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Health Literacy in Health Care – The Vienna model and self-assessment tool for health-literate hospitals. Jürgen M. Pelikan em. Prof. Institute for Sociology, Vienna University Director, WHO-CC Health Promotion in Hospitals and Health Care, at The Austrian Public Health Institute, Vienna / Austria The 4th AHLA International Health Literacy Conference Health Literacy and Quality of Healthcare Services November 7-9, 2016 Haiphong, Vietnam 1 Overview / Line of argumentation 1. Why does Health Literacy matter in health care? 1. Empirical findings from the USA: Limited HL has detrimental effects on use and outcomes of health care. 2. Some theoretical arguments: Co-Production in health care needs health literate patients 3. Empirical findings from HLS-EU study: Sick people and patients have worse HL than average citizens 4. Empirical findings from HLS-EU study: Hl has effects on health status & use of professional health services of citizens 2. The relational character of health literacy offers different stragies to deal with low health literacy – also within health care 1. The IOM 10 attributes of a Health Literate Health Care Organization 2. The Vienna Model, self-assessment instrument & feasibility study of Heath Literate Health Care Organizations, especially hospitals 3. Good Practice interventions to improve (organizational) health literacy in health care 3. Summary and conclusions Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 2 1. WHY DOES HL MATTER IN HEALTH CARE? 1.1 EMPIRICAL FINDINGS FROM THE USA: LIMITED HL HAS DETRIMENTAL EFFECTS ON USE AND OUTCOMES OF HEALTH CARE Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 3 Effects of low health literacy for use and outcomes of health care – empirical evidence from the USA Persons with low health literacy … » Use less preventive services » Need more emergency treatment » Have more hospital admissions » Have more problems to understand health related information » Are less able to take their medications correctly and have worse selfmanagement » Are less able to co-produce in treatment and care » Have worse treatment outcomes » Have higher risks of complications » Have more unplanned readmissions » Cause 3-5% of treatment expenses (Eichler, Wieser & Brügger 2009) » improving health literacy in health care contributes to strengthening effectiveness and efficiency of the healthcare system! (Berkman et al. 2011, Brach et al. 2012) 4 Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization First reactions on these results in USA health care » In the USA the relevance of low HL for problematic health care results first led to developing even shorter or short versions of existing functional HL tests (e.g. TOPHLA, REALM, NVS) » & testing of patients to adapt professional communication to individual patients with low HL » But this procedure has its clear limits! Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 5 1. WHY DOES HL MATTER IN HEALTH CARE 1.2 SOME THEORETICAL ARGUMENTS: CO-PRODUCTION IN HEALTH CARE NEEDS HEALTH LITERATE PATIENTS Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 6 Some theoretical arguments: Co-Production in health care needs health literate patients » » » » Decision to adequately consult professional health care Co-production in diagnosis and therapy Shared decision making Compliance and adherence to medication etc. (Miller 2016) » [..] to apply literacy skills to health-related materials such as prescriptions, appointment cards, medicine labels, and directions for home health care“ (Parker et al. 1995: XY). » Empowerment for disease self-management (Mackey et al 2016) » Enablement for lifestyle change » Guarantee behaviour changes (Guntzviller et al 2016, Yokokawa et al. 2016) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 7 1.WHY DOES HL MATTER IN HEALTH CARE 3. EMPIRICAL FINDINGS FROM HLS-EU STUDY: SICK PEOPLE & PATIENTS HAVE WORSE HL THAN THE AVERAGE CITIZEN Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 8 Health Literacy by 5 social determinants & NVS (Beta Weights and Adjusted R-Square for Total Sample & Countries) (HLS-EU 2012) ES -.066 NL .028 FIN. DEP. NVS -.327 PL -.231 .226 BG .134 DE -.007 SOCIAL STATUS .195 IE IE .003 EDUCATION .194 EL .122 Health Literacy .100 -.063 IE -.004 AGE -.141 EL .058 ES .024 GENDER .117 NL Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization Adj. R2= .188 (NL .076 /.291 EL) 9 Combined Shares of ‘Fairly Difficult’ and ‘Very Difficult’ Answers of HL Health Care Items for HLS-EU8 according to Self-Reported Long-Term Health Problems On a scale from very easy to very difficult. How easy would you say is it to: 12...judge if the information about illness in the media is reliable? (Instructions: TV, Internet or other media) 10...judge the advantages and disadvantages of different treatment options? 11...judge when you may need to get a second opinion from another doctor? 6...understand the leaflets that come with your medicine? 2...find information on treatments of illnesses that concern you? 13...use information the doctor gives you to make decisions about your illness? 1... find information about symptoms of illnesses that concern you? 3... find out what to do in case of a medical emergency? 7...understand what to do in a medical emergency? 9...judge how information from your doctor applies to you? 5...understand what your doctor says to you? 4...find out where to get professional help when you are ill? (Instructions: such as doctor, pharmacist,psychologist) 15...call an ambulance in an emergency? Yes more than one Yes one 14...follow the instructions on medication? No 8...understand your doctor’s or pharmacist’s instruction on how to take a prescribed medicine? Total 16...follow instructions from your doctor or pharmacist? 0% 10% 20% 30% 40% Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 50% 60% 70% 10 80% 5.1 Schwierigkeit der 16 Aufgaben für KRANKHEITSBEWÄLTIGUNG nach Vorliegen von CHRONISCHEN ERKRANKUNGEN (gereiht nach Schwierigkeit der Aufgaben für die Österreichstichprobe). AUF EINER SKALA VON EINFACH BIS SEHR SCHWIERIG WIE SCHWIERIG IST ES: 12...zu beurteilen, ob Informationen über eine Krankheit in den Medien vertrauenswürdig sind? 10...Vor- und Nachteile von verschiedenen Behandlungsmöglichkeiten zu beurteilen? 11...zu beurteilen, wann Sie eine zweite Meinung von einem anderen Arzt einholen sollten? 6...die Beipackzettel Ihrer Medikamente zu verstehen? 13...mit Hilfe der Informationen, die Ihnen der Arzt gibt, Entscheidungen bezüglich Ihrer Krankheit zu treffen? 2...Informationen über Therapien für Krankheiten, die Sie betreffen, zu finden? 7...zu verstehen, was in einem medizinischen Notfall zu tun ist? 3...herauszufinden, was im Fall eines medizinischen Notfalls zu tun ist? 1...Informationen über Krankheitssymptome, die Sie betreffen, zu finden? 9...zu beurteilen, inwieweit Informationen Ihres Arztes auf Sie zutreffen? 5...zu verstehen, was Ihr Arzt Ihnen sagt? 4...herauszufinden, wo Sie professionelle Hilfe erhalten, wenn Sie krank sind? 14...den Anweisungen für die Einnahme von Medikamenten zu folgen? 8...die Anweisungen Ihres Arztes oder Apothekers zur Einnahme der verschriebenen Medikamente zu verstehen? 16...den Anweisungen Ihres Arztes oder Apothekers zu folgen? 