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Name: Hospital No: DOB: 1 ACPCF Suggested Inclusion for Annual Review Date of Issue: Review Date: May 2010 May 2011 Author: Liz MacIntosh Contact details: Physiotherapy Department Royal London Hospital 2nd Floor Fielden House Whitechapel London E1 1BB Tel: 020 7377 7000, bleep 1081 Email: [email protected] Contributors: Katie Ferguson, ACPCF Committee Member, Kings College Hospital ACPCF Committee 2009 Contents: Introduction Purpose of this paper References Introduction National guidelines1,2&3 recommend all specialist CF centres and CF clinics should aim to provide a comprehensive annual review. The CF Specialist Physiotherapists should carry out an annual review on all children and adults with cystic fibrosis (see CF Trust “Standards of Care”1, CF Trust “Clinical Guidelines for the Physiotherapy Management of Cystic Fibrosis”2 and the ACPCF “Clinical Guidelines”3 for more information). This document makes suggestions to guide physiotherapists during their annual review of children and / or adults with cystic fibrosis. It is comprehensive, and physiotherapists are not expected to complete it all within one annual review sitting. However, elements of the form can be utilised, according to your centres specific aims, and within the time limitations. This document has been written by members of the ACPCF South East Regional members4 and approved by the ACPCF committee. Signature: Printed Name: Date: Name: Hospital No: DOB: 2 Purpose of this Document This document aims to act as a useful tool and reference document for all physiotherapists involved in the delivery of care to people with cystic fibrosis. Annual review assessments are used to enable physiotherapists to carry out an in-depth assessment on their child or adult with CF. It enables physiotherapists to: Gain a baseline on their current clinical status Review their airway clearance technique and adapts / modifies as necessary Review their inhalation therapy Gain an understanding of their exercise tolerance (including use of an exercise test as an outcome measure) Identify other problematic areas e.g. compliance, postural problems, urinary incontinence Make short and long-term plans / goals to guide future practice. The document may in the future act as a source of information and data collection of physiotherapy related problems and treatments in CF to facilitate research and audit in this speciality References 1. 2. 3. 4. Cystic Fibrosis Trust (2001). Standards for the Clinical Care of Children and Adults with Cystic Fibrosis in the UK. The CF Trust’s Clinical Standards and Accreditation Group. Cystic Fibrosis Trust (2002). Clinical Guidelines for the Physiotherapy Management of Cystic Fibrosis. ACPCF recommendation of a working group. Association of Chartered Physiotherapists in Cystic Fibrosis (2009). National Standards of Care. Consensus opinion – South-Eastern Region Physiotherapy Group. Signature: Printed Name: Date: Name: Hospital No: DOB: 3 Suggestions for Inclusion in Annual Review Others present: Complete / update database: Y / N Consultant: Informed consent gained: Patient / parent Shared Care: Y / N _________________ Date or Annual Review Past Medical History Liver □ Port □ Diabetes □ Gastrostomy □ PI □ Gut □ Chest □ Weight □ Social □ Other: No. of courses of ABx over past yr IVs: Oral: Recent cultures: Previous Microbiology: Reason for last admission: Date: Respiratory meds: Current additional antibiotics: Portacath insertion: Y / N Parenteral feeding (PEG): Y / N Gastroesophageal Reflux: Y / N Liver dysfunction: Y / N Sinus problems: Y / N Hay fever: Y / N Stress incontinence: Y / N Glucose tolerance problems / CFRD: Y / N Bone density impaired: Y / N Any fractures: Y / N Any other information (e.g. CXR