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Pain and Symptom Management cerah.lakeheadu.ca Palliative Care Education for Front-Line Workers in First Nation Communities A few assumptions • A good care plan can almost always alleviate pain • Every member of the care team has a responsibility to participate in pain management • It is impossible to have high quality end-of-life care when a person is in pain • People facing death have a profound fear of pain “Pain is whatever the person experiencing it says it is, and it exists wherever the person says it does”. - Margo McCaffery, nurse and pain management expert Pain • Belongs to the person • Is enough to make them uncomfortable Caring for the Terminally Ill: Honouring the Choices of the People, p. 55-57 Acute pain • Easier to recognize than chronic pain • Examples: broken bones, sudden abdominal pain CHPCA, 2008 Chronic pain • Examples: arthritis, tooth decay, osteoporosis • Often more challenging to diagnose and treat than acute pain Breakthrough pain • Pain that re-emerges before the next dose of pain medication • A spontaneous episode or manifestation of pain experienced by the person even though s/he is taking regular pain medication www.cerah.lakeheadu.ca Perception of and response to pain will vary depending on: • The meaning of pain to the individual • Prior experience with pain • Cultural background • Age and gender Total pain An individual may experience total pain from: • the actual physical pain of the disease process • intellectual pain from knowledge (or lack of knowledge) of her/his condition and prognosis • emotional pain from feelings of anger or loneliness • spiritual pain arising from the awareness of impending death Myths and misconceptions (1 of 2) • Health care providers are the experts on assessing pain and determining if pain is real • Opioids should only be used for the management of cancer pain • Opioid addiction (psychological dependence) is common in people taking opioids for treatment of moderate to severe pain Myths and misconceptions (2 of 2) • Opioid tolerance develops rapidly, necessitating progressively higher doses • If one opioid doesn’t work for a patient, none of them will Emotional pain • Symbolizes threats the individual is facing • Is a constant reminder of the seriousness of the situation • Change in the pain may mean the disease is progressing • Pain may lead to fears Klee, 2004 Psychological pain • Pain may cause depression • The stress of pain may cause anxiety • Anxiety and depression often aggravate pain Klee, 2004 Existential Pain (1 of 2) • It is not unusual for pain to provoke existential questions regardless of the individual's religious and spiritual background • Pain may make it difficult to find the peace of mind needed to think through complicated issues Klee, 2004 Existential Pain (2 of 2) • The pain may be seen as a punishment • Existential suffering may provoke strong emotions that aggravate the pain, making it more difficult to alleviate Klee, 2004 Social pain • The family will be affected by the individual’s pain • They may experience feelings of helplessness, hopelessness • Pain may result in social isolation • Unresolved family issues may surface (Klee, 2004) www.cerah.lakeheadu.ca Some barriers to treating pain • The myth that pain is to be expected and that pain cannot be managed • Patient factors • Caregiver factors • System factors • The most common barrier is caregiver failure to ask about and assess pain Three pain myths • Addiction • Tolerance • Hallucination Caring for the Terminally Ill: Honouring the Choices of the People, p. 58-59 Pain Characteristics Ways to describe pain • Aching • Dull • Sore • Shooting • Burning • Stabbing www.cerah.lakeheadu.ca Signs of pain (1 of 2) • Grimacing or wincing • Bracing (i.e. holding an arm) • Guarding/protecting painful area • Rubbing • Changes in activity level • Sleeplessness, restlessness • Resistance to movement • Withdrawal/depression • Decreased appetite www.cerah.lakeheadu.ca CHPCA, 2008 Signs of pain (2 of 2) • General body tension (clenched hands, hunched shoulders, etc.) • Tense facial expressions • Constant fidgeting or nervous habits such as lip-biting • Unexplained withdrawal • Strained or higher-pitched tone of voice • Increased agitation, anger, etc. www.cerah.lakeheadu.ca Vocalized pain cues • Words or statements such as “ouch,” or “that hurts” • Verbal protests during care or transfers • Moans • Cries When to observe for pain • During personal care • During transfers and walking • Following activities • At appropriate intervals after administering pain management interventions Support Worker role in pain management • Ask the individual if they are experiencing pain • Watch for signs of pain • Observe for side effects of medications • Re-assess to evaluate the effectiveness of therapies • Administer non-drug treatments • Advocate for persons in pain Caring for the Terminally Ill: Honouring the Choices of the People, p. 57 Non-drug Interventions Physical (1 of 2) • Massage • Cold • Heat • Complementary Therapy (i.e.. massage) • Positioning • Exercise Caring for the Terminally Ill: Honouring the Choices of the People, p. 6164 Non drug interventions Psychological (2 of 2) • Distraction • Relaxation • Music • Comfort foods • Imagery • Controlled breathing Advantages of non-drug interventions • Low cost • Less potential for negative side effects • Decreases emotional response to pain • Provides clients with a sense of control or involvement “Pain is a more terrible lord of mankind than even death itself.” - Albert Schweitzer