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TB TB Alert Alert Community Community Base Base 113 113 Queens Queens Road Road Brighton, Brighton, BN1 BN1 3XG 3XG BCG BCG is is not not aa routine routine travel travel vaccine. vaccine. IfIf you you would would like like the the BCG BCG for travel purposes, you will probably have to pay to have for travel purposes, you will probably have to pay to have itit done done privately. privately. Tel: Tel: 01273 01273 234029 234029 www.tbalert.org www.tbalert.org How How common common is is TB? TB? IfIf you you have have an an enquiry enquiry about about TB, TB, or or would would like like to to find find out out more more about about the the TB TB Action Action Group Group (TBAG) (TBAG) –– aa patient patient support support and and advocacy advocacy network network –– please please call call 01273 01273 234770. 234770. TB TB is is much much less less common common in in the the UK UK than than itit was was early early last last century, century, but but the the number number of of TB TB cases cases has has been been rising rising since since about about 1990. 1990. TB TB is is very very common common in in some some developing developing countries countries where where many many people people cannot cannot easily easily access access the the drugs drugs they they need need to to get get better. better. Can Can anyone anyone get get TB? TB? Yes, Yes, anyone anyone can can get get TB. TB. The The list list of of ex-patients ex-patients includes includes aa UK UK cabinet cabinet minister, minister, world world famous famous singers singers and and an an archbishop, archbishop, amongst amongst many many others. others. However, However, TB TB is is much much more more likely likely to to affect affect people people who who live live in in poor poor housing housing conditions conditions or or do do not not have have nutritious nutritious diets, diets, as as well well as as people people who who are are affected affected by by other other illnesses illnesses that that weaken weaken their their immune immune systems, systems, such such as as HIV. HIV. Whilst Whilst anyone anyone can can get get TB, TB, itit is is still still rare rare to to be be exposed exposed to to TB TB bacteria in the UK. Two of the most effective preventions bacteria in the UK. Two of the most effective preventions against against TB TB are: are: § Early § Early diagnosis, diagnosis, to to stop stop the the onward onward transmission transmission to to others others § A strong and healthy immune system § A strong and healthy immune system For For more more information information about about TB TB and and to to read read about about real real people’s people’s experience experience of of the the illness, illness, please please visit visit The The Truth Truth About About TB TB at at www.thetruthabouttb.org www.thetruthabouttb.org TB TB Alert Alert is is the the UK’s UK’s national national tuberculosis tuberculosis charity. charity. Our Our projects projects are are in in the the UK, UK, India India and and Africa, Africa, and and we we also also work work with with international international partners partners to to tackle tackle TB TB as as aa global global issue. issue. Our Our activities activities focus focus on on three three main main areas: areas: § § Raising Raising public public and and professional professional awareness awareness about about TB, TB, and and providing providing support support to to patients patients during during their their treatment treatment § § Bringing Bringing together together statutory statutory health health services, services, voluntary voluntary organisations organisations and and people people affected affected by by TB TB to to plan plan and and deliver deliver better better TB TB services services § § Developing Developing policy policy and and advocating advocating for for the the resources resources to to improve improve the the care care of of patients patients and and the the prevention prevention and and control control of of TB TB This This work work supports supports our our organisational organisational mission mission of of increasing increasing access access to to effective effective treatment treatment for for all all people people affected affected by by TB. TB. Any Anyinformation informationininthis thisleaflet leafletregarding regardingthe thediagnosis diagnosisand andtreatment treatmentof oftuberculosis tuberculosisisisintended intendedto to give givegeneral generalinformation informationon onthe thesubject subjectonly. only.ItItisisnot notintended intendedas asaasubstitute substitutefor forthe theknowledge, knowledge, expertise, healthcareprofessionals professionalsinin expertise,skill skilland andjudgement judgementof ofphysicians, physicians,pharmacists pharmacistsor orother otherhealthcare patient patientcare. care.None Noneof ofthe theinformation informationcontained containedininthis thisleaflet leafletisisintended intendedto tobe beused usedfor fordecisions decisions on ondiagnosis diagnosisor ortreatment. treatment.Questions Questionsand andconcerns concernsregarding regardingdiagnosis diagnosisand andtreatment treatmentshould shouldbe be directed directedto toaahealthcare healthcareprofessional. professional. TB Alert Alert isis aa company company limited limited by by guarantee, guarantee, registered registered in in England England No. No. 3606528. 3606528. Registered Registered Charity Charity No. No. 1071886. 