attributes
Origin:
National Breast and Ovarian Cancer Centre (NBOCC)
Australasian Association of Cancer Registries (AACR)
Australian Institute of Health and Welfare (AIHW)
Reference documents:
Johnson CH, Adamo M (eds.), SEER Program Coding and
Staging Manual 2007. National Cancer Institute, NIH
Publication number 07-5581, Bethesda, MD 2007.
Relational attributes
Implementation in Data Set
Specifications:
 New Data item
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
 Revised data item
74
Person with cancer—oestrogen receptor assay result,
code N 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Oestrogen receptor assay result
METeOR identifier:
370036
Registration status:
Health, Standard 06/03/2009
Definition:
The result of oestrogen receptor assay at the time of diagnosis
of the primary breast tumour, as represented by a code.
Data Element Concept:
Person with cancer—oestrogen receptor assay result
Value domain attributes
Representational attributes
Representation class:
Code
Data type:
Number
Format:
N
Maximum character length:
1
Permissible values:
Supplementary values:
Value
Meaning
1
Positive
2
Negative
3
Equivocal
7
Unknown (test results not available)
8
Not applicable (test not done)
Collection and usage attributes
Guide for use:
Supplementary codes
CODE 7 Unknown (test results not available)
Use this code when the test has been performed but the results
are not yet available for analysis.
CODE 8 Not applicable (test not done)
This code is used as a validation measure, to show that the
reason for the lack of results is due to the test not being
performed.
Data element attributes
Collection and usage attributes
Guide for use:
 New Data item
Where the pathologist has stated the test result in the
conclusion of the pathology report as being positive, negative
or equivocal this value should be coded. If the report does not
specifically state the test result, this should be interpreted from
the reported % nuclei stained positive. If => 1% of nuclei are
reported as stained regardless of stain intensity (weak,
intermediate or high/strong) the result is positive. If % nuclei
stained is <1% the result is negative. Definitions from NBOCC
 Revised data item
75
& ACN Pathology Reporting Guidelines.
Collection methods:
For cancer registries:
Collection of this data item should only be from notification
and pathology reports relating to initial diagnosis and not for
recurrent or subsequent metastatic disease.
Where there are multiple reports relating to the primary breast
tumour (from different specimens), the 'most positive' value is
chosen according to the following hierarchy: Positive >
Equivocal > Negative> Test done but results not known > Test
not done.
If oestrogen receptor assay tests are completed for invasive
tumours with an in situ component, use the values from the
invasive tumour.
Do not record oestrogen receptor values for in situ tumours.
For multifocal tumours, use the oestrogen receptor value from
the largest focus or from a metastatic deposit e.g. Lymph node
metastasis. A smaller focus that is ER positive may in fact be the
source of a metastasis and in this setting the patient would
derive benefit from the therapy offered as a result of hormone
receptor positive status.
Comments:
Hormone receptor status is an important prognostic indicator
for breast cancer.
The Australian Cancer Network Working Party established to
develop guidelines for the pathology reporting of breast cancer
recommends that hormone receptor assays be performed on all
cases of invasive breast carcinoma. The report should include:
 the percentage of nuclei staining positive and the
predominant staining intensity (low, medium, high) and
 a conclusion as to whether the assay is positive or negative.
Source and reference attributes
Origin:
Royal College of Pathologists of Australasia
Australian Cancer Network
Commission on Cancer American College of Surgeons
Reference documents:
Royal College of Pathologists of Australasia Manual of Use and
Interpretation of Pathology Tests: Third Edition Sydney (2001)
Australian Cancer Network Working Party The pathology
reporting of breast cancer. A guide for pathologists, surgeons
and radiologists Second Edition Sydney (2001)
Commission on Cancer, Standards of the Commission on
Cancer Registry Operations and Data Standards (ROADS)
Volume II (1998)
Relational attributes
Related metadata references:
Supersedes Person with cancer—oestrogen receptor assay
results, code N Health, Superseded 06/03/2009
Implementation in Data Set
Specifications:
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
 New Data item
 Revised data item
76
Person with cancer—primary site of cancer, code (ICDO3) ANN{.N[N]} 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Primary site of cancer (ICDO-3 code)
METeOR identifier:
370039
Registration status:
Health, Standard 06/03/2009
Definition:
The site of origin of the tumour, as opposed to the secondary or
metastatic sites, as represented by an ICDO-3 code.
