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The Changing Face of Stroke Care Amanda Jones Stroke Nurse Consultant Sheffield Teaching Hospitals NHS FT Aim of session Background about stroke National drivers NICE and RCP Guidelines Stroke awareness Some stroke facts Stroke is the 3rd leading cause of death in the UK. Leading cause of disability. Kills twice as many women as breast cancer. 130,000 people suffer a stroke in the UK each year (a stroke is happening every 5 minutes to some-one) Approx 20-30% of people who have a stroke will die within the first month. 1000 children suffer strokes per year Some stroke facts Approx 12,000 under the age of 55- ¼ of all strokes are in the under 65’s. Approx 900,000 people are living with stroke in England and around 50% of those are dependant on others for help with everyday activities Approx 1 in 4 people who live until the age of 85 can expect to have a stroke Some stroke facts People aged between 65 and over increased by 4 million between 1952-2002, the projected % of older people in England is expected to rise from 16% in 200323% in 2031- this will increase the numbers of people with stroke £7 billion is spent on stroke by the NHS and wider economy each year A huge issue and likely to get bigger with the rise in the ageing population- this is why stroke is currently in the spot-light National guidance- what’s new? National Drivers for stroke 1st evidence based document; National Clinical Guidelines for Stroke, 1st ed 2000, 2nd ed 2004, 3rd Edition- RCP, 2008, 4th Edition September 2012 NSF for Older People, Standard 5, DoH 2001 National Audit Report 2005 (a damming report about stroke services) which led to:Reducing Brain Damage- DoH 2006 Mending Hearts and Brains- DoH, 2006 National Stroke Strategy- DoH December 2007 Diagnosis and initial management of Acute Stroke and TIA- NICE, July 2008 Draft NICE stroke rehabilitation guidelines- due for publication 2013 following major review National Drivers for stroke SINAP- SSNAP- Sentinel Stroke National Audit Programme- mandatory from April 2012- continuous audit instead of National Sentinel Auditquarterly reports in the public domain Accreditation- Peer review Overview of of key indicators Time from admission to scan First contact with member of the stroke team Number of patients transferred to a stroke bed within 4 hours Number of patients thrombolysed/eligible Known time of onset Discussion within 72 hrs with patient and family Continence plan drawn up within 72 hrs Seen by a nurse and therapist within 24 hrs and all relevant therapists within 72 hrs Nutrition screen and formal swallow assessment in 72hrs Antiplatelet and adequate fluids and nutrition in 24 hrs Infoflex - our local database Accreditation- levels of stroke care Leve Terminology l Elements of Service provision 1 Comprehensive Acute Stroke and thrombolysis centre Tertiary neurosciences disciplines TIA & minor stroke management Acute stroke management Thrombolysis service Stroke rehabilitation 2 Acute stroke and thrombolysis centre TIA & 3 Local acute stroke centre TIA & 4 Stroke recovery and rehabilitation centre Stroke minor stroke management Acute stroke management Thrombolysis service Stroke rehabilitation minor stroke management Acute stroke management Stroke rehabilitation rehabilitation 10 year strategy- 2007-2017 (5 years to go!) Stroke Strategy Prevention and Public Awareness Emergency Care TIA and Minor Stroke Hospital Care Post-Hospital Care Workforce Key stroke strategy themes The stroke pathway: Prevention and early diagnosis: Shorter intensive acute & managing risk factors, raising rehabilitative hospital stay, followed by awareness of symptoms, and specialist care closer to home tackling TIAs Taking people direct to Direct to CT scan, CT scan < 24 hrs specialist services thrombolysis Stroke unit care Improving rehabilitation and community based care; longer term Stroke Local support to regain independence centre hospital A stroke skilled workforce Paramedic Involving and informing individuals triage and carers Research and audit 999 call Informed public Time = brain Better outcomes Time is brain Person Experiences Stroke Like Symptoms Active symptoms Recent resolved symptoms Older resolved symptoms GP refers to 999 call; ambulance GP refers to confirms likely stroke TIA clinic (low risk), or direct to TIA service and pre-notifies hospital Hospital (high risk), advises no driving and prescribes aspirin (unless strong suspicion of haemorrhage/contraindications) Direct to stroke service