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TOPIC: Resources for Federal Registries Special Interest Group GENERAL RESOURCES SIG Fact Sheet Veterans Health Administration Cancer Program Initiative Professional organization that develops and promotes uniform data standards for cancer registration; provides education and training; certifies population-based registries aggregates and publishes data from Central Cancer Registries; and promotes the use of cancer surveillance data and systems for cancer. CONTACT 810 Vermont Ave. NW Washington, DC 20420 202-273-5400 (Phone) http://www1.va.gov/cancer Department of Defense Automated Central Tumor Registry The Automated Central Tumor Registry (ACTUR) system was designed to provide the uniformed services medical treatment facilities (MTFs) with the capability to compile, track, and report cancer data on Department of Defense (DoD) beneficiaries. CONTACT U.S. Department of Defense 800-3RAPIDS (Phone) 202-783-4343 (Help Line) http://www.afip.org/actur/index.html Centers for Disease Control and Prevention Cancer Registry Fact Sheet Cancer Registries collect information about the occurrence (incidence) of cancer, the types of cancers diagnosed and their locations within the body, the extent of cancer at the time of diagnosis (disease stage), and the kinds of treatment that patients receive. These data are reported to a central statewide registry from various medical facilities, including hospitals, physicians’ offices, therapeutic radiation facilities, freestanding surgical centers, and pathology laboratories. CONTACT 1600 Clifton Road Atlanta, GA 30333 800-311-3435 (Toll Free) 404-639-3311 (Phone) 404-639-3534 (Fax) http://www.cdc.gov/cancer/npcr/about2004.htm U.S. Department of Health and Human Services/Indian Health Services To ensure that comprehensive, culturally acceptable personal and public health services are available and accessible to all American Indian and Alaska Native people. CONTACT Indian Health Services (HQ) The Reyes Building 801 Thompson Avenue, Ste. 400 Rockville, MD 20852-1627 301-443-1840 (Phone) [email protected] (Email) www.ihs.gov/MedicalPrograms/Medical_index.asp www.ihs.gov/medicalprograms/epi/caprev%26.asp National Cancer Institute’s Surveillance Epidemiology and End Results (SEER) Program The Surveillance, Epidemiology, and End Results (SEER) Program of the National Cancer Institute is an authoritative source of information on cancer incidence and survival in the United States. Statistics, software, training materials, and publications are available. CONTACT 6116 Executive Boulevard Bethesda, MD 20892-8316 301-496-8510 (Phone) 301-496-9949 (Fax) Questions about cancer: [email protected] www.seer.cancer.gov National Cancer Institute The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. CONTACT NCI Public Inquiries Office 6116 Executive Boulevard Room 3036A Bethesda, MD 20892-8322 800-4-CANCER (Phone) [email protected] (Email) www.nci.nih.gov Updated 02/05 * * * This Resource Sheet is brought to you by National Cancer Registrars Association (NCRA), a non-profit, professional organization with nearly 4,000 members representing the various types of institutions that have an interest and responsibility in cancer services and data. NCRA promotes education, credentialing, and advocacy for Cancer Registry professionals. More information on NCRA’s Special Interest Groups can be found on NCRA’s website at: http://www.ncra-usa.org/. National Cancer Registrars Association 1340 Braddock Place, Suite 203, Alexandria, Virginia 22314 Tel (703) 299-6640 Fax (703) 299-6620 Email <[email protected]>