Data Element Concept:
Person with cancer—primary site of cancer
Value domain attributes
Representational attributes
Classification scheme:
International Classification of Diseases for Oncology 3rd edition
Representation class:
Code
Data type:
String
Format:
ANN{.N[N]}
Maximum character length:
5
Collection and usage attributes
Guide for use:
Report the primary site of cancer, if known, for patients who
have been diagnosed with a cancer.
In ICDO, primary site is identified using both the Cxx.x code
identifying site and the behaviour code to identify whether the
site is the primary site. The behaviour code numbers used in
ICDO are listed below:
0 Benign
1 Uncertain whether benign or malignant
 borderline malignancy
 low malignant potential
2 Carcinoma in situ
 intraepithelial
 non-infiltrating
 non-invasive
3 Malignant, primary site
6 Malignant, metastatic site
 malignant, secondary site
9 Malignant, uncertain whether primary or metastatic site
Data element attributes
Collection and usage attributes
Guide for use:
 New Data item
For cancer registries, collection of this data item should only be
from notification and pathology reports relating to initial
diagnosis and not for recurrent or metastatic disease.
 Revised data item
77
If the primary site differs on multiple pathology or other
notification reports for the same tumour, use the most specific
value.
For multifocal tumours with foci in more than one quadrant,
use the quadrant of the largest focus.
Collection methods:
Cancer registries use Site codes from ICDO 3rd edition.
Source and reference attributes
Origin:
World Health Organization
Relational attributes
Related metadata references:
Supersedes Person with cancer—primary site of cancer, code
(ICDO-3) ANN{.N[N]} Health, Superseded 06/03/2009
Implementation in Data Set
Specifications:
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
Cancer (clinical) DSS Health, Standard 06/03/2009
Information specific to this data set:
This information is collected for the purpose of:
 classifying tumours into clinically-relevant groupings
on the basis of both their site of origin and their
histological type
 monitoring the number of new cases of cancer for
planning treatment services
 epidemiological studies.
 New Data item
 Revised data item
78
Person with cancer—primary tumour status, T stage
(UICC TNM Classification of Malignant Tumours, 6th ed)
code XX[X] 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Cancer staging—T stage code
METeOR identifier:
341306
Registration status:
Health, Standard 06/03/2009
Definition:
Extent of primary cancer including tumour size, at the time of
diagnosis, as represented by a code.
Data Element Concept:
Person with cancer—primary tumour status
Value domain attributes
Representational attributes
Classification scheme:
International Union against Cancer (UICC) TNM Classification
of Malignant Tumours 6th edition
Representation class:
Code
Data type:
String
Format:
XX[X]
Maximum character length:
3
Supplementary values:
Value
Meaning
88
Not applicable
Collection and usage attributes
Guide for use:
Valid T codes from the current edition of the UICC TNM
Classification of Malignant Tumours.
Refer to the TNM Supplement: A Commentary on Uniform
Use, 3rd Edition for coding rules.
Data element attributes
Collection and usage attributes
Guide for use:
TNM staging applies to solid tumours excluding brain tumours.
Choose the lower (less advanced) T category when there is any
uncertainty.
T stage value is derived from value of "Solid tumour size (at
diagnosis) total millimetres". Refer to usage attributes for this
data element for additional detail
Collection methods:
From information provided by the treating doctor and recorded
on the patient's medical record.
Comments:
Cancer prognosis and survival can be related to the extent of
the disease at diagnosis. Survival rates are generally higher if
the disease is localised to the organ of origin compared with
cases in which the tumour has spread beyond the primary site.
 New Data item
 Revised data item
79
Staging systems seek to classify patients having a similar
prognosis into groups or stages. TNM staging is an
internationally agreed staging classification system based on
the anatomical site of the primary tumour and its extent of
spread. The T component refers to the size of the tumour and
whether or not it has spread to surrounding tissues. The N
component describes the presence or absence of tumour in
regional lymph nodes. The M component refers to the presence
or absence of tumour at sites distant from the primary site.
