Download Grant Application Project Fair Rotary International Executive

Grant Application
Project Fair
Rotary International
Executive Summary
1 Background
Cancer is a complex disease. It is awfully difficult to face the fact that someone close has been
diagnosed with cancer; even more so when that someone is a child or a teenager.
Owing to medical breakthroughs, cancer is no longer thought of as a synonym for death - today, 8 out
of 10 early diagnosed and properly treated children may survive!
The idea of brightening children’s lives with hope drove a group of Guatemalans to take on the
challenge of launching the “Saving Children with Cancer” project through Fundación Ayúdame a Vivir
in Guatemala back in 1997.
Three years later, the first goal was reached when UNOP- Unidad Nacional de Oncología Pediátrica
(National Pediatric Oncology Unit) opened its doors as the only multidisciplinary center specialized in
the diagnostic and treatment of pediatric cancer in Guatemala.
Since it was established Fundación Ayúdame a Vivir has managed to raise the necessary funds to
provide the resources needed for the operation, maintenance and growth of the Unidad Nacional de
Oncología Pediátrica (National Pediatric Oncology Unit) - UNOP -.
Partners
The professionalism, confidence, and credibility of the project “Salvando niños con cancer”, promoted
by the Fundación Ayúdame a Vivir, has enabled a partnership with private companies, groups,
associations, sponsors, volunteers and internationally recognized medical institutions. The support
we receive maintains UNOP and allows for a high standard, integral treatment of all patients and their
families. In addition, the solidarity, enthusiasm, and support Guatemalans provide to children with
cancer via the UNETE campaign (private sector-sponsored lottery) is vital to the functioning of the
center.
Pediatric Cancer in Guatemala
Most adult cancers are considered preventable because they can be associated with lifestyle factors
such as smoking, diet and exposure to other cancer-causing agents. At the moment, however,
pediatric cancer is not preventable, only treatable. Unfortunately, while UNOP offers quality treatment
and an encouraging prognosis, it cannot, presently, benefit all Guatemalan children.
Nevertheless we face an unfortunate statistic: UNOP only treats 44% of the affected population. This
means that, despite being committed to curing all children, regardless of religious background,
political affiliation, ethnicity or economic capability, 56% of children afflicted with cancer in
Guatemala receive no treatment at all.
Similar Programs/ Agencies
The partnership between Fundación Ayúdame a Vivir, the organizational and fundraising entity, and
UNOP, the executive entity of the project “Saving children with cancer”, is one of a kind in
Guatemala. UNOP is the only specialized pediatric cancer center in the entire country. As such, it is
the only source of high quality, specialized treatment available to the entire 0-18 pediatric cancer
population.
Staff Qualifications
Both UNOP and Fundación Ayúdame a Vivir boast highly qualified staff – specially trained doctors,
nurses, psychologists, volunteers etc. at UNOP and directors, coordinators and fundraisers at the
foundation – that guarantees efficient operation of the project “Saving children with cancer”.
Additionally, both UNOP and the foundation have a respective Board of Directors that ensures the
optimal functioning of both entities.
Achievements:
1. Over the past nine years, UNOP has treated more than 3,500 children.
2. Survival rates for certain types of cancer have risen at UNOP from 28% in 2000 to
80% in certain types of cancer in 2013.
3. Treatment abandonment rates have decreased dramatically, from 42% in 1997 to
2% in 2013.
4. More than 1,600 children have finished treatment and are considered “cancer free”
5. Establishment of support programs for patients and their families:
a. Child Life Program
b. Palliative care
c. Psychological support programs
d. Shelter for patients and their families
6. The creation of a graduate pediatric oncology program, credited by the University
Francisco Marroquín (Guatemala) and the St. Jude Children’s Research Program.
7. Orientation and support is offered to an average of 35 new families monthly in order
to foster treatment completion.
8. A nutritional recovery program that covers 90% of our patients has been
implemented.
9. In November 2009, the Infrastructure Expansion Project that started in June
2007 came to an end at a cost of $ 3.7 MM (Without equipment)
2
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The expansion project has added 4,895 m2 to the hospital area, solving two
of the main problems UNOP faced:
The overflow of all hospital areas due to increasing demand of services.
The inadequate size of the outpatient area and clinics ( more than 120
patients are seen in this area on a daily basis)
This expansion allows a significant improvement in the quality of treatment and attention given to our
patients and their families.
Challenges:
Despite encouraging results in past years, we still face important challenges:
1. We are committed to increasing coverage (currently only 44% of the affected
population receives treatment)
2. Improving healing rates.
3. Abolishing treatment abandonment.
4. Promote an educational program that will facilitate early diagnosis of pediatric
cancer.
5. Equipment the facilities and support with medications
DESCRIPTION
QUANTITY
Non-invasive Cardiac Monitor
3
Vital Signs Monitor With BIS
3
Portable Monitor for taking vital sings
2
Syringe Perfusor
16
Continuous Infusión Pumps
23
Mechanical Ventilator with capnograph
2
Cardioverter
1
Each patient depending on their protocol
require a minimum of 30 chemotherapies
which have a cost of US$ 641.02 each.
30
UNIT PRICE
$
5,769.23
$
23,717.94
$
5,769.23
$
1,858.97
$
1,858.97
$
23,717.94
$
12,179.48
$
641.02
TOTAL PRICE
US$ 17,307.69
$
71,153.82
$
11,538.46
$
29,743.52
$
42,756.31
$
47,435.88
$
12,179.48
$
19,230.60
3
UNOP Hospital by 2007
UNOP’s Hospital today
4
Unop Facilities 2007
5
Actual entrance
Volunteer’s corner
6
Former chemotherapy area
7
Reception and
waiting areas
Pediatric rooms
8
9
Bedrest area and patient’s rooms
10
Former play area
Music room
11