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The Project HEART Experience: Assessment of an HIV Care and Treatment Program Amanda D. Castel, MD, MPH Assistant Research Professor Michelle Gill, MPH EGPAF/GWU Partnership Executive Coordinator Department of Epidemiology and Biostatistics The George Washington University School of Public Health and Health Services EGPAF/GWU Partnership April 30, 2009 Assessment Goals Examine different models of service delivery for care and treatment scale up in 3 of 5 PH countries Examine different approaches to providing technical and programmatic support for care and treatment (not PMTCT focused) Identify best practices, challenges, solutions, and obtain recommendations from the field Identify ways to further support and integrate care and treatment in PH countries Assessment Team Members GWU Faculty and Staff – Amanda D. Castel, MD, MPH (Overall Assessment Team Leader) – Michelle Gill, MPH (Zambia, TZ) – Irene Kuo, PhD, MPH (Team Leader for Zambia trip) – Jennifer Skillicorn, MPH (Cote d’Ivoire) External Consultants – George Beatty, MD, MPH (UCSF) (TZ, Cote d’Ivoire) – Judith Justice, PhD, MPH (UCSF)( TZ, Zambia, Cote d’Ivoire) – Maureen Shannon, CNM, FNP, PhD (Univ. of HI)(Zambia, TZ) EGPAF Staff – Lindsay Bonanno (Tanzania) – Nicole Buono, MPH (Cote d’Ivoire) – Stephen Lee, MD (Zambia) – Ric Marlink, MD – Rose McCullough, PhD (Tanzania) Focus Areas Management Models of Service Delivery Quality of Care/Continuum of Care Community Linkages Policy Analysis and Influence Training/Mentoring/Supportive Supervision and Capacity Building Quantitative Evaluation Systems Assessment Methods Developed quantitative and qualitative tools Conducted document review and desk audit of relevant program information Conducted site visits Conducted in-depth interviews Wrote country level reports and global report Country-Level Interviews EGPAF U.S. and country staff Centers for Disease Control and Prevention Other PEPFAR funded Track 1.0 Partners MOH programs: e.g., National AIDS Control Program, TB/HIV, M & E, District or Regional AIDS Coordinator Supply chain and drug procurement organizations/agencies NGOs, CBOs, FBOs Sub-grantees Staff at clinical sites, N=49 sites Country Visits Teams: – 5-6 members for each trip – EGPAF, GW faculty and staff and external consultants Zambia- June 2008 – 18 sites visited – Range: 494 - 7,453 patients per month* Cote d’Ivoire-July 2008 – 16 sites visited – Range: 43 - 3,026 patients per month Tanzania- September 2008 – 15 sites visited – Range: 123 - 3,997 patients per month *Data not available for 2 sites Sites Visited, N=49 Characteristic Number Setting Capital city 13 Other Urban 17 Peri- Urban 8 Rural 11 Public 30 Private/FBO 19 C and T/PMTCT 33 Primary 31 Secondary 10 Tertiary 5 Peripheral 3 Site Type Service Provided Site Level Summary Findings by Focus Area Management Strong and responsive U.S. and country management teams Opening of sub-offices in some countries Addressing challenges related to financial and contract management Need for regular communication between U.S. and country offices Policy Analysis and Influence EGPAF or sub-partner playing major role in development of key policies related to C & T Provide substantial technical assistance and guidance on development of guidelines and regulations Recognized as a leader in area of HIV C & T Working to influence task-shifting in response to healthcare worker shortages Coordination with other treatment partners could be improved Models of Service Delivery Various partners and approaches used based on host country’s needs District approach allows for sustainability and “standard” approach to C & T service delivery Working with the public sector reaches the most people and solidifies EGPAF’s relationship with host MOH Single-service sub-grantee may present challenges with regard to sustainability Performance-based financing preliminary results are encouraging Quality of Care/Continuum of Care Clinical care that is generally based on WHO or national guidelines and standards Beginning of task-shifting activities at a limited number of sites Limited access to viral loads, RNA and DNA PCR and second line regimens Healthcare worker shortages require creative solutions – use of PLWHAs, overtime allowances, task shifting Variable linkages and integration of C & T with TB and PMTCT Pediatric C & T lagging behind that of adults Need systematic mechanisms to track patients lost to follow-up Community Linkages Community linkages were not consistently integrated into continuum of care EGPAF U.S. and country offices beginning to recognize the importance of community and linkages Varied approaches to implementation of community linkages programs and services Creative use of PLWHA and expert patients Lack of nutritional support and transport identified as barriers to continuity of care Limited coordination of referral systems between community-related groups and C & T sites Training/Mentoring/ Supportive Supervision/Capacity Building Successful leveraging of available incountry expertise as a resource for training and guidelines development High quality initial training in adult and pediatric ART Methods to measure retention and application of knowledge still need to be determined Health care worker shortages and rapid turnover of staff Quantitative Evaluation Systems Dedicated U.S. support staff to focus on programmatic, technical and M&E issues Existence of electronic databases in countries which improve patient tracking and efficiency of data management Attempts to harmonize indicators and develop standard reporting forms Recognition of the importance of QI mechanisms to improve patient services Limited feedback and use of data to improve programs Major Recommendations Major Recommendations Continue to take a leadership role in formulating and advocating for policies related to the delivery of C & T, including task-shifting, transportation and supply chain management Strengthen achievements in pediatric C & T Address issues related to quality of care such as pediatric enrollment, TB, PMTCT and RCH linkages, health care worker shortages, community linkages and involvement including nutritional support Develop EGPAF organizational and country specific guidelines and strategic plans for community linkages to ensure that community linkages are integrated into the continuum of care Major Recommendations (2) Create additional opportunities for technical discussions and sharing of experiences – Across the PH country office staff – With other treatment partners Consider collecting indicators that may be more reflective of quality of care outcomes such as improved cohort reporting, additional treatment outcome measures and effectiveness of community linkages Conduct regular review and assessment of PH programs Limitations of Assessment Limited time in clinics Chart audits, clinical observations or patient interviews not conducted Did not assess PMTCT Did not have opportunity to meet with non-PEPFAR partners Non-random sample of clinics Language barriers EGPAF staff as part of assessment team Next Steps Share findings with: – – – – – EGPAF staff Project HEART countries CDC Atlanta and country offices International conferences Peer-reviewed literature Used findings in PY6 applications Incorporate information and recommendations into program activities Acknowledgements EGPAF U.S. Staff US EGPAF Interviewees EGPAF Country Office Staff Tanzania Cote d’Ivoire Zambia GWU SPHHS Alan Greenberg Manya Magnus James Peterson A special thanks to all those who were interviewed as part of the assessment