15...im Notfall einen Krankenwagen zu rufen? 0% l Ja, mehr als eine (N= 209) l Ja, eine (N= 409) 10% 20% 30% 40% 50% 60% 70% Summierte Prozentsätzte "ziemlich schwierig" und "sehr schwierig" l Keine (N= 1175) l Gesamt (N= 1793) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 80% 11 Combined Shares of ‘Fairly Difficult’ and ‘Very Difficult’ Answers of HL Health Care Items for HLS-EU8 according to Self-Reported Health Status On a scale from very easy to very difficult. How easy would you say is it to: 12...judge if the information about illness in the media is reliable? (Instructions: TV, Internet or other media) 10...judge the advantages and disadvantages of different treatment options? 11...judge when you may need to get a second opinion from another doctor? 6...understand the leaflets that come with your medicine? 2...find information on treatments of illnesses that concern you? 13...use information the doctor gives you to make decisions about your illness? 1...find information about symptoms of illnesses that concern you? very good 3...find out what to do in case of a medical emergency? good 7...understand what to do in a medical emergency? fair bad to very bad 9...judge how information from your doctor applies to you? Total 5...understand what your doctor says to you? 4...find out where to get professional help when you are ill? (Instructions: such as doctor, pharmacist,psychologist) 15...call an ambulance in an emergency? 14...follow the instructions on medication? 8...understand your doctor’s or pharmacist’s instruction on how to take a prescribed medicine? 16...follow instructions from your doctor or pharmacist? 0% 10% 20% 30% 40% 50% Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 60% 70% 80% 12 6.2 Schwierigkeit der 16 Aufgaben für KRANKHEITSBEWÄLTIGUNG nach selbsteingeschätztem GESUNDHEITSZUSTAND (4 Kategorien) (gereiht nach Schwierigkeit für die Österreichstichprobe). AUF EINER SKALA VON EINFACH BIS SEHR SCHWIERIG WIE SCHWIERIG IST ES: 12...zu beurteilen, ob Informationen über eine Krankheit in den Medien vertrauenswürdig sind? 10...Vor- und Nachteile von verschiedenen Behandlungsmöglichkeiten zu beurteilen? 11...zu beurteilen, wann Sie eine zweite Meinung von einem anderen Arzt einholen sollten? 6...die Beipackzettel Ihrer Medikamente zu verstehen? 13...mit Hilfe der Informationen, die Ihnen der Arzt gibt, Entscheidungen bezüglich Ihrer Krankheit zu treffen? 2...Informationen über Therapien für Krankheiten, die Sie betreffen, zu finden? 7...zu verstehen, was in einem medizinischen Notfall zu tun ist? 3...herauszufinden, was im Fall eines medizinischen Notfalls zu tun ist? 1...Informationen über Krankheitssymptome, die Sie betreffen, zu finden? 9...zu beurteilen, inwieweit Informationen Ihres Arztes auf Sie zutreffen? 5...zu verstehen, was Ihr Arzt Ihnen sagt? 4...herauszufinden, wo Sie professionelle Hilfe erhalten, wenn Sie krank sind? 14...den Anweisungen für die Einnahme von Medikamenten zu folgen? 8...die Anweisungen Ihres Arztes oder Apothekers zur Einnahme der verschriebenen Medikamente zu verstehen? 16...den Anweisungen Ihres Arztes oder Apothekers zu folgen? 15...im Notfall einen Krankenwagen zu rufen? 0% l Sehr gut (N= 600) l Gut (N= 705) 10% 20% 30% 40% 50% 60% 70% Summierte Prozentsätzte "ziemlich schwierig" und "sehr schwierig" l Mittelmäßig (N= 414) l Schlecht bis sehr schlecht (N= 89) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 80% l Gesamt (N= 1808) 13 Combined Shares of ‘Fairly Difficult’ and ‘Very Difficult’ Answers of HL Health Care Items for HLS-EU8 according to number of Doctor Visits On a scale from very easy to very difficult. How easy would you say it is to: 12...judge if the information about illness in the media is reliable? (Instructions: TV, Internet or other media) 10...judge the advantages and disadvantages of different treatment options? 11...judge when you may need to get a second opinion from another doctor? 6...understand the leaflets that come with your medicine? 2...find information on treatments of illnesses that concern you? 13...use information the doctor gives you to make decisions about your illness? 1...find information about symptoms of illnesses that concern you? 3...find out what to do in case of a medical emergency? 7...understand what to do in a medical emergency? 9...judge how information from your doctor applies to you? 5...understand what your doctor says to you? 4...find out where to get professional help when you are ill? (Instructions: such as doctor, pharmacist,psychologist) 15...call an ambulance in an emergency? 0 times 14...follow the instructions on medication? 1-2 times 3-4 times 8...understand your doctor’s or pharmacist’s instruction on how to take a prescribed medicine? 6 times or more Total 16...follow instructions from your doctor or pharmacist? 0% 10% 20% 30% 40% 50% Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 60% 70% 80% 14 7.2 Schwierigkeit der 16 Aufgaben für KRANKHEITSBEWÄLTIGUNG nach ARZTBESUCHEN in den letzten 12 Monaten (4 Kategorien) (Fragen gereiht nach Schwierigkeit für die Österreichstichprobe) AUF EINER SKALA VON EINFACH BIS SEHR SCHWIERIG WIE SCHWIERIG IST ES: 12...zu beurteilen, ob Informationen über eine Krankheit in den Medien vertrauenswürdig sind? 10...Vor- und Nachteile von verschiedenen Behandlungsmöglichkeiten zu beurteilen? 11...zu beurteilen, wann Sie eine zweite Meinung von einem anderen Arzt einholen sollten? 6...die Beipackzettel Ihrer Medikamente zu verstehen? 13...mit Hilfe der Informationen, die Ihnen der Arzt gibt, Entscheidungen bezüglich Ihrer Krankheit zu treffen? 2...Informationen über Therapien für Krankheiten, die Sie betreffen, zu finden? 7...zu verstehen, was in einem medizinischen Notfall zu tun ist? 3...herauszufinden, was im Fall eines medizinischen Notfalls zu tun ist? 1...Informationen über Krankheitssymptome, die Sie betreffen, zu finden? 9...zu beurteilen, inwieweit Informationen Ihres Arztes auf Sie zutreffen? 5...zu verstehen, was Ihr Arzt Ihnen sagt? 4...herauszufinden, wo Sie professionelle Hilfe erhalten, wenn Sie krank sind? 14...den Anweisungen für die Einnahme von Medikamenten zu folgen? 8...die Anweisungen Ihres Arztes oder Apothekers zur Einnahme der verschriebenen Medikamente zu verstehen? 16...den Anweisungen Ihres Arztes oder Apothekers zu folgen? 15...im Notfall einen Krankenwagen zu rufen? 0% 10% 20% 30% 40% 50% 60% 70% 80% Summierte Prozentsätzte "ziemlich schwierig" und "sehr schwierig" l 0 Mal (N=224) l 1-2 Mal (N=677) l 3-5 Mal (N=498) l 6 Mal oder öfters (N=411) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization l Gesamt (N=1810) 15 Combined Shares of ‘Fairly Difficult’ and ‘Very Difficult’ Answers of HL Health Care Items for HLS-EU8 according to Frequency of Hospital Visits On a scale from very easy to very difficult. How easy would you say it is to: 12...judge if the information about illness in the media is reliable? (Instructions: TV, Internet or other media) 10...judge the advantages and disadvantages of different treatment options? 11...judge when you may need to get a second opinion from another doctor? 6...understand the leaflets that come with your medicine? 2...find information on treatments of illnesses that concern you? 13...use information the doctor gives you to make decisions about your illness? 