Download improve care and outcomes for children diagnosed with genetic

Medical Home
CHARGE TO THE NEGC MEDICAL HOME
WORKGROUP:
• improve care and outcomes for children
diagnosed with genetic conditions by
identifying and testing improvements in the
way specialty care, primary care, and families
work together
Greg Prazar, MD, Chair
Highlights of the past year
• Adding new members
– Members from every NE state, pending MA
• Webinar series on care coordination
– May 26th at noon: “Balancing Strengths & Needs:
Family Centered Conversations”
• Monthly telephone calls
– 2 guest presentations
• Committed to learning from other NEGC work
groups
Lessons Learned/Future Work
• Funding significantly helps to propel any
project.
• Family involvement in our workgroup is
essential.
• Future Medical Home projects will need to
address behavioral and mental health concerns
affecting children with complex and genetic
conditions.
continued
• Our workgroup would also like to sponsor a
workshop led by Family Voices representatives,
since we believe families have a great deal to
teach medical and non-medical professionals
about optimal care for children with genetic and
metabolic conditions.
• Understanding the work of other NEGC
workgroups is critical in providing our workgroup
with ideas for future projects.