Download Mini-Update - April 2016 - Missouri Cancer Registry

MCR MINI-UPDATE
APRIL 2016
Fellow Registrars,
I want to re-affirm how blessed I feel to work with such a professional and dedicated group of
registrars across Missouri. You give your hearts to providing cancer statistics to your facilities,
to epidemiologists, public health policy-makers and researchers. Please know that our
appreciation of you is also very heartfelt! I hope that you find a way to celebrate National
Cancer Registrars Week April 11-15. If you are in the Columbia area, let Shari Ackerman
([email protected]) know if you would like to join MCR for lunch on April 13 at
11:30am at Arris’ Pizza, 1020 East Green Meadows, Suite 102, (Kohl's Shopping Center),
Columbia, MO.
DUE DATES
Large hospitals (>500 cases/yr.) are to report Sept 2015 cases by April 15 and smaller facilities (<300
cases /yr.) report the 3nd Quarter of 2015 by April 15.
EDUCATION
NAACCR Webinars
Live: April 7, 2016, 8-11 am, Collecting Cancer Data: Ovary (broadcast to MCR classroom in Columbia)
To register for the live event in Columbia, use this online link:
http://www.signupgenius.com/go/30e0e49a4a82caafa7-naaccr3
Recordings: Earn 3 CEs by viewing recorded webinars. Check out our Education and Training page to find
out how you can receive access to the recorded NAACCR Webinars.
GoToMeeting
Live: The Q&A session scheduled for April 13, 2016, 10-11 a.m., has been cancelled due to low
enrollment and lack of questions submitted for discussion. Apparently the excellent recorded video
training by Florida’s Steve Peace is a sufficient introduction to how the AJCC Cancer Staging Manual is
organized. If you have not viewed it, the recording is still available on the MCR education page (video
and slides). Should you have future questions about using the manual, our staff is available to assist you
at 1-800-392-2829.
Recordings: of previous GoToMeeting sessions are available on the MCR website. Check out the
offerings at: http://mcr.umh.edu/mcr-gotomeeting.php
Fundamentals of Abstracting Workshop
The Fundamentals of Abstracting Workshop is a day and a half course held in Columbia, MO at the
offices of the Missouri Cancer Registry and Research Center. The next class will be held April 25-26,
2016. This free class is geared toward inexperienced abstractors who would like to become more
proficient with the abstracting process. Students use Abstract Plus software to work through cases using
the MCR-ARC Abstract Code Manual. For those not familiar with abstracting and the MCR-ARC required
fields, this hands-on training is a great place to start. Register at:
http://www.signupgenius.com/go/30e0e49a4a82caafa7-fundamentals
1
MCR MINI-UPDATE
APRIL 2016
How to use Sign Up Genius to register for all educational events
Click on any “signupgenius” link provided above. Click the check box for the listed event and then click
the button that says “Submit and Sign Up”. You do not need to create an account; just fill in the boxes
with your name, email, number of registrants and any needed ADA accommodations. That information
will not be made public. Click the “Sign Up Now” button to complete your registration. You can also go
back later and change your reservation. You will get a confirmation email that allows you to put the
webinar on your Outlook, Mac or Google calendar.
MCR Help-Line
1-800-392-2829 is available during business hours or leave a message and a member of our QA staff will
try to get back to you within a day.
Save the Date!
MoSTRA 41st Annual Education Meeting
November 9-11, 2016, Lake of the Ozarks
Stay tuned for details to be published by MoSTRA.
