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A MEDICAL HOME MODEL FOR CHILDREN WITH SPECIAL HEALTH CARE NEEDS Adriana Matiz MD Associate Professor of Pediatrics Columbia University Irving Medical Center © Copyright 2011 NewYork-Presbyterian Hospital Our Community Northern Manhattan © Copyright 2011 NewYork-Presbyterian Hospital Community Data- Census 2015 66% Hispanic 54% foreign-born 52% Spanish-only 56% Low acculturation score 43% have a household income <$20,000 USD © Copyright 2011 NewYork-Presbyterian Hospital Children with Special Health Care Needs (CSHCN) “those who have or are at increased risk for a chronic physical, developmental or emotional condition and who also require health and related services of a type or amount beyond that required by children generally” © Copyright 2011 NewYork-Presbyterian Hospital Asthma Autism ADHD Complex congenital heart disease Multiple Organ Involvement Seizures Gastrostomy, Tracheostomy Neural tube defects Chronic Lung Diabetes Disease Genetic Syndromes Cerebral Palsy © Copyright 2011 NewYork-Presbyterian Hospital Prematurity WHY? CSHCN comprise 15-18% of all children in US (12.5 million) CSHCN account for 80% of pediatric health care expenses CSHCN have grown by 30% in the past 20 years due to improved medical care and testing Account for >2.5 times the number of school absences, 2x as many unmet health needs, >5 times as many hospital days/ 1000 children © Copyright 2011 NewYork-Presbyterian Hospital Latino Children in the US • • • © Copyright 2011 NewYork-Presbyterian Hospital Fastest growing minority population in the US (16%-2011) Multiple health disparities, health access and socioeconomic challenges Patient and family-centered care can help to address health disparities and improve population health National Survey of CSHCN, 2009/2010 © Copyright 2011 NewYork-Presbyterian Hospital Case Patient Y born with prenatally diagnosed TEF, VSD – s/p TEF repair and at age 3 mos suffered esophageal rupture – subsequent critical course and major complications – 9 months admission at Children’s Hospital discharged with: esophageal stricture G tube and J tube chronic lung disease global developmental delay hypertension © Copyright 2011 NewYork-Presbyterian Hospital © Copyright 2011 NewYork-Presbyterian Hospital Special Kids Achieving Their Everything (SKATE) University Improved care for high-risk & high-cost pediatric populations w/specialized needs Inter-disciplinary team -based visits for patients w/complex medical, behavioral & social morbidities Goal of 25% reduction in Community MDs preventable ED visits & inpatient re-admissions Community based non-physician care for stable patients in need of chronic disease monitoring (CHWs, CBOs) Intensive Care Coordination Outcomes Evaluation Funding from Medicaid Reform in New York Program Management Program Manager Physician Leads Care Management Care Managers 3 FTE Community Health Workers (CHWs) 4 FTE Psychiatric NPs 3 FTE Information Technology Patient Registry Tailored appointments Integrated CHW findings in EMR Adapted EMR Interdisciplinary In Team Meetings Pediatric Care Managers Navigation – Coordinate appointments and procedures – Home care services – Pharmacy and supply needs – Connect to child welfare agencies, schools, insurance companies – Medication reconciliation – Accompany to appointments – Coordinate multidisciplinary meetings © Copyright 2011 NewYork-Presbyterian Hospital Pediatric Psychiatry Nurse Practitioners Diagnose Short-term therapy Coordinate referral to acute service or longitudinal therapy Coordinate with school based psych Support pediatrician medication management © Copyright 2011 NewYork-Presbyterian Hospital Community Health Workers (CHW) Hospital-Community partnership model Bilingual Peer-level culturally-sensitive education and support Trained on CSHCN topics –Disease based, services (disability resources and special education) Social needs which compete with self-management and coordination of care –Housing, literacy, food insecurity, immigration © Copyright 2011 NewYork-Presbyterian Hospital Population 4600 4400 4200 4000 Patients 3800 3600 54% 46% 3400 Males N=8162 March 2017 Females Age Distribution 4000 3500 3000 2500 2000 1500 44% 46% 1000 500 10% 0 0-7 years 8-17 years 18-65 years Risk Stratification 60 50 40 30 20 Risk Level 50% 36% 10 0 Level 1 Level 2 7.5% 6.5% Level 3A Level 3B Pediatric Practices 1400 1200 1000 Level 1 800 Level 2 600 Level 3A Level 3B 400 200 0 Audubon Broadway Rangel WHFHC Risk Stratification 12% have a care manager Risk Level 6.5% 7.5% Level 1 50% 36% Level 2 Level 3A Level 3B CHW Cases 40 35 30 25 20 15 10 5 0 Level 2 N=76 Level 3A Level 3B Metrics Program Social determinants – Housing, access to care, food insecurity Goal attainment – Provider and family Social service referrals Number of monthly contacts ED and hospitalization © Copyright 2011 NewYork-Presbyterian Hospital Patient/Family Diagnosis understanding Knowledge on accessing care Medication management Confidence in selfmanagement Level of distress School connectivity Preliminary Outcomes and Next Steps • RN Care Managers – 160 patients • CHWs – 76 families – 183 service referrals mostly for food insecurity, housing, and English as Second Language classes • Analyze ED and hospitalizations, primary care visits and subspecialty visits Lessons Learned Identifying and risk stratifying a population is essential to understand their needs and allocate resources. CHWs and Practice-based RN care managers support families’ experience in the medical home. The medical home model needs to be flexible and evolving as it adapts to changing resource opportunities but remain grounded in its core mission to support families. © Copyright 2011 NewYork-Presbyterian Hospital CONTACT INFORMATION Adriana Matiz MD Associate Professor, Columbia University Irving Medical Center Medical Director -- Center for Community Health Navigation [email protected] 212 342-1917 © Copyright 2011 NewYork-Presbyterian Hospital 25