Survey
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
CLEVEDON MEDICAL CENTRE PATIENT PARTICIPATION GROUP minutes of meeting 14 Mar 2016 Chair: Minutes: Margaret Blackmore(MB) Julie Davidson Apologies: Ursula Marks, Mr & Mrs Fisher, Mandie Ball, Mrs Maxey Present: Dennis Milsom, Pat Cowie (PC), Tim Sykes(TS), Mo Griffiths(MG), Jennie Briscoe, Lindsey Ivens, Mr John Maxey, Julie Davidson (CMC)(JD), Alison Lee (CMC)(AL). 1. Minutes of last Meeting Tim Sykes requested an amendment to section 2 of the Minutes and agreed to email his amendment to Julie after the meeting. Jennie Briscoe also pointed out the correct spelling of Jennie for her. Tim also thanked the Practice and members for taking the matter of Patient’s rights to record consultations seriously. His personal opinion is that the response to this matter is sub-optimal. 2. Confidentiality of Patient Data The Practice recognises the need for an appropriate balance between openness and confidentiality in the management and use of information. The Practice fully supports the principles of corporate governance and recognises its public accountability, but equally places importance on the confidentiality of, and the security arrangements to safeguard personal information about patients. The Practice also recognises the need to share patient information with other health organisations and other agencies in a controlled manner consistent with the interests of the patient and, in some circumstances, the public interest (e.g. notifiable diseases to Public Health). Patients are currently advised that they have access to a full copy of their medical record and can also gain limited online access (see section 3 below). Patients are also made aware of other organisations who may wish to share access to the patient’s medical record data and they do this with patient consent at the time of delivering a service to them. An example would be a community nurse asking a patient if they can access their medical record so that they can see latest care by the GP and current medications and allergy lists. However, this whole area has become very complex in the last couple of years for the following reasons. Sharing of patient records by informed consent can help to join-up care for a patient between healthcare providers and supports continuity of care for the patient. Locally and nationally, patients have to be counted for many reasons of planning, budgeting, training staff etc. This involves local healthcare management and the government. Locally and nationally, GP practice payment systems have evolved so that the electronic patient medical records database is interrogated remotely to count how many patients have received a service. This is done by code searching in patient records and retrieves how many patients for example had code 65G in their record for a flu vaccination in the date range. Data can be shared confidentially to inform the healthcare system in more than one way. 1. Fully patient identifiable data (or levels of this) to support shared care for the patient; but it can have other uses…. 2. Anonymised data (generally this is count data based on codes) 3. Pseudo-anonymised (does not allow a patient’s identity to be known to all parties, but does link the patient’s record across multiple healthcare providers) For patients this is becoming a minefield of choices to decide if they wish to share their data, with whom and for what purpose. The practice currently provides information to patients to help them with their choices, but this information will be updated in the next few months again as practices are encouraged to work collaboratively at scale to deliver services more cost-effectively and efficiently. An example of this was explained by JD. When patients make their choices, they opt in or opt out of sharing for each type of data sharing and the practice records it as a code in their record so that the patient’s data is accessible or not, to other healthcare parties requesting the information. Action: The practice will update the Patient Information Leaflet in summer 2016, incorporating the latest developments locally and nationally. 3. Online Access to Patient Records Nationally, since April 2015, patients are being provided with remote access to their GP held medical record. From April 2016, more patient record data is accessible to patients via this service. If patients have access to the internet, they can request a login at Reception to gain remote access to their medical record online. Access is limited to aspects of the record which includes medications information, allergies etc. Remote access also includes being able to book appointments online and order repeat medications. If patients require a full copy of their medical record, this is available in the practice via a written request for medical records. Patient identification is checked as part of the process and a charge is made for this service. For patients under 16 years old or for whom Carer’s require access to the medical record, there is a practice policy in place to cover this. 4. Update on Virtual PPG Group Alison advised that there are 15-16 members in the new ‘Virtual PPG group’. This group are available for communications by email and Alison currently sends them Patient Newsletters, PPG Minutes, Patient Surveys, and receives comments back. 5. Clevedon Leg Club Leg Clubs are a new development in health care and locally there is one operating in Nailsea. There is a lot of work going on in Clevedon to try to launch a leg club for Clevedon patients which would be supported by community nursing staff, practice staff and volunteers. The service is based in non-healthcare facilities and moves leg ulcer dressings into a community setting with the added benefit to reduce isolation for patients. Patients attend independently, or are collected and returned home by volunteer transport. There are concerns around finding premises locally, volunteer support and infection controls. Setup costs are approximately £3,500 and Clevedon Community Hospital’s League of Friends Association is hoping to support the project with some funding. Debbie Gadd at Sunnyside Surgery is leading the project setup and has asked the membership of Clevedon Medical Centre Patient Participation Group if they can identify potential volunteers to support the club. If anyone wishes to volunteer their support, or knows of someone able to be involved, please forward their names to Alison Lee at Clevedon Medical Centre, or to Debbie Gadd at Sunnyside Surgery. The membership present wondered if the district council building in Old Street had been considered as a potential venue. Alison agreed to raise this with Debbie. Mr Maxey suggested that Mrs Maxey would like details of the Leg Club to be sent to her. Action: AL 6. AOB Focus for Open Public Meeting MB asked those present if they had any topics they would like to suggest as a focus for the public meeting on May 16th. Margaret has some suggestions and it was agreed that Margaret would circulate ideas on email for everyone’s input and feedback please. In order to prepare well for this meeting, Margaret suggested the next meeting date should be in April to plan the AGM and public engagement. All agreed. Patient Participation Groups – National Associations In our Terms of Reference document, the desire was expressed to join a national association to support the group with reference materials etc. There is a choice of two and feedback from members is requested to choose one. See information attached to Minutes. The Patients Association (£20 per annum) NAPP (£60 1st year, £40 thereafter) How do individual members see the PPG progressing? MB asked the group to consider what they want to do. The group still needs a Secretary. Do individuals wish to just participate in meetings; would they like to engage with patients in the waiting areas and at events; would they like to be a secret shopper? PC commented that it feels important to be available to patients in the town. Action: All members to consider and feedback to Margaret. A strapline for the PPG Mo reminded the group that we wanted a phrase that represents what the group is trying to achieve. She has a few ideas and would be grateful if others would give it some thought too. It can be added for discussion at a later meeting. Next Patient Newsletter Alison is compiling the latest newsletter and will include details of the Open Public Meeting and the PPG Awareness Week. If any members have any topics they would like included in a newsletter, any time, please let Alison know. For information Patient Participation Awareness Week begins Monday 6th June 2016. Healthwatch are delivering a special event on 7th June at Nailsea Methodist Church, starting at 10.30am – 2.30pm. MB suggested it would be helpful to create a display about CMC PPG which included leaflets for potential new members etc. Advert attached to the Minutes of this meeting & send to virtual group too. Advertise at Clevedon Medical Centre. Action: JD Prepare CMC information for this event. Action: AL Dates of next meetings Monday, April 18th at 6pm-7pm. Open Annual General Meeting is Monday 16th May 2016, at 6pm-7pm.