1...find information about symptoms of illnesses that concern you? 0 time 3...find out what to do in case of a medical emergency? 1-2 times 7...understand what to do in a medical emergency? More than 3 times TOTAL 9...judge how information from your doctor applies to you? 5...understand what your doctor says to you? 4...find out where to get professional help when you are ill? (Instructions: such as doctor, pharmacist,psychologist) 15...call an ambulance in an emergency? 14...follow the instructions on medication? 8...understand your doctor’s or pharmacist’s instruction on how to take a prescribed medicine? 16...follow instructions from your doctor or pharmacist? 0% 10% 20% 30% 40% Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 50% 60% 70%16 80% 7.1 Schwierigkeit der 16 Aufgaben für KRANKHEITSBEWÄLTIGUNG nach KRANKENHAUSAUFENTHALTEN in den letzten 12 Monaten (3 Kategorien). (gereiht nach Schwierigkeit für die Österreichstichprobe). AUF EINER SKALA VON EINFACH BIS SEHR SCHWIERIG WIE SCHWIERIG IST ES: 12...zu beurteilen, ob Informationen über eine Krankheit in den Medien vertrauenswürdig sind? 10...Vor- und Nachteile von verschiedenen Behandlungsmöglichkeiten zu beurteilen? 11...zu beurteilen, wann Sie eine zweite Meinung von einem anderen Arzt einholen sollten? 6...die Beipackzettel Ihrer Medikamente zu verstehen? 13...mit Hilfe der Informationen, die Ihnen der Arzt gibt, Entscheidungen bezüglich Ihrer Krankheit zu treffen? 2...Informationen über Therapien für Krankheiten, die Sie betreffen, zu finden? 7...zu verstehen, was in einem medizinischen Notfall zu tun ist? 3...herauszufinden, was im Fall eines medizinischen Notfalls zu tun ist? 1...Informationen über Krankheitssymptome, die Sie betreffen, zu finden? 9...zu beurteilen, inwieweit Informationen Ihres Arztes auf Sie zutreffen? 5...zu verstehen, was Ihr Arzt Ihnen sagt? 4...herauszufinden, wo Sie professionelle Hilfe erhalten, wenn Sie krank sind? 14...den Anweisungen für die Einnahme von Medikamenten zu folgen? 8...die Anweisungen Ihres Arztes oder Apothekers zur Einnahme der verschriebenen Medikamente zu verstehen? 16...den Anweisungen Ihres Arztes oder Apothekers zu folgen? 15...im Notfall einen Krankenwagen zu rufen? 0% l 0 Mal (N=1300) l 1-2 Mal (N=424) 10% 20% 30% 40% 50% 60% 70% Summierte Prozentsätzte "ziemlich schwierig" und "sehr schwierig" l 3 Mal oder öfters (N=76) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 80% l Gesamt (N=1800) 17 1. WHY DOES HL MATTER IN HEALTH CARE? 1.4. EMPIRICAL FINDINGS FROM HLS-EU STUDY: HL HAS EFFECTS OF ON HEALTH STATUS & USE OF PROFESSIONAL HEALTH SERVICES Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 18 Percentage Distributions of Self-Assessed Health (SF-36) by Grouped Health Literacy Index (for Total Sample, HLS-EU 2012) > There is a considerable rather continuous relationship! 2.2 100 90 12.7 60 Percentages of Categories of 50 Self-assessed Health Status 40 14.7 10 0 0.7 5.6 25.9 26.4 0.5 4.4 0.7 2.8 18.7 19.4 0.1 2.7 16.1 Very bad 31.4 35.3 37.4 42.4 35.9 Bad 42.0 Fair 43.7 31.4 40.2 32.7 30 20 9.3 22.4 80 70 5.8 1.3 18.6 10.8 Good 25.1 10.8 15.2 17.7 24.1 34.0 35.2 <15 15-20 20-25 25-30 30-35 35-40 40-45 Grouped Scores of Comprehensive Health Literacy Index 43.8 Very good 45-50 <15[N=102]|15-20[N=259]|20-25[N=600]|25-30[N=1348]|30-35[N=2185]|35-40[N=1531]|40-45[N=1048]|45-50[N=704]| TOTAL[N=7777] Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 19 Effects of Seven Social Determinants as Multiple Predictors on SelfAssessed Health (SF-36) (Beta Weights and Adjusted R-Square for Total, HLS-EU 2012) > Comprehensive (but not functional) Health Literacy has a considerable effect on self-assessed health, when relevant social determinants are controlled for! AGE .365 HL -.168 SOCIAL STATUS -.112 FIN. DEPRIVATION .071 GENDER .039 -.036 EDUCATION -.026a NVS Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization Adj. R2= .268 a…not significant on the 0,05 level 20 Associations between 4 Indicators for Health Service Use and Comprehensive Health Literacy Index (Spearman’s Rho Correlations for 8 Countries & Total Sample, HLS-EU 2012) > There are significant correlations for all indicators of total & most countries! Comp. Health Literacy and… Doctor Visits (last 12 month) Hospital Services (last 12 month) Other Health Professionals (last 12 month) Emergency Service (last 24 month) AT BG DE EL ES IE NL PL TOTAL rs -.185** -.117** -.073* -.168** -.155** -.077* -.014 -.095** -.114** rs -.188** -.121** -.112** -.120** -.065* -0.048 -.031 -.147** -.062** rs -0.06 0.033 0 0.061 -0.016 .114** -0.015 rs -.151** -.100** -.112** -.086** -.103** -0.046 -.011 .070* .062** -.076* -.061** [N=998- [N=988- [N=1160- [N=1042 [N=1007 [N=969- [N=990- [N=1035 [N=8199 1003] 1002] 1161] -1043] -1009] 971 992] -1043] -8217] **. Correlation is significant at the 0.01 level (2-tailed). *. Correlation is significant at the 0.05 level (2-tailed). Doctor visits, hospital visits, other health professionals and emergency services from 1= 0 times to 4= 6 times or more Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 21 Doctor´s Visits by Grouped Health Literacy Index (for Total Sample, HLS-EU 2012) > There is a slight relationship between Health literacy and doctor´s visits! 100% 90% 17.6% 80% Percentages of categories of Doctor Visits In the last 12 month 70% 60% 30.4% 24.5% 25.5% 23.7% 31.3% 20.3% 22.4% 24.9% 13.7% 15.4% 14.2% 20.7% 21.1% 22.1% 6 times or more 3 - 5 times 23.2% 50% 40% 30% 20.6% 37.3% 42.2% 43.8% 44.7% 39.9% 1 - 2 times 32.8% 36.1% 15.6% 13.5% 15.7% 17.8% 21.8% 18.7% 23.8% 15 - 20 20 - 25 25 - 30 30 - 35 35 - 40 40 - 45 45 - 50 20% 10% 24.5% 0 0% >1 5 Grouped Scores of Comprehensive Health Literacy Index <15[N=102] 15-20[N=256]|20-25[N=599]|25-30[N=1348]|30-35[N=2186]|35-40[N=1534]|40-45[N=1046]|45-50[N=705]| TOTAL[N=7777] Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 22 Effects of 5 Social Determinants and Health Literacy (HL) as Multiple Predictors on Doctor´s Visits (Beta Weights and Adjusted R-Square for Total, HLS-EU 2012) > The effect of health literacy on doctor´s visits stays on, when social determinants are controlled for! AGE ,285 GENDER ,131 HL ,065 SOCIAL STATUS -,049 EDUCATION -,037 -,018a FIN. DEPRIVATION Adj. R2= ,125 Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization a…not significant on the 0,05 level 23 Effects of 5 Social Determinants, Long-Term Illness, Health Status and Health Literacy (HL) as Multiple Predictors on Doctor Visits’ (Beta Weights & Adjusted R-Square for Total, HLS-EU 2012) > No direct effect of health literacy, when health indicators are also controlled for! LONG-TERM ILLNESS HEALTH ,317 ,239 GENDER ,111 AGE ,078 FIN. DEPRIVATION -,055 -,019 EDUCATION -,018a SOCIAL STATUS COMP. HL ,001a Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization Adj. R2= ,305 a…not significant on the 0,05 level 24 2. THE RELATIONAL CHARACTER OF HEALTH LITERACY OFFERS DIFFERENT STRATEGIES TO DEAL WITH LOW HEALTH LITERACY – ALSO WITHIN HEALTH CARE Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 25 Health Literacy has to be understood as a relational concept – that has consequences for possible measurement and interventions Measure personal HL competences Personal Skills/Abilities Measure fit of HL competences to HL demands Health Literacy Measure situational HL demands and support Situational Demands/Complexity (Parker, 2009) Improve individual/ population HL by offers for personal learning (education, training) Compensate for HL deficits of disadvantaged groups by specific compensatory measures Improve organizational HL by reducing situational demands & offering specific institutional support > develop health literate settings Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 26 ADAPTATION CAN BE A TWO WAY ENTERPRISE: SYSTEMS SHOULD ADAPT TO PEOPLES´ COMPETENCES! PEOPLE SHOULD ADAPT TO SYSTEMS´ DEMANDS! Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 27 2.1 THE IOM 10 ATTRIBUTES OF A HEALTH LITERATE HEALTH CARE ORGANIZATION Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 28 IOM Concept of Health Literate Health Care Organizations “A health literate organization makes it easier for people to navigate, understand, and use information and services to take care of their health.” (Brach et al. 2012) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 29 Ten attributes of health literate (healthcare) organizations A health literate organization … (Brach et al. 2012) 1. 2. 3. 4. Has leadership that makes HL integral to its mission, structure, and operations. Integrates HL into planning, evaluation, patient safety, quality improvement. Prepares the workforce to be HL and monitors progress . Includes populations served in the design, implementation, and evaluation of health information and services . 5. Meets the needs of populations with a range of HL skills & avoids stigmatization. 6. Uses HL strategies in interpersonal communications and confirms understanding at all points of contact. 7. Provides easy access to health information and services & navigation assistance. 8. Designs / distributes print, audiovisual, social media content that is easy to understand and act on . 9. Addresses HL in high-risk situations, including care transitions and communications about medicines. 10. Communicates clearly what health plans cover and what individuals will have to pay for services. General Change / quality / risk management Relating to participation principle Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization Specific HL content 30 1. Leadership » Limits efforts not just to a few projects or programs » Establishes a culture through ongoing language, expectations, and behavior » Implements evidence based strategies and works with researchers to develop and test new ones » Leadership activities include: » Setting organizational goals » Allocating resources » Delegating authority for oversight » Cultivating organizational champions IOM Roundtable on Health Literacy. Ten Attributes of Health Literate Health Care Organizations. https://nam.edu/wp-content/uploads/2015/06/BPH_Ten_HLit_Attributes.pdf (Based on Boulware HARC 2016) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 31 2. Integrate health literacy into planning, evaluation and quality improvement » Establish ongoing needs assessments reflecting organizational performance » Develop metrics, routinely collect data » Design and conduct rigorous program evaluations » Track and report communication failures and conduct root cause analyses to uncover systematic sources of error » Harmonize health literacy with other organizational priorities (e.g. pursuing health equity) IOM Roundtable on Health Literacy. Ten Attributes of Health Literate Health Care Organizations. https://nam.edu/wp-content/uploads/2015/06/BPH_Ten_HLit_Attributes.pdf (Based on Boulware HARC 2016) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 32 3. Prepare workforce to be health literate » » » » Hire diverse workforce with expertise in health literacy Incorporate health literacy into orientation sessions Augment in-house training resources Identify and implement appropriate new curricula IOM Roundtable on Health Literacy. Ten Attributes of Health Literate Health Care Organizations. https://nam.edu/wp-content/uploads/2015/06/BPH_Ten_HLit_Attributes.pdf (Based on Boulware HARC 2016) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 33 4. Include populations served in information and services design, implementation and evaluation » Include members of populations on governing bodies » Establish advisory groups that involve individuals with limited health literacy, adult educators, and experts in health literacy » Collaborate with members of community in design and testing of interventions and development of materials » Obtain and incorporate feedback on health information and services from consumers » Enlist community members in evaluation teams IOM Roundtable on Health Literacy. Ten Attributes of Health Literate Health Care Organizations. https://nam.edu/wp-content/uploads/2015/06/BPH_Ten_HLit_Attributes.pdf (Based on Boulware HARC 2016) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 34 5. Meet needs of populations with range of health literacy skills yet avoid stigmatization » Adopt health literacy universal precautions » Create an environment that does not impose high literacy demands » Streamline information collection » Provide extra assistance (health educators, navigators, case management) » Ask about problems with paying for medicine, provide assistance with applying for drug coverage » Use written information to reinforce spoken communication and provide audiovisual alternatives IOM Roundtable on Health Literacy. Ten Attributes of Health Literate Health Care Organizations. https://nam.edu/wp-content/uploads/2015/06/BPH_Ten_HLit_Attributes.pdf (Based on Boulware HARC 2016) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 35 6. Use health literacy strategies in interpersonal communications, confirm understanding at all points of contact » Create culture that emphasizes verification of every communication » Allow adequate time for all interactions » Plan for language assistance » Provide technology that facilitates communications (e.g., talking touchscreens) » Treat communication failures as safety issues IOM Roundtable on Health Literacy. Ten Attributes of Health Literate Health Care Organizations. https://nam.edu/wp-content/uploads/2015/06/BPH_Ten_HLit_Attributes.pdf (Based on Boulware HARC 2016) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 36 7. Provide easy access to health information and services, offer navigation assistance » Design health care facilities with features that help people find their way » Use easily understood language and symbols on signage » Train staff to respond to navigational inquiries » Integrate and co-locate multiple services in the same facility » Help consumers and families understand what health care benefits and services are offered » Supply navigators to answer questions, solve problems, advocate, lend support and give guidance and assistance IOM Roundtable on Health Literacy. Ten Attributes of Health Literate Health Care Organizations. https://nam.edu/wp-content/uploads/2015/06/BPH_Ten_HLit_Attributes.pdf (Based on Boulware HARC 2016) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 37 8. Provide print, audiovisual, and social media content that is easy to understand and act on » Consider educational materials as a supplement to, not a substitute for, in