Source and reference attributes
Reference documents:
Sobin LH, Wittekind C. TNM Classification of Malignant
Tumours. 6 ed. Hoboken, New Jersey: John Wiley & Sons; 2002
Commission on Cancer Facility Oncology Registry Data
Standards (FORDS): Revised for 2004
Relational attributes
Related metadata references:
Is formed using Person with cancer—solid tumour size (at
diagnosis), total millimetres NNN Health, Standard 06/03/2009
Supersedes Person with cancer—primary tumour status, T
stage (UICC TNM Classification of Malignant Tumours 5th ed)
code XX[X] Health, Superseded 06/03/2009
Is used in the formation of Person with cancer—extent of
primary cancer, TNM stage (UICC TNM Classification of
Malignant Tumours, 6th ed) code XXXX{[X]XX} Health,
Standard 06/03/2009
Implementation in Data Set
Specifications:
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
Cancer (clinical) DSS Health, Standard 06/03/2009
Conditional obligation:
Collection of this element is conditional on the disease site
being listed in the UICC TNM Classification.
Information specific to this data set:
For survival analysis adjusted by stage at diagnosis and
distribution of cancer cases by type and stage.
 New Data item
 Revised data item
80
Person with cancer—regional lymph node metastasis
status, N stage (UICC TNM Classification of Malignant
Tumours, 6th ed) code XX 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Cancer staging—N stage code
METeOR identifier:
341302
Registration status:
Health, Standard 06/03/2009
Definition:
Extent of regional lymph node metastasis at the time of
diagnosis of the primary cancer, as represented by a code.
Data Element Concept:
Person with cancer—regional lymph node metastasis status
Value domain attributes
Representational attributes
Classification scheme:
International Union against Cancer (UICC) TNM Classification
of Malignant Tumours 6th edition
Representation class:
Code
Data type:
String
Format:
XX
Maximum character length:
2
Supplementary values:
Value
Meaning
88
Not applicable
Collection and usage attributes
Guide for use:
Valid N codes from the current edition of the UICC TNM
Classification of Malignant Tumours.
Refer to the TNM Supplement: A Commentary on Uniform
Use, 3rd Edition for coding rules.
Data element attributes
Collection and usage attributes
Guide for use:
TNM staging applies to solid tumours excluding brain tumours.
Choose the lower (less advanced) N category when there is any
uncertainty.
Collection methods:
From information provided by the treating doctor and recorded
on the patient's medical record.
Comments:
Cancer prognosis and survival can be related to the extent of
the disease at diagnosis. Survival rates are generally higher if
the disease is localised to the organ of origin compared with
cases in which the tumour has spread beyond the primary site.
Staging systems seek to classify patients having a similar
prognosis into groups or stages. TNM staging is an
internationally agreed staging classification system based on
the anatomical site of the primary tumour and its extent of
spread. The T component refers to the size of the tumour and
 New Data item
 Revised data item
81
whether or not it has spread to surrounding tissues. The N
component describes the presence or absence of tumour in
regional lymph nodes. The M component refers to the presence
or absence of tumour at sites distant from the primary site.
Source and reference attributes
Reference documents:
Sobin LH, Wittekind C. TNM Classification of Malignant
Tumours. 6 ed. Hoboken, New Jersey: John Wiley & Sons; 2002
Commission on Cancer Facility Oncology Registry Data
Standards (FORDS): Revised for 2004
Relational attributes
Related metadata references:
Supersedes Person with cancer—regional lymph node
metastasis status, N stage (UICC TNM Classification of
Malignant Tumours 5th ed) code XX Health, Superseded
06/03/2009
Is used in the formation of Person with cancer—extent of
primary cancer, TNM stage (UICC TNM Classification of
Malignant Tumours, 6th ed) code XXXX{[X]XX} Health,
Standard 06/03/2009
Implementation in Data Set
Specifications:
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
Cancer (clinical) DSS Health, Standard 06/03/2009
Conditional obligation:
Collection of this element is conditional on the disease site
being listed in the UICC TNM Classification.
Information specific to this data set:
For survival analysis adjusted by stage at diagnosis and
distribution of cancer cases by type and stage.
 New Data item
 Revised data item
82
Person with cancer—solid tumour size (at diagnosis),
total millimetres NNN 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Tumour size at diagnosis (solid tumours)
METeOR identifier:
370042
Registration status:
Health, Standard 06/03/2009
Definition:
The largest dimension of a solid tumour, measured in
millimetres.
Data Element Concept:
Person with cancer—solid tumour size
Value domain attributes
Representational attributes
Representation class:
Total
Data type:
String
Format:
NNN
Maximum character length:
3
Supplementary values:
Unit of measure:
Value
Meaning
999
Unknown
Millimetre (mm)
Collection and usage attributes
Guide for use:
Size in millimetres with valid values 001 to 997.
Data element attributes
Collection and usage attributes
Guide for use:
 New Data item
The reporting standard for the size of solid tumours is:
Breast cancer or other solid neoplasms - the largest tumour
dimension, measured to a precision of 1mm.
