Download Program Guide - Free To Breathe

Education Advocate
Program
Education Advocate
Program: Guide to
Distributing Patient
Resources and Awareness
Materials in Your Community
Page 1
Education Advocate
Program
Identify Facilities and Contacts for Materials Distribution
Primary Locations: Medical Centers
•
•
•
Cancer centers and hospitals
General practice clinics, pulmonology clinics & doctors’ offices
Cancer support organizations (such as Gilda’s Club, Cancer Support Community, etc.
Primary Contacts: Patient or nurse navigator, social worker, administrative staff. Ask for the person who
coordinates the distribution of patient education resources.
Secondary Locations: Community Centers
•
•
•
•
•
Community centers (YMCA, senior centers, non-profit organizations etc.)
Libraries (Public, University, Hospital, etc.)
Civic groups (Masons, Lions, Shriners, Kiwanis, Veterans of Foreign Wars, etc.)
Churches, temples and other religious organizations
Assisted living centers
Primary Contacts: Outreach or education coordinators. Ask for the person responsible for community
education, community outreach or programs.
Helpful Tools
•
•
•
Google search
o Search for key words in a specific region like “Doctor’s offices in Wayne County, OH,”
“Kansas City Rotary Club” or “Assisted living centers in Greensboro, MD.” See other key
search terms above.
Phone books
o Look in the yellow pages for “Hospitals,” “Physicians,” “Non-Profit Organizations,” “Social
Service Organizations,” “Health Agencies,” “Health Care Facilities,” “Health Clubs,”
“Churches,” and “Libraries.”
Ask your friends—especially those connected to the cancer community—to help you identify
additional facilities and opportunities.
Page 2
Education Advocate
Program
Lung Cancer Education Materials for Distribution
Living with a Diagnosis of Lung Cancer
This booklet, written for patients who’ve just been diagnosed, addresses basic questions on lung cancer,
available treatment options, maintaining hope, and more. Available in English or Spanish.
My Lung Cancer Care Plan
The Lung Cancer Personalized Care Plan helps patients record information on diagnosis, track
treatments and appointments, monitor symptoms and more.
Personal Lung Cancer Profile Tear Pad
This 50-sheet tear pad helps physicians talk to their patients about a lung cancer diagnosis. It helps
patients understand important topics such as staging, tumor location, treatment options and clinical trials.
Clinical Trials Flyer
This flyer helps lung cancer patients understand how they could benefit from participating in a clinical
trial, and how to find a trial that’s right for them.
Molecular Tumor Testing Brochure
This resource helps patients understand the process and the importance of testing lung cancer tumors
for molecular changes and protein levels that may drive cancer growth.
Lung Cancer Fact Sheet
This two-sided fact sheet provides the basic facts about lung cancer, plus information about what you can
do to reduce your risk, help raise awareness and fund research.
Lung Cancer Symptoms Bookmark
A handy bookmark that lists the symptoms of lung cancer, this is a great resource for anyone who wants
to raise awareness of lung cancer in their communities.
Free to Breathe Brochure
This brochure gives a brief overview of Free to Breathe’s work and basic lung cancer statistics.
Page 3
Education Advocate
Program
Distribution Instructions
Step 1
Develop a list of places in your community where you will share patient resources.
Step 2
Contact the locations on your list to schedule a time when you can make a delivery.
Step 3
Order distribution kits by emailing [email protected] with your name, home address and a list of
the locations at which you plan on sharing resources.
Step 4
Deliver resources to the locations on your list and let us know how you did by filling out submitting our
Advocacy Tracking Form: www.freetobreathe.org/advocacytracking
Step 5
Follow up with the locations on your list every three months. Ask if they need more patient resources
and take action accordingly. Be sure to fill out our Advocacy Tracking Form for each new visit. Consider
interviewing your contact using the Facility Contact Interview form and share this valuable information
with Free to Breathe.
Page 4
Education Advocate
Program
Distribution Script
For the initial in-person meeting, your purpose is to:
• Introduce Free to Breathe
• Give an overview of Free to Breathe patient education resources, why they are important, and
how to order them
• Exchange contact information
• Thank your contacts for their collaboration!
Outreach to a Medical Facility (cancer center, hospital, clinic, doctor’s office)
Phone call script:
Call the facility’s general line and say:
“Hi, my name is __________________ and I am a volunteer with Free to Breathe. Free to Breathe has
free lung cancer education materials to help patients and their loved ones navigate diagnosis, treatment
and care. I would love to bring you these materials to provide to your patients. Can you please put me
in touch with the person who coordinates the distribution of brochures and other patient education
materials?”
