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Information about hypoparathyroidism When parathyroid hormone is depleted, it can affect the whole you If you have hypoparathyroidism, talk with your doctor to have a better understanding of the disease and its management. The more you tell your doctor about your symptoms, the more you can do together Hypoparathyroidism can cause low blood calcium levels. This can lead to other symptoms. You may not even think they’re connected, but if you have any of the following symptoms, let your doctor know right away. Throat tightness Shortness of breath, wheezing Depression, irritability, confusion or disorientation, seizures Fast, slow, or uneven heart rate, symptoms of heart failure Stomach cramps Muscle weakness, spasms, twitches, cramps Numbness and tingling in fingers and toes Management goals for hypoparathyroidism • Preventing symptoms of low blood calcium • Keeping your blood calcium level in the slightly below normal or in the low normal range • Keeping your blood calcium and phosphate levels in balance • Avoiding extra calcium in your urine and blood • Keeping calcium from collecting in your kidneys and other soft tissues • Making sure you learn about possible complications of blood calcium imbalance, such as low blood calcium and high blood calcium, among others Your doctor may recommend that you make the following changes to your diet: • If you have high blood phosphate levels, you may need to reduce phosphate in your diet by avoiding carbonated soft drinks and eating less eggs and meats • If you have high urine calcium levels, you may need to follow a low-salt diet • To get enough calcium from your diet, you should have dairy products, green leafy vegetables, broccoli, kale, fortified orange juice, and breakfast cereals Tests your doctor will perform to check that your treatment is achieving these goals Your doctor will want to keep an eye on your condition. Certain tests should be done on a regular basis. You should have the following tests at least once a year: Blood tests to measure the levels of calcium, phosphate, and magnesium and how well your kidneys are working 24-hour urine collection to check calcium levels and how well your kidneys are working If needed to monitor your condition, your doctor may do these tests more than once a year. Periodically, your doctor may also look for calcium deposits in your kidneys or brain, check your eyes for cataracts, and measure your bone density. Control of hypoparathyroidism can be challenging • Patients often require very high doses of calcium and active vitamin D to control hypoparathyroidism, which can lead to concerns for potential complications • Some people, despite taking very high amounts of calcium and active vitamin D, can experience wide swings in serum calcium Things to consider when being managed for hypoparathyroidism If your hypoparathyroidism is not properly managed, you may be experiencing the following signs or symptoms: Poor control of blood calcium level T he need for larger doses of supplements to control your blood calcium level or prevent symptoms E xtra calcium in your urine, kidney stones, buildup of calcium salts in your kidneys, or poor kidney function Phosphate or calcium-phosphate levels in your blood that are out of balance problem with your gastrointestinal system that A makes it hard to absorb calcium and vitamin D Symptoms such as “brain fog,” depression, muscle weakness, cramps, and shortness of breath Talk to your doctor for more information about your hypoparathyroidism and visit hypoparathyroidism.com © 2016 Shire. S16018 09/16 TM