Round to the nearest millimetre, rounding up if size is ≥ .5 mm
eg 1.50mm, 1.54mm recorded as 2mm, 1.47mm recorded as
1mm.
General coding rules:
Recorded size:
Only record measured size if stated, otherwise record size as
unknown. Do not attempt to estimate size from descriptions of
the tumour, such as 'tumour occupying three quarters of tissue'.
Do not take values for size from sources other than
histopathology (such as imaging, mammography or clinical
examination).
Size reported for multiple specimens:
If tumour is removed in more than one procedure (e.g. biopsy
and excision, local excision and re-excision) do not sum the
sizes across multiple pathology reports but rather use the larger
of the measured sizes from the separate pathology reports.
 Revised data item
83
If tumour is divided into several parts (in the same pathology
report), do not sum sizes together but rather use the larger of
the measured sizes. However, if the pathologist states an
aggregate or composite size, record that size.
Multifocal tumour:
If the tumour is multifocal, record the size of the largest
measured focus. Do not attempt to sum sizes of different foci.
Macroscopic size:
If only macroscopic size is given, record this value.
If the macroscopic and microscopic measurements differ, the
microscopic measurement should be recorded.
Exclusions:
Size is not recorded for Phyllodes tumours, sarcomas, or
lymphomas.
Invasive breast cancer coding rules:
Note: These rules are to be used only when the record pertains
to an invasive breast cancer (as per Person with cancer-primary
site of cancer, code (ICDO-3), ANN{.N[N]}).
Invasive tumours with an in situ component:
When an invasive tumour contains an in-situ component, only
record the size of the invasive component as stated.
If the size of the invasive tumour is not recorded separately to
the in situ component, then record the total size of the tumour
without any attempt to estimate the invasive component using
percentage or size of the in situ component.
Microinvasive tumour:
For microinvasive tumours, record size in millimetres if stated.
If microinvasion is stated but no size is recorded, enter 990 in
size field to enable these very small tumours to be differentiated
from other tumours without measured sizes.
Bilateral breasts tumours:
Bilateral tumours are recorded as two separate primary
tumours each having their own size (and other data elements).
Multifocal tumours with different morphology:
Foci with different morphology should be considered to be
separate primary tumours each having their own size (and
other data elements). The coder needs to ascertain whether two
foci with differing morphology are separate primaries with
different morphology or a single multifocal primary with a
mixed histology. In the latter case the rule of taking the size
from the larger focus would apply as stated.
Collection methods:
This data item is collected for the size of tumours as specified in
pathology reports.
Source and reference attributes
Reference documents:
 New Data item
Johnson CH, Adamo M (eds.). SEER Program Coding and
Staging Manual 2007. National Cancer Institute, NIH
Publication number 07-5581, Bethesda, MD 2007.
National Breast and Ovarian Cancer Centre and Australian
Cancer Network. The Pathology reporting of breast cancer. A
guide for pathologists, surgeons, radiologists and oncologists
(3rd edition). National Breast and Ovarian Cancer Centre, Surry
 Revised data item
84
Hills, NSW, 2008.
Relational attributes
Related metadata references:
Supersedes Person with cancer—solid tumour size (at
diagnosis), total millimetres NNN Health, Superseded
06/03/2009
Is used in the formation of Person with cancer—primary
tumour status, T stage (UICC TNM Classification of Malignant
Tumours, 6th ed) code XX[X] Health, Standard 06/03/2009
Implementation in Data Set
Specifications:
Breast cancer (Cancer registries) DSS Health, Standard
06/03/2009
Cancer (clinical) DSS Health, Standard 06/03/2009
Information specific to this data set:
This is used to measure the diameter of the largest
dimension of breast cancers and other solid neoplasms for
patient management, population cancer statistics and
research.
 New Data item
 Revised data item
85
Person—area of usual residence, geographical location
code (ASGC 2008) NNNNN 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Area of usual residence
METeOR identifier:
377103
Registration status:
Health, Standard 04/02/2009
Definition:
Geographical location of usual residence of the person, as
represented by a code.
Data Element Concept:
Person—area of usual residence
Value domain attributes
Representational attributes
Classification scheme:
Australian Standard Geographical Classification 2008
Representation class:
Code
Data type:
Number
Format:
NNNNN
Maximum character length:
5
Data element attributes
Collection and usage attributes
Guide for use:
 New Data item
The geographical location is reported using a five digit
numerical code. The first digit is the single-digit code to
indicate State or Territory. The remaining four digits are the
numerical code for the Statistical Local Area (SLA) within the
State or Territory.
