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Download Introduction to Thalassaemia Society (Singapore)
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What is Thalassaemia? Many disease are caused by abnormalities in the blood. These abnormalities in the blood. These abnormalities are categoried according to the part of the blood affected: there are disease of the red blood cells, the white blood cells or coagulation diseases. Thalassaemia, also known as "Cooleys Anaemia" is an inherited blood disorder which is caused by an abnormal gene. A person with Thalassaemia is unable to produce normal functioning haemoglobin in the blood. Haemoglobin are the cell that transport oxygen from the lungs to all parts of the body. In severe form of Thalassaemia (known as Thalassaemia Major), the person will require a lifetime of monthly blood transfusions. This is a painful and traumatic treatment regime that imposes an enormous financial and emotional strain on the patient and also on his or her family. Thalassaemia Society (Singapore) About Us Thalassaemia Society (Singapore) was formed by a group of parents and volunteers to meet the following objectives: A. Create public awareness and disseminate relevant and the latest medical information relating to Thalassaemia. B. Provide community support and social interaction amoung Thalassaemia patients and their families. C. Provide financial aid to needy families and referral of social and welfare services. The Thalassaemia Scoiety (Singapore) was officially registered with the Registry of Societies in December 2003 and it registered as a Charity with the Commissioner of Charities. Our Charity Regstration Number is 01762. Benefits of joining the Thalassaemia Society (Singapore) Upon joing the society, as members, you will be able to: 1. Get updates on current Thalassaemia treatment • Enjoy priorities and subsidies on conferences and seminars regarding Thalassaemia • Get discount at KKH Pharmacy on selected items • Be invited to talks and workshops held by the society • Have a voting right at the society's AGM How Can You Help: I would like to sign up as volunteer to help out in activites organised by the society. I would like to be a sponsor for the activites. I would like to join as a member. I would like to make a donation of an enclosed cheque of $ ____________ Cheque number: ________________ Please send your response slip to: Thalassaemia Society (Singapore) Level 7, Children's Tower, KK Women's & Children's Hospital, 100 Bukit Timah Road. Singapore 229899 Name: ____________________ Contact No: _______________ Email: ____________________ Address: __________________ Meaningful life Through Effective Management Thalassaemia Society (Singapore) Tel: (65) 9672 2886 Fax: (65) 9672 5764 Email: [email protected]