One-stop specialist service; investigated, treated in 24 hours Time is brain- Stroke Pathway Management of Stroke Minority Stroke Unit • Specialised assessment and care • Swallowing test • Brain scan within 24hrs End-of-life care Majority High risk TIA Acute Stroke Unit Specialised clinical assessment • Urgent brain imaging for those who need it (next CT slot or within 1hr out of hours)/ MRI • Thrombolysis if appropriate • Swallowing test • Intensive (hyper-acute) stroke unit care for 24/48 hours Specialist rehabilitation/inpatient and ESD Carotid intervention Specialist review at 6 weeks and 6 months Long-term community stroke and support services National Recommendations for a Stroke Pathway All stroke patients should spend at least 90% of their hospital stay in a specialist stroke unit. Pathway should be made up of distinct phases of care; 1. 2. 3. 4. 5. 6. 7. 8. Initial urgent specialist assessment- direct transfer to dedicated stroke unit (within 4 hours) Hyper-acute- up to 48 hours (monitored beds/intensive nursing) Acute- up to 7 days Sub-acute- 7-12 days Intensive inpatient rehabilitation-up to 21 days Specialist Community rehabilitation- from 3-6 months Medium/Long-term- 6 month review- life long review Access back to specialist rehab for targeted input when needed Specialist validated immediate assessment- Recognition Of Stroke In the Emergency Room (ROSIER) Validated scoring system. For use by health professionals. ROSIER Symptom onset: Date & Time. Assessment: Date & Time. BP GCS Eyes Motor Verbal Has there been loss of consciousness or Syncope Y (-1) N (0) Has there been any seizure activity Y (-1) N (0) Is there New acute onset (or awakening from sleep) of:- 1. Asymmetrical facial weakness Y (+1) N (0) 2. Asymmetrical arm weakness Y (+1) N (0) 3. Asymmetrical leg weakness Y (+1) N (0) 4. Speech disturbance Y (+1) N (0) 5. Visual field defect Y (+1) N (0) Total score: (Stroke is unlikely but not completely excluded if total score is < or = to 0) The National Institute of Health Stroke Scale (NIHSS) Not a diagnostic tool. Quantifies stroke severity in a consistent way. Useful in determining suitability for thrombolysis.(Patients within licence treated have a NIHSS >4 or <25.) Useful for post thrombolysis monitoring NIH Stroke scale HASU- Hyper Acute Stroke Units Aim of hyper acute care Stroke is associated with significant physiological disturbance in vascular and neuronal function Aim to; Optimise physiological variables Maintain brain perfusion Maintain homeostasis- to try to restore normal state once it has been disturbed. Early detection and intervention Prevent secondary events Safe administration of thrombolysis Hyper acute nursing care Hypoxia- O2 sats<92% Hyper/ hypoglycaemia Hypertension- closely monitored- no clear consensus on optimal management- should be treated post stroke (usually after 7 days) Intracranial pressure- drowsiness/gaze palsy/breathing problems Pyrexia- worsens infarct- needs to be lowered if over 37.5 Dehydration- maintain hydration Aspiration DVT / PE Seizures Time is Brain Impact of thrombolysis Number making full recovery per 100 treated 30 Benefit 20 10 Harm 0 0 2 4 6 Time (hours) Saver, Stroke 2006 How many stroke patients per year in UK* might avoid being ‘dead or dependent’ with each treatment? % treated with this intervention Number treated per year Benefit per 1000 treated Number who avoid death or dependency Aspirin 80% 104000 13 1350 Stroke Unit 60% 78000 56 4370 Thrombolysis 2% 2080 63 130 Thrombolysis 30% 31200 47 1470 Based on 130,000 strokes per year in the UK IST 3 Collaborators National targets- must be dones- Best Practice Tariff = Best evidence based care for patients NICE STROKE QUALITY STANDARDS 2012 1 Ambulance staff use a validated tool to diagnose stroke/TIA, and transfer them to a specialist stroke unit within an hour 2 Brain imaging within an hour of arrival in hospital if indicated 3 Admitted directly to a stroke unit, assessed for thrombolysis 4 Swallow screen within 4 hours with a written nutrition plan 5 Assessed and managed by specialist nursing staff and at least 1 member of the specialist MDT by 24 hrs, and all relevant members within 72 hours with written MDT goals within 5 days of admission 6 Treated in a specialist rehab unit for those who need it. 7 A minimum of 45 minutes relevant therapies offered over 5 days 8 Loss of bladder control is reassessed at 2 weeks i/c an ongoing plan 9 Cognition and mood is screened within 6 weeks 10 Following discharge, stroke related disability, followed