1071886. photography: photography: Gary Gary Hampton Hampton ([email protected]) ([email protected]) design: design: worksong, worksong, london london 020 020 8352 8352 8300 8300 TB Revised 2014 There There is is aa vaccine vaccine for for TB TB known known as as BCG. BCG. However, However, itit does does not not work work in in all all cases cases and and itit is is most most effective effective in in young young children children against against more more severe severe forms forms of of TB. TB. In In the the UK, UK, BCG BCG is is offered offered to to babies babies who who are are more more likely likely to to be be exposed exposed to to TB TB bacteria bacteria and and some some adults adults whose whose jobs jobs put put them them at at increased increased risk. risk. Revised 2013 Revised 2013 Revised 2014 Can Can TB TB be be prevented? prevented? Tuberculosis (TB): TUBERCULOSIS Your Questions Your Questions Answered Answered NIGHT SWEATS COUGH!! WEIGHT LOSS COUGH!! COUGH!! COUGH!! COUGH!! COUGH!! COUGH!! SWEATS SWEATS WEIGHT WEIGHT LOSS LOSS COUGH !! NIGHT SWEATS WEIG COUGH!! SWEATS CO WEIGHT WEIGHT LOSS LOSS FEVER FEVER NIGHT NIGHT SWEATS SWEATS WEIGHT WEIGHT LOSS LOSS LOSS FEVER COUGH!! NIGHT SW S FEVER FEVER NIGHT NIGHT SWEATS SWEATS WEIGHT WEIGHT LOSS LOSS COUGH COUGH COUGH COUGH NIGHT SWEATS COUGH!! WEIGHT LOSS F COUGH!! COUGH!! COUGH!! COUGH!! COUGH!! COUGH!! SWEATS SWEATS WEIGHT WEIGHT LOSS LOSS NIGHT SWEATS WEIGHT LOSSH COUGH!! SWEATS ! WEIGHT WEIGHT LOSS LOSS FEVER FEVER NIGHT NIGHT SWEATS SWEATS WEIGHT WEIGHT LOSS LOSS WEIGHTLOSSFEVER NIGHT SW FEVER FEVER NIGHT NIGHT SWEATS SWEATS WEIGHT WEIGHT LOSS LOSS COUGH COUGH COUGH COUGH NIGHT SWEATS COUGH!! WEIGHT LOSS F FOR WEIGHT PATIENTS COUGH!! COUGH!! COUGH!! COUGH!! COUGH!!INFORMATION COUGH!! SWEATS SWEATS WEIGHT LOSS LOSS COUGH !! NIGHT SWEATS WEIG problems other than TB, so if you are worried you should talk to a doctor or nurse at your local surgery or clinic. How is TB diagnosed? Tuberculosis (TB) is an illness that people often do not know a lot about. This leaflet is designed to answer some of your frequently asked questions about TB. What is tuberculosis? Tuberculosis (TB) is an illness caused by bacteria. TB most commonly affects the lungs, but you can get TB in almost any part of your body. TB is curable with a course of antibiotics, usually lasting six months. TB in the lungs or throat is the only type of TB that can be infectious, which means it can be passed on to other people. Most people will not be infectious within two weeks of starting to take the correct medicine. How is TB caught? When someone with TB in the lungs or throat coughs or sneezes, TB bacteria can get into the air where they can be breathed in by other people. You are most likely to get TB yourself if you have spent a lot of time with a person with infectious TB, for example living in the same household. It is unlikely that you could catch TB sitting next to a person with TB on a bus or train, since close contact for a number of hours is usually necessary to be at risk of infection. TB is not spread by spitting or through sharing objects such as cups, plates and cutlery. What are the symptoms of TB? People who are ill with TB may have some of the following symptoms: § A cough that lasts for more than three weeks § Fever (high temperature) § Heavy night sweats § Unexplained weight loss § Fatigue (extreme tiredness) § No appetite TB will only cause a cough if it is affecting your lungs. If TB is in another part of the body it can also cause pain and swelling. All of these symptoms may also be signs of If the doctor thinks you may be ill with TB in the lungs or throat they will ask you to give a sputum (phlegm) sample, which they will test for TB bacteria. If the doctor thinks you may have TB in another part of your body, they may do the same test using a sample of cells, fluid or tissue. You may also be offered a skin test, blood test or x-ray. If I have TB, will I have to stay in hospital? Most people with TB do not have to stay in hospital, although you may be admitted briefly to confirm the diagnosis or if you are resistant to any of the drugs most commonly used to treat TB. What is the risk to my loved ones? If you are diagnosed with TB that could be passed on to other people, you will be asked by the TB Nurse to make a list of people you spend most time with. The hospital will then invite these people to the clinic for screening for TB. They will be assessed for symptoms of TB and may be offered a skin test, blood test or x-ray. What is the treatment for TB? Your TB doctor or nurse will usually start you on four different drugs. They are: § Rifampicin § Pyrazinamide § Isoniazid § Ethambutol You may be given all of these drugs together in one tablet called Voractiv. You may be given Isoniazid, Rifampicin and Pyrazinamide together in one tablet called Rifater. After two months, the treatment can usually be reduced to two drugs, Isoniazid and Rifampicin. These drugs may be given to you in one tablet called Rifinah. Can TB drugs cause side effects? TB drugs can cause side effects, although not everyone gets them. Common side effects include: § Feeling sick or dizzy § Pins and needles § Skin rashes § Flu-like symptoms In very few cases people may experience jaundice, which is the yellowing of the skin or eyes. If this happens, stop taking your medication and seek medical attention straight away. Rifampicin may turn urine and other bodily fluids, such as tears, orangey red. It can also interact with other medicines. In particular, it reduces the effectiveness of hormonal contraceptives (oral pill, implants or other). Ethambutol may rarely cause visual disturbances (blurred and red/green colour disturbance). Your doctor or nurse will arrange for you to have an eye test prior to starting Ethambutol. If you develop visual disturbances whilst taking Ethambutol, please stop taking it and inform your doctor or nurse immediately. Remember: Ë It is important to tell your doctor that you are on TB treatment when being prescribed other medicines Ë Women should use additional means of contraception when they are taking TB drugs Ë Let your TB Nurse or doctor know if you are experiencing side effects Where can I go for support? If you are affected by TB, there is help available so you don’t feel alone. Your TB Nurse is there to support you through your TB treatment. Make sure you attend all your appointments and let the healthcare professionals know if you are having any trouble taking your tablets. You may find it beneficial to speak to someone else who has also had TB and is now better. TB Alert, the UK’s national tuberculosis charity, can put you in touch with a member of the TB Action Group (TBAG) who will be happy to chat with you and help you through your treatment.