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Derbyshire Florence Simple Tele Health (STH) Project Evaluation November 2015 - DRAFT Version 1 - Draft 1 Table of Contents 2 Project Overview..........................................................................................................................5 2.1 How is Florence different and who is it for? .........................................................................5 2.2 Project aims and objectives ..................................................................................................6 2.2.1 Promote and support Patient Self-Care and Health Education .....................................6 2.2.2 Integrated care and individualised patient care ............................................................6 2.2.3 Aging population and rising demand on health services ...............................................7 2.3 3 Benefits of Florence STH .......................................................................................................8 2.3.1 Patient Safety .................................................................................................................8 2.3.2 Patient Empowerment/Experience ...............................................................................8 2.3.3 Quality of Patient Care ...................................................................................................8 2.3.4 Empowering Health Professionals .................................................................................9 2.3.5 Efficiency & Effectiveness ..............................................................................................9 CCG/GP Practice and Services Current Usage ...........................................................................10 3.1 North Derbyshire CCG .........................................................................................................10 3.2 Hardwick CCG ......................................................................................................................13 3.3 Erewash CCG .......................................................................................................................17 3.4 Southern Derbyshire CCG....................................................................................................18 3.5 Other services......................................................................................................................21 3.6 Overview .............................................................................................................................22 3.7 Monthly Reporting – October 2015 ....................................................................................23 3.8 Patient Information .............................................................................................................25 3.9 Text Message Tracking – October 2015 ..............................................................................26 3.10 4 Current CCG KPI’s ............................................................................................................27 Detailed evaluation of Florence usage within the DCHS Community Diabetes Team ..............28 4.1 Members of the Team .........................................................................................................28 4.2 General overview and application ......................................................................................28 4.3 Key Benefits .........................................................................................................................28 4.4 Reason for referral ..............................................................................................................29 4.5 General Diabetes Patient Evaluation ..................................................................................30 4.5.1 Levels of patient interaction with Florence STH ..........................................................30 4.5.2 Levels of growth in patient registrations .....................................................................32 4.5.3 Levels of growth in text messaging..............................................................................33 Version 1 Page 2 4.5.4 4.6 Patient A’s Story ...........................................................................................................35 4.6.2 Blood Glucose Reading ................................................................................................36 4.6.3 Cost of Text Messages .................................................................................................37 4.6.4 Cost of Messages (Actual and Projected) ....................................................................38 4.6.5 Cost Comparison ..........................................................................................................39 Specific Patient Evaluation - Patient B ................................................................................40 4.7.1 Patient B’s Story ...........................................................................................................40 4.7.2 Medication Reminder ..................................................................................................40 4.7.3 Cost of text messages ..................................................................................................41 4.7.4 Patient B reduction in HbA1c .......................................................................................42 4.8 HBA1C Analysis ....................................................................................................................43 4.8.1 What is HbA1C .............................................................................................................43 4.8.2 HbA1c in diagnosis .......................................................................................................43 4.8.3 What are the benefits of lowering HbA1c? .................................................................44 4.9 6 Specific Patient Evaluation – Patient A ...............................................................................35 4.6.1 4.7 5 The number of alerts generated ..................................................................................34 Patient information and HbA1c levels and acheivements ..................................................45 4.10 Case Study .......................................................................................................................46 4.11 DCHS Voice Article – Patient Story Chris Pettett .............................................................48 4.12 One Patient Feedback on Flo – NHS Choices...................................................................49 4.13 Patient Letter to DCHS Diabetes Service Manager – Jonathan Sanderson .....................50 4.14 A patient quotation .........................................................................................................52 4.15 NED patient feedback – Future .......................................................................................52 4.16 Case Study – Patient gets long term condition under control - Future ..........................52 4.17 Reduction of face to face appointments for newly diagnosed patients - outline ..........52 4.18 Reduction of face to face appointments in general - outline .........................................52 4.19 Joint Clinics and Integrated Care .....................................................................................53 4.20 Life without Florence .......................................................................................................53 Southern Derbyshire Care Coordination ...................................................................................54 5.1 Micheala Kirkman ................................................................................................................54 5.2 Alison Goodrum ..................................................................................................................54 5.3 Case Study ...........................................................................................................................55 Ashgate Medical Centre – Early findings ..................................................................................57 Version 1 Page 3 7 Castle Street Medical Centre – draft of 2nd December meeting ...............................................58 8 Areas of potential development ................................................................................................59 9 Appendices.................................................................................................................................61 9.1 Self Care...............................................................................................................................61 9.1.1 Wagner’s Chronic Care Model .....................................................................................61 9.1.2 Factors to strengthen the promotion of Patient Self-care as an integral part of the healthcare system. .....................................................................................................................62 9.1.3 9.2 Self-Management for Life ............................................................................................62 Integrated care, continuity of care and individualised patient care ...................................63 