MCR NEWS
Bec Francis Retires from Full-time Work
We could fill a book listing all of Bec’s accomplishments in the registry field over the past 34 years! Bec is
opting for a well-deserved retirement from her position as a full-time Senior Data Coordinator on April
15. Fortunately for us, she is retuning part-time in the same capacity the following week! Bec came to
MCR in 2006 with more than 20 years of registry experience at the University of Missouri. She has been
a part of so many changes in the registry field, from paper abstracts to electronic reporting; from the
Data Acquisition Manual of 1988 through ROADS to FORDS 2016; and from SEER Summary 1977 to
Collaborative Stage and back again to SEER Summary 2000. Bec is very generous with the wisdom that
she has acquired in her professional life. She helped raise me from baby registrar to full-fledged Excel
data geek. She is a go-to person on our 800# Help Line and has presented many trainings for MCR. She
is hard to stump with questions, but is also conscientious to double-check references to be sure her
answers are most current. She has served MoSTRA in several roles. She served on the national
committee that revises the NAACCR Data Dictionary annually and has helped me make sure that our
MCR Abstract Code Manual and edit sets are properly updated each year. Bec is a stickler for details
and precise communication and has encouraged many Missouri registrars to improve their abstracting
by utilizing her helpful QA feedback and tips. She is also an eagle-eye editor of this publication and I
thank her for making it clear and easy to read. Bec is a delight to work with because she is also a great
friend. She cares as deeply about her colleagues as she does about the profession. She can be counted
on to recognize the achievements of others, and to enliven discussions with her quick wit and amazing
capacity to insert puns into most any conversation. We wish Bec all the best with new-found free time
for her own projects and we are delighted that she has chosen to stay on with our staff each morning.
What to do with 2016 Cases When You Still have v15 Software
Due to delays beyond cancer registry software vendor control, the North American Association of
Central Cancer Registries (NAACCR) and state specific version 16 software upgrades may not be
available to software vendors until May or even July of 2016. As a result, MCR recognizes that registrars
may need to begin abstracting cases diagnosed in 2016 within their current NAACCR/MO v15-compliant
software.
2
MCR MINI-UPDATE
APRIL 2016
You may start abstracting 2016 cases before you receive your upgraded software; however please note
that each case will need to be touched again and additional fields completed after conversion to v16.
Consequently, when first abstracting these cases, registrars would be smart to clearly document the
detailed T, N, and M information via text that they can use to accurately assign values to the T, N, and M
categories once their software has been upgraded to the NAACCR v16 layout. These items have been
reformatted in v16 to include “c” and “p” designations for clinical and pathologic staging. In addition,
registrars should be sure to record thorough textual documentation for the new data item, Tumor Size
Summary [756], which will need to be abstracted for 2016 cases reported to MCR.
After you complete the abstracts in v16, MO v16 edits will need to be run and resolved. You will not be
able to send the 2016 cases to MCR until after both your software and our Web Plus application are
updated to v16. Typically this happens in August. We will keep you apprised of any delays as that time
frame approaches.
NCI and CoC-approved facilities should also seek advice from those agencies regarding how to handle
additional new fields that they will require in v16.
For more info on the conversion to NAACCR v16, see the NAACCR implementation guidelines at
http://www.naaccr.org/LinkClick.aspx?fileticket=5OHnOz811Dw%3d&tabid=161&mid=523 (particularly
pages 18-21) and the MCR required data elements for 2016 http://mcr.umh.edu/mcr-cancer-reportinghospital.php.
Death Clearance
Death Clearance activities for reporting year 2014 are underway. Hospital participation in the follow
back process is expected to begin in late spring. Stay tuned for further details in the coming months.
ABSTRACTING TIPS
AJCC Stage for Incidental Prostate Cancer
When prostate cancer is an incidental finding at cystoprostatectomy for bladder cancer, no clinical stage
can be assigned. Because the AJCC rules for clinical staging cannot be met, all clinical staging fields must
be left blank. Source: AJCC Curriculum for Registrars, Explaining Blanks and X by Donna Gress (AJCC
technical specialist) https://cancerstaging.org/CSE/Registrar/Pages/Presentations.aspx
Microscopic Confirmation Necessary for AJCC Stage
Microscopic confirmation is required for TNM staging according to the AJCC Cancer Staging Manual, 7th
Edition (see Table 1.3 on page 8). When abstracting cases where the Diagnostic Confirmation code is ≥ 5,
leave the T, N, M categories and Stage Group fields blank.