findings, ABG results, NIV, overnight oximetry): Subjective Assessment Subjective / Present Condition (including current respiratory status) Overall respiratory symptoms (compared to prev. yr) Cough (compared to prev. yr) Nil □ Increased □ Decreased □ ISQ □ Clear □ White □ Cream □ Yellow □ Green □ Brown □ N/A □ Sputum quantity in one physio session Sputum colour Signature: Cough pattern Sputum appearance Better □ Worse □ ISQ □ Variable □ Morning □ Evening □ Night □ Intermittent □ With physio □ Other: Nature of cough Salivary □ Frothy □ Purulent □ Pluggy □ Tenacious □ Loose □ N/A □ Haemoptysis Yes □ No □ Details: Sputum quantity in 24 hours Nil □ Less than 5 mls □ 5-10 mls □ 10-20 mls □ More than 20 mls □ Variable □ Nil □ Less than 5 mls □ 5-10 mls □ 10-20 mls □ More than 20 mls □ Variable □ Printed Name: Productive (expectorates) □ Productive (non expectorates) □ Non Productive □ Paroxysmal □ Other: Date: Streaking □ Frank □ Name: Hospital No: DOB: 4 Same as peers □ More than peers □ Unable to exercise due to SOB □ Coughing on exercise □ SOBAR: Y / N SOBOE MRC Dyspnoea scale (degree of breathlessness related to activities) 1. Not troubled by breathlessness except on strenuous exercise. 2. Short of breath when hurrying or walking up a slight hill. 3. Walks slower than contemporaries on the level because of breathlessness, or has to stop for breath when walking or at own pace. 4. Stops for breath after walking about 100m or after a few minutes on the level. 5. Too breathless to leave the house, or breathless when dressing or undressing. (please circle) Early morning headache: Y/N Comments: Wheeze: Y / N Trigger: Nil known □ Cold □ Exercise □ Pets □ URTI / LRTI □ Other: Relieved Nil □ Rest □ Bronchodilator □ Other: Smoking Parents / Family / Partner: Y / N Patient: Y / N Comments: How many / day: Smoking cessation advice provided: Y / N Additional Information / Quality of life issues / Changes: Objective Assessment Spirometry Actual pre Actual post B/D B/D FEV1 FVC MMEF PEFR Comments (e.g. technique, reliability): SaO2 Last yrs SaO2 Posture Predicted % predicted Last year’s % predicted % Chest shape Normal □ Auscultation: % Hyperinflated □ Other: Normal □ Kyphosis □ Kypholordosis □ Flat back □ Sway back □ Protracted shoulders □ % change following B/D Breathing pattern (include any signs of resp distress): Detailed assessment findings (e.g. head position, sh & Tx ROM, muscle length / strength changes, neuro-muscular control, plumb line, chest pain, chest wall stiffness, are you able to stand as straight as last year? Use a separate page for more info, e.g. body diagram / flexi curve results / photos): Does this cause back pain? Y / N Further musculoskeletal assessment required? Y / N Signature: Printed Name: Date: Name: Hospital No: DOB: 5 Urinary Incontinence: Y/N When: Coughing □ Amount Laughing □ Exercising □ Other: Few drops in underwear □ Dribbles down leg □ Fully empties bladder □ Other: Comments: Teach pelvic floor: Y / N Other management: Equipment Electronic Pari E-flow rapid □ device / Profile I-neb □ compressor Pari Junior Boy (green) □ Pari Turbo Boy (black) □ Pari Uni-light Mobil □ Other: Inhalers used Nebuliser Pari LC plus □ Drugs via Pari LC star □ nebuliser Filter system □ i-Neb □ e-flow □ Econoneb □ Actineb □ Other: Accuhaler □ Turbohaler □ MDI □ MDI + spacer □ Other: Drugs by inhaler DNase □ Colistin □ Promixin □ TOBI □ Salbutamol □ Hypertonic Saline □ Other: Bronchodilator □ Steroid □ Combi □ Other: Check inhaler technique: Y / N Check nebuliser technique: Y / N Comments: Comments: Servicing arrangements for equipment (Who, Cleaning / sterilising routine adequate: Y / N Comments: where, when last serviced): Timing of inhaled medications / nebulisers / physiotherapy treatment discussed so optimum: Y / N