9.2.1 Fulop’s Typologies of Integrated Care (from Lewis et al 2010) ...................................63 9.2.2 Intensity of integration (Shaw et al 2011, p15; after Leutz 1999) ...............................64 9.3 Version 1 More information on the impact of lowering HbA1c .........................................................65 Page 4 2 Project Overview The project has been commissioning and funded by all four Derbyshire Clinical Commissioning Groups (CCGs). Details of funding arrangements/breakdown can be found in the document: Florence Funding Breakdown CCG Agreement. North Derbyshire CCG Hardwick CCG Erewash CCG Southern Derbyshire CCG Implement and support the roll out of Florence STH to GP practices and other healthcare providers such as Community teams involved in direct patient care. To bring together systems, processes and clinical expertise by embedding Florence STH within clinical pathways comprehensive approach to providing patient care. Clinical focus will be with the following patient usage: Respiratory – Chronic Obstructive Pulmonary Disease (COPD) and Asthma Diabetes Management General medication reminders Broader application of Florence STH at the request of individual GP Practices and services as and when required. E.g. Appointment reminders for B12 Injections, Depo Provera Injections and regular DMARD Testing 2.1 How is Florence different and who is it for? Traditional Telehealth requires dedicated communication equipment installed at a patient's home. Florence is different. From a patient's perspective they communicate with Florence through their standard mobile phone, all they need is text messaging. And because they use their mobile phone there is no expensive communication equipment involved. It’s cheaper for the NHS to operate and patients are not tied to their Home. As long as they have their mobile with them they can enjoy the benefits of Florence from anywhere they choose. Florence is for the NHS in the UK. Florence is already being used in over 70 health and social care organisations; the number is increasing all the time. Florence has been designed to enable patients to increase their involvement in the management of their treatment, condition or lifestyle. Clinical staff use Florence to collect readings or symptom information remotely from patients in relation to their healthcare needs. In return Florence sends health advice based on the readings, as agreed with their clinician. Florence can also alert clinicians if a patient's condition worsens to allow them to intervene appropriately. Florence can also send reminders and health tips to support engagement and compliance with health or lifestyle advice. Source: https://www.getflorence.co.uk/faqs/ Version 1 Page 5 2.2 Project aims and objectives This section is to identify general, national and specific clinical or GP/CCG aims and objective to support the application of Florence STH across Derbyshire. This will help to guide this evaluation and focus further work with assistive technology. 2.2.1 Promote and support Patient Self-Care and Health Education Florence STH provides clinicians with a tool to promote and support patient self-care/management. Remind patients to take their medication as prescribed Remind patients to complete regular monitoring Focus’s the patient on monitoring of their condition Focus’s the patient on agreed parameters Provides help and advice Change patient behaviours Gives patient more confidence The importance of self-care is illustrated here by the British Medical Journal. Support for self-care for patients with chronic disease Self-care is defined as the actions individuals “take to lead a healthy lifestyle; to meet their social, emotional and psychological needs; to care for their long-term condition; and to prevent further illness or accidents.” The potential benefits of self-care are substantial. According to the proponents of the chronic care model (one of the most comprehensive models of care for long term conditions): “All patients with chronic illness make decisions and engage in behaviours that affect their health (self-management). Disease control and outcomes depend to a significant degree on the effectiveness of self-management.” http://www.bmj.com/content/335/7627/968 2.2.2 Integrated care and individualised patient care Florence STH provides clinicians with a tool to enable them to share care and information across boundaries and continue to close the gap between health settings. Patient information can be easily shared with other health care providers – e.g. Diabetes Specialist Nurse is able to share patient reading with the patient’s Practice Nurse. If a patient is discharged from one service or referred to another service the Florence patient record can transfer to the new carer. Enables joint decision making between patient and clinical staff e.g. readings are a valuable resource for discussion a joint service clinics or multi-disciplinary team meetings. Reduces the risk of conflicting advice and guidance and unnecessary treatments/test etc. Enables clinicians to complement each other use of Florence STH. Avoiding duplication in effort for both patients and clinical staff. Version 1 Page 6 2.2.3 Aging population and rising demand on health services Florence STH is a flexible yet simple tool to enable users to reach The clinicians does not have to check Florence on a regular basis – Florence has an integrated alert system that is active given that a set of pre-determined parameters have been breached Counteract increases in demand allowing for reminders and monitoring to be sent, and received, automatically without the need for regular instigation by clinical staff. Put in place simple but effective system that can lead to a reduction in appointments. Version 1 Page 7 2.3 Benefits of Florence STH 2.3.1 Patient Safety Flo provides a simple and effective tool to enable patients to manage their health better. SelfManagement is an integral part of any care plan for patients. Patient’s active in their own health care can considerably reduce their risk of medical problems. Flo is clinically built and tested, and has in-built patient safety features. The patient is made aware that Flo does not replace usual face to face interaction. Flo does encourage patients to contact their health professional if pre-set safety parameters are breached. Flo has a simple but effective alert system, alerting clinical staff should (vital signs or other) readings, sent to the system by the patient, breach the patients pre-set safety parameters. Clinical staff can see developing situations and take action as appropriate. Reminding patients to take their medication as prescribed can reduce the level of medication noncompliance. Stabilising the taking of medication and establishing effective routines will allow for effective assessment of the patient condition and their response to the medication and other treatments. 2.3.2 Patient Empowerment/Experience Reduce the number of patient attended appointments for gathering routine monitoring information (e.g. blood pressure readings) Less disruption to working lives of patients. Patients are not tied to their home. Enable patients to have more control over their own care, greater control leads to greater confidence. Enable patients/carers dealing with long term conditions such as Diabetes and Chronic Obstructive Pulmonary Disorder (COPD) to manage their condition effectively with appropriate direction and support. Use of existing technology through the patients mobile phone, all they need is text messaging - which is free of charge. As long as they have their mobile with them they can enjoy the benefits of Florence from anywhere they choose. Florence has been designed to enable patients to increase their involvement in the management of their treatment, condition or lifestyle – supports self-care regularly and consistently. Florence can also send reminders and health tips to support engagement and compliance with health or lifestyle advice. Florence provides contact and support between face to face visits. 2.3.3 Quality of Patient Care Flo is another tool available to clinicians to enhance patient compliance in key clinical areas and works as a reassurance to patients between face to face visits Regular monitoring/early warning has the potential to reduce emergency admissions Employ systems that have the capability to work across care settings prompting integration and continuity of patient care. To link with strategic groups, secondary care providers and primary care providers to support the integration of care through the health and social care community. Version 1 Page 8 2.3.4 Empowering Health Professionals Florence STH will provide a regular feed of metrics inputted by the patient, viewable at the clinician’s discretion at a time suitable to them. Florence STH has an additional function of sending one off emails to a patient – direct link to the patient, and is auditable through the system. A clinical decision support system that promotes self-care enabling clinician and patient/carers to work together – improving relationships and outcomes. To lessen the burden on front-line clinical staff to develop and maintain locally defined STH clinical guidelines by providing clinical support and clinically approved flexible STH solutions to meet the needs of practices/services and patients. 