Once you are connected with this person, say:
“Hi, my name is __________________ and I am a volunteer with Free to Breathe. Free to Breathe
offers free lung cancer resources to help patients and their families navigate lung cancer diagnosis,
treatment and care and I would love to bring you these materials to provide to your patients. Is there a
good time for you that I could stop by and show you what materials we have to offer?”
At this point you may be asked to describe what materials are available.
Make sure to get the correct spelling of their name and contact information (including mailing address,
phone and email address).
In-person visit script outline
Use this outline as general guidance—don’t worry about sticking strictly to this script.
“Hi, I’m ___________, and I volunteer as an Education Advocate with Free to Breathe.
I won’t take a lot of your time, but I did want to spend a few minutes introducing you to Free to Breathe
and the materials we have to offer.
Free to Breathe is a lung cancer advocacy organization of physicians, researchers, survivors and
advocates like myself who work for lung cancer research, education and awareness.
I am working to distribute free patient education materials that can help patients and their families
navigate diagnosis, treatment and care.
Page 5
Education Advocate
Program
Share the resources: show each piece as you talk about them and explain that additional resources are
available on Free to Breathe’s website (www.freetobreathe.org), including a clinical trials matching
service, inspirational stories and blogs and more.
I brought enough materials today to for you to share in your office, but you can re-order materials
anytime on Free to Breathe’s website or by calling, faxing or mailing this order form (hand over order
form).
I’m also available as an ongoing resource if you need any more materials or information. What is the
best way to reach you? Do you have a business card?
Are there other places in your office or facility where I should bring materials?
Do you have any questions for me?
Thank you for meeting with me today!”
Outreach to a Community Organization (library, community center, senior
center, etc.)
Modify the script above as needed when doing outreach to a community organization. When you bring
materials to a community organization, emphasize Free to Breathe’s awareness pieces. Focus on
sharing Free to Breathe’s materials that are more applicable to the general public, such as the
symptoms bookmark and the fact sheets.
Page 6
Education Advocate
Program
Distribution Tracking Form
Use this form when you bring Free to Breathe’s patient education materials to a facility. Please print
neatly and send the completed form via mail, fax or email within one week of your first visit. Remember
to keep a copy for your own records. Online version available: www.freetobreathe.org/advocacytracking
Mail to: Free to Breathe
Attn: Programs Department
1 Point Place, Suite 200
Madison, WI 53719
Email to: [email protected]
Fax to: 608-833-7906
Advocate name: ________________________ Advocate email address: _____________________
Advocate city and state: __________________________________________
Name of facility visited: ____________________________________________________________
Visit date: ______________ Name of department(s), if applicable: _________________________
Facility contact: Ask for their business card
Name and title: ___________________________________________________________________
Address: ________________________________________________________________________
Phone number: __________________________________________________________________
Email address: __________________________________________________________________
Number of kits distributed (or list specific materials): ______________
Contact’s interest/receptiveness to receiving materials:
__________________________________________________________________________________
__________________________________________________________________________________
__________________________________________________________________________________
Action required (i.e. any follow-up work required on your end):
__________________________________________________________________________________
__________________________________________________________________________________
Planned follow-up date: _________________________________
Notes:
__________________________________________________________________________________
__________________________________________________________________________________
__________________________________________________________________________________
Page 7
Education Advocate
Program
Follow up Visit
Use this form for any additional visits you may complete in the course of the year. This form is to be
completed and sent to Free to Breathe within one week of your facility visit.
Advocate name: _________________________ Advocate email address: ___________________
Advocate city and state: __________________________________________
Name of facility visited:____________________________________________________________
Visit date: _____________
Name of department(s), if applicable: _________________________
Number of kits distributed (or list specific materials): ______________
Contact’s interest/receptiveness to receiving materials:
__________________________________________________________________________________
__________________________________________________________________________________
Action required (i.e. any follow-up work required on your end):
__________________________________________________________________________________
__________________________________________________________________________________
Planned follow-up date: _________________________________
Notes:
__________________________________________________________________________________
__________________________________________________________________________________
__________________________________________________________________________________
__________________________________________________________________________________
Page 8
Education Advocate
Program
Facility Contact Interview
If the person who coordinates patient resources has time to meet with you at your six-month follow-up
visit, use the following survey to help Free to Breathe gain information about how the facility distributes
patient materials.
