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Care TransitionsEasy as Child’s Play –Right? Bronwyn Bartle DNP, CPNP-AC/PC Duke Children’s Heart Center Disclosure Statement I do not have any relevant financial relationships with any commercial interests to disclose. A few questions to get us started Do you have a script that drives your care transition from ICU floor A. Yes B. No Question #2 Do you have a script that drives your care transition from floor to home? A. Yes B. No Question #3 Do you have a “transition of care meeting” with the care team and the family prior to transferring? A. Yes B. No Question #4 Who calls the pediatrician prior to discharge? A. No one does B. Attending C. Fellow D. Nurse practitioner Question #5 Is the family aware of “milestones” to be met prior to transitioning? A. Yes B. No Do you ever feel Stuck in this game? Every time we make strides forward we find ourselves sliding backwards. How can we make it more predictable than a roll of the dice? How can we feel less like this? We know we cannot read into the future – but we have to prepare for it. We try so hard to “get it right”, always feeling under pressure, hoping at the final hour it does not all blow up And more like this? Shift our thinking: Strategic, collaborative, shared goals, multidisciplinary Great idea – but how do we get there? What do you use to coordinate care transitions? A. B. C. D. E. Journey board Scripted handoffs We rely on one person to take care of this No one does this I’m not sure how it happens It’s charted – why the extra step? Its like story cubes – we all use each of the 6 sided dice to tell the patient’s story. No one tells the story in quite the same way. The end user is the reader of the story. Critical to shift your thinking Partner with entire care team Multidisciplinary Engage all of your resources (social work, discharge planner, community resources, nursing staff) Parent/family engagement Critical to success Secondary caregiver identified and trained Teach back method Transparency of goals What needs to be communicated? Problem list – active and resolved Medications Patient’s current status and most recent changes Procedures (and results) Read the op note/cath report/echo yourself Consulted services Family update Understanding, availability, concerns Where do I start?? Pediatric Cardiology Infant Discharge Checklist Things for family to complete: Date Ordered Checklist Item Checklist Description Parent CPR teaching Parent SVT teaching (if applicable) Single Ventricle Teaching (if applicable) Pulse ox/oxygen Teaching (if applicable) G tube teaching (if applicable) G tube care (if applicable) Medication Administration Formula Mixing Feeding Pump Management (if applicable) NG teaching (if applicable) Lovenox teaching (if applicable) 24 Hours of Care Completed by RN. Caregivers must watch CPR video and complete demonstration Completed by RN for infants with a history of SVT or at increased risk due to cardiac disease. Please verify that the family knows the signs and symptoms, how to check for pulse, how to listen for apical pulse, and when to call for help. Date Completed by Caregiver #1 Date Completed by Caregiver #2 Completed by Cardiology NP. Please verify that family understands “Red Flag Checklist” and when to call for help. Family should have baby scale and notebook at bedside. Completed by home health care representative and RN. Family should understand alarms, normal ranges for their child, and when to call for help. Please have patient on home equipment for at least 24 hours prior to discharge. Completed by Pediatric Surgery NP. Family should receive G tube notebook and understand what to do in emergencies (tube falls out, malfunction, etc). Completed by RN. This includes cleaning the site, venting the G tube, and administering medications. Completed by RN. Please provide medication schedule. Family must demonstrate pulling up medications and proper medication administration. Completed by Nutritionist. Please provide handout on proper mixing instructions for higher caloric density formulas. Completed by home health care representative and RN. Please ensure family knows how to program and use pump for both bolus feeds and continuous feeds. No more than 4 hours of feeds in bag at one time. Completed by RN. Each caregiver must place 3 NG tubes each. Please date and initial for all 3. Completed by RN. Each caregiver must administer 3 injections each. Please date and initial for all 3. To be completed once ALL TEACHING HAS BEEN DONE. This must be a full 24 hours with at least one caregiver ALWAYS in the room. Please take patient off hospital equipment (continue vital signs q 4h), and use all home equipment. Caregivers must complete ALL ASPECTS OF CARE. Things for the team to complete: Date Ordered Checklist Item Checklist Description Car seat fitting Completed by PT (Deb). Have family bring car seat prior to discharge. Patients born after 36 weeks ONLY require a fitting. Premature infants must complete car seat test (monitor for apneas and bradys). Repeat any vaccines given within 1-2 weeks of bypass run. Please list vaccines on discharge instructions (not entered into state database). Offered during RSV season. Alert pediatrician if patient will be requiring synagis so that future doses are not postponed. For any patients > 6 mos who have not received that vaccine previously. Initial newborn screen sent between 24-48 hours. Please send 2nd newborn screen on full feeds (most cardiac babies are NPO prior to cardiac repair). Completed prior to discharge. Generally completed within the week prior to discharge. Must have documented EKG after OR. Usually done in PCICU. Ensure that EKG is in chart/Ebrowser. Call PCP and give verbal sign out for complex patients. Appointment should be within first week of discharge. Fellow/Attending will give verbal sign out to cardiologist. Appointment should be within the first 1-2 weeks after discharge. Please ensure that all specialties know about discharge plans. Arrange appointments as necessary. Vaccines Synagis Vaccine Flu Vaccine Newborn Screen BAER Hearing Screen Discharge ECHO EKG PCP Appointment Cardiology Appointment Consulting Services Follow up **Please return all completed checklists to Michelle Taylor, CPNP-AC/PC. They may be left in the 5300 workroom on weekends and holidays.** Date Completed How will I do this at home?? How do we get out of the ICU?! Strategic Communication is Essential Who will take care of us when we leave? Overwhelming? I think not… Engages parents even before admission Teach back method builds confidence Listen to how they explain their child to other family members – a window into their understanding Satisfies list-makers and slackers alike! Ensures everyone receives the same teaching. Visual reminders Always, always state – AT LEAST 24 hours of care For Parents Reassure them that bumps in the road are to be expected - at EVERY transition point Hands on practice, practice, practice is essential Encourage them to ask questions Knowledge is power – be clear in your communication For team members Don’t be afraid to ask for clarity Don’t accept “I’ve only taken care of them today” Know what you want to know Ask where the parents are on their journey Face to face bedside hand off is best Transition of care meetings are essential Minimize free text options in charting Know the integral part you play Take Home Points Give careful thought to care transitions Be transparent Be sure the story you are writing is not a cliffhanger! Supply the next caregiver with tools to succeed – whether that is the next provider or the parent or the pediatrician The “system” you implement should run without you For questions: [email protected] 919-681-2343