2.3.5 Efficiency & Effectiveness Flo can reduce the number of calls and face to face visits required by patients. Practice clinical staff should experience fewer calls from difficult patients on their caseload. Better compliance to medication will ensure more cost effective use of prescription drugs Allow for regular/cost effective patient monitoring systems e.g. Blood Glucose or Oxygen saturation levels. Using existing patients devises means that there is no expensive communication equipment involved. Regular monitoring/early warning has the potential to reduce emergency admissions. Clinical staff use Florence to collect readings or symptom information remotely from patients in relation to their healthcare needs – saving time and appointments. Version 1 Page 9 3 CCG/GP Practice and Services Current Usage Active Protocols unless specified. Most recently added practices at the top of each table. 3.1 North Derbyshire CCG Practice/Service Date added to Flo Clinician Information Number With Without Patients Patients 1 0 Arden House Medical Centre - (C81634) ND 23/11/15 Protocols Arden House Medication reminder Arden House Type 2 Diabetes BG Results - Insulin Arden House Reminder for Blood Glucose Testing (Protocols to be rename and numbered) 1 Ashgate Medical Centre (C81045) ND Protocols AP008 DMARD Blood Test 3mth Reminder 17/08/15 2 2 0 Avenue House & Hasland Partnership (C81084) ND 28/07/15 Protocols DT003 DCHS Reminder for Blood Glucose Testing DT002 DCHS Type 2 Diabetes BG Results – Insulin 5 0 5 Lime Grove Medical Centre (C81101) ND 15/04/15 Protocols DT004 DCHS How’s your exercise going Text DT005 DCHS How’s your Diet going Text DT003 DCHS Reminder for Blood Glucose Testing DT007 DCHS Tablet Reminder for adults (Diabetes) Blood Glucose 12:00 (GLUCOSE, BG 4 - 8.2) Notts 2 1 1 Dronfield Medical Practice (C81025) ND 20/11/14 Protocols Blood Glucose 12:00 (GLUCOSE, BG 4 - 8.2) Notts AIM-11. COPD v2 AIM-09. Medication reminder for adults and teenagers 7 0 7 Version 1 Page 10 Hartington Surgery (C81082) ND Protocols MR010 21 Day Contraceptive AP004 B12 Reminder every 12 weeks AIM-09.Med Rem. A&T – Triggers 1 2 The Springs Health Centre (C81001) ND 22/10/14 1 Protocols DEMO: AIM-02. Hypertension poor control or newly diagnosed DEMO: AIM-01. Initial high BP reading - hypertension not yet confirmed DEMO: Blood Glucose 12:00 (GLUCOSE, BG 4 - 8.2) Notts DEMO: AIM-11. COPD v2 0 1 Darley Dale Medical Centre (C81030) ND 24/09/14 Protocols DEMO: Meds Reminder : Every so many days @18:30 - QAD Hypertension 6 Month Reminder 2 0 2 Gosforth Valley Medical Centre (C81627) ND 19/08/14 Protocols Demo: Asthma SMP AIM-11. COPD v2 Blood Glucose 12:00 (GLUCOSE, BG 4 - 8.2) (Notts) AIM-09. Medication reminder for adults and teenagers AIM-09. Medication reminder for adults and teenagers 1 0 1 Imperial Road Surgery - (C81028) ND 30/06/14 Protocols AIM-09. Medication reminder for adults and teenagers AIM-11. COPD v2 6 1 5 Tideswell Surgery - (C81076) ND 27/06/14 Protocols AIM-14. Overweight and obesity v2 AMI-09 Medication reminder for adults and teenagers 1 0 1 Ashover Medical Practice - (C81611) ND 26/06/14 Protocols AIM-09 Medication reminder for adults and teenagers 1 0 1 Version 1 17/11/14 3 Page 11 Baslow Health Centre - (C81013) ND 08/04/14 Protocols Blood Glucose 12:00 (GLUCOSE, BG 4 - 8.2) Notts AIM-09. Medication reminder for adults and teenagers 4 0 4 Barlborough Medical Practice - (C81662) ND 02/04/14 1 Protocols DEMO: AIM-09. Medication reminder for adults and teenagers 0 1 Additional Information Total number of GP Practices in CCG – 36 Total number of GP Practices (Flo groups) on Florence – 14 Percentage of GP Practices on Florence – 38.9% Version 1 Page 12 3.2 Hardwick CCG Practice/Service Group Added to Flo 06/08/14 No. of Users With Without Patients Patients Wellbeck Drive Surgery - (C81658) H Protocols Blood Glucose 12:00 (GLUCOSE, BG 4 - 8.2) (Notts) AIM-09. Medication reminder for adults and teenagers 4 1 3 North Wingfield Medical Centre - (C81055) H 29/07/14 Protocols AIM-09. Medication reminder for adults and teenagers 2 1 1 Blackwell Medical Centre - (C81661) H 21/07/14 2 Protocols AIM-09. Medication reminder for adults and teenagers (No Q) AP007 Reminder B12 injection - 12 Wks AP006 Prostap Remind patient to book appt 10 Wks (3 mths) AIM-09. Medication Reminder - Warfarin No Q AIM-09. Medication reminder for adults and teenagers 0 2 Creswell & Langwith Medical Centre - (C81011) H 18/07/14 Protocols AIM-09. Medication reminder for adults and teenagers 1 1 0 Castle Street Medical Centre - (C81638) H 17/07/14 Protocols MR004 Reminder B12 injection - 12 Wks MR007 Reminder Zoladex injection -12 Wks MR008 Reminder Prostap injection -12 Wks AP003 Zoladex Remind patient to book appt 10 Wks AP002 Prostap Remind patient to book appt 10 Wks MR003 Reminder B12 injection - 11 Wks MR002 Reminder B12 injection -10 Wks AIM-09. Medication Reminder - Warfarin No Q MR006 Reminder Depo Injection - 11 Wks MR005 Reminder Depo Injection - 10 Wks WF010 Reminder Warfarin Monitoring - 10 Wks WF009 Reminder Warfarin Monitoring - 9 Wks WF008 Reminder Warfarin Monitoring - 8 Wks WF007 Reminder Warfarin Monitoring - 7 Wks 2 1 1 Version 1 Page 13 WF006 Reminder Warfarin Monitoring - 6 Wks WF005 Reminder Warfarin Monitoring - 5 Wks WF004 Reminder Warfarin Monitoring - 4 Wks WF003 Reminder Warfarin Monitoring - 3 Wks WF002 Reminder Warfarin Monitoring - 2 Wks WF001 Reminder Warfarin Monitoring - 1 Wk AIM-09. Medication reminder - Warfarin AP001 B12 Remind patient to book appt 10 Wks AIM-09. Medication reminder for adults and teenagers Blue Dykes Surgery - (C81008) H 26/06/14 Protocols AP005 Depo Reminder every 12 weeks AIM-09. Medication reminder for adults and teenagers 9 2 7 Staffa Health - (C81029) H 14/05/14 Protocols MR009 Prostap/Zoladex Reminder every 12 weeks AP005 Depo Reminder every 12 weeks 10 2 8 Emmett Carr Surgery - (C81095) H 08/05/14 Protocols AIM-02. Hypertension poor control or newly diagnosed AIM-16L. hypertension 9 month check Weight Tracking, M-F, 10:30 ( WT/WEIGHT >2kg in 4 days) Hypertension Trend: 12:00 (BLOOD, BP 140-105 / 90-60) Meds Reminder : Every so many days @18:30 AIM-11. COPD 3 1 2 The Village Surgery - (C81050) H 29/04/14 Protocols Hypertension BP Readings AIM-09. Medication reminder - Warfarin AIM-14. Overweight and obesity v2 AIM-02. Hypertension poor control or newly diagnosed Aim-04 Inhaler reminder for adults and teenagers AIM-11. COPD 3 1 2 Version 1 Page 14 Shires Health Care - (C81033) H 29/04/14 Protocols DT006 DCHS Injection Reminder adults (Insulin&Injectables) DT001 DCHS Type 1 Diabetes BG Results DT005 DCHS Hows your Diet going? Text DT003 DCHS Reminder for Blood Glucose Testing DT004 DCHS Hows your exercise going? Text DT007 DCHS Tablet Reminder for adults (Diabetes) DT002 DCHS Type 2 Diabetes BG Results - Insulin DT012 LD Blood Glucose Reading DT012 LD Blood Glucose Reading DT009 LD Take your diabetes tablet now DT010 LD Take your insulin now DT011 LD Take your blood sugar now DT014 Blood Glucose Reading no advice or messages Blood Glucose 12:00 (GLUCOSE, BG 4 - 8.2) AIM-04. Inhaler reminder for adults and teenagers AIM-11. COPD Meds Reminder : Every so many days @18:30 8 2 6 Friendly Family Surgery - (C81655) H 24/04/14 Protocols MR009 Prostap/Zoladex Reminder every 12 weeks AP004 B12 Reminder every 12 weeks AIM-14. Overweight and obesity v2 Notts-Rainworth: Depo injection Reminder every 11 weeks AIM-09. Medication reminder for adults and teenagers Blood Glucose 12:00 (BG 4 - 8.2) Notts 1 1 0 St Lawrence Rd - (C81647) H 16/04/14 Protocols AIM-14. Overweight and obesity v2 Peak Flow 11:00 (PEAK, PF 100 - 400) AIM-04. Inhaler reminder for adults and teenagers Smoking cessation just quit, 3-12 months AIM-11. COPD Blood Glucose 12:00 (GLUCOSE, BG 4 - 8.2) Meds Reminder : Every so many days @18:30 7 1 6 Version 1 Page 15 Crags Healthcare - (C81096) H 15/04/14 Protocols AIM-09. Medication reminder for adults and teenagers 5 0 5 Clay Cross Medical Centre - (C81056) H 15/04/14 Protocols B12 Reminder every 12 weeks AIM-09. Medication Reminder - Warfarin AIM-09. Medication reminder for adults and teenagers 4 2 2 Limes Medical Centre - (C81099) H 03/04/14 Protocols (Notts N&S COPD) SATS smoking cessation first 3 months Smoking cessation just quit, 3-12 months Smoking cessation (contemplating quitting) Medication reminder for adults and teenagers DEMO: Blood Glucose 12:00 (GLUCOSE, BG 4 - 8.2) COPD hypertension 9 month check Obesity and quit smoking v2 8 1 7 Additional Information Total Number of GP Practices in CCG – 15 Total Number of GP Practices (Flo groups) on Florence – 15 Percentage of GP Practices on Florence – 100% Version 1 Page 16 3.3 Erewash CCG Practice/Service Group Added to Flo 21/07/15 No. of Users With Without Patients Patients Gladstone House (C81115) E 3 Protocols Daily depression monitoring AIM-09. Medication reminder for adults and teenagers - NO Q 0 3 The Golden Brook Practice (C81083) E 02/02/15 Protocols HY001 Hypertension-6mths BP, 12mths review 1 5 6 Additional Information Total Number of GP Practices in CCG - 12 Total Number of GP Practices (Flo groups) on Florence - 2 Percentage of GP Practices on Florence – 16.7% Version 1 Page 17 3.4 Southern Derbyshire CCG Practice/Service Chapel Street Medical Centre (C81068) SD Protocols Home Blood Pressure Reading for 2 Wks Group Added to Flo 23/09/15 No. of Users With Without Patients Patients 3 0 3 1 0 1 Gresleydale Healthcare Centre (C81114) SD 27/05/15 4 Protocols AP008 DMARD Blood Test 3mth Reminder MR005 Reminder Depo Injection - 10 Wks AIM-09. Medication reminder for adults and teenagers - NO Q 0 4 The Meadowfields Practice (C81665) SD 26/01/15 Protocols PQ002 Flu Vaccination Decision Option 2 AP008 DMARD Blood Test 3mth Reminder PQ001 Flu Vaccination Decision Option 1 AIM-09. Medication reminder for adults and teenagers AIM-09. Medication Reminder - Warfarin AP004 B12 Reminder every 12 weeks 4 0 4 Somercotes Medical Centre - (C81027) SD 28/07/14 Protocols AIM-09. Medication reminder for adults and teenagers 1 0 1 Whitemoor Medical Centre (C81038) SD 04/06/15 Protocols AIM-09. Medication Reminder - Warfarin No Q AP008 DMARD Blood Test 3mth Reminder Additional Information - relates only to the GP practice table above. Total Number of GP Practices in CCG - 56 Total Number of GP Practices (Flo groups) on Florence - 5 Percentage of GP Practices on Florence - Version 1 Page 18 Practice/Service Group Added to Flo 12/08/15 No. of Users Care Co-ordinator - Sarah Hanel SD (Swadlincote Surgery) Protocols AIM-09. Medication reminder for adults and teenagers 1 0 1 Care Co-ordinator - A Goodrum SD (Jessop Medical Practice and Crich Medical Practice) Protocols MR001 Blister Pack Medication Reminder 19/02/15 1 1 0 Care Co-ordinator - L Battle SD 27/01/15 (Meadowfields Medical Centre) Protocols AIM-09. Medication reminder for adults and teenagers AP004 B12 Reminder every 12 weeks 1 0 1 Care Co-ordinator - H Riley SD 29/09/14 1 (Riversdale Surgery) Protocols DEMO: AIM-09. Medication reminder for adults and teenagers DEMO: AIM-11. COPD v2 0 1 Care Co-ordinator - M Kirkman SD 25/09/14 1 1 (Ripley Medical Centre and Ivy Grove Surgery) Protocols HY002 BP Reading 11:00 3 Days DT016 Blood Glucose 11:00 3 Days DT008 Blood Glucose 11:00 3 Days AIM-09. Medication reminder for adults and teenagers - 8 reminders total AIM-09. Medication reminder for adults and teenagers - 7 reminders total AIM-09. Medication reminder for adults and teenagers - 6 reminders total AIM-09. Medication reminder for adults and teenagers - 5 reminders total AIM-09. Medication reminder for adults and teenagers - 4 reminders total AIM-09. Medication reminder for adults and teenagers - 3 reminders total AIM-09. Medication reminder for adults and teenagers - 2 reminders total AIM-09. Medication reminder for adults and teenagers 0 Version 1 With Without Patients Patients Page 19 Additional Information - relates to GP practices and associated Care Coordinators. Total number of GP Practices in CCG - 56 Total number of GP Practices (Flo groups) on Florence - 9 Percentage of GP Practices on Florence – 16.1% Version 1 Page 20 3.5 Other services Practice/Service Palliative CNS Protocols CNS Medication reminder Group Added to Flo 20/10/15 No. of Users With Without Patients Patients 1 0 1 Derby City ESSD 28/09/15 1 Protocols DEMO: AIM-09. Medication reminder for adults and teenagers 0 1 Amber Valley & Erewash ESSD 28/09/15 4 Protocols AIM-01. Initial high BP reading - hypertension not yet confirmed DEMO: AIM-09. Medication reminder for adults and teenagers 0 4 Acute Hospital Discharge Team Protocols Evening Meal 09/07/15 1 0 1 DCHS Community Respiratory Team Protocols AIM-11. COPD v2 15/04/15 1 0 1 DCHS Derbyshire Heart Failure Service Protocols HF001 Derbyshire Heart Failure Q & BP,P,WT 10/09/14 6 0 6 Chesterfield Royal Diabetes Team 07/04/14 Protocols AIM-14. Overweight and obesity v2 AIM-08. Smoking cessation (contemplating quitting) AIM-09. Medication reminder for adults and teenagers AIM-10. Hypertension poor control, CKD or diabetes Blood Glucose 12:00 (GLUCOSE, BG 4 - 8.2) 2 0 2 Version 1 Page 21 DCHS Community Diabetes Nurse 24/03/14 Protocols DT013 Drinks reminder DT003 DCHS Type 2 Diabetes BG Results DT014 Blood Glucose Reading no advice or messages DT011 LD Take your blood sugar now DT010 LD Take your insulin now DT009 LD Take your diabetes tablet now DT012 LD Blood Glucose Reading DT002 DCHS Type 2 Diabetes BG Results Insulin DCHS 007 Medication Reminder DT004 DCHS How’s your exercise going? Text DT003 DCHS Reminder for Blood Glucose Testing DT005 DCHS How’s your Diet going? Text DT001 DCHS Type 1 Diabetes BG Results DT006 DCHS Injection Reminder adults (Insulin&Injectables) 4 3 1 3.6 Overview As of October 2015 there were: Total number of users - 159 Total number of users without patients – 97 (of which the vast majority have never registered a patient) Percentage of users without patients – 61% Total number of GP Practices – 119 Total number of GP Practices registered on Florence - 40 Percentage of GP Practices registered on Florence – 34% Total number of other Health Services registered on Florence – 8 Version 1 Page 22 3.7 Monthly Reporting – October 2015 The chart below shows the number of active patients per CCG. The chart below shows the percentage of GP Practices on Florence per CCG. Version 1 Page 23 The chart below shows of the practices added the percentage with active patients per CCG. The chart below shows the number of Florence Users per CCG. Version 1 Page 24 The chart below shows of the users added the percentage with active patients CCG. 3.8 Patient Information As of October 2015 there were: Total number of enrolled patients – 295 (Includes active, inactive and test patients – test patients estimated at a minimum of one per user) Version 1 Page 25 3.9 Text Message Tracking – October 2015 The chart below shows the number of text messages sent and received per CCG. The chart below shows the number of text messages remaining. Version 1 Page 26 3.10 Current CCG KPI’s H ND CCG Florence Plan 2015-06-07 Draft Key Performance Indicators (KPI's) 80% of patients who enter onto Flo show an improvement to managing their health - post patient questionnaire 75% of practices are signed up and actively using Flo Patients with active uptake - 80/90% of Patients registered on Florence actively using it Percentage split Push messages % split activity Reading interactive % split activity 100% practices signed up to Florence - monitoring of practice activity and community services activity - Equality and Diversity 100% practice should be offering the same services. Notes/Originator CCG Action ND KPI Qtly Reporting Submission to Rebecca Manning Tracie Booth and Judy Derricott ND ND KPI Qtly Reporting Submission to Rebecca Manning Tracie Booth and Judy Derricott ND Direct evaluation of AT Funding - to be carried out by Florence Clinical Lead Overall Florence utilisation – available from monthly reporting TBC Debbie Bennett H Open action – to be put in place following review of monthly reporting TBC Debbie Bennett Actively recruitment of patient either by the practice or the community services. If community services, GP practices need to be in support of the enrolment. H Open action – to be put in place following review of monthly reporting There is still some work to be complete in this section. The project team intend to review the monthly reporting and complete the review of aims and objectives (and benefits) with all CCGs. Version 1 Page 27 4 Detailed evaluation of Florence usage within the DCHS Community Diabetes Team 4.1 Members of the Team Michelle Denyer – Lead Community Diabetes Specialist Nurse User from 7th April 2014 93 Patients registered on Florence – October 2015 Beth Cooper – Community Diabetes Specialist Nurse User from 7th April 2014 19 Patients registered on Florence – October 2015 Joanne Hulme – Community Diabetes Specialist Nurse User from 29th June 2015 – newly trained, assessing suitable patients No patients as yet, registered on Florence – October 2015 Clare Reynolds – Community Diabetes Specialist Nurse User from 28th October 2015 – newly trained, assessing suitable patients 1 Patient registered on Florence – October 2015 4.2 General overview and application At the end of October 2015 the Community Diabetes Team had approximately 450 patients on its case load. At the end of the same period there were a total of 113 patients registered on Florence STH. This represents 25% of the services case load. This number continues to rise for both the total number of patients and the patient utilising Florence. Florence has become an invaluable tool for the management of patient with Diabetes. Patients referred to the diabetes service are offered Florence STH and can take advantage of a number of different protocols it provides: Medication Reminders – Daily Prompts Blood Glucose Testing reminders – Daily Prompts Blood Glucose monitoring – Type 1 and Type 2 Diabetes Several patient specific and learning disability support/reminder messages 4.3 Key Benefits Patients committed to monitoring their own blood glucose levels, sharing this information with their Special Diabetes Nurse will benefit from swifter intervention Enriched patient information Improve/Informed clinical decision making Quicker/earlier clinical intervention Support patient safety Enhanced relationships with patients Patient conditions and outcomes improved Works quickly to focus the patient attention on their Blood Glucose levels which often leads to changes in behaviour and life style. Version 1 Page 28 Significant life improvements – happier, more confident patients controlling their condition rather than the condition control them Reduction in levels of HbA1C leading to significant reduction risk of major complications 4.4 Reason for referral Patients are referred to the Community Diabetes Team because their Diabetes is more complex and there is a need for specialist care and attention. The Diabetes Specialist Nurses are adept at managing these complexities and working with patients to improve their health and wellbeing. Their intervention can often be significant and life changing for the patient. Florence STH has given the team means to support patients as they learn to manage their conditions better. Version 1 Page 29 4.5 General Diabetes Patient Evaluation 4.5.1 Levels of patient interaction with Florence STH The chart below shows how many readings patients have sent to Florence during the month of October 2015. This is a breakdown of the information shown above: Only patients that were registered on the system before October 2015. The patient will receive one message per day from Florence but have been invited to send in their Blood Glucose readings as and when they test throughout the day. Some patients respond directly to the text message request and only send one message per day to Florence. Theses patient continues to monitor their blood glucose levels during the day and the general feeling is that monitoring habits have improved and are supporting better control. There are two protocols at work – one directed at patients with Type 1 Diabetes and one directed at patients with Type 2 Diabetes – both protocols work in the same way only the advice messages vary. In the course of one month the patients reactions to medication, implementation of changes to their life styles can be reflected in the information sent to the clinician for review. Decisions about care and treatment can be produced quickly increasing patient safety and the quality of the care provided. Version 1 Page 30 The alerts system guards against patients that are having difficulties managing their Blood Glucose levels – Alerts are sent to clinical staff enable earlier intervention if required. Highest number of readings per patient – 124. Lowest number of readings per patient – 3. Average number of readings – 46 (Blue Line on Chart). Total number of readings received – 3343. Total cost of readings received - £267.44 Total number of all text messages sent and received October 2015 – 13,293 Total cost of all text messages sent and received October 2015 - £1063.44 Version 1 Page 31 4.5.2 Levels of growth in patient registrations The chart below shows the growth in the number of patients added to the Florence STH from the outset with the exception of February and March 2014 – no system data was available to that time. Rising Number of Diabetes Patients added to Florence STH 140 120 100 80 60 40 DCHS decision to postpone adding patients to Florence STH until a Quality Assessment had been completed 20 0 Number of Patients Version 1 Page 32 4.5.3 Levels of growth in text messaging The chart below shows the growth in the number of text messages sent and received from the outset of the project with the exception of February and March 2014 – no system data was available to that time. Version 1 Page 33 4.5.4 The number of alerts generated The chart below shows the growth in the number of alerts generated and emails sent to the clinical staff. Prior to January 2015 Florence STH was used for medication reminders only. Number of Alerts Generated Prior to January 2015 Florence STH was used for Medication Reminders 700 600 500 400 300 200 100 0 Jan 2015 Feb Mar Apr May Jun Jul Aug Sep Oct Alerts Alert observations Highlights a patient changing or worsening condition Evidenced based decision making – leading to changes in care plans and treatment regimes Clinical staff have the opportunity to intervene quicker/earlier The potential to avoid out of hours and hospital interventions Version 1 Page 34 4.6 Specific Patient Evaluation – Patient A Patient A was register on Florence STH and started to receive and send regular text messages from the 26th June 2015. 4.6.1 Patient A’s Story A north Derbyshire patient was having difficulty controlling her Type 2 Diabetes. For months the situation continued and resulted in frequent clinic appointments to try and bring her condition under control. Following all the initial advice and guidance and as a result of the condition still being out of control the clinical team was forced to consider medication as an intervention. The patient was also referred to the Community Diabetes Team where she met with one of the Specialist Diabetes Nurses, and agreed to use Flo. After a short period of time the Specialist Diabetes Nurse was really encouraged by the readings that the patient was sending to her. Over the coming months the patient continued to make progress, monitoring her own blood glucose and finding that with small changes to her life style she was taking control of her diabetes. The patient returned to her Doctor for a review of her condition. The Doctor was able to see significant progress had been made and decided to postpone the use of medication indefinitely. The patient is happy to have avoided the need to take medication for what could have been a prolonged period. Version 1 Page 35 4.6.2 Blood Glucose Reading The chart below shows the patients’ blood glucose reading from the start of their time on Florence to the end of the evaluation period. This is a breakdown of the information shown above: Desirable Range (Low) – 4.10 Desirable Range (High) – 11.00 Number of readings received – 130 Number of readings above 11.00 – 9 Number of readings below 4.10 – 1 At no point did the patient have more than three high or low (or a combination of both high and low) blood glucose readings. The clinician received no alert emails. Version 1 Page 36 4.6.3 Cost of Text Messages The chart below shows the cost of the text messages sent to and received from the patient during the 19 weeks they have been using Florence. This is a breakdown of the information shown above: Highest weekly cost – Week 3 – £3.44 Lowest weekly cost – Week 13 & 14 – £1.12 (week 1 was an incomplete week) Date range – 26/06/15 – 31/10/15 (19 weeks) Total number of text messages received – 130 Total number of text messages sent – 301 Total number of text messages sent and received – 431 Total cost of text messages sent and received – £34.48 Average number of text messages received per week – 6.8 Average cost of text messages received per week – £0.55 Average number of text messages sent per week – 15.8 Average cost of text messages sent per week – £1.27 Average number of text messages sent and received per week – 22.7 Average total cost of text messages (sent and received) per week – £1.81 Version 1 Page 37 4.6.4 Cost of Messages (Actual and Projected) The chart below shows the cost of the text messages over 52 weeks, an arrow at week 19 indicates a change from actual data to projected data; these predictions are hypothetical and assume the patient’s condition remains unchanged. The anticipated outcome of a recent HBa1C blood test will determine any changes that are required to the management of this patient’s condition. The projected data is based on the average cost of text messages (£1.81 per week). Accumulated This is a breakdown of the information shown above: Cost of text messages for 19 weeks – £34.48 Cost of text messages for 52 weeks – £94.54 Version 1 Page 38 4.6.5 Cost Comparison The chart below shows the comparison of the weekly cost of text messages to the weekly cost of medication (GLP1) proposed for this patient. This is a breakdown of the information shown above: GLP1 Treatment Costs Compared to Text Message Cost Version 1 Period Week (Avg) Month (Avg) Week 1-19 26 Weeks 39 Weeks 1 Year GLP 1 18.00 78.00 342.00 468.00 702.00 936.00 Costs (£) Texts Variation 1.82 7.88 34.48 47.22 70.88 94.54 16.18 70.12 307.52 420.78 631.12 841.46 % Avoided 89.9 Page 39 4.7 Specific Patient Evaluation - Patient B Patient B was register on Florence STH and started to receive text messages from the 16th April 2014. Patient B was one of the original 10 patients that joined Florence before DCHS put a temporary hold on the use of the system. On the 12th August 2014 Patient B opted out of the system re-joining on the 18th February 2015. One or two issues resulted in Patient B opting out of the system again on the 19th February 2015 only to opt back in on the 25th February 2015. The patient remains opted into the system receiving messages. 