up in 72 hrs by a specialist team 11 Carers should have a named contact for info and support 24 access to thrombolysis Telemedicine Direct delivery of hyper acute care by specialists cannot always be achieved in every hospitaltelemedicine allows patient/carers to talk to a stroke specialist remotely, and for the specialist to observe a clinical examination and view imaging. The system should include a stroke nurse specialist to be present at the admitting hospital with the patient under assessment. This will enable 24/7 access to thrombolytic treatment NICE Stroke Rehabilitation Guidelines (1st stroke rehab guideline) Draft was circulated nationally for consultation last year Negatively received and strongly criticised by MDTs nationally mainly due to the limitations under NICE e.g. For some-one who has a stroke- consider offering physiotherapy!- significant implications for rehabilitation. Guideline to be reviewed and changed Hope for new guideline in 2013- vital to get it right! As a result a delay in publication of the RCP national Clinical Guidelines for Stroke- September instead of June 2012 26th March Therapy consensus day event with the RCP NICE Stroke Rehabilitation Guidelines Types of studies considered; Systematic reviews, double blinded and unblinded parallel RCTs, and cross over randomised studies. No qualitative studies were included- much rehabilitative care is qualitative in nature and cannot easily be captured in an RCT. Intensity of therapy after stroke consensus meeting26th March RCP, London Expert speakers Voting panel 45 minutes of therapy Appropriateness of therapy How to capture therapy Therapy research Patients perspectives in relation to therapy Limited places- £10email:[email protected] Possible new inclusions to the 4th Edition of the RCP National Clinical Guidelines for Stroke Acupuncture should only be used if part of a clinical trial Do not routinely offer Functional Electrical Stimulation or TENS Pain control- offer amitryptyline, gabapentin or pregabalin for neuropathic pain SALT should be provided for more than 2 hours per week if patient is able to tolerate this Return to work enhanced section More emphasis on the timing and giving of information to carers Changes within the psychology section- stepped care and use of validated tools to screen and assess for mood and cognition More about post stroke fatigue Possible new inclusions to the 4th Edition of the RCP National Clinical Guidelines for Stroke Secondary prevention- emphasis on Life style changes being of equal importance as secondary prevention medications Emphasis on exercise programmes in secondary prevention More detail about diet and weight loss (use of weight loss medications) Hypertension levels Calcium Channel blockers are recommended as first line treatments (e.g. Amlodopine)- enhanced section on hypertension management Carotid endarterectomy surgery should be undertaken ASAP and within 7 days (was 14) of symptoms- working towards 48 hours by 2017 Possible new inclusions to the 4th Edition of the RCP National Clinical Guidelines for Stroke A new section on telemedicine which states that this should be regularly audited. More emphasis on younger stroke patients ESD and the need for the same intensity and specialist staff as inpatient stroke rehab units Community interaction section A section with recommendations regarding therapy/nursing and medical levels included for the first time- emphasising the need for 24/7 nursing and stroke consultant cover New Campaign to increase public awareness Act FAST launch 27th February from original campaign TV advertising Feb 27th-March 25th March 5th-March 18th- radio advertising particularly for BME (Black Minority Ethnic) communities The changing face of stroke- not just an inevitability of old age But can happen to anyone at any age What used to happen What happens now Act FAST Time lost is brain lost- for every minute when a stroke first happens approximately 1.9 million neurones are lost! Vital to get to the hospital for specialist assessment, and treated as soon as possible to help preserve as much brain as possible! In conclusion Significant developments in stroke care The new RCP guidelines will provide enhanced national guidance The new NICE stroke rehabilitation guideline should help with developments in rehabilitation Need to continually raise awareness of stroke symptoms as people are still not accessing services early enough! More emphasis and research is still needed in medium and long term stroke care