The single digit codes for the states and territories and the four
digit codes for the SLAs are as defined in the Australian
Standard Geographical Classification (ASGC).
The ASGC is updated on an annual basis with a date of effect of
1 July each year. The codes for SLA are unique within each
State and Territory, but not within the whole country. Thus, to
define a unique location, the code of the State or Territory is
required in addition to the code for the SLA.
The Australian Bureau of Statistics (ABS) National Localities
Index (NLI) (ABS Catalogue number 1252.0) can be used to
assign each locality or address in Australia to a SLA. The NLI is
a comprehensive list of localities in Australia with their full
code (including State or Territory and SLA) from the main
structure of the ASGC.
For the majority of localities, the locality name (suburb or town,
for example) is sufficient to assign a SLA. However, some
localities have the same name. For most of these, limited
additional information such as the postcode or State can be
used with the locality name to assign the SLA. In addition,
other localities cross one or more SLA boundaries and are
referred to as split localities. For these, the more detailed
 Revised data item
86
information of the number and street of the person's residence
is used with the Streets Sub-index of the NLI to assign the SLA.
If the information available on the person's address indicates
that it is in a split locality but is insufficient to assign an SLA,
the code for the SLA which includes most of the split locality
should be reported. This is in accordance with the NLI
assignment of SLA when a split locality is identified and further
detail about the address is not available.
The NLI does not assign a SLA code if the information about
the address is insufficient to identify a locality, or is not an
Australian locality. In these cases, the appropriate codes for
undefined SLA within Australia (State or Territory unstated),
undefined SLA within a stated State or Territory, no fixed place
of abode (within Australia or within a stated State or Territory)
or overseas should be used.
Collection methods:
When collecting the geographical location of a person's usual
place of residence, the Australian Bureau of Statistics (ABS)
recommends that 'usual' be defined as: 'the place where the
person has or intends to live for 6 months or more, or the place
that the person regards as their main residence, or where the
person has no other residence, the place they currently reside.'
Apart from collecting a person's usual place of residence there
is also a need in some collections to collect area of residence
immediately prior to or after assistance is provided, or at some
other point in time.
Comments:
Geographical location is reported using Statistical Local Area
(SLA) to enable accurate aggregation of information to larger
areas within the Australian Standard Geographical
Classification (ASGC) (such as Statistical Subdivisions and
Statistical Divisions) as well as detailed analysis at the SLA
level. The use of SLA also allows analysis relating the data to
information complied by the Australian Bureau of Statistics on
the demographic and other characteristics of the population of
each SLA. Analyses facilitates by the inclusion of SLA
information include:



comparison of the use of services by persons residing in
different geographical areas
characterisation of catchment areas and populations for
establishments for planning purposes
documentation of the provision of services to residents of
States or Territories other than the State or Territory of the
provider.
Relational attributes
Related metadata references:
Supersedes Person—area of usual residence, geographical
location code (ASGC 2007) NNNNN Health, Superseded
04/02/2009
Implementation in Data Set
Specifications:
Admitted patient care NMDS 2009-2010 Health,
Standardisation pending 03/12/2008
Implementation start date: 01/07/2009
Admitted patient mental health care NMDS 2009-2010 Health,
Standardisation pending 03/12/2008
Implementation start date: 01/07/2009
 New Data item
 Revised data item
87
Admitted patient palliative care NMDS 2009-10 Health,
Standardisation pending 03/12/2008
Implementation start date: 01/07/2009
Community mental health care NMDS 2009-2010 Health,
Standardisation pending 03/12/2008
Implementation start date: 01/07/2009
Non-admitted patient emergency department care NMDS 20092010 Health, Standardisation pending 03/12/2008
Implementation start date: 01/07/2009
Perinatal NMDS 2010-2011 Health, Recorded 08/11/2008
Implementation start date: 01/07/2010
Residential mental health care NMDS 2009-2010 Health,
Standardisation pending 03/12/2008
Implementation start date: 01/07/2009
 New Data item
 Revised data item
88
Service delivery outlet—geographic location, code (ASGC
2008) NNNNN 
Identifying and definitional attributes
Metadata item type:
Data Element
Short name:
Geographical location of service delivery outlet
METeOR identifier:
377108
Registration status:
Health, Standard 04/02/2009
Definition:
Geographical location of a site from which a health/community
service is delivered, as represented by a code.
