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Life as a Deaf Audiologist Hearing in Harmony By: Tina Childress, MA, CCC-A • Sweet Nothing in My Ear • Marlee Matlin on Dancing with the Stars • Heather Whitestone McCallum (Miss America1995) • The Young & The Restless • Cold Case • Law & Order • ER •… Recent Publicity A Personal Perspective and Things I have learned... • Grew up with normal hearing • Switched majors from engineering (!) to audiology after taking a sign language class • Worked as an educational audiologist • Got sick during Spring Break 1999 • Co-testing in the audiology booth – realized something was wrong • Tried medication with no success • Eventual diagnosis: – Autoimmune Inner Ear Disease (AIED) It all started with… Progressive hearing loss • Started with mild-moderate hearing loss and progressed to severe profound loss within about 9 months • Wore in-the-ear hearing aids all the way to power behind-the-ear hearing aids • Articulation was affected • Knew too much?? • Went through the normal stages of grieving – Denial, anger, bargaining, depression and acceptance • It can’t get much worse… Hearing Pre-Implant (unaided) Hearing Pre-Implant (hearing aids) Work challenges • Hearing tests – “Raise your hand when you hear the beeps.” – Struggled when testing with words or sentences • Got help from co-workers • Used FM system in the booth • Meetings – Used FM system – Co-workers interpreted for me • Hearing aid listening checks – Could not do on low gain hearing aids Making the decision… http://tinagoesci.blogspot.com Platinum Series Processor Platinum BTE August 2000 Documenting your Journey • Blogs, journals, picture books… • Great way to express how you are feeling • Writing what you hear and don’t hear can be helpful for the programming audiologist • Able to share your experiences with friends, family and others who are thinking about getting one – Scan your audiogram – Upload pictures – Upload videos • Shows you how far you’ve come! My Hook-up • Given accessories • Set magnet strength • Mapping – lows = geese honking – mids = oboes playing – highs = glass clinking • “The first day is the worst day” • Voices sounded like: Aural rehabilitation • Heirarchy of auditory skills seemed to happen sooooooooo s…l…o…w…l…y – Awareness -varies as a function of my map – Discrimination -more difficult in noise – Identification -still learning new sounds every day! – Comprehension -lucky I already have a language base…what about those kids that don’t????? • Home-based auditory training = my language-endowed husband • Books on tape/CD • It got better… Hearing Pre-Implant (unaided) Hearing Pre-Implant (hearing aids) Hearing Post-Implant Factors that Influence Performance • Age at onset of deafness • Age at time of implantation • Consistency of device use • Family support and follow up • Residual hearing • Etiology • Multiple handicapping conditions • Other considerations Work challenges -update • Hearing tests – Struggled much less with speech testing • Still occasionally got help from co-workers or used FM system in the booth • Meetings – Able to follow along better but co-workers interpreted for me when I missed something • Hearing aid listening checks – Had to make an accommodation to listen to a hearing aid (acoustic) through my cochlear implant (electronic) I liked it so much… http://tinagoesbici.blogspot.com Harmony BTE December 2005 Why do I love being bilateral? • I feel balanced again • Maddy can whisper into either ear • It compliments my C-1 very well – Need to focus on second side listening more! • Listening in noise is easier • I can localize – so much better in meetings and for locating toddlers! • I have access to the new technology • I can listen to music in stereo Today… • Maddy-n-Mia • Phone • Music • 1:1 vs. group situations • Articulation has improved • I get to give back personally and professionally through the Bionic Ear Association Resources Bionic Ear Association • Consumer outreach program of Advanced Bionics • BEA Audiologists – Professionals to serve the consumer • Volunteer Network • Candidate Matching • On Call Support • Webinars • Seminars and workshops • Membership is free – To join go to www.BionicEar.com HearingJourney.com • Advanced Bionics’ Online Community for: – Cochlear Implant Users/Parents – Cochlear Implant Candidates – Hearing Health Professionals – School Professionals – Anyone Who Wants to Learn More About Cochlear Implants • A web resource full of FREE (re)habilitation activities and ideas to support the development of listening and language skills in children, adolescents and adults The Listening Room Tools for Schools • Provides parents with support and guidance on issues related to education • Assists cochlear implant programs in providing support to their local schools • Supports school professionals who work with children who have cochlear implants • E-Newsletters • Webinars • Workshops • On Call Support BionicEar.com Resources • Association of Medical Professionals with Hearing Loss (AMPHL) – www.amphl.org • [email protected] – Go to http://groups.yahoo.com and type “HOHAudiologists” in the Find the Group search bar • HearingJourney.com – Online community of cochlear implant recipients (including some medical personnel)