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Psychosis – the basics Stuart Sorensen – RMN Loosely defined, ‘psychosis’ might be described as ‘loss of touch with reality’. Certainly this is the traditional view. In recent years, however, the notion of ‘reality’ itself has been challenged and, with it, the concept of psychosis too. The argument goes something like this: If psychosis is loss of touch with reality and yet reality is changeable depending upon a person’s individual perspective, then how can the notion of psychosis have any validity in the first place? Regardless of these philosophical and sometimes even metaphysical musings the majority of people – doctors in particular by virtue of the assumptions inherent in their medical training – persist in adopting the narrow and arguably very superficial view that reality is an objective thing which can be defined and explained scientifically. This assumption about the nature of reality is know as ‘modernism’ which also insists that there can be only one reality and that the only way to understand it is by adopting scientific principles. This explains the heavy emphasis upon scientific methodology (RCTs for example) and the tendency of the therapeutic community to dismiss other ‘ways of knowing’ which are deemed to be unscientific and therefore ‘less worthy’ of consideration. Unfortunately, even with the aid of scientific methodology it has proven impossible to define reality or adequately to demonstrate the nature of mental illness despite the huge amounts of time, effort and public money which have been showered upon the search. Positive and negative symptoms of schizophrenia/psychosis Positive symptoms are those symptoms which exist ‘in addition’ to the norm. For example visual hallucinations are extra experiences which most people do not have Negative symptoms are detractions from the norm. For example apathy is a negative symptom which represents a lack of ‘normal’ interest in life. Lethargy is ‘lack of energy’. So positive symptoms represent ‘extras’ and negative symptoms represent ‘absences’ Hallucinations Hallucinations are sensory experiences in any modality (sight, hearing, touch, taste, smell) which do not have any observable external source. For example an hallucination may be a voice which no one but the voice-hearer can detect or a vision which only they can see. It is a remarkable double standard that many of the chief religious and political figures across the world achieved their status precisely because of experiences such as these and yet many psychiatrists, whilst accepting these figures as sane or even gifted, castigate less influential individuals who display the same characteristics. Jesus, Joan of Ark, Buddha, Sister Fatima, Moses, Saul, Samuel, Noah, Ghandi, Martin Luther King, Hitler, Alexander the Great, Various Catholic saints including the virgin Mary, and of course her husband, Joseph all reported ‘textbook’ hallucinations. 1 Delusions According to traditional thinking on the subject Delusions are ‘fixed, false beliefs’ which are ‘not amenable to reason’. To put it another way, the client believes something which the clinician does not and won’t change his mind simply because he is told to. It is true that delusions do seem to exist and people do tend to believe things which seem to be impossible. However, where the early observers of delusions fell down was in their prematurity. They were unable to reason the beliefs away because they lacked the therapeutic techniques to do so. Furthermore they failed to appreciate the symbolic nature of these beliefs, their protective function for the individual’s psyche or the awareness that it may, actually be they who were wrong and not the hapless inmate of the asylum. Examples of delusions include: 1. 2. 3. 4. ‘Persecutory’ or ‘paranoid’ delusion ‘Ideas of reference’ – apparently innocuous things appear to have significance for the client and indeed ‘refer’ to him. For example a pigeon landing on a tree top at a particular time of day may suggest the presence of an international espionage ring plotting to kill him. ‘Delusions of grandeur’ – the belief in one’s own importance. For example clients may consider themselves to be Jesus or the worlds greatest pizza maker or anything which has an air of ‘specialness’ about it. Arguably paranoid delusions are also grandiose as they tend to imply that the client is seen as important or special enough to warrant having others plot against them in the first place. ‘Delusions of guilt’ – the client believers themselves guilty of some crime (known or unknown) despite contrary evidence. ‘Hypochondriasis’ ‘Somatic delusions’ – pertaining to bodily metamorphosis ‘Nihilistic delusions’ – pertaining to the death of all or part of the body. Clients may believe that their intestines are dead for example or that they are actually dead themselves. ‘Religiosity’ – also often grandiose - clients may