Use of SEER Summary Stage code 9
For SEER Summary Stage, assign the stage based on the information available in the medical record
including clinical and operative/pathological assessment. There may be occasions when complete
information is not available. For example, a patient received work up and diagnosis at your facility but
was referred elsewhere for surgery. The abstractor should base the SEER Summary Stage on the current
information available in the medical record. Use Code 9 only when there is not information to assign
another code. It should be used infrequently. Source: SEER Ask a Registrar (ASW12082)
3
MCR MINI-UPDATE
APRIL 2016
STANDARD SETTER NEWS
TNM Staging Resources
SEER TNM Rules are based on UICC TNM and not AJCC TNM. Registrars reporting to MCR and those
reporting to CoC are to use the AJCC Cancer Staging Manual as the TNM authority and not materials or
notes supplied by SEER.
CTR Exam Prep Options
1) If you or your staff are planning on taking the CTR exam in June/July, you might want to consider
taking the NAACCR CTR Prep and Review Series. Beginning April 19, 2016 and continuing for 8 weeks,
the virtual class meets online every Tuesday afternoon from 1-3:00 EDT. Each week, a different topic
from the CTR Exam is covered. Every session is recorded, so if you miss the live meeting, you can view a
recording of the session that same day. There are weekly quizzes and reading assignments, ending with
a timed test during the final session. This is one way to study for the exam and interact with other
registrars who are also preparing for the exam. The cost of the series is $400; it includes live lectures
presented by experienced instructors, study materials, take home quizzes, and a timed practice test. For
more information, to see a full syllabus, or to register see the CTR Prep page on the NAACCR website.
2) MoSTRA offers a current study guide to use in preparing for the CTR exam. The Education Committee
of the Missouri State Tumor Registrars Association reviews this study guide every year. The guide is free
for MoSTRA members and $25 for non-members. http://mostractr.org/Resources/Certification/MoSTRACTRPrepBook/tabid/116/Default.aspx
3) Many registrars have successfully passed the CTR exam by studying completely on their own, utilizing
online training materials and studying manuals related to the test sections outlined in the exam
handbook. http://www.ctrexam.org/resources/
Annual Report to the Nation on the Status of Cancer, 1975-2012
On March 9, 2016, the Annual Report to the Nation on the Status of Cancer, 1975-2012 was published
by NCI/SEER in the journal Cancer in collaboration with the American Cancer Society, the Centers for
Disease Control and Prevention, and the North American Association of Central Cancer Registries. In
addition to reporting rates and trends for the most common cancers, this year's report includes a special
section about liver cancer. Learn more about the Report to the Nation and this year's key highlights. The
report web page also includes related infographics, factoids, videos, and embedded tweets that can be
shared easily. http://seer.cancer.gov/report_to_nation/
The Cancer in North America Volume Four: Cancer Survival In the United States and Canada
NAACCR has been producing Cancer in North America (CINA) incidence and mortality publications for
over 15 years. This is the first time that NAACCR has published cancer survival data for North America.
Along with incidence and mortality data, information on population-based cancer survival is necessary
to understand the burden of cancer. The CINA Survival publication includes data from 41 registries on
more than 6.7 million cases diagnosed among North Americans between 2005 and 2011.