4.7.1 Patient B’s Story Patient B has had Type 1 Diabetes for over 10 years – half of her life. Now still only 20 years old she now has greater control over her diabetes and attributes much of her success to Florence STH. Managing a serious long term condition has been overwhelming. Anxious about her condition and struggled to take her medication regularly meant that she was particularly unwell and suffered a great deal stress on a day to day basis. Still not without life’s challenger she is able to celebrate her recent achievements and provide the project with some feedback. Feedback has been document and needs writing up into a case study. More information to follow 4.7.2 Medication Reminder To help Patient B to become more compliant with their medication, Michelle Denyer set up a number of medication reminders using Florence STH. Michelle has used a number of protocols in search of the perfect application for this patient. Michelle and Patient B finally settle upon the following combination of reminders. Patient B has a 08:00 reminder to remind her to not to forget her Lantus Insulin today. This reminder was actioned in February 2015. In August 2015 an additional reminder was added reminding Patient B not to forget to take her Novo Insulin today. This reminder has two messages one delivered at 12:15 and the other delivered at 17:45. More information to follow Version 1 Page 40 4.7.3 Cost of text messages The chart below shows the cost of the text messages sent to the patient from 25th February 2015 to the 31October 2015. Patient B - Cost of Text Message 25/02/15 - 31/10/15 8 7 6 5 4 3 2 1 0 Feb Mar Apr May Jun Jul Aug Sep Oct Cost of Texts This is a breakdown of the information shown above: Total number of text messages: 543 Total cost of text messages: £43.44 Average number of text messages: 60.3 Average cost of text messages: £4.83 Version 1 Page 41 4.7.4 Patient B reduction in HbA1c In 2012 Patient’s HbA1c was 16.4% with hospital admission In July 2015 it had fallen to 13.2%. Last test, complete week commencing the 16th November 2015 HbA1c has come down to 8.6% Patient B’s Specialist Diabetes Nurse wrote, Comment to be approved Patient B says, Comment to be approved Version 1 Page 42 4.8 HBA1C Analysis 4.8.1 What is HbA1C The term HbA1c refers to glycated haemoglobin. It develops when haemoglobin, a protein within red blood cells that carries oxygen throughout your body, joins with glucose in the blood, becoming 'glycated'. By measuring glycated haemoglobin (HbA1c), clinicians are able to get an overall picture of what our average blood sugar levels have been over a period of weeks/months. For people with diabetes this is important as the higher the HbA1c, the greater the risk of developing diabetesrelated complications. 4.8.2 HbA1c in diagnosis HbA1c can indicate people with prediabetes or diabetes as follows: HbA1c mmol/mol % Normal Below 42 mmol/mol Below 6.0% Prediabetes 42 to 47 mmol/mol 6.0% to 6.4% 48 mmol/mol or over 6.5% or over Diabetes Source: http://www.diabetes.co.uk/what-is-hba1c.html Version 1 Page 43 4.8.3 What are the benefits of lowering HbA1c? Two large-scale studies - the UK Prospective Diabetes Study (UKPDS) and the Diabetes Control and Complications Trial (DCCT) - demonstrated that improving HbA1c by 1% (or 11 mmol/mol) for people with type 1 diabetes or type 2 diabetes cuts the risk of microvascular complications by 25%. Microvascular complications include: Retinopathy Neuropathy Diabetic nephropathy (kidney disease) Research has also shown that people with type 2 diabetes who reduce their HbA1c level by 1% are: 19% less likely to suffer cataracts 16% less likely to suffer heart failure 43% less likely to suffer amputation or death due to peripheral vascular disease Source: http://www.diabetes.co.uk/what-is-hba1c.html Version 1 Page 44 Diabetes Retinopathy – Diabetic retinopathy is a common complication of diabetes. It occurs when high blood sugar levels damage the cells at the back of the eye (known as the retina). If it isn't treated, it can cause blindness. Nephropathy – Kidney disease (or nephropathy to give it its proper name) is when the kidneys start to fail. Neuropathy – Depending on the cause of the peripheral neuropathy, symptoms may develop slowly or quickly. The specific symptoms of peripheral neuropathy vary according to the type of peripheral neuropathy you have. There are three main types: o sensory neuropathy – affects the nerves that carry messages of touch, temperature, pain and other sensations to the brain o motor neuropathy – affects the nerves that control movement o autonomic neuropathy – affects the nerves that control involuntary bodily processes, such as digestion and your heartbeat Microalbuminuria – a term to describe a moderate increase in the level of urine albumin. It occurs when the kidney leaks small amounts of albumin into the urine, in other words, when there is an abnormally high permeability for albumin in the glomerulus of the kidney. 4.9 Patient information and HbA1c levels and acheivements The project has been provided with some detailed information regarding patients HbA1c. We are also waiting for several patients to have blood test to see if their HbA1c levels have fallen. Patient – A August 2014 Hba1C was 11.1% At the start of Florence it was 13% Blood Test results are expected - Practice Nurse has been emailed. Patient – B 2012 Patient’s HbA1c was 16.4% with hospital admission July 2015 it had fallen to 13.2%. Last test, complete week commencing the 16th November 2015 HbA1c has come down to 8.6% Patient – C 10.10 reduced More information to follow Version 1 Page 45 4.10 Case Study Version 1 Page 46 Version 1 Page 47 4.11 DCHS Voice Article – Patient Story Chris Pettett High Peak resident Chris Pettett is enjoying the peace of mind of having his own virtual diabetes nurse to keep a daily check on him. Chris, a retired chartered accountant, has been living with diabetes for 16 years and last month became one of the first to join our new FLO telemedicine scheme. FLO provides the benefit of knowing somebody is keeping a regular expert eye on his blood sugar readings and can head off any problems before they start. It involves taking a finger prick blood test once a day and then texting the reading to FLO’s automated system. FLO then flags up any readings which fall outside Chris’ normal range to the diabetes nurse. And if Chris forgets, he gets a reminder text from FLO. “It’s a lot easier than keeping a diary and it means my results are reviewed regularly by the diabetes team. It really is a 30 second job for me,” said Chris, who lives in Combs, near Chapel en le Frith. Once his daily blood test reading has been reviewed he will receive a response. “I usually get a text back to say it’s fine, but if it’s too high or too low I get instructions on what to do next. Before I started on FLO it could be weeks between my readings being reviewed at the GP.” Chris, a grandfather to seven, ranging in age from 17 years to 18 months, would recommend FLO as beneficial in helping to manage his diabetes. “It means I’m being monitored on a regular basis instead of going to the doctor for a check up on a less frequent basis.” And because it is so quick and easy, it means he can manage his diabetes around his enjoyment of normal life. Not least of which is being involved with all his grandchildren and running a local quiz. For a man who spent his working life with numbers it seems numbers are still playing a key role in his retirement – at least the few digits he texts to FLO each day. Version 1 Page 48 4.12 One Patient Feedback on Flo – NHS Choices A joint review of services provided by Imperial Road Surgery Matlock and the DCHS Specialist Diabetes Nurse Team based at New Holme Hospital. Staff: Louise Giblin and Michelle Denyer Version 1 Page 49 4.13 Patient Letter to DCHS Diabetes Service Manager – Jonathan Sanderson Date: 01/06/15 Dear Mr Jonathan Sanderson, I am writing to inform you of my experience with the new NHS Florence self-care service. I have been an Insulin Injecting Type One Diabetic for nearly 38 years since the age of eleven. Thirty Eight years of dealing with Diabetes has seen improvements of all kinds. No more heavy metal needles which became blunt before use! A change from heavy metal syringes stored in Industrial Sprit and boiled in a pan of hot water twice a week to sterilise, to a useful light weight syringe which looks like a pen!!! No more urine testing with a test tube and tablets to give you a reading from negative (clear through to Orange) positive, to an easy test strip which records details. It is amazing what time and money can do. One day there will be a cure. All of the improvements are only as good as the Diabetic person understanding them and also wanting to ensure that they live a pretty healthy and fulfilled life. I can honestly say I have never really accepted the fact that I am a Diabetic. When it decided to ‘grab’ hold of me it was just another piece of the jigsaw which was not going to fit. After years of issues in 2010 I had given up. Fortunately, I was referred to the Mental Health team at Matlock and with their help and the Psychiatric team at the Newholme Hospital I began the climb out of the ‘hole’ I can now talk about the child hood experiences, which lead me to having no self-worth in myself. Then the onset of Diabetes which then made other issues more of a problem, so then leading to Bulimic Nervosa. This will never leave me but I can now like myself more and live through the rough patches without causing myself too much harm Unfortunately, with Mental Health Issues and Bulimia the thing which was going to suffer was my Diabetes Control, which then in return had bad effects on the Mental Health and Bulimia. Quite a difficult circle to be in!!!! Then along came my brilliant Lead Community Diabetes Specialist Nurse Michelle Denyer. Apart from just being a really nice person she understands Diabetes so well and puts things into basic terms which makes all the ‘ technology stuff’ easier to get your head around. Florence the NHS self-care service nurse also came along, which for me and I am sure once more people become aware of it will find it a useful and vital piece of Diabetic Help. Not just because of my mental health/ eating issues but I had become very ‘I don’t care/ not Version 1 Page 50 interested/ oh I will be alright’. I would miss injections and then go all day without eating. Then I would binge, then drink alcohol, then sometimes pass out and go to sleep or hypo and this would then carry on for days into weeks. I believe I have been very fortunate to have another go at life!! Florence is not the complete answer and I believe she still needs some ‘Tweaks’ BUT it gives