believe that they have a special role in religious matters. Perhaps they must save the world or battle with the Devil for example. Or maybe a particular demon is trying to kill them to prevent them from developing into the next Messiah. ‘Passivity’ – the client believes that they are being externally controlled – rather like a puppet. Passivity delusions include: automatism – physical movements controlled by external force thought insertion – thoughts inserted by external force thought withdrawal – external influence robbing the client of thoughts thought broadcasting – external forces broadcast client’s thoughts to others. Work in Europe – particularly in the UK and in Holland has overturned the assumptions of ‘fixed false beliefs unamenable to reason’ as clients with delusional beliefs have entered into discussion about those beliefs with skilled therapists and subsequently reasoned themselves out of their delusions. This is often done without the aid of medication – even by withdrawing medication - and is just one more piece of evidence supporting the increasingly obvious conclusion that psychiatry is badly flawed. 2 Thought disorders There are many types of thought disorder. These tend to be differences in the ‘process’ of thought itself rather than in the ‘outcome’ of thought. Thought disorders include: ‘Flight of ideas’ – thoughts rapidly replace each other in the client’s mind, often with only very spurious links to each other. ‘Clang association’ – clients associate different concepts or subjects because of links such as rhymes, synonyms, or puns. For example: “I’m telling you – ewes are female sheep and He is a very sheepish man but you shouldn’t eat a mandrake – male ducks don’t lay eggs.” ‘Poverty of thought’ – absence of thoughts ‘Thought blocking’ – the client’s chain of thought abruptly ceases. ‘Knight’s move thinking’ – in chess the knight moves one square forward and one diagonal – to put it another way he ‘goes off at a tangent’. Thought and conversation make apparently unconnected leaps from one topic to another which seems quite unrelated. ‘Word salad’ – a jumbled mass of apparently unrelated and incoherent words. ‘Neologism’ – The client uses words they have just invented as though they are part of normal vocabulary. ‘Perseveration’ – similair to obsession – particular thoughts or perhaps even phrases or syllables repeat in the mind and/or conversation over and over again. They ‘persevere’. ‘Concrete thinking’ – inability to think abstractly ‘Over-inclusivity’ – the client includes a great deal of insignificant information when relaying information. For example an account of a walk to the shops may contain a lengthy description of the sound the front door made as it closed behind the departing client which ultimately adds nothing to the real information in question. Specifics and ‘one-offs’ Othello syndrome – a delusional jealousy. Named after Shakespeare’s Othello who, becoming jealous of his wife smothered her with a pillow. In fact Othello’s wife, Desdemona, had been faithful but Othello refused to believe that. Cap Gras syndrome – the belief that one’s loved ones or familiar associates are imposters. Think of the film ‘invasion of the body snatchers’ to get a feel for this syndrome. Arguably it’s not strictly psychotic in the medical model sense as it seems to be a way to make sense of the fact that people don’t ‘feel’ familiar any more, which, apparently is the result of a communication problem between the amygdala and other brain centres. Folie a deux – literally ‘foolishness shared by two’ this is a delusional belief shared by two individuals, generally close to one another such as lovers. Psychosis and dissociation Dissociation is an experience which comes in many forms. The concept can be confusing because it is interpreted very differently by separate cultures and communities. These explanations range from voice hearing to ‘absences’ or at the extreme end of the spectrum ‘Dissociative Identity disorder’ (formerly known as ‘multiple personality disorder’). Rather 3 than worry too much about precise definitions within the spectrum of dissociation it may be helpful to consider a continuum of dissociative experiences which incorporates all these phenomena and explanations. This continuum might look something like this: Absences preoccupation voice hearing ‘personality’ changes DID It is important to bear in mind that the experiences along the continuum do not increase in severity so much as in severity of interpretation. My own experiences suggest to me that what American culture clearly insists is evidence of DID may be no different from the phenomena that my own, British culture describes as voice-hearing. The only significant difference appears to be related to interpretation, explanation and treatment protocols. So what is ‘dissociation’ all about? The bottom line is that it has to do with responsibility. At every point along the continuum above the client is attempting to ‘close off’ or ‘dissociate from’ aspects of their experience or mental life which they find too unacceptable to acknowledge as their own. The voice-hearer wants to believe that the voices are emanating from another individual whilst the DID client seeks refuge in the presumption that their own actions were the behaviours of a different person. In both cases the clinical goal seems to be to help the client to accept and acknowledge the parts of themselves which they would rather not admit to. It is fascinating to note the speed with which psychotic clients improve and regain their equilibrium once they acknowledge that their voices are really auditory representations of their own thoughts, internally generated and entirely within their control just as any other thought is within their control. How, why and what to do about it Stress and vulnerability Back in 1977 Zubin & Spring (Zubin J. & Spring B. 1977) published a then new approach to the understanding and treatment of mental disorder. They posited that episodes of mental disorder, especially psychoses, are directly related to the amount of stress that individuals experience. They further suggested that individuals vary in the amount of stress that they can cope with. Thus the onset of psychosis is a function of the interaction between the amount of stress a person can stand and the situation in which they find themselves. This does not, as some suppose, entirely disregard the traditional bio-medical model which argues that illness is inherent within the individual. Rather it acknowledges the reality that some people have biological vulnerabilities but sees this as only part of the picture. According to the Stress-Vulnerability model the degree of stress experienced by clients is a major determinant in the development of episodes of mental disorder (Craig T.K.J. 1996) (British Psychological Association 2000) (Norman R.M.G. & Malla A.K. 1993). In addition the model argues that the degree of skill the individual has in coping with stress (coping mechanisms), together with the pressures of their environment such as familial high expressed emotion (Hirsch S.R. & Bristow M.F. 1993) ( Moorey S. 1996) (Leff J. 1998) (Haddock G. 1999) (Bradley S.J. 2000) (Morrisey M. 1999) are vital parts of the picture as a whole. Today there is, of course, a wealth of research in the professional literature to support 4 this assertion (Diamond E.A. 2001) (Chua S.E. & McKenna P.J. 1995) (McGrath J. & Emmerson W.B. 1999) (King J. 2000). “All children, even those who were believed to be carrying some genetic vulnerability, did well in ‘healthy’, adaptive families. In other words, families seemed to play a crucial role both in increasing and protecting against genetic risk.” (British Psychological Association 2000) High stress Serious mental disorder Coping well Mild depression, anxiety or confusion, prodrome and delusional mood. Low stress Low vulnerability High Vulnerability It seems that, given the huge part played by environmental stressors in the development and maintenance of mental disorders, work aimed at helping people to reduce stressors and to deal with those that remain is a logical response (May R. 2000). Social Rank Theory This is particularly useful when dealing with voices, delusions and peer pressure – all significant issues for many members of our target population. The basic idea is that individuals feel obliged to obey or to conform to standards set by others whom they perceive as more important or more powerful than themselves. By working specifically to alter the perceived ‘rank’ of voices, peers or delusional cognition it is possible to reduce the significance of persistent psychotic symptoms until they no longer concern or interfere with the client. Attribution 5 One of the most significant variables in psychosis is that of ‘attribution’. Briefly put, if the client attributes their experiences to their own thinking processes they can develop ways to control them. If, on the other hand they attribute their experiences to external forces (demons, aliens, government organisations, God etc.) they find themselves unable to control them because they are seen as ‘not me’ and therefore ‘beyond my influence’. This is why the notion of accepting personal responsibility is so important. People can only impact upon things which they are responsible for and which they believe themselves able to change. This is also the basis of the ‘disassociation’ argument outlined above. Systems Theory Briefly put, the part of any system which has the most choices also has the most control. By consciously examining the amount of options available to clients and helping them to increase those options in a responsible manner we help individuals to reassert control over their own lives. This approach is particularly important if we are to combat the effects of long term traditional mental health treatment or institutionalisation. The Cognitive Model Cognitive Behavioural Therapy (CBT) is based upon the ‘Cognitive Model’ and relies upon an ever-evolving ‘formulation’ which outlines the development and maintenance of problems by examining the ‘triad’ of ‘thoughts, feelings and behaviours’. By focusing upon ‘core beliefs’ and the events which contradict them it is possible to plot the individual’s responses which create and then maintain their difficulties. This formulation is the basic explanation which informs treatment and helps the client to develop insight as well as learn to overcome their symptoms. The following is a relatively superficial illustration of the process by which individuals can develop and maintain psychotic symptoms and ultimately gain diagnoses like ‘schizophrenia’ because of their attempts to deal with traumatic events. This example concerns the hypothetical case of an adult who experienced sexual abuse as a child. By making the process conscious and by helping the clients to examine the assumptions they made at the time of trauma it is possible to overturn not only the initial self-beliefs but also the behavioural and psychological patterns which maintain their symptoms. On a simpler level it is possible to dispense with the first part of the formulation should the client be unable to address it and concentrate purely upon the cycle of thoughts, feelings and behaviours as a means of addressing patterns of behaviours which maintain dysfunction. The depth and ‘comprehensiveness’ of the work depends primarily upon the client and their developmental needs at the time. 6 Situation Sexual abuse by father Core belief I’m a naughty girl Conditional (if, then) Assumption If I’m a good girl Daddy won’t do that to me Event Abuse continues in spite of attempts to be a ‘good girl’ Thought I’m a bad girl I’m only good for sex My life is meaningless I need to feel better I need drugs to survive (Voice) You’re worthless Behaviour Withdraw Promiscuity Self harm Substance misuse Develop psychotic symptoms More substances to avoid voices Feeling Worthlessness Dirty ` Hopelessness Desperation Inadequate Scared Mental Health Recovery Inspired by commentators such as those listed above as well as the results of research projects such as the ‘International Study of Schizophrenia’ (Harrison G. et al 2001), we can see that mental health recovery is far from impossible. In fact, in many situations and cultures it is the norm. This represents something of a departure from the traditional, Western, bio-medical view of serious mental disorder as it views recovery in a very different way (May R. 2000) (Harrison G. et al 2001). Recovery can be defined in the following ways: Clinical recovery – The absence of clinical symptoms; Psychological recovery – Symptoms remain but do not distress the client or cause dysfunction in activities of daily living; Social recovery – The client is accepted by their society and culture regardless of symptomatology. 7 Any two of these three constitutes meaningful recovery. It is interesting to note that the vast majority of voice-hearers for example do not have any difficulty with their voices and have not come into contact with mental health services at all (Romme M. & Escher S. 2000). Active work on psychotic content (hearing voices work) For almost two decades now Professor Marius Romme and Sandra Escher (Romme M. & Escher S. 1993, 2000) have championed the principles of active exploration and interpretation of voice-hearing as an effective therapeutic tool. The basic principles of ‘hearing voices work’ as it has come to be known include acceptance of the reality of the voice-hearer’s experience and an attempt to understand what the experience means to them on many levels including the ‘social’ and ‘psychological’. Although active exploration of psychotic experience is contrary to the perceived wisdom of traditional psychiatry there is good evidence, anecdotal and otherwise, that such an approach is extremely beneficial. “…exploration of these experiences can help subjects to cope with them and conversely, attempts to ignore or suppress them may paradoxically increase the subject’s preoccupation with them.” (Leudar I & Thomas P. 2000 p.114) Trauma resolution work In keeping with the principles of ‘stress and vulnerability’ as outlined above it is common during formulation of psychotic experiences to uncover significant trauma which often lies at the root of first and subsequent episodes of psychosis. The basic theory is that life events contradict beliefs and assumptions upon which the individual relies to maintain their sense of safety or self esteem. In order to restore their self esteem they have various options: Incorporate the new information into their belief system and adapt (healthy); Deny reality altogether (a common strategy in racism for example); Invent some way to neutralise the importance of the new information, perhaps by deluding oneself about conspiracies designed to trick (paranoia, delusions etc.) Once a psychotic strategy has been put into place a process known as ‘selective abstraction’ serves to dismiss contradictory evidence and accentuate supporting evidence. The effect is psychological ‘retraumatisation’ and fear which ultimately leads to the development of other ‘symptoms’ such as withdrawal or hallucinations. Many of the symptoms of schizophrenia, for example, particularly so-called ‘negative’ symptoms can be attributed to coping strategies to deal with a world which the individual perceives as too dangerous. In trauma work we help the client to examine the assumptions they made as a result of stress or trauma and then examine the effect those assumptions have had upon their lives subsequently. We agree hypotheses and test out alternative assumptions in the here and now until the client is able to dispense with, or perhaps modify, the delusional beliefs until they become harmless. 8 Assessment protocols Trauma is always a feature in the development of psychotic phenomena. The problem is that people have different definitions of trauma. This is because events are interpreted as traumatic in relation to an individual’s own unique belief systems and expectations. So, what may represent a trauma for one may be only mildly irritating or even a positive experience for another. The formulation above illustrates in fairly obvious ways the manner in which a person’s belief system can come into conflict with events. This conflict is the basis of psychological trauma. Even physical trauma is dependent upon the same mechanism. For example – most people would find bodily pain traumatic but for some the experience of pain is pleasurable. The difference lies in the individual’s beliefs and expectations. Similairly – seemingly innocuous events (receiving a bill through the letter box for example) may be extremely traumatic to an individual if they believe that such events are catastrophic and impossible to deal with. Therefore, when dealing with psychosis the issue is never ‘would I think this traumatic?’ and always ‘what belief is this in conflict with for the client?’ Only by considering experiences in the light of the client’s own belief system, particularly their ‘core beliefs’ (schema) and their ‘conditional assumptions’ (if this, then that) can we truly identify causative trauma. A few more cognitive dynamics Selective abstraction (aka mental filtering) is something which all people do. Basically we tend to focus only upon evidence which supports our preconceived notions and minimise or dismiss evidence which does not. Therefore – if a client has a paranoid delusion involving bus drivers he may remember episodes in which bus drivers appeared uncaring or dismissive of him whilst ignoring occasions when they were pleasant with him. Furthermore he may actually reinterpret their nice attitudes as simply evidence of an attempt to lull him into a sense of false security, thus prompting the belief that the conspiracy was nearing its climax and bus drivers were about to murder him. This concept can be further refined and terms such as ‘mental filter’ or ‘theory of mind’ also refer to refinements of the process of ‘selective abstraction’. Delusional mood is part of the ‘prodrome’ of psychosis. This is the period of time following undeniable evidence in the real world which conflicts with preconceived beliefs. For example if I believe that all doors are painted red and I see a door which is painted blue that means that the world is in conflict with my beliefs. Whilst I reintegrate and assimilate the new information into either a delusional or objective belief system (it can go either way) I will experience some emotional distress. This is the delusional mood. There are two reasons why this is important. Firstly – identifying past episodes of delusional mood will provide information about the nature of the trauma which prompted the psychosis. Secondly – identifying current delusional mood states allows us to intervene and prevent psychotic episodes from occurring at all. 9 Relapse prevention This is one of the main aspects of recovery work. In order to prevent relapse it is necessary to understand it. Individual clients have unique ‘relapse profiles’ and most will have between three days and one month prior to relapse in which, with the aid of a good relapse profile, the problem can be predicted and successfully averted. It is always vital to spend several sessions defining exactly what happens in relapse, how much warning the client has, what order symptoms appear in, what works for each symptom and what the ‘early warning signs’ are which will trigger intervention. The vast majority of clients are extremely keen to collaborate with relapse prevention planning and will recognise and act upon triggers and early warning signs long before clinicians can providing