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Appendix F Prognostic Indicators for Long Term Conditions – identifying patients expected to die in the next 12 months Prognostic Indicators for the key LTCs that result in death from organ failure: 1. COPD – lung failure 2. CCF – heart failure 3. DM – renal failure 1. Specific prognostic indicators for COPD At least two of the indicators below: Disease assessed to be severe (e.g. FEV1 <30% predicted) Recurrent hospital admissions (at least 3 in last 12 months due to COPD) Fulfils long term oxygen therapy criteria MRC grade 4/5 – shortness of breath after 100 meters on the level of confined to house Signs and symptoms of right heart failure Combination of other factors – i.e. anorexia, previous ITU/NIV resistant organisms More than 6 weeks of systemic steroids for COPD in preceding 6 months. How to identify these patients: Create searches to identify patients who are on O2, have MRC grade 4 or 5, or who have had oral prednisolone within the last 6/12 Use MedeAnalytics to see which patients have been admitted with acute exacerbation of COPD within the preceding 12/12 Most practices will not be Read coding FEV1 as a percentage of predicted, as QOF does not require this. Consider Read coding this in the future when doing annual spirometry? 1 2. Specific prognostic indicators for heart failure At least two of the indicators below: CHF NYHA Stage 3 or 4 - shortness of breath at rest on minimal exertion Patient thought to be in the last year of life by the care team - The ‘surprise question’ : would you be surprised if the patient were to die in the next few months, weeks or days? Repeated hospital admissions with heart failure symptoms Difficult physical or psychological symptoms despite optimal tolerated therapy. How to identify these patients? Search for patients on aldosterone (as indicated in NHYA 3 and 4 only.) Search for patients on high doses of furosemide or other loop diuretics. MedeAnalytics report for patients admitted with a primary diagnosis of heart failure/ exacerbation of heart failure Need to ask a cardiologist for any other searchable medications that would have a high specificity for indicating severe CCF - ? Pacemaker, digoxin etc.? 2 3. Specific indicators for renal disease Stage 4 or 5 Chronic Kidney Disease (CKD) whose condition is deteriorating with at least 2 of the indicators below: Patient for whom the surprise question is applicable Patients choosing the ‘no dialysis’ option, discontinuing dialysis or not opting for dialysis if their transplant has failed Patients with difficult physical symptoms or psychological symptoms despite optimal tolerated renal replacement therapy Symptomatic Renal Failure – nausea and vomiting, anorexia, pruritus, reduced functional status, intractable fluid overload How to identify these patients: Search CKD QOF Register for Read code CKD 4 and 5. Ask a nephrologist if there are any medications that these patients are likely to be on, so that practice can search for them. 3