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2016 AUSTRALIAN LUNG CANCER STUDIES The Centre for Community-Driven Research is working with the Lung Foundation Australia to understand the type and level of care that lung cancer patients need. STUDY 1: LUNG CANCER PATIENT’S TREATMENT AND HOSPITAL EXPERIENCE1 Aim: The aim of this study is to understand the experience of lung cancer patients in relation to their treatment and their experience in the hospital system. Types of questions: For this study we will be asking questions about treatment side effects, the type of information that patients receive to make decisions about treatment and their experience in the hospital setting. Time commitment: The interview will take approximately 30 minutes and will be conducted via telephone. How we will use the information collected: The information we collect in this study will be presented to government and entered into peer reviewed publications to inform how they decisions are made about the treatments that lung cancer patients have access to. STUDY 2: LUNG CANCER PATIENT QUALITY OF LIFE STUDY2 Aim: The aim of this study is to understand the impact of lung cancer on overall quality of life and what patients expect from new treatment options. Types of questions: For this study we will be asking questions about life before cancer was diagnosed, the conversations that patients had with their healthcare team at diagnosis, and how cancer impacts quality of life for themselves and their family. Time commitment: This study will involve a telephone interview which will take approximately 30 minutes and an online questionnaire which will take approximately 15 minutes. The questionnaire can also be completed in writing and posted in the mail. How we will use the information collected: The information we collect in this study will be presented to government and entered into peer reviewed publications to inform how they decisions are made about the treatments that lung cancer patients have access to. To register your interest in participating go to www.cc-dr.org/lcs or email 1 This study is funded by AstraZeneca Australia however the sponsoring company has not been involved in the development of the methodology or implementation of the study 2 This study is funded independently by the Centre for Community-Driven Research Dr Catherine Holliday [email protected] AUSTRALIAN LUNG CANCER STUDY: CALLING FOR PARTICIPANTS All studies have been approved by the CCDR Ethics Committee in accordance with the National Statement on Ethical Conduct in Human Research