In terms of national coverage, CINA Survival includes data from 8 of 13 Canadian provinces/territories,
28 of 50 states, and sub-state areas in Michigan and Washington. National population coverage by CINA
Survival is about 62% for the United States and 63% for Canada. For registries to be included in CINA
Survival, they need to meet data quality criteria. The results show stark differences in survival for many
cancer sites by race in the U.S., a finding seen also in the latest population-based survival statistics
published by the National Cancer Institute (SEER Cancer Statistics Review 1975-2012). Link to report:
http://www.naaccr.org/DataandPublications/CINAPubs.aspx
4
MCR MINI-UPDATE
APRIL 2016
REGISTRY TO RESEARCH
Survival Outcomes in Men Undergoing Radical Prostatectomy after Primary Radiation Treatment for
Adenocarcinoma of the Prostate (MU author, SEER data)
http://www.clinical-genitourinary-cancer.com/article/S1558-7673(15)00340-7/abstract
CDC Policies and Practices for Cancer Prevention: Lung Cancer Screening Programs (US Cancer
Statistics – SEER and NPCR data)
http://www.cdc.gov/cancer/ncccp/pdf/lungcancerscreeningprograms.pdf
Increased risk of colorectal cancer in patients diagnosed with breast cancer in women (Swedish data)
http://www.sciencedirect.com/science/article/pii/S1877782116000084
Risk of colorectal cancer after the diagnosis of prostate cancer: A population-based study (Manitoba
data)
http://onlinelibrary.wiley.com/doi/10.1002/cncr.29919/full
Care Discordant With Practice Guidelines Compromises Overall Survival in Nasopharyngeal Carcinoma
(NCDB data)
http://www.sciencedirect.com/science/article/pii/S0936655516000364
Post-Mastectomy Radiation Therapy for Invasive Lobular Carcinoma (SEER data)
http://www.clinical-breast-cancer.com/article/S1526-8209(16)30021-0/abstract
Radiotherapy After Breast-Conserving Surgery for DCIS (SEER data)
http://www.practiceupdate.com/c/35150/3/0/?elsca1=emc_enews_top10&elsca2=email&elsca3=practiceupdate_onc&elsca4=oncology&elsca5=newsletter&rid=NTU2MjE4MT
E1NjYS1&lid=10332481
RESOURCES
I-131-MIBG Therapies
http://www.ncbi.nlm.nih.gov/pubmed/22056346
http://www.pedrad.org/portals/5/events/2013/granger.pdf
Researchers find way to use skin cells to kill cancer
http://www.upi.com/Health_News/2016/02/24/Researchers-find-way-to-use-skin-cells-to-killcancer/2651456341916/
Cigarette Smoking Before and After Breast Cancer Diagnosis: Mortality From Breast Cancer and
Smoking-Related Diseases
http://jco.ascopubs.org/content/early/2016/01/21/JCO.2015.63.9328
Bladder cancer type bears molecular features of breast cancer
http://www.medicalnewstoday.com/articles/308068.php
The Genomic Landscape of Male Breast Cancers
http://clincancerres.aacrjournals.org/content/early/2016/03/09/1078-0432.CCR-15-2840
5
MCR MINI-UPDATE
APRIL 2016
Clinical Effect of Molecular Methods in Sarcoma Diagnosis
http://www.practiceupdate.com/c/36450/1/1/?elsca1=emc_enews_expertinsight&elsca2=email&elsca3=practiceupdate_onc&elsca4=oncology&elsca5=newsletter&rid=NTU2MjE
4MTE1NjYS1&lid=10332481
Latest Biennial Review of Health Problems That May Be Linked to Agent Orange Exposure During
Vietnam War Upgrades Bladder Cancer and Hypothyroidism, Downgrades Spina Bifida
http://www8.nationalacademies.org/onpinews/newsitem.aspx?RecordID=21845
Cola Intake Increases Exposure of Erlotinib
http://jco.ascopubs.org/content/early/2016/02/05/JCO.2015.65.2560.full
CDC Report - Ovarian Cancers: Evolving Paradigms in Research and Care
http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2016/OvarianCancers_RiB.pdf
Alcohol triggers breast cancer-causing gene
http://www.medicalnewstoday.com/articles/307917.php
Microneedle patch delivers localized cancer immunotherapy to melanoma
https://www.sciencedaily.com/releases/2016/03/160324143232.htm
Thanks again for all you do!
Nancy H. Rold, CTR
Operations Manager
Missouri Cancer Registry and Research Center
6