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Assisted Human Reproduction Act 2004, c. 2 1 genetic screening cloning The Technologies gene therapy sex selection artificial placentas postmenopausal motherhood 2 Origin of Assisted Human Reproduction Act Act based on Proceed With Care: Report of the Royal Commission on New Reproductive Technologies Hearings held by parliamentary committees Committee acceptance of Commission's position Ignored CMA submission to Commission 3 Types of Considerations Central to Parliament’s and Royal Commission’s Reasoning Beneficence and the social order Respect for Persons Children as Commodities The Position of Women 4 Beneficence and the social order Rejection of for-profit surrogacy is essential under beneficence and for good social order Disruption of normal parent-child relationship Spectre of women as “brood mares” Analysis No scientific evidence that social order would be disrupted or threatened Inconsistent position on allowing other potentially harmful activities No evidence of psycho-social harm. Violates autonomy and right to self-determination 5 Autonomy & Respect for Persons Cautionary position of Commission: “Could a prospective surrogate mother ever be in a position to make a free and competed decision ?” Lawyers sometimes act as surrogacy brokers Perceived conflict of interest 6 Stated Purpose of Act “tak(e) appropriate measures for the protection and promotion of human health, safety, dignity and rights in the use of these technologies and in related research” and avoid “the exploitation of children, women and men for commercial ends” ensure informed consent in these areas; Preserve and protect “human individuality and diversity, and the integrity of the human genome.” 7 Tools Available to Parliament Constitution makes health care a matter of provincial jurisdiction. Therefore claimed that only tools available to Parliament are Transfer payments Criminal Code 8 List of Prohibited Activities For-profit surrogacy Reproductive cloning Germ-line genetic modification Creation of chimeras Inter-species implantation Sex selection for nontherapeutic reasons Using gametes of deceased without their prior consent Maintaining embryos outside human body longer than 14 days Sale, barter, etc. of gametes, zygotes or embryos. 9 Required Activities Establishment of an Assisted Human Reproduction Agency Licensing (professional and institutional) Informed consent to donation and/or use Ensuring donor confidentiality Ensuring access to statistical data Retaining records in a central agency Prosecution only with AG’s consent 10 On the positive side The law provides some much-needed control in the area of reproductive technologies. It stipulates an oversight mechanism, and promises to fund it. It has the potential for ensuring national standardization in the area. 11 General Problems Notion of human dignity elusive and undefined. Inconsistent approach to commercialization of reproduction. Based on few hard data about risks. Not consistent with other health care related position. 12 Specific Ethical Problems Disregard of equality and justice. Indifference towards suffering of future generations. Paternalism towards women. Stigmatization of naturally occurring process. Shortsighted re gametes/embryos of deceased Knee-jerk reaction on sex selection. 13 For-profit Surrogacy 6. (1) No person shall pay consideration to a female person to be a surrogate mother, offer to pay such consideration or advertise that it will be paid. (2) No person shall accept consideration for arranging for the services of a surrogate mother, offer to make such an arrangement for consideration or advertise the arranging of such services. (3) No person shall pay consideration to another person to arrange for the services of a surrogate mother, offer to pay such consideration or advertise the payment of it. 14 For-profit Surrogacy (cont.) (4) No person shall counsel or induce a female person to become a surrogate mother, or perform any medical procedure to assist a female person to become a surrogate mother, knowing or having reason to believe that the female person is under 21 years of age. (5) This section does not affect the validity under provincial law of any agreement under which a person agrees to be a surrogate mother. 15 Claims against for-profit surrogacy advanced in debate of Act Harmful to women because it defines women by their reproductive capacity Alienate women from what should be inalienable from them Reduces women to slaves Turn children into products Psycho-social harm for children Contrary to public policy and social order 16 Analysis Some women do have enough information to make informed decision Prospective parents in greater ignorance than surrogate Aspersions cast on lawyers unwarranted Position of Ontario Law Reform Commission Violates autonomy 17 Children as Commodities Surrogacy for a fee amounts to selling babies. This turns babies into commodities. 18 Analysis Different types of surrogacy Gestational Gestational + ovum If paid for both ovum and services Ovum is not fetus Ovum is not potential child If paid merely for gestational services Child is not sold Must be adopted by contracting parents Not invalidated by differential payments for birth as opposed to miscarriage Reduction in payment reflects differential view of Incomplete service Quality of service 19 The Position of Women Claim: gestation contracts devalue women and deny their status as an ends-in-themselves ‘brood mares’ disruption of social structures 20 Analysis Right to choose any activity consistent with nature as person Values must not denigrate individual as person Worker must not become identical with work Therefore terms of contract are central Fact that labourer and contractor have divergent interests does not turn the labourer into a tool or identify labourer with work 21 Alienation from work In gestational surrogacy mother is mother by convention, not biologically No biological link (parasite) No genetic link Argument requires subsidiary premises Woman can never give up child false Such close connection to gestation that to sell services is to sell self. false Requires morally repugnant subsidiary premise: Viz., that women are identical with their reproductive function. 