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The facts about sharing health records This fact sheet provides you with information to help you understand the sharing arrangements for your health records. Care.data is proposed for a phased roll out to begin in autumn 2014, Summary Care Record has been live for a number of years and Leeds Care Record is slowly being introduced into GP Practices across Leeds. Care.data Care.data is a national initiative led by NHS England. Care.data is the routine extraction of certain personal, confidential data from GP practice systems to improve patient care. It will include information such as family history, vaccinations, diagnoses, referrals and all NHS prescriptions. Information such as, postcode and NHS number and gender are needed to link GP data with personal, confidential data from other care settings in order to analyse patient care across different services. By using information about the care a patient has received, those involved in providing care and health services can check on the quality of healthcare provided and decide whether improvements need to be made. This will help to ensure the quality and safety of healthcare services. Information would only be disclosed to other NHS services where it not possible to identify individual patients. Where confidential information is disclosed it would only be done so where there is a clear legal basis to do so. The scheme is currently being considered for start-up in autumn 2014 after awareness of the scheme is raised and to listen and act on the views of patients and others. Can patients opt out? Yes, patients can opt out of care.data directly with the GP practice. If a patient needs more information they can call the dedicated patient information line on 0300 456 3531. This line also offers translation and text phone services. Information is also available on the NHS Choices website at www.nhs.uk/caredata. Summary Care Record The Summary Care Record is an electronic record that's stored at a central location. As the name suggests, the record will not contain detailed information about a patient’s medical history, but will only contain important health information, such as: any prescription medication a patient is taking any allergies a patient may have any bad reaction to any medication a patient may have previously had Having this information stored in one place makes it easier for healthcare staff to treat you in an emergency or when your GP is closed. Access to Summary Care Records is strictly controlled. The only people who can see the information is healthcare staff directly involved in a patient’s care who have a special smartcard and access number (like a chip-and-pin credit card). All GP Practices in Leeds have signed up to this initiative. Healthcare staff need to ask a patient’s permission every time they need to look at their Summary Care Record. If they cannot ask, e.g. because a patient is unconscious, healthcare staff can look at a record without asking. If they have to do this, it will be noted on the patient record. More information about the Summary Care Record can be found at www.nhscarerecords.nhs.uk Can patients opt out? Yes, patients who would like to opt out you need to complete a form supplied by your GP practice. Leeds Care Record At the moment, every health and social care organisation holds a different set of records about a patient. Information in different records may be duplicated or incomplete and communications between services are frequently done by letter. The Leeds Care Record gives health and social care professionals directly in charge of patient care access to the most up-to-date and key information electronically such as: address and telephone number problem diagnosis list medications test result referrals clinic letters and discharge information The type of records to be shared would be GP, hospital, social care, community and mental health records. Sharing of key information from a patient’s medical and care records will happen automatically between health and social care services in Leeds where organisations sign up to the scheme. GP practices who sign up to the Leeds Care Record will need to comply with the Data Protection Act which sets out the conditions for lawful sharing of patient information and to ensure that the information is secure. Not all practices have currently signed up to the Leeds Care Record. You can if you wish ask at your practice whether they have signed up. Further information about the Leeds Care Record can be seen at: www.LeedsCareRecord.org Can patients opt out? Yes, patients can choose not to have a Leeds Care Record by calling 0113 20 64102 or sending a letter to Leeds Care Record, Leeds Teaching Hospitals NHS Trust, Lincoln Wing/Chancellor Wing Link Corridor, Beckett Street, Leeds, LS9 7TF. Risk Stratification If you would like some information on pro-active care management known as “Risk Stratification” please visit www.leedsnorthccg.nhs.uk/about-us/informatics/ We would like to know if the information provided within this factsheet has been useful or if you would like to receive any further information, please contact the communications team at [email protected] or call on 0113 843 2900. Alternatively, you can complete the form and freepost to the address below. Please note: this is not an opt out form. Name Preferred contact details (by post/phone/email) Comment or request for further information Freepost RTEH-ZTXY-HALJ Leeds North Clinical Commissioning Group Leafield House, 107-109 King Lane, Leeds, LS17 5BP Information correct at time of production – June 2014