Download PPG Meeting minutes March 2016

CLEVEDON MEDICAL CENTRE
PATIENT PARTICIPATION GROUP
minutes of meeting 14 Mar 2016
Chair:
Minutes:
Margaret Blackmore(MB)
Julie Davidson
Apologies: Ursula Marks, Mr & Mrs Fisher, Mandie Ball, Mrs Maxey
Present:
Dennis Milsom, Pat Cowie (PC), Tim Sykes(TS), Mo Griffiths(MG), Jennie
Briscoe, Lindsey Ivens, Mr John Maxey, Julie Davidson (CMC)(JD), Alison
Lee (CMC)(AL).
1. Minutes of last Meeting
Tim Sykes requested an amendment to section 2 of the Minutes and agreed to email
his amendment to Julie after the meeting. Jennie Briscoe also pointed out the
correct spelling of Jennie for her.
Tim also thanked the Practice and members for taking the matter of Patient’s rights
to record consultations seriously. His personal opinion is that the response to this
matter is sub-optimal.
2. Confidentiality of Patient Data
The Practice recognises the need for an appropriate balance between openness and
confidentiality in the management and use of information. The Practice fully
supports the principles of corporate governance and recognises its public
accountability, but equally places importance on the confidentiality of, and the
security arrangements to safeguard personal information about patients.
The Practice also recognises the need to share patient information with other health
organisations and other agencies in a controlled manner consistent with the
interests of the patient and, in some circumstances, the public interest (e.g.
notifiable diseases to Public Health).
Patients are currently advised that they have access to a full copy of their medical
record and can also gain limited online access (see section 3 below).
Patients are also made aware of other organisations who may wish to share access
to the patient’s medical record data and they do this with patient consent at the
time of delivering a service to them. An example would be a community nurse
asking a patient if they can access their medical record so that they can see latest
care by the GP and current medications and allergy lists.
However, this whole area has become very complex in the last couple of years for
the following reasons.
 Sharing of patient records by informed consent can help to join-up care for a
patient between healthcare providers and supports continuity of care for the
patient.
 Locally and nationally, patients have to be counted for many reasons of
planning, budgeting, training staff etc. This involves local healthcare
management and the government.
 Locally and nationally, GP practice payment systems have evolved so that the
electronic patient medical records database is interrogated remotely to count
how many patients have received a service. This is done by code searching in
patient records and retrieves how many patients for example had code 65G in
their record for a flu vaccination in the date range.
Data can be shared confidentially to inform the healthcare system in more than one
way.
1. Fully patient identifiable data (or levels of this) to support
shared care for the patient; but it can have other uses….
2. Anonymised data (generally this is count data based on codes)
3. Pseudo-anonymised (does not allow a patient’s identity to be
known to all parties, but does link the patient’s record across
multiple healthcare providers)
For patients this is becoming a minefield of choices to decide if they wish to share
their data, with whom and for what purpose.
The practice currently provides information to patients to help them with their
choices, but this information will be updated in the next few months again as
practices are encouraged to work collaboratively at scale to deliver services more
cost-effectively and efficiently. An example of this was explained by JD.
When patients make their choices, they opt in or opt out of sharing for each type of
data sharing and the practice records it as a code in their record so that the patient’s
data is accessible or not, to other healthcare parties requesting the information.
Action: The practice will update the Patient Information Leaflet in summer 2016,
incorporating the latest developments locally and nationally.
3. Online Access to Patient Records
Nationally, since April 2015, patients are being provided with remote access to their
GP held medical record. From April 2016, more patient record data is accessible to
patients via this service. If patients have access to the internet, they can request a
login at Reception to gain remote access to their medical record online. Access is
limited to aspects of the record which includes medications information, allergies
etc. Remote access also includes being able to book appointments online and order
repeat medications.
If patients require a full copy of their medical record, this is available in the practice
via a written request for medical records. Patient identification is checked as part of
the process and a charge is made for this service.
For patients under 16 years old or for whom Carer’s require access to the medical
record, there is a practice policy in place to cover this.
4. Update on Virtual PPG Group
Alison advised that there are 15-16 members in the new ‘Virtual PPG group’.
This group are available for communications by email and Alison currently sends
them Patient Newsletters, PPG Minutes, Patient Surveys, and receives comments
back.
5. Clevedon Leg Club
Leg Clubs are a new development in health care and locally there is one operating in
Nailsea. There is a lot of work going on in Clevedon to try to launch a leg club for
Clevedon patients which would be supported by community nursing staff, practice
staff and volunteers. The service is based in non-healthcare facilities and moves leg
ulcer dressings into a community setting with the added benefit to reduce isolation
for patients. Patients attend independently, or are collected and returned home by
volunteer transport. There are concerns around finding premises locally, volunteer
support and infection controls. Setup costs are approximately £3,500 and Clevedon
Community Hospital’s League of Friends Association is hoping to support the project
with some funding.
Debbie Gadd at Sunnyside Surgery is leading the project setup and has asked the
membership of Clevedon Medical Centre Patient Participation Group if they can
identify potential volunteers to support the club.
If anyone wishes to volunteer their support, or knows of someone able to be
involved, please forward their names to Alison Lee at Clevedon Medical Centre, or
to Debbie Gadd at Sunnyside Surgery.
The membership present wondered if the district council building in Old Street had
been considered as a potential venue. Alison agreed to raise this with Debbie.
Mr Maxey suggested that Mrs Maxey would like details of the Leg Club to be sent to
her. Action: AL
6. AOB
Focus for Open Public Meeting
MB asked those present if they had any topics they would like to suggest as a focus
for the public meeting on May 16th. Margaret has some suggestions and it was
agreed that Margaret would circulate ideas on email for everyone’s input and
feedback please.
In order to prepare well for this meeting, Margaret suggested the next meeting date
should be in April to plan the AGM and public engagement. All agreed.
Patient Participation Groups – National Associations
In our Terms of Reference document, the desire was expressed to join a national
association to support the group with reference materials etc. There is a choice of
two and feedback from members is requested to choose one. See information
attached to Minutes.
 The Patients Association (£20 per annum)
 NAPP (£60 1st year, £40 thereafter)
How do individual members see the PPG progressing?
MB asked the group to consider what they want to do.
The group still needs a Secretary. Do individuals wish to just participate in meetings;
would they like to engage with patients in the waiting areas and at events; would
they like to be a secret shopper? PC commented that it feels important to be
available to patients in the town.
Action: All members to consider and feedback to Margaret.
A strapline for the PPG
Mo reminded the group that we wanted a phrase that represents what the group is
trying to achieve. She has a few ideas and would be grateful if others would give it
some thought too. It can be added for discussion at a later meeting.
Next Patient Newsletter
Alison is compiling the latest newsletter and will include details of the Open Public
Meeting and the PPG Awareness Week.
If any members have any topics they would like included in a newsletter, any time,
please let Alison know.
For information
 Patient Participation Awareness Week begins Monday 6th June 2016.
 Healthwatch are delivering a special event on 7th June at Nailsea Methodist
Church, starting at 10.30am – 2.30pm.
MB suggested it would be helpful to create a display about CMC PPG which
included leaflets for potential new members etc.
Advert attached to the Minutes of this meeting & send to virtual group too.
Advertise at Clevedon Medical Centre. Action: JD
Prepare CMC information for this event. Action: AL
Dates of next meetings
Monday, April 18th at 6pm-7pm.
Open Annual General Meeting is Monday 16th May 2016, at 6pm-7pm.