you the little support/reminders which make you not take your Diabetes for granted. The txt messages to remind you to take an INJECTION, ( I would sometimes, well quite a lot of the time miss my lunch time injection because I was too busy working, my sugar level had been low in the morning so I did not need Insulin at Lunch time !!!) Txt reminders to say your Blood Glucose reading needs to be done, so much easier to do when you are encouraged. The txt readings which you then receive after you have sent your blood glucose reading in are a good reminder that if you are out of your control guide lines that you may need to look for some medical advice. This is not phoning 999 or rushing of to A&E, but perhaps getting into with your nearest Diabetes Community Assistance. This side perhaps need s more support but hopefully this will come with funding you may secure? Florence is a brilliant piece of equipment. She has helped me get back on with understanding my Diabetes. I have a long way to go and it will be a difficult road but I know I won’t keep beating myself up about being a Diabetic, even at 49!!! I hope my experience will help gain more funding which I know is always needed. Please don’t hesitate to contact me if you need me to talk about my experiences or keep you up dated on any thing. Kind Regards Yours Faithfully Version 1 Page 51 4.14 A patient quotation “Even though I know it’s only a computer, I feel very supported by my texts from Flo” Passed to the project by Beth Cooper. 4.15 NED patient feedback – Future Michelle Denyer has indicated that there is a patient on Florence that is happy with the service and may provide the project with some feedback soon. 4.16 Case Study – Patient gets long term condition under control - Future There is an opportunity to convert the patient letter, section 4.13, into a case study. Further confirmation with the patient and staff involved is need. 4.17 Reduction of face to face appointments for newly diagnosed patients - outline Michelle Denyer has advised the project that the number of appointments required for newly diagnosed patients has reduced. Prior to Florence STH the patient would be invited for a series of face to face appointments to enable the patient to be monitored closely during the first few weeks of their referral. Patients are now set-up on Florence for remote blood glucose monitoring, additional face to face appointments are now by exception, as Michelle can monitor the information sent in by the patient, respond to system alerts and contact the patient by phone to review their readings and condition. Neither the patient nor clinician needs to factor in an appointment unless it becomes necessary. Reduction in appointment may have led to an increase in the number of patients that they service can deal with. It works quickly to focus the patient attention on their Blood Glucose levels which often leads to changes in behaviour and life style. This area requires more investigation and review by the service. 4.18 Reduction of face to face appointments in general - outline Similar to the initial findings of a reduction of appointments for newly diagnosed patients, Michelle Denyer has advised the project that appointment in general may have reduced with the introduction with Florence STH. Patient that have period of difficultly and require closer monitoring and support and be dealt with in a similar way. Changes in treatment, life style and medication can be monitored remotely with the same text or telephone call interventions from the team. Where remote monitoring exists patients have less face to face appointment in general. Version 1 Page 52 This area requires more investigation and review by the service. 4.19 Joint Clinics and Integrated Care Sharing information with GP Practice. Easy to transfer the patient to the practice from the service and vis versa to continue care and use of Florence. Martin practice Manager and Louise Giblin at Imperial Road Meeting booked 30th 4pm November. More information to come 4.20 Life without Florence No mobile phone no information - gutted. More information to come Version 1 Page 53 5 Southern Derbyshire Care Coordination 5.1 Micheala Kirkman User(s): Southern Derbyshire Care Coordinator Application: Blood Glucose Reading Patient Story: Patient with Learning Disabilities Improved control of condition. More information to come 5.2 Alison Goodrum User(s): Southern Derbyshire Care Coordinator Application: Medication Reminder Patient Story: Reduced calls to the GP practice. More information to come Version 1 Page 54 5.3 Case Study Version 1 Page 55 Version 1 Page 56 6 Ashgate Medical Centre – Early findings Under the instruction of Sharon Dinham, Nurse Practitioner and North Derbyshire CCG Nurse Lead, the practice has started to use Florence STH to remind patients, taking DMARD Medication, every three months that they are due a blood test. Just over 70 patients were invited, by letter, to have a 3 month blood test reminder from Florence. Patients were asked to contact the practice if they wished to decline the reminders or simply ignore the welcome text sent by Florence. 29 patients out of the 70 invited consented to the text message reminders – 41.4% A further 6 patients, new to DMARD, have been added by Pharmacist Rachel Smith. Rachel has been overseeing the patients that are registered on Florence and reports that it is too earlier in the process to give any real feedback about its effectiveness and to hear if patients have benefited because of the reminders. Rachel does say that the setting up of patients and the application of the protocol is easy and takes minutes. Rachel has a link to Florence from within her clinical system making accessing Florence as simple as possible. Rachel has recently requested an additional protocol for patients new to DMARD so that they can have a reminder for a blood test every month until they adjust to the medication and can change to the 3 month reminder. Not too much to report at this stage however: Would you recommend Flo to your Friends and Family? Rachel received a call from a patient regarding the DMARD reminder. The patient mentioned that their son had been offered the reminders from Florence, and had commented how useful it was. He recommended that his Father should sign up. Now father and son, who both have conditions that requires DMARD medication and blood test are set up to receive regular text message reminders. More information to come Version 1 Page 57 7 Castle Street Medical Centre – draft of 2nd December meeting Jude Deeham has been using a serious of medication and appointment reminders. Appointment reminders Reminder B12 injection – 10, 11, 12 Wks. – actual day of appointment B12 Remind patient to book appt 10 Wks. – if appointment book unavailable Reminder Depo Injection – 10, 11 Wks. – actual day of appointment Warfarin Monitoring – 1, 2, 3, 4, 5, 6, 7, 8, 9, 10 Wks. Reminder Zoladex injection -12 Wks. – actual day of appointment Reminder Prostap injection -12 Wks. – actual day of appointment Zoladex Remind patient to book appt 10 Wks. - if appointment book unavailable Prostap Remind patient to book appt 10 Wks. - if appointment book unavailable Medication reminders Medication Reminder – Warfarin with Questions and without Medication reminder for adults and teenagers Meeting with Jude Deehan 02/12/15 More information to come Version 1 Page 58 8 Areas of potential development Ashgate Medical Centre Asthma – stable patients pilot Contact: Sharon Dinham and Rachel Smith Meeting(s): 17/11/15 – Sharon Dinham Protocol created and tested locally. Instruction/Direction/Link: Sharon Dinham Chesterfield Royal Hospital Diabetes – young people pilot (recommendation from Bernie decision lies with Sarah). Contact: Sarah Allcard Nurse Lead Diabetes CRH Meeting(s): 18/11/15 – Sarah Allcard 25/11/15 – Jo Lacy – Head of IG CRH Instruction/Direction/Link: Bernie O’Donnell Young Cares/Health Watch General Messaging Contact: Tanya Nolan Meeting(s): 13/11/15 – Tanya Nolan Magazine – Carers News – Article – Kye 01773 743355 Every GP and Carer in Derbyshire – ideas: Patient Stories 4 times per year: next December 2015 closing date is 15/11/15 Carers Association in Derbyshire Instruction/Direction/Link: Contact in PPG in Bakewell Group was at the same meeting. Ashgate Hospice – Palliative CNS Medication Reminders – newly diagnosed patients with cancer Contact: Marie Leadbeater Meeting(s): ??/??/?? – Jo has set Marie up on the system and she is testing. Needs follow up soon. Instruction/Direction/Link: Michelle Denyer Community Respiratory Matrons COPD and Asthma Contact: Sara Hopkinson - PA/Medical Secretary for Matrons Meeting(s): 26/10/15 – Jo contact with team – want to start using it Version 1 Page 59 10/11/15 – Helen Farr to be moved to W/C 7th December as Jo is away. 30/11/15 – Set up staff and protocols and test. Live with patients to be confirmed. 23/11/15 – Meeting with Helen Wren (link to north Derbyshire CCG) to discuss respiratory protocols and what her plan is to help the project. Linked to Scott Webster through CCG join meeting. Instruction/Direction/Link: Bernie O’Donnell and associated with Anil Ramineni DCHS Respiratory Physio St Mary’s Court DCHS Tissue Viability Reminder Messages Contact: Trish Mahon Head of Service Meeting(s): 01/10/15 – Meeting with Jo. Loves Flo and want to start with pressure ulcers reminding patient to move regularly and management of grade one and two wounds 12/11/15 – Meeting with Pennine Trust to gather intel on Flo. Trish is sending someone from her team to go with Jo or whoever will attend. ??