Mail to: Free to Breathe
Email to: [email protected]
Attn: Programs Department
Fax to: 608-833-7906
1 Point Place, Suite 200
Madison, WI 53719
Advocate name: _____________________ Advocate email address: _______________________
Advocate city and state: __________________________________________
Name of facility:
__________________________________________________________________________________
Facility contact’s name and title:
_______________________________________________________________________
Introduction: One of our goals is to get the Free to Breathe’s free resources and educational
materials into the hands of those affected by lung cancer. In an effort to accomplish this, we would like
to understand what materials and resources you provide your lung cancer patients and how you give
them this information.
1. Who is responsible for ordering patient education and resource materials for those diagnosed with
lung cancer? Do other departments order materials (e.g. psychosocial department, patient
education department or library, thoracic department, etc.)?
_______________________________________________________________________________
_______________________________________________________________________________
_______________________________________________________________________________
_______________________________________________________________________________
2. Who presents educational resources to newly diagnosed lung cancer patients and their families
within your practice/department (e.g. nursing staff, a social worker, case manager, patient navigator
or the physician)?
_______________________________________________________________________________
_______________________________________________________________________________
_______________________________________________________________________________
Page 9
Education Advocate
Program
_______________________________________________________________________________
3. What materials do you offer your lung cancer patients? Who produces these materials? Are there
any educational materials that are not already available that you think would be useful for patients
and their families?
_______________________________________________________________________________
_______________________________________________________________________________
_______________________________________________________________________________
_______________________________________________________________________________
4. Where do you recommend that lung cancer patients go to receive additional educational materials,
resources, or support services?
_______________________________________________________________________________
_______________________________________________________________________________
_______________________________________________________________________________
_______________________________________________________________________________
5. What educational materials and/or format (online, printed materials, recommended resource lists, or
interactive) would lung cancer patients find most useful in your practice?
_______________________________________________________________________________
_______________________________________________________________________________
_______________________________________________________________________________
_______________________________________________________________________________
Closing: As I mentioned earlier, one of the goals of Free to Breathe is to get these much need
educational resources into the hands of the patients and families in our community.
If you can help us identify any other organizations or groups, such as other clinics/practices,
professional groups, or community organizations, that could benefit from these resources, please
let me know. I would be happy to contact them and get these important materials into their hands.
Thank you for your time.
Page 10
Education Advocate
Program
Action Plan
Advocate name: _________________________________________
Advocate city and state: __________________________________________________________
Instructions: Use this worksheet to plan your materials distribution. Start by looking for cancer centers
and hospitals, then identify large doctors’ offices and clinics, community centers, libraries and health
facilities.
Cancer Centers & Hospitals:
1. ____________________________________________________________________________
Name of center
Phone number
____________________________________________________________________________
Contact name
Scheduled meeting date
2. ____________________________________________________________________________
Name of center
Phone number
____________________________________________________________________________
Contact name
Scheduled meeting date
3. ____________________________________________________________________________
Name of center
Phone number
____________________________________________________________________________
Contact name
Scheduled meeting date
4. ____________________________________________________________________________
Name of center
Phone number
____________________________________________________________________________
Contact name
Scheduled meeting date
5. ____________________________________________________________________________
Name of center
Phone number
____________________________________________________________________________
Contact name
Scheduled meeting date
Clinics & Doctors’ Offices:
1. ____________________________________________________________________________
Name of clinic/office
Phone number
____________________________________________________________________________
Contact name
Scheduled meeting date
Page 11
Education Advocate
Program
Clinics & Doctors’ Offices, continued:
2. ____________________________________________________________________________
Name of clinic/office
Phone number
____________________________________________________________________________
Contact name
Scheduled meeting date
3. ____________________________________________________________________________
Name of clinic/office
Phone number
____________________________________________________________________________
Contact name
Scheduled meeting date
4. ____________________________________________________________________________
Name of clinic/office
Phone number
____________________________________________________________________________
Contact name
Scheduled meeting date
5. ____________________________________________________________________________
Name of clinic/office
Phone number
____________________________________________________________________________
Contact name
Scheduled meeting date
Community Facilities:
1. ____________________________________________________________________________
Name of facility
Phone number
____________________________________________________________________________
Contact name
Scheduled meeting date
2. ____________________________________________________________________________
Name of facility
Phone number
____________________________________________________________________________
Contact name
Scheduled meeting date
3. ____________________________________________________________________________
Name of facility
Phone number
____________________________________________________________________________
Contact name
Scheduled meeting date
Other ideas:
____________________________________________________________________________
Page 12