22 Compare Royal Commission’s own statement in Proceed With Care Alittle is known about the psycho-social effects of these arrangements on the participants and the resulting children.@ (at 685) 23 Non-medical Sex Selection 5.(1) No person shall knowingly (e) for the purpose of creating a human being, perform any procedure or provide, prescribe or administer any thing that would ensure or increase the probability that an embryo will be of a particular sex, or that would identify the sex of an in vitro embryo, except to prevent, diagnose or treat a sex-linked disorder or disease; 24 Standard Position on the Ethics of Sex Selection: Sex selection is ethically acceptable for medical reasons Beneficence non-Malfeasance Directed at condition, not sex; therefore species of medical care Sex selection is ethically unacceptable for all other reasons Sexist values are unethical because they violate Human dignity Equality of persons 25 But: there are also some standard objections to medically based sex selection Interference in human reproduction Donum vitae Instrumentalistic view of human life Human beings viewed as manipulable objects Mistaken view of parenthood Only conditional acceptance of children Negative valuation of differently-abled persons Deaf culture and the case of cochlear implants 26 Ethics of Sex Selection: The non-standard version Political correctness is not ethics Consensus is not ethics “A consensus means that everyone agrees to say collectively what no one believes individually.” attributed to Abba Eban Inconsistent ethics is unethical in its implications. Ethics that ignores facts is politics in another guise. 27 Some ethically relevant facts Preferences are logically different from values Social policy that ignores material facts is unworkable unethical 28 Values vs. Preferences Values accord worth to what one values Sexist values accord greater worth to the members of a particular sex Therefore they are discriminatory they violate equality and dignity of persons Preferences do not accord greater worth to what one prefers Preferential social associations are not unethical friendships clubs, etc. Therefore they do not violate equality and dignity of the person 29 Conclusions # 1 Sex selection based on preference is not subject to the same ethical critique as sex selection based on sexist values Christine Overall 1987, 1993 Murphy, 1990 Society of Obstetricians and Gynaecologist of Canada, 1991 CMA, 1991 Therefore value-based reasons against sex selection do not apply to preferencebased sex selection 30 Data on sex preference Canadians do not want more children of one sex than of another Proceed With Care: Final Report of the Royal Commission on New Reproductive Technologies (1993) Most Western Countries do not want more children of one sex rather than another Jain, Missmer, Gupta and Hornstein. Preimplanttion sex selection demand and preferences in an infertility population Fertility and Sterility, 2005;83:649-58 Dahl, Beutel, Brosig and Hinsch. Preconception sex selection for non-medical reasons: a representative survey from Germany. Human Reproduction , 2003;18(10): 2231-2234 General position: “We want matched pairs.” 31 Conclusion # 2 Data do not show that in Western (and especially Canadian) society, sex selection would be based on sexist values Therefore, to be ethically defensible, prohibition of non-medical sex-selection in Western countries must have some other justification 32 Ethics and public policy The purpose of public policy is to prohibit unethical acts encourage ethical behaviour encourage ethical values Public policy must be enforceable consistent Cooper v. Hobart [2001] 3 S.C.R. 537 Rights may be curtailed only to the least degree necessary to achieve legitimate end R. v. Oakes [1986] 1 S.C.R. 103 33 “There is ... a need for judicial restraint in the development of ... law as it pertains to sensitive and far-reaching issues of public policy.” (Supreme Court of Canada: Dobson v. Dobson, 1999) 34 Some more ethically relevant facts that have been ignored in the sex selection debate 35 Sex Distribution at Birth Surprise, Surprise! Male to female birth ration was 51.4% in favour of males Male to female birth ratio currently is 60% in favour of females Davis, Gottlieb and Stampnitzky. 1998; Møller, 1998; Mocarelli, Gerthoux, Ferrari, Petterson, Kieszak, Brambilla, Vincoli, Signorini, Tramacere, Carreri, Sampson, Turner and Needham, 2000; Martuzzi, Di Tanno and Bertollini, 2001; Ryan, Amirova and Carrier, 2002; del Rio, Marshall, Tsai, Shao and Guo, 2002. 36 Reasons Long-lasting environmental pollutants Dioxins Polychlorinated biphenyls They are found globally In some locations, their effects are extreme In some Canadian locations, they have resulted in a male/female birth ratio of .35 to 1 Mackenzie, Lockridge and Keith, 2005. 37 Conclusion # 4 Sex selection is pragmatically necessary for species survival if polygyny, etc. are not to be institutionalized. 38 Modest Proposal Allow sex selection for sex-balance Institute sex selection lottery Only for every second child Adjust chances relative to existing sex distribution of fertile members of society 39 Won’t this contradict the desideratum of population reduction that underlies the claim that responsible reproductive behaviour limits children to 1 per family? 40 Some other ignored facts Responsible reproductive policy cannot be national but must be global Sustainability of species requires more than one child general estimate is 2.05 and 2.1 per couple Espinshade, Guzman and Westoff, 2003 Australian Academy of Science, 2006. 41 OK Now What? 42