Download Tumor Registry - Upper Valley Medical Center

Tumor Registry
What is a Tumor Registry?
A tumor registry is a place where data
on cancer patients is deposited and
analyzed. This helps us compare our
care to the care at other facilities.
The information is de-identified,
which means no names are used.
This data is then used for clinical
reports and teaching conferences,
which in turn help provide better care
for current and future patients.
What type of data is
collected?
Where does the data go?
The Tumor Registry maintains all
records in accordance with applicable
federal and state laws. The State of
Ohio requires timely reporting to the
Ohio Cancer Incidence Surveillance
System (OCISS) in order to monitor
the cancer incidence across the state.
As a part of our accreditation as a
Community Hospital Cancer Program
by the American College of Surgeons
Commission on Cancer, data also is
submitted annually to the National
Cancer Data Base.
The UVMC Tumor Registry is available
to assist with any questions in
regards to information on cancer
incidence and the data we collect.
Please feel free to contact us at any
time at (937) 440-4829 or (937) 4404830.
The types of data collected by a
tumor registry include patient
demographics (age, sex, race, place
of residence), medical history
(family history of cancer, smoking
status), and co-existing conditions.
Statistical Review for 2008
Information about the tumor such
as size, site, and stage at time of
The following is a statistical review
diagnosis are also collected to
of the 2008 accession year, which
accurately describe each individual’s
includes all cancer cases in which
cancer. Treatment provided to the
the first date of contact with UVMC
patient, such as surgery, radiation
ranges from January 1, 2008 to
therapy, chemotherapy, and hormone
December 31, 2008.
therapy are recorded as well as what
order they are given
in. Lastly follow-up
Comparison of Actual Cancer Cases seen at UVMC
information is collected
vs. Estimated New Cancer Cases for Ohio & U.S. 2008
on each patient to
observe the outcomes
UVMC
Ohio*
United States*
of each patient and
All Sites
477
56840
1437180
their cancer. There are
Breast
104
6990**
184450
approximately 150 to
Lung
68
9510
215020
170 pieces of data on
Prostate
66
6650
186320
each patient’s case
Colorectal
58
6270
148810
that registrars collect
in accordance with
*Data source: American Cancer Society. Cancer Facts
strict data and coding
& Figures 2008. Atlanta: American Cancer Society;
guidelines.
2008.
**Female breast cancers only
10 • Upper Valley Medical Center
UVMC Total Case Distribution by Site, 2008
104
Breast
68
66
Bronchus & Lung
Prostate
58
Colorectal
20
18
Lymph Nodes
Hematopoietic
Skin
Pancreas
Bladder
Cervix Uteri
10
10
9
Kidney
Brain & Other CNS
Head & Neck
Stomach
Ill Defined Sites
Esophagus
Larynx
Small Intestine
Anus
Testis
Gall Bladder/Biliary
Ureter
Renal Pelvis
Conn, SubQ, Soft Tissue
Bones
244
UVMC’s Tumor Registry has 8,363
cases in the active database ranging
from our reference date of Jan. 1,
1985 to Dec. 31, 2008. During the
2008 accession year, the registry
accessioned 436 new analytic
cases and 41 new non-analytic
cases. The top five sites included
breast, bronchus and lung, prostate,
colorectal, and lymph nodes.
3
3
Ovary
Uterus
233
6
6
6
6
5
4
4
3
Thyroid
Parotid Gland
Distribution
by Sex
14
12
12
12
11
Corpus Uteri
2
1
1
1
1
1
0
20
40
60
80
100
Number of Cases
UVMC Cancer Care Center Annual Report • 11
AJCC Stage at Diagnosis
Percent
Breast Cases by AJCC Stage (n=102)
39%
40
30
20
25%
20%
9%
10
0
0
I
II
III
6%
IV
1%
Unk/NA
AJCC Stage at Diagnosis
Bronchus & Lung Cases by AJCC Stage (n=68)
Percent
When a patient is diagnosed with cancer, the physician will initiate several diagnostic tests to determine
the stage of that patient’s cancer. The stage group is
a way to categorize the extent of a patient’s cancer by
codifying the extension of the primary tumor, lymph
node involvement, and any distant metastasis into five
groups. Stage 0 is the least extensive and Stage IV is
the most extensive. The AJCC Stage Groups are utilized
by physicians to assist in determining treatment options for cancer patients in accordance with National
Treatment Guidelines for each cancer site by evaluating
the efficacy of treatment of patients in a similar stage
group. These graphs demonstrate the AJCC Stage at
time of diagnosis for our top 4 sites diagnosed and/or
treated at Upper Valley Medial Center in 2008.
50
50
45
40
35
30
25
20
15
10
5
0
30
44%
28%
19%
7%
2%
0%
0
I
II
III
IV
AJCC Stage at Diagnosis
Unk/NA
Colorectal Cases by AJCC Stage (n=57)
26%
25
23%
23%
Percent
20
15
10
12%
7%
9%
5
0
0
I
II
III
IV
Unk/NA
AJCC Stage at Diagnosis
Prostate Cases by AJCC Stage (n=60)
90%
Percent
100
90
80
70
60
50
40
30
20
10
0
12 • Upper Valley Medical Center
0%
0
0%
I
3%
7%
II
III
IV
AJCC Stage at Diagnosis
0%
Unk/NA
Number of Patients
140
120
100
80
60
40
20
0
UVMC Distribution of Cases by Age, 2008
118
123
90
59
8
0-29
59
14
30-39
16
40-49
50-59
60-69
70-79
80-89
90+
Age at Diagnosis
Age is also a prognostic indicator among cancer patients, often
times determining if certain treatments are a viable option or not.
Treatments do vary between a 40 year old patient and a 70 year old
patient for many reasons. Several factors including if the patient can
tolerate treatment, if the patient’s fertility will be affected, quality
of life issues, and many others are discussed by the patient’s treating
physicians. This graph demonstrates the distribution of registry
cases by age at the time the patient was diagnosed. The mean age
at diagnoses for UVMC cancer cases was 64 years old with the range
extending from 22 to 97 years.
Laura Vondenhuevel, RHIT, CTR
Oncology Research Analyst
Cancer Conferences and Educational Opportunities
The UVMC Tumor Registry also plans and coordinates with our medical
staff to provide prospective, patient-oriented, and multidisciplinary
Cancer Conferences throughout the year. During these Cancer
Conferences, physicians may present cancer cases for discussion.
Surgery, Medical Oncology, Radiation Oncology, Diagnostic Radiology,
and Pathology are just a few of the specialties that are available at the
conferences to discuss and provide information on various treatment
options and/or clinical trials that could be available for the patient,
providing a free consultative service to our patients and medical staff.
All patient information at Cancer Conferences is presented without the
discussion of the patient’s identity and is considered confidential and
held to the highest privacy standards.
Nicole Mencsik
Oncology Research Analyst
Assistant
Upper Valley Medical Center is accredited by the Ohio State Medical
Association to provide continuing medical education for physicians.
Upper Valley Medical Center designates this educational activity for a
maximum of 1 AMA PRA Category 1 Credit(s)™.
Physicians may contact Laura Vondenhuevel, RHIT, CTR in the Tumor
Registry at (937) 440-4829 for more information, to receive a schedule
for the current year of conferences, or to schedule a patient to be
presented at a conference.
UVMC Cancer Care Center Annual Report • 13