person education » Stock high-quality educational materials for limited literacy in multiple ways (e.g., DVDs, patient portals) » Evaluate materials using state of the art tools » Make materials available in commonly read languages » Employ staff and consultants with health literacy expertise when developing new materials » Involve target audience in testing and evaluation of materials IOM Roundtable on Health Literacy. Ten Attributes of Health Literate Health Care Organizations. https://nam.edu/wp-content/uploads/2015/06/BPH_Ten_HLit_Attributes.pdf (Based on Boulware HARC 2016) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 38 9. Address health literacy in high risk situations, including care transitions and medication discussions » Establish and implement plans to ensure safe communication during high-risk situations (e.g. meaningful informed consent) » Use aids (pill boxes, pill cards) to remind individuals how to take medicines correctly » Educate patients and caregivers and confirm understanding about what hospital says » Provide easy to understand discharge instructions IOM Roundtable on Health Literacy. Ten Attributes of Health Literate Health Care Organizations. https://nam.edu/wp-content/uploads/2015/06/BPH_Ten_HLit_Attributes.pdf (Based on Boulware HARC 2016) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 39 10. Communicate clearly what health plans cover and what individuals will have to pay » Provide staff and resources to find out what treatments are covered » Communicate costs of care in advance » Are familiar with and take into consideration insurance drug coverage that affects costs of medicines prior to prescribing » Refer individuals to health insurance consumer and navigator programs IOM Roundtable on Health Literacy. Ten Attributes of Health Literate Health Care Organizations. https://nam.edu/wp-content/uploads/2015/06/BPH_Ten_HLit_Attributes.pdf (Based on Boulware HARC 2016) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 40 2.2 THE VIENNA MODEL, SELF-ASSESSMENT TOOL AND FEASIBILITY STUDY OF HEALTH LITERATE HEALTH CARE ORGANIZATIONS – ESPECIALLY HOSPITALS Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 41 The IOM 10 attributes are a very good start for a HLHCO, but also have some limitations & offer potential for improvement Limitations of IOM attributes: • Start from limitations of rather specific individualistic health literacy research, but still with a clinical bias • Have a narrow understanding of stakeholders (mainly patients) and of functions (mainly treatment of patients) of HLHCO Goals for a more comprehensive Vienna concept: • Health literacy is a core concept of health promotion and health promotion a relevant aspect of quality in reoriented health services • Comprehensive & relational understanding of health literacy • Integration of health literacy in strategies of the comprehensive setting approach of Health Promoting Hospitals • Making more explicit use of quality methodology Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 42 HL is relational Personal Competences / Abilities Competences / abilities Ask, use Ask,investigate, investigate, use contacts, … contacts, … Health information Situational Demands / complexity Availability, accessibility Find Education Education (literacy, (literacy, numerady, numerady, language language competence competence …) …) Understand experience, Life Life experience, judgment, judgment, … … Practical & problemsolving abilities creativity … Health literacy & comprehensive! Appraise Apply Language, Reading level, Images, Layout, … Availability of references, evidence Applicability of content & individualized support (e.g. consultation) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 43 Steps and methods of Vienna-HLO study 2014/2015 Comprehensive literature search on health literate healthcare organizations Cross-check with other healthcare reform movements • • Development of a cognitive map & model Development of standards, sub-standards and indicators for an organizational self-assessment tool Standards development according to the criteria of the International Society for Quality in Healthcare (ISQua) • • • Quality movements Health Promoting Hospitals & Health Services Identification & translation of indicators – 113 Indicators from 20 instruments Development of 47 new indicators for areas not covered in the literature (especially HL of staff, lifestyle development) Expert consultation Feasibility study in 9 Austrian hospitals, self-assessment & questions on tool, follow-up interviews with coordinators Revision of self-assessment tool based on results of this study Tool-box for improving organizational health literacy Publications in German language, publications in English language in preparation Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 44 Cognitive map of the Vienna-HLO study HL of Stakeholder groups HL for A) Patients B) Staff C) Community 1) Access to, living & working in the organization A1) HL for living & navigating B1) HL for navigating & working C1) HL for navigating & access 2) Diagnosis, treatment & care A2) HL for coproducing health B2) HL for health literate patient communication C2) HL for coproduction of continuous & integrated care 3) Disease management & prevention A3) HL for disease management & prevention B3) HL for disease management & prevention C3) HL for disease management & prevention 4) Healthy lifestyle development A4) HL for healthy lifestyle development B4) HL for healthy lifestyle development C4) HL for healthy lifestyle development Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization D) Organizational structures & processes – capacities implementation Di) Basic principles & capacity building for implementing HL Dii) Monitoring of HL structures & processes Diii) Advocacy & networking for HL 45 Self-assessment tool following the Vienna-HLO model Patients Domain1: Access to, living & working in the organization Staff Standard 4: Navigation assistance 4.1 Barrier-free contact via website and telephone 4.2 Provision of information relevant for arrival and hospital stay 4.3 Availability of support at main entrance 4.4 Clear and easy-to-understand navigation system 4.5 Free availability of health information for patients and visitors Standard 5: HL in patient communication Domain 2: Diagnosis, treatment & care Domain 3: Disease management & prevention Domain4: Healthy lifestyle development Community Organizational structures & processes – capacities implementation 5.1 in spoken communication 5.2 in written communication 5.3 support by language translators and interpreters 5.4 also in high-risk situations Standard 6: Promote HL of patients and relatives 6.1 for disease-specific selfmanagement Standard 6: Promote HL of patients and relatives 6.2 for healthy lifestyle development Standard 3: Develop HL skills of staff for patient communication 3.1 for all situations that involve communication 1.1 HL as corporate responsibility 1.2 Quality assurance of HL Standard 8: Contribute to HL in the region 8.1: promotion of continuous and integrated care Standard 7: Promote HL of staff 7.2 for healthy lifestyles Standard 2: Participative development of materials and services 2.1 Participation of patients 2.2 Participation of staff