Any other equipment required: Y / N If no, re-education given: Y / N If so, what was supplied: Equipment supplied today: Y / N Physiotherapy Technique ACBT □ AD □ / Passive AD □ PEP: Mask □ Pari □ Bubble □ Flutter □ Acapella □ Manual techniques & PD □ Exercise □ HFCWO □ Other: Signature: Frequency Printed Name: Duration When unwell Date: Name: Hospital No: DOB: 6 Self □ Mother □ Father □ Other: Any problems with usual ACT Usual treatment by Sample sent Observation of technique: Sinus problems □ Signs of reflux □ Compliance □ Other: Sputum: For MC&S □ Cough swab □ NPA □ Cough plate □ Gastric aspirate □ None sent □ For AFBs □ Sputum colour / appearance: Exercise Preferred activities and sports Barriers to exercise: Intensity, frequency and duration Location (e.g. at Occupation: home, at school, in gym) Does this include physical activity: Tolerance Better than peers □ Same as peers □ Able to fully participate, but less than peers □ Can only participate in some activities □ Ability to exercise fairly limited □ Breathless on walking, does not participate in formal exercise □ Precautions to exercise Acute exacerbation □ Arthropathy □ Hypoxia □ Exercise induced asthma □ Intestinal obstruction □ Portal hypertension, enlarged spleen & liver □ Pneumothorax □ Low bone density □ Air trapping and sinus disease □ Severe haemoptysis □ Pyrexia □ Special advice: Exercise testing Is it appropriate to do any testing today: Y / N If no, reason why not: Poor cooperation □ Insufficient time for test □ If so, which exercise 10 m shuttle walk test □ test carried out: Modified incremental shuttle walking test □ Signature: Printed Name: Current exacerbation □ Other: 3-minute step test □ Other: Date: Name: Hospital No: DOB: 7 Modified Incremental Shuttle Walking Test SpO2 Heart Rate Rate of Perceived Exertion (Borg) Respiratory Rate & Respiratory Pattern Pre-test (resting) During Post test Recovery (1 min) Recovery (2 mins) Recovery (5 mins) Level 1. / 2. / 3. / 4. / 5. / 6. / 7. / 8. / 9. / 10. / 11. / 12. / 13. / 14. / 15. / Shuttles per level / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / / Total in metres (30) (70) (120) (180) (250) (330) (420) (520) (630) (750) (880) (1020) / (1170) / / (1330) / / / (1530) Number of completed levels: Total Distance: Reason for stopping: Number of Shuttles: Lowest SaO2 recorded: Interpretation of exercise test results: Consideration for oxygen therapy: Recommendations following exercise test: Date to repeat exercise: 10 m Shuttle Walk Test SpO2 Heart Rate Rate of Perceived Exertion (Borg) Pre-test (resting) During Post test Recovery (1 min) Recovery (5 mins) Comments (including total distance travelled): Signature: Printed Name: Date: Perceived Muscular Effort (Borg) Name: Hospital No: DOB: 3 min Step Test Criteria 8 6 years plus: Y / N SpO2 Trained in test: Y / N Heart Rate Rate of Perceived Exertion (Borg) Perceived Muscular Effort (Borg) Pre-test (resting) During Post test Recovery (1 min) Recovery (5 mins) Comments: 15 second count All in 1 breath □ pre-test 1 extra breath taken □ 2 extra breaths taken □ 3 extra breaths taken □ More then 3 breaths taken □ 15 second count immediately post test All in 1 breath □ 1 extra breath taken □ 2 extra breaths taken □ 3 extra breaths taken □ More then 3 breaths taken □ Summary Clinical Evaluation Suggestions / Changes Made Handouts Provided AD / Passive AD □ PEP / Baby PEP □ Acapella / Flutter □ Bubble PEP □ Manual therapy & positioning □ ACBT □ Other: HFCWO □ Exercise □ Posture □ Incontinence □ Nebuliser info sheet □ NIV □ Clinic Meeting – decisions / actions Signature: Printed Name: Date: Name: Hospital No: DOB: 9 Further action plans following Annual Review (date & sign) Reviewed Physiotherapy SMART Goals / Plans (date & sign) Signature: Printed Name: Date: