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TALKING TO LUNG CANCER PATIENTS ABOUT RADON ANGELA TIN RADON NATIONAL MEETING SEPTEMBER 2016 1 BACKGROUND • How do we respond to callers for health related questions on cancer? • How can everyone do this on a nation-wide basis? • How can we find other radon advocates? 2 WHO RESPONDS TO RADON CALLS: • • • • • • USEPA / State Agencies (Hotlines) NGO Organizations (CanSAR and CR3) Universities Professional Organizations (AARST) Laboratories Measurement /Mitigation Professionals ALL OF US IN THIS ROOM 3 WHAT KIND OF QUESTIONS: • Measurement and testing • Radon levels of concern • Mitigation principles • Radon science & physics • Radon risk and epidemiology • Measurement/mitigation professionals I HAVE BEEN DIAGNOSED WITH LUNG CANCER 4 I HAVE BEEN DIAGNOSED WITH LUNG CANCER 5 ONE REASON WE CARE IS CELESTE • Celeste E. Better Fund established in memory of our national office colleague who died of lung cancer in 2010 • Celeste never smoked • Succumbed at 41, only months after seeing her doctor for a persistent cough 6 WHAT IS CANCER? CELLS Are damaged and mutate Grow and multiply uncontrollably Clump together and form a tumor 7 LUNG CANCER IMAGE Lymph nodes Healthy Lung Lung cancer is cancer that STARTS in the lung 8 LUNG CANCER RATES INCIDENCE: BY STATE 26.7 97.3 9 LUNG CANCER - DEADLIEST CANCER Estimated Cancer Deaths by Site, 2013 180,000 160,000 140,000 Prostate 120,000 100,000 80,000 Pancreas Breast Lung 60,000 40,000 20,000 Colon 0 Other Cancers Lung Cancer Source: American Cancer Society. Cancer Facts & Figures 2013 10 LUNG CANCER KILLS TOO MANY PEOPLE In 2010, 158,318 people died from lung cancer –87,740 men –70,578 women In a room of 100 people 6 will develop lung cancer, and 5 will die from it 11 100 90 80 70 60 50 40 30 20 10 0 1900 1904 1908 1912 1916 1920 1924 1928 1932 1936 1940 1944 1948 1952 1956 1960 1964 1968 1972 1976 1980 1984 1988 1992 1996 2000 2004 2008 Per 100,000 WE’VE TURNED A CORNER, BUT A LONG WAY TO GO Lung Cancer Age-Adjusted Death Rates by Sex Male Female 12 450 1975 1976 1977 1978 1979 1980 1981 1982 1983 1984 1985 1986 1987 1988 1989 1990 1991 1992 1993 1994 1995 1996 1997 1998 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010 Age-Adjusted Rate per 100,000 WHO GETS LUNG CANCER? Lung Cancer Incidence By Age and Year, 1975-2010 Ages 75+ 400 350 Ages 65-74 300 250 200 150 Ages 50-64 100 50 Ages 20-49 0 13 LUNG CANCER STRIKES SOME HARDER 90 Age-Adjusted Mortality Rates1 by Race/Ethnicity2 and Sex, 20042008 80 Per 100,000 70 Men 60 Women 50 40 30 20 10 0 White Black Hispanic Asian/Pacific Isl Amer Ind/AK Nat Source: National Cancer Institute. SEER Cancer Statistics Review, 1975-2008. 14 5-YEAR SURVIVAL RATES 99.2% 100% 89.2% 80% 64.9% 60% 40% 20% 16.6% 0% Lung & Bronchus Colorectal Breast Prostate 15 LUNG CANCER SYMPTOMS • • • • Chronic cough • Hoarseness • Constant chest pain• Shortness of • breath, or wheezing • Frequent lung • infections • Coughing up blood Loss of weight Loss of appetite Headaches Bone pain or fractures Blood clots Many people do not develop symptoms until the lung cancer has spread and is in the later stages. This make lung cancer difficult to diagnose and treat early. 16 OUR LUNG CANCER WORK TODAY Health Education & Awareness Prevention • • Don’t start or quit smoking Radon Testing and Mitigation Early Detection • • • • High risk screening promotions New methods Awareness and health education Guidelines for patients Treatment • • • • • Research Patient Programs Get tumors tested Personalized medicine Clinical trials Affordable care Guidelines Advocacy Cure • • Research Lobby for more funding 17 Prevention is Key 18 PATIENT PROGRAMS LUNG CANCER HOTLINE Lung Cancer Basics Treatment Options Clinical Trials Coping with Side Effects Support for Caregivers Support - lung cancer patients Treatment options Referral for radon questions And many more… Please use these Rack Cards 19 MERGING NEEDS BETWEEN RADON AND AMERICAN LUNG ASSOCIATION’S LUNG CANCER HELPLINE Call the Lung Cancer HelpLine at 1-844-ALA-LUNG Email a question to [email protected] Visit http://bit.ly/helplinechat to chat online TTY for hearing impaired at 1-800-501-1068 Visit MyLungCancerSupport.org 20 TYPICAL HELPLINE CONVERSATION Provide consistent, appropriate and responsible answers about lung cancer on a nation-wide basis Answer or direct questions about radon to others Create a team of radon advocates 21 Angela Tin Vice President Environmental Health American Lung Association of the Upper Midwest [email protected] 217.787.5864 * www.Healthhouse.org 22