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Skin Cancer Research Report Site Specific Group Meeting 20th January 2015 Maxine Taylor Senior Research Delivery Manager Delivering clinical research to make patients, and the NHS, better Content of report • Overview of network changes • Overview of research activity • Role research leads 2 Introduction • NIHR Clinical Research Network merged all cancer research networks with all other clinical research networks in England on 1st April 2014 • CRN - West of England is one of 15 new networks • This new geography does not map exactly to the site specific group geography. It now includes Gloucestershire and Swindon but no longer includes Taunton and Yeovil • Taunton and Yeovil are served by the CRN – South West Peninsula • I will work closely with my counterpart in South West Peninsula to support this SSG in full 3 Map showing the 15 Clinical Research Networks in England West of England • Population 2.4 million • - Budget £13.2 million • - 7 Acute Trusts • - 2 Mental Health Trusts • - CCL Principal Treatment Centre • - Small core support team based at host in Bristol • Research will follow patient pathways regardless of network geography Purpose of the network • Translation of national workstreams and objectives (generic and specialty specific) with strategic oversight of research activity within the geography of CRN - West of England in terms of: – Portfolio • Balance, new studies, feasibility, industry trials – Performance • Targets, support timely set up, support timely recruitment – People • Skill mix, workforce flexibility, resources, training 5 CRN - West of England Management Model • Division 1 • Division 5 Maxine Taylor Martine Cross Senior RDM Workforce Development Senior RDM RM&G and Industry Lead Mary Perkins Chief Operating Officer • Divisions 3&4 Chantal Sunter Ruth Allen RDM RDM PCPIE and Comms Lead Business Intelligence lead • Divisions 2&6 Network Clinical Divisions Division 1 • Cancer Division 2 • Diabetes • Stroke • Cardiovascular Renal Metabolic & endocrine Division 3 • Children • Genetics Division 4 • Mental Health • Dementias & neurodegenerative diseases • Neurology Division 5 • Primary care research • Oral & dental • Musculoskeletal Ageing Division 6 • ENT • Surgery • Respiratory • Critical care • Hepatology Anaesthesia & pain management Critical care Opthalmology Infectious diseases Gastroenterology Reproductive health & childbirth Haematology Health services Dermatology Public Health The Clinical Team Dr Steve Falk Clinical Director 6 Divisional Clinical Leads Prof Hugh Barr for Div 1 30 Specialty Leads Sub Specialty Leads Sue Taylor Network Consultant Nurse Clinical Research Teams NIHR CRN High Level Objectives • • • • Set up as fast as you can Recruit as many and as fast as you can All organisations involved Commercial and non commercial portfolio studies Cancer specialty specific objectives • Recruitment overall at 20% cancer incidence • Recruitment to interventional studies at 7.5% of cancer incidence How important is cancer on our patch? Research staff WTE per division Div 1 58 67 Div 2 Div 3 23 34 17 20 21 Div 4 Div 5 • • • • • • • Div 6 Generic • Cancer incidence 9544 242 recruiting studies £2 million (16%) Funding per incident case approx £220 Funding per recruit £800 Exceeded both recruitment targets for last 2 years Largest non commercial portfolio Benefit from continued good national and international links West of England specialty portfolio compared to national Surgery Stroke Respiratory disorders Reproductive health and childbirth Renal disorders Public health Primary Care Oral and dental health Ophthalmology Neurological disorders Musculoskeletal disorders Metabolic and endocrine disorders Mental Health Injuries and emergencies Infectious diseases and microbiology Hepatology Health services and delivery research Haematology Genetics Gastroenterology Ear, nose and throat Diabetes Dermatology Dementias and neurodegeneration Critical care Children Cardiovascular disease Cancer Anaesthesia, perioperative medicine and pain Ageing Total studies 3827 WE total 546 =14% WE portfolio National portfolio 0 100 200 300 400 500 600 700 800 CRN: West of England Performance against Specialty goals 14/15 (Apr 2014 - Nov 2014) 4000 3500 3000 2500 2000 1500 1000 500 0 Recruitment (Apr 2014 - Nov 2014) Recruitment goal (Apr 2014 - Nov 2014) Recruitment goal 2014/15 Recruitment by Trust and study type April – Nov 2014 18 16 14 12 10 Observational 8 Interventional 6 4 2 0 Gloucestershire Hospitals NHS Foundation Trust Taunton University Hospitals Bristol NHS Foundation Trust Yeovil Hopsital Trust National Clinical Studies Groups Psychosocial & Survivorship Brain Tumours Head & CSG Palliative & Neck Supportive CSG Care Sarcoma CSG Breast Cancer CSG Imaging Adv. panel Lung Cancer CSG Upper GI Biomarkers Adv. panel Cancer CSG Colorectal Cancer Consumer CSG Melanoma Liaison PPI Kidney CSG Group Cancer Primary CSG Lymphoma Care Bladder CSG Cancer Screening, Testis CSG Haematol. Prevention & Cancer CSG Prostate Gynae Early Diagnosis CSG Children’s Cancer Cancer Cancer & CSG CSG Teenage & Leukaemia Young Adult CTRad (Radiotherapy) Cancer Subspecialty Research Leads • Within each network 13 subspecialty research lead roles are identified, mapping onto the national Clinical Studies Groups with the aim of: – Providing link between local network and CSGs – Promoting the research agenda to clinical colleagues across the network and encouraging referrals – Advising on portfolio planning locally – Attendance at annual national meeting to discuss portfolio planning and delivery and horizon scan for new studies – first meeting 9th March 2015 – Supporting the research delivery manager for the cancer specialty • Role very similar to SSG Research Lead role 15 LCRN (x15) CRN WE Exec Board Partnership Group Clin. Advisory Group Clinical Director COO Division 1 Clinical Lead Division 1 RDM [ +/- other clinical roles] 13 LCRN Subspecialty Leads: •Brain cancer •H&N cancer •Lung cancer •Breast cancer •Sarcoma •Skin Cancer •Children/young people •Upper GI cancer •Colorectal cancer •Urological cancer •Gynae cancer •Haem/lymphoma •Pall/Supportive & Psychosocial Research Delivery Teams Call for skin cancer sub-specialty lead in CRN - West of England • Each SSG already has a research lead • We are looking for a research lead in each tumour site to represent the network locally and nationally in terms of developing and supporting the portfolio and providing clinical specialty support to the Research Delivery Manager and Principal Investigators across the network • Expenses to attend national meetings will be met by the network • Please discuss: – Your current research lead continuing and taking on the network representation – The nomination of a new research lead who will take on network representation 17 Contact & reference details • [email protected] • [email protected] • http://csg.ncri.org.uk/portfolio-maps/ • https://www.edge.nhs.uk/Account/Index?ReturnUrl=%2f • http://www.crn.nihr.ac.uk/can-help/fundersacademics/nihrcrn-portfolio/ 18