Standard 9: Dissemination and further development 7.1 for the self-management of occupational health and safety risks Standard 7: Promote HL of staff HL Standard 1: Management policy and organizational structures Standard 8: Contribute to HL in the region 8.2 contribution to public health within the realm of possibility Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 9.1 support of the dissemination and further development of health literacy 46 The 9 standards of the Vienna-HLO model (with 22 sub-standards, 160 indicators) 1. Provide (organizational) capacities, infra-structures & resources for health literacy in the organization 2. Develop & evaluate materials and services in participation with users 3. Qualify staff for HL communication 4. Develop a supportive environment – provide navigation assistance 5. Apply HL communication principles in all routine communications – in spoken, written, audio-visual and digital communication & by providing interpreting and translation support 6. Improve personal HL of patients & significant others by learning offers 7. Improve personal HL of staff by learning offers 8. Improve HL in the organization’s community & catchment area 9. Share experiences & be a role model for HL in the HC community Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 47 Vienna-HLO Standard 1 The organization has a policy, organizational structures and resources for health literacy Content Organizational health literacy is integrated in the organizational structures and processes, including organizational quality management Substandards 1.1 Health literacy is understood as a corporate responsibility. (5 indicators) e.g. organizational health literacy is part of the organization’s mission statement 1.2 Quality assurance and development of organizational health literacy is ensured (11 indicators) e.g. health literacy relevant data are routinely collected in patient surveys Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 48 Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 49 Vienna HLO Standard 2 Develop and evaluate materials and services in a participatory manner Content: The organization participatorily involves patients and staff into the development and evaluation of documents and services relevant for them Sub-standards: 2.1 The organization involves patients in the development and evaluation of documents and services (4 indicators) 2.1.3 Documents are developed and tested in cooperation with representatives of self-help groups and patient advocates. 2.2 The organization involves staff in the development and evaluation of documents and services (2 indicators) 2.2.1 The guidance system of the organization is tested by new staff members or non-local colleagues and improved thereafter Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 50 Vienna-HLO Standard 3 The organization trains staff to communicate with patients according to health literacy principles Content Health literacy is part of human ressource management. Trainings on health literate communication with patients are available for staff. Sub-standards 3.1 Staff trainings on health literate patient comunication refer to all communication situations (14 indicators) e.g. All staff with patient contact are trained in HL-related tools and techniques such as “ask me 3” or “teach-back”. Staff receive regular feedback on their communication quality Staff training includes: 3.1.8 Use of plain, everyday language 3.1.10 Active listening, ecouragement of asking questions 3.1.14 Collaboration with professional interpretors Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 51 Vienna HLO Standard 4 The organization ensures a supportive physical environment and navigation support Content The organization is designed in a manner that helps people to find their way. Easily to understood language and symbols are used in information. Sub-standards 4.1 The organiztion offers first contact via website navigation and telephone (14 indicators) 4.2 The organization provides information which supports accessing to and staying in it (5 indicators) 4.3 Orienting information is available at the main entrance to assist patients and visitors (7 indicators) 4.4 The navigation system is clear and easy to understand (2 indicators) 4.5 Health informaton for patients and visitors is available for free (5 standards) Everyday words or symbols are used in the navigation system (e.g. “kidney diseases” instead of “nephrology”) The same symbols / words are used throughout the organization (e.g. always “toilet” or always “washroom”) Free health information on frequent diseases is available for patients and visitors Free health information on lifestyle issues is available for patients and visitors. 52 Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization Vienna HLO Standard 5 The organization ensures that patient communication follows principles of health literacy Content Communication with patients follows health literacy best practice in all forms and situations of communication, e.g. admission, anamnesis, ward rounds, and discharge. Thereby specific communication needs of different patient groups are considered. Sub-standards 5.1 Oral communication with patients is easy to understand and act on (10 indicators) 5.2.Design and distribution of printed materials are easy to understand and act on (9 indicators) 5.3 Design and distribution of computer applications and of social media are easy to understand and act on (5 indicators) 5.4 Communication in native languages of patients is supported by personnnel and material ressources (11 indicators) 5.5 Communication follows health literacy best practice in high-risk situations (8 indicators) The understanding of patients is checked in every encounter. Written information is never used instead of, but always in support of oral communication Written information is designed following HL principles (size of letters, spacing, 53 selection of photos, graphs, …) Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization Vienna HLO Standard 6 The organization contributes to improving the health literacy of patients and relatives Content The organization promotes health literacy of patients and their relatives /care givers beyond hospital stay. Sub-standards 6.1The organization supports patients etc. in gaining and improving health literacy with regard to disease-specific self-management (6 indicators) 6.2 The organization supports patients etc. in gaining and improving health literacy with regard to developing healthy lifestyles (4 indicators) The organization provides information and training on self-management and prevention after discharge and / or brings patients in contact with organizations providing such services (e.g. other healthcare providers, adult education). The organization offers information and training for caring relatives. The organization provides information and training on developing healthy lifestyles and / or brings patients in contact with organizations providing such services (e.g. other healthcare providers, adult education). Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 54 Vienna HLO Standard 7 The organization improves the health literacy of its staff Content The organization promotes health literacy of staff, especially for selfmanagement of health risks at work and for development of healthy lifestyles. Sub-standards 7.1 The organization supports staff in in gaining and improving health literacy for self-management of work-related health risks (8 indicators) 7.2 The organization supports staff in gaining and improving health literacy for the development of healthy lifestyles (3 indicators) All staff are informed about health-related risks at work and how to protect themselves against them (e.g. patient lifting). Staff are informed about how to improve their lifestyles Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 55 Vienna HLO Standard 8 The organization contributes to improving health literacy in the region Content The organization discharges patients well informed for further treatment or recuperation and engages and collaborates with other organizations to improve population health. Sub-standards 8.1The organization promotes continuity and collaboration in care (11 indicators) 8.2 The organization contributes to health literacy as part of public health according to ist possibilities (3 indicators) The organization collaborates with other organizations (e.g. schools, enterprises) in the dissemination of health related information. The Organization participates in health fairs to disseminate information to the public. Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 56 Vienna HLO Standard 9 The organization supports dissemination, sharing of experiences and acts as role model for improving HL Content The organization actively supports and promotes the implementation of organizational health literacy practices beyond ist organizational boundaries Sub-standards 9.1 The organization supports the dissemination and further development of health literacy concepts and tools (5 indicators) HLO related activities and outcomes are part of the organization’s annual report. The organization informs staff in training about HLO The organization reports about its experiences at conferences / professional meetings / in publications. Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 57 Feasibility study of the Vienna-HLO self-assessment tool Aim was to explore whether: • Standards, sub-standards and indicators are understandable and relevant • Procedure of self-assessment is understandable and doable • Results are useful for organizational diagnosis and benchmarking Methods: • Descriptive analysis of self-assessment data and of feedback on the tool • Follow-Up interviews with coordinators of the self assessment in hospitals Participants: • 9 hospitals differing in type out of 5 federal states of Austria Study took place between October 2014 and March 2015 Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 58 Results of the Vienna-HLO feasibility study 3.0 Wide variation 2.8 Small variation 2.6 2.4 2.4 Hospital 1 2.2 2.2 Hospital 2 2.1 Hospital 3 2.0 2.0 1.9 1.9 1.8 1.8 1.6 1.8 1.6 1.6 1.8 1.9 Hospital 4 1.9 Hospital 5 Hospital 6 1.7 1.7 1.6 Hospital 7 Hospital 8 Hospital 9 1.4 Mean 1.2 1.0 Standard 4 supportive environment Standard 7 improving staff HL Standard 6 improving patients' HL Standard 8 improving community HL Standard 5 communication with patients Mean Standard 3 qualifying staff Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization Standard 9 networking Standard 1 organizational policy Standard 2 participation with users Dietscher & Pelikan 2015 59 Major conclusions from the Vienna-HLO feasibility study » The model is comprehensive, but can be modularized for implementation » The standards are seen as relevant & the self-assessment tool as comprehensible and feasible » Self-assessment can support organizational diagnosis & benchmarking & identification of areas in need for development » Specific improvements can be initiated by using the tool box To make the tool accessible to other countries as well as to Health Promoting Hospitals (HPH), the tool has been translated to English! We are planning a working group on health literate health care organizations within in HPH Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 60 2.3 GOOD PRACTICE INTERVENTIONS TO IMPROVE (ORGANIZATIONAL) HEALTH LITERACY IN HEALTH CARE Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 61 Many Best Practices » » » » » Health Literate Materials Health educators Navigators Professional interpreters Routine literacy assessment » Provider training » Communication » Campaigns that encourage question asking » Using common language » Verify comprehension with teach-back or show me, teach to goal, chunk • What is my main problem? • What do I need to do? • Why is it important for me to do this? *National Patient Safety Foundation. Ask Me 3: good questions for your good health. http://www.npsf.org/?page=askme3 *AHRQ. Questions to ask your doctor. http://www.ahrq.gov/patients-consumers/patient62 involvement/ask-your-doctor/index.html Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization Health Literacy Universal Precautions Toolkit Health literacy universal precautions • Simplifying communication • Confirming comprehension • Making the health care system easier to navigate • Supporting patients' efforts to improve their health 21 Tools to help improve • Spoken and written communication • Self-management and empowerment • Supportive systems AHRQ Health Literacy Universal Precautions Toolkit, 2nd Edition. 63 http://www.ahrq.gov/professionals/quality-patient-safety/quality-resources/tools/literacy-toolkit/index.html Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization Organisational Health Literacy Selfassessment Resource • 10 checklists • assess presence of attributes outlined in IOM Roundtable report • Encourages planning for future action – Responsibility – Timelines – Etc. Enliven Organisational health literacy self assessment resource>. http://www.enliven.org.au/sites/default/files/Enliven%20Health%20Literacy%20Audit%20Resource.pdf64 Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization Sources for good Practice Health Literacy Interventions and Measures DeWalt, DA., Callahan, LF., Hawk, VH., Broucksou, KA., Hink, A. (2010): Health Literacy Universal Precaution Toolkit. Edited by the Agency for Healthcare Research and Quality. http://www.nchealthliteracy.org/tool kit/Toolkit_w_%20appendix.pdf World Health Communication Association. (2011): Health Literacy „The Basics“ Revisited Edition. http://www.whcaonlin e.org/uploads/publicat ions/WHCAhealthLite racyThe%20Basics.pdf Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization WHO Regional Office for Europe (2013): Health Literacy. The Solid Facts. http://www.euro.who.int/__da ta/assets/pdf_file/0008/1906 55/e96854.pdf 65 Examples for strengthening different health literacyfriendly settings WHO Regional Office for Europe (2013): Health Literacy. The Solid Facts. http://www.euro.who.int/__data/assets/pdf_file/ 0008/190655/e96854.pdf Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 66 10. SUMMARY AND CONCLUSIONS Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 67 Extended definition of a health literate healthcare organization (combination of IOM & HLS-EU & extension) A health literate healthcare organization … » makes it easier » for all stakeholders (patients / relatives, staff / leadership and citizens) » to access, understand, appraise and use disease- and health relevant information » and tries to improve personal health literacy of these stakeholders » for making judgements and taking decisions in everyday life » concerning healthcare (co-production) , disease prevention and health promotion » to maintain or improve quality of life during the life course. » To achieve this comprehensive concept systematically and sustainable, a health care organization will have » to apply principles and tools of quality management, change management and health promotion » and to build specific organizational capacities (infrastructures & resources) for becoming more health literate. 