Data Element Concept:
Service delivery outlet—geographic location
Value domain attributes
Representational attributes
Classification scheme:
Australian Standard Geographical Classification 2008
Representation class:
Code
Data type:
Number
Format:
NNNNN
Maximum character length:
5
Data element attributes
Collection and usage attributes
Guide for use:
Comments:
The geographical location is reported using a five digit
numerical code to indicate the Statistical Local Area (SLA)
within the reporting state or territory, as defined in the
Australian Standard Geographical Classification (ASGC). It is a
composite of State identifier and SLA (first digit = State
identifier, next four digits = SLA).
The Australian Bureau of Statistics National Localities Index
(NLI) can be used to assign each locality or address in Australia
to an SLA. The NLI is a comprehensive list of localities in
Australia with their full code (including SLA) from the main
structure of the ASGC. For the majority of localities, the locality
name (suburb or town, for example) is sufficient to assign an
SLA. However, some localities have the same name. For most of
these, limited additional information such as the postcode or
State can be used with the locality name to assign the SLA.
In addition, other localities cross one or more SLA boundaries
and are referred to as split localities. For these, the more
detailed information of the number and street of the
establishment is used with the Streets Sub- index of the NLI to
assign the SLA.
To enable the analysis of the accessibility of service provision in
relation to demographic and other characteristics of the
population of a geographic area.
Source and reference attributes
 New Data item
 Revised data item
89
Submitting organisation:
Intergovernmental Committee on Drugs National Minimum
Data Set Working Group
Origin:
Australian Standard Geographical Classification (ABS Cat. No.
1216.0)
Relational attributes
Related metadata references:
Supersedes Service delivery outlet—geographic location, code
(ASGC 2007) NNNNN Health, Superseded 04/02/2009
Is formed using Establishment—Australian state/territory
identifier, code N Health, Standard 01/03/2005
Implementation in Data Set
Specifications:
Alcohol and other drug treatment services NMDS 2009-2010
Health, Standardisation pending 03/12/2008
Implementation start date: 01/07/2009
 New Data item
 Revised data item
90
Classifications
 New Data item
 Revised data item
91
Australian Standard Geographical Classification 2008 
Identifying and definitional attributes
Metadata item type:
Classification Scheme
Synonymous names:
ASGC 2008
METeOR identifier:
374926
Registration status:
Health, Standard 04/02/2009
Community services, Standard 09/04/2009
Definition:
The Australian Bureau of Statistics classification for the
classification of geographical locations.
Source and reference attributes
Origin:
Australian Bureau of Statistics 2006. Australian Standard
Geographical Classification (ASGC). Cat No. 1216.0. Canberra:
ABS. Viewed on 14/11/2008
Relational attributes
Related metadata references:
Supersedes Australian Standard Geographical Classification
2007 Health, Superseded 04/02/2009, Community services,
Superseded 09/04/2009
Value Domains based on this
Classification Scheme:
Geographical location code (ASGC 2008) NNNNN Health,
Standard 04/02/2009
Community services, Standard 09/04/2009
 New Data item
 Revised data item
92
International Union against Cancer (UICC) TNM
Classification of Malignant Tumours 6th edition 
Identifying and definitional attributes
Metadata item type:
Classification Scheme
METeOR identifier:
341286
Registration status:
Health, Standard 06/03/2009
Definition:
The International Union Against Cancer classification for
malignant tumours.
Source and reference attributes
Reference documents:
Sobin LH, Wittekind C. TNM Classification of Malignant
Tumours. 6th ed. Hoboken, New Jersey: John Wiley & Sons;
2002
Relational attributes
Related metadata references:
Supersedes International Union against Cancer TNM
Classification of Malignant Tumours 5th edition Health,
Superseded 06/03/2009
Value Domains based on this
Classification Scheme:
M stage (UICC TNM Classification of Malignant Tumours, 6th
ed) code XX Health, Standard 06/03/2009
N stage (UICC TNM Classification of Malignant Tumours, 6th
ed) code XX Health, Standard 06/03/2009
T stage (UICC TNM Classification of Malignant Tumours, 6th
ed) code XX[X] Health, Standard 06/03/2009
TNM stage (UICC TNM Classification of Malignant Tumours,
6th ed) code XXXX{[X]XX} Health, Standard 06/03/2009
 New Data item
 Revised data item
93