that we are clear about the circumstances in which to summon help. Incidentally, one of the best ways to sabotage relapse prevention work is to intervene with medications in the early warning stage. This more or less guarantees that the client will not tell you about future relapse with the result that by the time you notice the problem for yourself they are likely to be in full blown psychosis with limited insight and significantly fewer realistic treatment options. Medication, like all interventions should be negotiated in advance in the relapse prevention plan, the client should know in advance what to expect when they summon help and should be encouraged to collaborate in every stage of planning and delivery of relapse prevention. Other ways to prevent relapse include implementing practical measures such as ‘sleep hygiene’, ‘dietary changes’, ‘advocacy in stressful situations’, ‘Socratic questioning’ regarding the issue giving rise to the delusional mood, ‘involvement of significant others’ (within prearranged boundaries) and, of course, anything else specific to the needs of the individual concerned. As you will appreciate a good relapse prevention plan takes considerable time to set up but is well worth the effort, both in terms of quality of life for the client and ultimately in terms of time management for the clinician. Better to spend several sessions achieving meaningful change than interminable months simply maintaining illness. Therapeutic optimism The best way to keep someone ill is to tell them that they will always be ill. Other variants of this are: “You’ll need medication for ever” “You’re a schizophrenic” “Schizophrenia’s incurable” More insipid is the absence of conversation about recovery. If we don’t speak openly about the realistic prospect of recovery our clients will assume that it’s not an option. In that case we have maintained illness just as surely as if we had told them they will always be ill. Real progress is only possible from a perspective of therapeutic optimism. We must openly tell our clients that they can expect to recover and then involve them in active collaboration toward that aim. Part of this philosophy involves advocacy on their behalf – often against medical colleagues – and a demonstrable faith in their potential. Remember that to do this often means to be a lone voice amid a sea of colleagues who for years have told the client precisely the opposite. It is necessary to be congruent and consistent and be able to explain the reasons for your optimism to all comers. 10 The problem with psychiatry and the medicalisation of distress Psychiatry is based upon the principles of medicine which place the source of all disorder solely in the body. So mental disorder is deemed to be caused entirely by physical or physiological pathology. It is for this reason that psychiatrists rely so heavily upon medication despite the well-documented damage these substances cause their clients. It would be unfair however to assume that medics are indifferent to the sufferings their treatments cause. They genuinely are trying to help people but given that their medical training permits them only the narrow view enshrined within the medical model they are unaware of the majority of successful treatment modalities. It is true, of course, that some of the symptoms which psychiatrists deem indicative of disorders like schizophrenia are to be found in undeniably organic disorders such as the dementias or following brain injury. However, none of these symptoms when taken individually are exclusively physiological or physical in nature. It is also the case that many of the symptoms can be directly attributed either to coping mechanisms designed to protect the individual from trauma (such as delusions for example) or the side effects of antipsychotic medications (negative symptoms of schizophrenia for example). By refusing to accept nonphysical explanations for mental health problems psychiatrists have locked themselves into a mindset which, of necessity, ignores many of the different causes and treatments for psychosis. Arguably, by perpetuating assumptions of incurability the medical approach actually exacerbates and maintains mental health problems which could otherwise be overcome. This is why all clinicians, including doctors, but especially mental health nurses with our particular status, credibility and access to clients have a duty to argue against the bio-medical view of mental disorder. This has been no more than a very superficial overview of a deep and fascinating topic. If you have any questions please don’t hesitate to ask. Radically, Stuart [email protected] 11 References Bradley S. J. 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(2000) Making sense of voices Mind publications: London Zubin J/ & Spring B. (1977) Vulnerability – a new view of schizophrenia Journal of Abnormal Psychology Vol. 86, No. 2, pp. 103-124 13