Survey
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
Nottinghamshire Children's Hearing Services Working Group (CHSWG) 17th October 2013 Minutes Present: Claire Benton Debbie Gamage Cheryl Gray Gill Feetham Suzanne Harrigan Catherine Harrold Frances Connor Sarah Allen Apologies: Katherine Martin Neil Fergie Lorna Lord James Harrison Wendy Murray Ian Pleasance Andy Marshall Jayne Ramirez-Inscoe Mary McInnes Jamie McMahon Uzma Aziz-Ahmed Amanda Dove Carl Bown Andrea Bown Rosalind Woods Denise Ramsell Clinical Lead for Paediatric Audiology, Nottingham Audiology Services Teacher of the Deaf and Visually Impaired, Nottingham City Sensory Team Team Leader, Sensory Physical Team, City Consultant Teacher of the Deaf, Nottinghamshire County Council Specialist Speech & Language Therapist, The Ear Foundation Senior Technician, Medical Physics Joint Chief Executive Officer, Nottinghamshire Deaf Society Speech and Language Therapist Consultant in Paediatric Neurodisability, Nottingham University Hospitals Trust Consultant Otolaryngologist, Sherwood Forest Hospitals Trust Family and User Programme Coordinator, The Ear Foundation Clinical Lead Paediatric Audiology, Sherwood Forest Hospitals Trust Newborn Hearing Screening Manager, Nottingham Local Manager NHSP, Sherwood Forest Hospitals Trust Consultant Otolaryngologist, Nottingham University Hospitals Trust Specialist Speech & Language Therapist, Nottinghamshire Community Health/ NAIP Family Support Worker, National Deaf Children’s Society Interim Regional Director, National Deaf Children’s Society Parent representative Parent representative Parent representative Parent representative Screening & Immunisation Coordinator, NHS England Key Worker, Nottinghamshire County Council Chair: CB Minutes of previous of meeting: Minutes were read and accepted as accurate Review of previous actions: CB DG CG GF SH CH FC SA KM NF LL JH WM IP AM JRI MM JMcM UAA AD CaB AB RW DR Meeting with all parent reps to be arranged JMcM Meeting held: Details regarding City Parent Participation officer to be investigated CG Emailed Edwina Cosgrove from Parent Partnership; awaiting contact. Blank care pathway template to be emailed to all CB Completed Liaison with Health Visiting Team to be developed DG & DG and WM to meet with HV heads of service to explain WM role and remit of ToD. A written piece about ToDs is to be circulated to all HVs across Nottingham. DG to inform GF about the date of this meeting to include County ToD service. CHSWG Chair to attend Deaf Focus Group CB Meeting attended Previous minutes to be published on appropriate websites All To be done once agreed by group Work to continue on objectives on Action Plan All In progress CHSWG Action plan: Objective 1 – Improve Involvement of families with CHSWG Following the meeting with parent reps, agreed that once CB has received all biographical information from them it would be placed onto websites and promoted in both audiology departments. Email address for parent reps to use has been set up; this will be advertised with their biographies. ([email protected]). JMcM was looking into setting up a regional training event for CHSWG parent reps. Objective 2 – Review all care pathways for Deaf children to ensure equity across the county CB explained the increasing importance of producing this document not only for families and services, but also for Commissioners, particularly in the light of the forthcoming joint commissioning of Health, Education and Social care services for children. DG shared her completed care pathway; it needs further work but is important to have something to work from. Acknowledged that this is a document that will take time and agreed to circulate the developing document by email. Objective 3 – To raise profile of CHSWG with all services at management level and with the public CBsuggested targeting HVs and GPs in next year’s Deaf Awareness week, 19-25 May 2014. DG to contact Toni Wolff about offering deaf awareness training during DA week to Doctors and trainees. Objective 4 – to engage with new NHS reforms and with new commissioning pathways Further meeting about development of paediatric audiology services has been held in London in September. CHAC is to be involved in a pilot of a Paediatric Audiology Network. This is a way of trying to improve quality in services. 4 trial sites are West Midlands, East Midlands, East of England & London. CHAC, Kings Mill Hospital, Lincoln, Boston, Burton on Trent, Leicester, Derby are to be included in our regional network. This will include providing an annual report of your service to be measured against a set of criteria (not yet developed!). This will involve local services providing information. Details are as yet sketchy with further meetings planned in early 2014 to clarify. The aim is to feedback to commissioners. Update on Education Health and Care Plan, GF: This fundamentally alters the tiered approach of School Action, School Action Plus and Statement of Special Education Needs. Nottingham County is one of the pilot sites for introducing the EHC plan. It will last until the child is 25 years old. It charges Local Authorities to work with health and social care to develop and publish a “local offer”. The majority of children will have their needs met by the Local Offer. Those children whose needs are not met by the local offer, may opt for a EHC Plan. Example plan attached to minutes Feedback from Audit of Newly Diagnosed Parents, CB: Presented findings from postal survey of parents whose child had been through the process of being diagnosed with a hearing loss. Overall the responses from parents were positive. Key Recommendations: More support from other parents after initial diagnosis Develop literature for parents whose children have Auditory Neuropathy Spectrum Disorder Where possible have TOD at first CHAC appointment Ensure first meeting with TOD does not happen in the waiting room All Audiologists and Medical Physicists to attend NHSP Breaking the News course Service Updates: Children's Hearing Assessment Centre, Nottingham New hospital-wide Patient Administration Service: go-live 9th November. This will have an impact on all processes. All Hearing Aid Reviews are done on a partial booking system- if family doesn’t opt-in twice, they are discharged although remain on an open referral, Teachers of the Deaf will be copied into any discharge letter. Teenage focus day took place in July: involvement of teenagers in developing the transfer from child to adult services. One change from this is to develop a separate waiting area for teenagers in the adult department. They wanted opportunity for meeting other HI teenagers. The Ear Foundation offer a teenagers forum. Speech & Language Therapy Staffing changes have occurred and there is a reorganisation taking place. Session to the north of the county now started Ear Foundation Busy family programme, particularly for the teenage forum and pre-school groups Newborn Screening Programme Nottingham We have now had all our new equipment installed and calibrated. After the new software version has been signed off we will be having our official training from Otometrics. Continue to engage with the NSC, NHS England Commissioners and the new QA Commissioner. County Education No changes but another re-organisation to a more locality based service is looking likely City Education New TOD is now in post Notts Deaf Society A new volunteer is now on board Acquired hearing loss project is up and running; social event to be held. FC to circulate details of the events. Panto 12th December Sign Singing 16th November Christmas Fayre 30th November Parent and Toddler session fortnightly on a Friday Date of Next meeting: Tuesday 25th February, 5.30 pm at Ear Foundation For directions please see www.earfoundation.org.uk Summary of Agreed Actions Parents to send biographical information to CB Parent reps Parent information to go onto websites CB Contact Toni Wolff to arrange Deaf Awareness week event DG Liaison with Health Visiting Team to be developed DG & WM Previous minutes to be published on appropriate websites All Work to continue on objectives on Action Plan All