/12/15 Review meeting with Trish. Instruction/Direction/Link: Initiative MacMillan Community and CRH Contact: TBC – do detail lady has gone away with Jo’s. Meeting(s): Instruction/Direction/Link: Jo at the Young Cares Event Chesterfield Nurse Forum – North Derbyshire – in Jo’s remitted COPD and Asthma or Diabetes Contact: Sharon Dinham Meeting(s): 02/12/15 – Nurse Forum Jo to present and network following email and phone call to nurses at practice Instruction/Direction/Link: CCG Instruction General Communications o Marie-Louise Allred Project Training/Resource Guide. o Karen Moore Florence Regional Event o Dr John Grenville Head of the Derbyshire GP association Article in LMC GP Bulletin – Target GP’s specifically. Version 1 Page 60 9 Appendices 9.1 Self Care 9.1.1 Wagner’s Chronic Care Model http://commonwealth.communitycarenc.org/toolkit/8/ The Chronic Care Model was developed by the MacColl Institute, a registered trademark of ACPASIM Journals and Books. Wagner’s Chronic Care Model identifies essential delivery system components that foster high-quality chronic disease care: the community; the health system; self-management support; delivery system design; decision support; and clinical information systems. Evidence-based change concepts under each component encourage productive interactions between informed patients who take an active part in their care and providers who have the appropriate resources and expertise to serve these patients. Self-Management – Patients have a central role in determining their care, fostering a sense of responsibility for personal health. Decision Support – Health care organizations integrate into the day-to-day practice of the primary care providers explicit, proven guidelines for care. These are provided in an accessible manner. Delivery System Design – The ideal care delivery system empowers providers to determine the care patients need and clarifies provider roles and tasks to ensure that patients receive that care. The system must also guarantee that all patient-facing clinicians have centralized, current information about a patient’s status. Follow-up must be part of clinicians’ standard procedures. Clinical Information System – A registry or similar information system capable of tracking individual patients and patient populations is necessary to chronic illness management and preventive care. Organization of Health Care – Health care systems can create environments in which chronic care improvement efforts take hold and flourish. Version 1 Page 61 Community – To improve the health of the population, health care organizations must reach out to form alliances and partnerships with state programs, local agencies, schools, faith organizations, businesses and clubs. 9.1.2 Factors to strengthen the promotion of Patient Self-care as an integral part of the healthcare system. Why is it important? Around 15 million people in England have one or more long-term conditions. The number of people with multiple long-term conditions is predicted to rise by a third over the next ten years (Department of Health 2011c). People with long-term conditions are the most frequent users of health care services, accounting for 50 per cent of all GP appointments and 70 per cent of all inpatient bed days. Treatment and care of those with long-term conditions accounts for 70 per cent of the primary and acute care budget in England (Department of Health 2011c). At the heart of the chronic disease management model (Wagner et al 1996) is the informed, empowered patient with access to continuous self-management support. Around 70-80 per cent of people with long-term conditions can be supported to manage their own condition (Department of Health 2005). Source: http://www.kingsfund.org.uk/projects/gp-commissioning/ten-priorities-forcommissioners/self-management 9.1.3 Self-Management for Life It promotes: sustainable ongoing support for self-management person-centred approach patient engagement partnership between healthcare professionals and patients. Patients gain: skills to self-manage for life tools & techniques peer support increased confidence in their ability to self-manage and make decisions better knowledge of their condition and how the healthcare team can help them better quality of life Health professionals and clinicians gain: useful skills for managing consultations and preparing personalised care plans with patients Version 1 Page 62 practical approaches to help safely share responsibility with patients for managing their condition self-management enabling tools including goal-setting, action-planning, follow-up, problem-solving, agenda-setting increased understanding of the patient perspective and opportunity to explore a more collaborative approach Source: http://selfmanagementuk.org/services/self-management-life 9.2 Integrated care, continuity of care and individualised patient care 9.2.1 Fulop’s Typologies of Integrated Care (from Lewis et al 2010) http://www.nuffieldtrust.org.uk/sites/files/nuffield/evidence-base-for-integrated-care251011.pdf Version 1 Page 63 9.2.2 Intensity of integration (Shaw et al 2011, p15; after Leutz 1999) Version 1 Page 64 9.3 More information on the impact of lowering HbA1c Lower HbA1c linked with dramatically reduced risk of diabetes complications Mon, 24 Jun 2013 It is 20 years since the results of the Diabetes Control and Complications Trial (DCCT) were first published and the results show emphatically that good diabetes control lessens the likelihood of developing long term complications. The DCCT trial was a 10 year trial started in 1982 to investigate'' whether achieving good blood glucose control would reduce the likelihood of developing long term complications in type 1 diabetes. During the DCCT trial, patients were given intensive diabetes therapy which included testing blood glucose levels and taking insulin multiple times per day. Patients from the original trial have continued to be monitored and in 2013, over 30 years after patients were enrolled onto the trial, the numbers of complications have been reviewed again. The findings show that patients which have maintained lower HbA1c readings of 53 mmol/mol (7%) or below had significantly lower risks of kidney damage, retinopathy and cardiovascular problems. The follow up in 2013 showed that patients on intensive therapy showed the following results compared with patients not on intensive therapy: � A 57% reduction in heart disease, stroke and cardiovascular death; � 39% lower incidence of early signs of kidney damage (microalbuminuria); � 61% lower incidence of higher levels of protein in the urine (macroalbuminuria); � 46% lower risk of retinopathy. The trial results offers hope and shows that by achieving good blood glucose control, the risks of developing complications can be greatly reduced. Source: http://www.diabetes.co.uk/news/2013/Jun/lower-hba1c-linked-with-dramaticallyreduced-risk-of-diabetes-complications-97539739.html Version 1 Page 65 1 percentage drop in HbA1c lowers risk of kidney failure by a quarter Wed, 11 Jun 2014 Researchers from Joslin Diabetes Center have shown that improving HbA1c has a substantial effect on reducing the risk of kidney failure in type 1 diabetes. The study reviewed patients at higher risk of end stage renal disease (ESRD) for up to 15 years. 349 participants with type 1 diabetes and chronic kidney disease (CKD) at stages 1 to 3 were reviewed over the course of the study. At the start of the study, all participants had relatively poor blood glucose control, with an average HbA1c of 9.3% (78 mmol/mol). Kidney disease (nephropathy) is one of the main complications of diabetes and there are 5 stages of chronic kidney disease. Stage 1 of kidney disease is where the kidneys are operating normally with the exception of higher than normal levels of protein in the urine. At stage 3, functioning of the kidneys will be moderately reduced. Stage 5 marks end stage renal disease ESRD where the kidneys require either dialysis or a kidney transplant to keep living. The researchers monitored levels of HbA1c and progression of CKD in the participants. The researchers noted that whilst a review of kidney health after 5 years showed no clear difference between those with improved diabetes control and those with unimproved or worsening control, at the 10 year and 15 year stages, risks of suffering kidney failure were significantly reduced in participants with better control. When statistical analysis was applied, the researchers showed that each 1% (11 mmol/mol) drop in HbA1c levels, the risk of developing end stage renal disease was reduced by 24%. The results emphasise the importance of maintaining as good control of type 1 diabetes as possible. Even if your control is significantly above the recommended target of 48 mmol/mol (6.5%), don't be disheartened as achieving and maintaining a modest reduction of HbA1c by 10 or 20 mmol/mol can make a big difference in lowering your long term risk of kidney failure. Whilst type 1 diabetes can be a difficult condition to manage, even small changes to improve control can give you better results and more confidence to make further changes to further improve your control. Source: http://www.diabetes.co.uk/news/2014/Jun/1-percentage-drop-in-HbA1c-lowersrisk-of-kidney-failure-by-a-quarter-97951114.html Version 1 Page 66