68 Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization Conclusions: Promises and Challenges Promises Challenges » Embracing the whole mission will address many of the most pressing health care delivery issues » A tremendous organizational commitment is required » HLO is difficult to measure » Needs process measures of incremental success » Dominant focus on individual diseases and care processes does detract from broad organizational health system changes needed » Payment and compliance policies are not yet fully aligned to support change » » » » » Safety of care Quality of care Transparency of care Fragmentation of care Implementing Patient Centeredness in care Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 69 Contact Thank you so much for your attention! Jürgen M. Pelikan Stubenring 6 1010 Vienna, Austria T: +43 1 515 61- F: +43 1 513 84 72 E: [email protected] www.goeg.at HPH-relevant websites: www.hph-hc.cc/ www.hphnet.org Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 70 25th International HPH Conference Don‘t miss the chance to participate in this unique event! » Place and date: University of Vienna, Austria, April 12-14, 2017 » Abstract submission: http://www.hphconferences.org/abstract-submission/aboutsubmission.html » Conference program http://www.hphconferences.org/vienna2017 » Contact: [email protected] Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 71 References Brach C, Keller D, Hernandez LM et al. (2012). Ten Attributes of Health Literate Health Care Organizations. Washington (DC): National Academy of Sciences: Institute of Medicine. Dietscher C, Pelikan JM (2015). Gesundheitskompetente Krankenbehandlungsorganisationen: Machbarkeitsstudie zur organisationalen Selbstbewertung mit dem Wiener Instrument in österreichischen Krankenhäusern. [Health Literate Health Care Organizations: Feasibility study of the self-assessment tool following the Vienna Concept of Health Literate Healthcare Organizations among Austrian hospitals]. Prävention & Gesundheitsförderung 11:53–61. Nutbeam D (1998). Evaluating health promotion – progress, problems and solutions. Health Promotion International, 13(1):27–44. Parker R (2009). Measuring Health Literacy: What? So What? Now What? Institute of Medicine, Roundtable on Health Literacy, Washington (DC): National Academy Press. Sørensen K, Van den Broucke S, Fullam J et al. (2012). Health literacy and public health: A systematic review and integration of definitions and models. BMC Public Health, 12:80. World Health Organization (1998). Health Promotion Glossary. Geneva: World Health Organization. Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 72 7.2 References & Resources Brach, C., Keller, D., Hernandes, LM., Baur, C., Parker, R., Dreyer, B., Schyve, P., Lemerise, AJ., Schillinger, D. (2012): Attributes of Health Literate Organization, Discussion Paper, Institute of Medicine of the national academies. http://www.iom.edu/~/media/Files/PerspectivesFiles/2012/Discussion-Papers/BPH_HLit_Attributes.pdf Brach, C. (2013): Becoming a Health Literate Organization: Tools for Community Health Centers. Presentation 3.April 2013 at the Center for Delivery, Organization and Markets. DeWalt, D.A., Callahan, L.F., Hawk, V.H., Broucksou, K.A., Hink, A., Rudd, R. & Brach, C. (2010). Health Literacy Universal Precautions Toolkit. (Prepared by North Carolina Network Consortium, The Cecil G. Sheps Center for Health Services Research, The University of North Carolina at Chapel Hill, under Contract No. HHSA290200710014.) AHRQ Publication No. 10-0046-EF) Rockville, MD: Agency for Healthcare Research and Quality. Kickbusch,I., Maag, D. (2008): Health Literacy. In: Heggenhougen,H.K., Quah,S.R. (Eds.), International Encyclopedia of Public Health, Vol. 3. (pp.204211). San Diego: Academic Press. Kickbusch I, Pelikan J M, Apfel F, Tsouros A D (Eds.) (2013): Health literacy. The solid facts. Copenhagen: Copenhagen: World Health Organization – Regional Office for Europe. http://www.euro.who.int/__data/assets/pdf_file/0008/190655/e96854.pdf Levin-Zamir, D, Peterburg Y. (2001): Health literacy in health systems – perspectives on patient self-management Health Promotion International,16;1:87-94. Nutbeam,D. (2000): Health literacy as a public health goal: a challenge for contemporary health education and communication strategies into the 21st century. Health Promotion International, 15 (3), 259-267. Nutbeam,D. (2008): The evolving concept of health literacy. Social Science & Medicine, 67 (12), 2072-2078. Parker, R. in World Health Communication Association (2009): Health Literacy, Part 1 „The Basics“. WHCA Action Guide. Pelikan,J.M., Dietscher,C., Schmied,H. (2013): Health Promotion for NCDs in and by Hospitals: A Health Promoting Hospital Perspective. In: McQueen,D. (Ed.), Global Handbook on Noncommunicable Diseases and Health Promotion (pp.441-460). New York, Heidelberg, Dordrecht, London: Springer. Pleasant, A. & Kuruvilla, S. (2008): A tale of two literacies: public health and clinical approaches to health literacy. Health Promot. Int. 23(2) 152-159. Rudd,R. (2005): Navigating Hospitals: Literacy Barriers. Literacy Harvest Rudd, R.E. & Anderson, J.E. (2006).The Health Literacy Environment of Hospitals and Health Centers – Partners for Action: Making your healthcare facility literacy-friendly. National Center for the Study of Adult Learning and Literacy and the Health and Adult Literacy and Learning Initiative, Harvard University School of Public Health. Sorensen,K., Broucke,S., Fullam,J., Doyle,G., Pelikan,J., Slonska,Z., Brand,H., (HLS-EU) Consortium (2012): Health literacy and public health: A systematic review and integration of definitions and models. BMC Public Health, 12 (80). WHO (1986): Ottawa Charter for Health Promotion. In World Health Organization (Ed.), Geneva: WHO. WHO (1998): Health promotion glossary. Geneva: WHO Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 73 A working group on HLO in HPH 1. Taking up the IOM characteristics and developing these further to the Vienna model of HLHCO 2. Creating a self-assessment instrument with standards, substandards & indicators for this model 3. Testing feasibility of self-assessment instrument of Vienna model in Austrian hospitals 4. Translating of model and standards into English 5. Working on adequacy and feasibility of the model and the standards in context of other health care systems and societies 6. Translation of self-assessment instrument into other languages 7. International piloting by feasibility study in selected hospitals in HPH networks Pelikan - 4th AHLA, Haiphong 11-2016 Health Literate Organization 74