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1 SYNOPSIS PROFORMA FOR REGISTRATION OF SUBJECT FOR DISSERTION Miss. AKHILA SOMAN. N. S FIRST YEAR M.SC (NURSING) PSYCHIATRIC NURSING YEAR 2009-2011 THE KARNATAKA COLLEGE OF NURSING # 12, KOGILU MAIN ROAD,YELAHANKA BANGALORE – 56 2 RAJIV GANDHI UNIVERSITY OF HEALTH SCIENCES BANGALORE, KARNATAKA SYNOPSIS PROFORMA FOR REGISTRATION OF SUBJECT FOR DISSERTATION Miss. AKHILA SOMAN N. S 1. NAME OF THE AND ADDRES CANDIDATE 1ST YEAR M.Sc (NURSING) THE KARNATAKA NURSING, COLLEGE OF #12 KOGILU MAIN ROAD, YELAHANKA, BANGALORE – 560 064 2. NAME OF THE INSTITUTION 3. COURSE OF THE STUDY AND SUBJECT 4. 5. DATE OF ADMISSION TO THE COURSE TITLE OF THE STUDY THE KARNATAKA COLLEGE NURSING, BANGALORE – 560 064 OF 1ST YEAR M.Sc (NURSING), PSYCHIATRIC NURSING 15/06/2009 “A STUDY TO ASSESS THE EFFECTIVENESS OF STRUCTURED TEACHING PROGRAMME ON HOME CARE PRACTICES AMONG PARENTS HAVING CHILDREN WITH RUCURRENCE OF SCHIZOPHRENIA BETWEEN THE AGE GROUP OF 20-30, ADMITTED IN FAMILY THERAPY WARD AT SELECTED PSYCHIATRIC HOSPITAL, BANGALORE .” 3 6. BRIEF RESUME OF THE INTENDED WORK. INTRODUCTION. “Our greatest battles are that with our own minds” - Jameson Frank The world health organization defines health as “A state of complete, physical ,mental ,social, and spiritual well being of an individual and not merely an absence of disease or infirmity”. It refers that health is an absolute and infinite state, but all individual can not adhere the same feel of health because of innate differences. According to the above definition, mental health as an integral part, component of total health experience.3 Mental health is a state of balance between the individual and the surrounding, world and state of harmony between oneself and others, a co-existence between the realities of the self and that of other people and that of environment.Ginsburg (1995)defined mental health as the ability to hold a job, have a family, keep out of the trouble with the law and enjoy the usual opportunities for pleasure.7 Mental disorders are believed to have been a part of human experience throughout the history. Attitude towards mentally ill have not always been so enlighting. Mental illness was viewed as demonic possession, the influence of ancestral spirits, the result of violating a taboo or neglecting a cultural ritual and spiritual condemnation. So the mentally ill people have been ridiculed, neglected, banned ,persecuted and deprived of their freedoms.9 4 The publications of Sigmund Freud lead to new concepts in the treatment of the mentally ill. Begining in 1950’s pharmacotherapy changed picture of mental health care.5 In the world 500 million people are believed to suffer from neurotic, stress related, somatoform disorders. Unemployment, marital dysharmony, loss of individuals, any major illness, isolation etc lead to these problems.4 Schizophrenia is a devasting mental illness that impairs mental and social functioning and often leads to the development of comorbid diseases. These changes distrupt the lives of patients as well as their families1. According to Brich Wood, etal ,(1989), Schizophrenia affects men and women equally. It is a debiliting mental illness that affect 1% population in all cultures. 12Being a disabling, chronic psychiatric disorder that possess numerous challenges in its management and consequence. It extols a significant lost to the patient in terms of personality suffering, on the care giver as a result of the shift burden of care from hospital to families and on society at large in terms of significant direct and indirect costs that include frequent hospitalizations and the need for long term psychosocial and economic support as well as life time lost productivity.11 Families having Schizophrenia patients experiencing on extensive ‘burden of care’, such as taking care of daily tasks, maintaining adequate nutrition, looking after the personal hygiene, correct medications and accurate follow-up1.Although there is ‘burden of care’, family intervention in Schizophrenia demonstrated the positive impact of various family interventions in improving family environment and reducing relapse. There are several psychosocial interventions available including education, support and management to reduce the relapse rate of Schizophrenia. These psychosocial interventions should be administered with in family groups, because it improve compliance to medication, and reduce the risk of relapse.8 5 Research efforts have been expanded in last 3 decades, and urgent need exists for enhancing development and evaluation of effective family intervention strategies, because family members are the primary care givers, strategies to promote optimal family functioning would results in better care for the patient, there by enhancing patient outcomes.11 6 6.1 NEED FOR THE STUDY. “Choose always the way that seems the best, however rough it may be, custom will soon render it easy and agreeable.” -‘Pythogoras’ According to national advisory mental health council (2007) approximately 30% of the 2.8 million people with severe mental illness receive active treatment in a given year. 70%-80% of children needing mental health treatment do not receive appropriate service. The full spectrum of mental disorders affects 25% of the adult population in a given year. Severe mental disorders, such as schizophrenia, manic, depressive illness and obscessive compulsive disorder affect 2.8% of the adult population (approximately 5 million people) and account for 25% of all federal disability payments.11 Kessler R C, Chin W T, Demler O,Walterse E,(2005), states that an estimated 26.2% of Americans ages 18 and older about one in four adults suffer from a diagnosable mental disorder a given year, a label that typically includes schizophrenia, schizoaffective disorder. Roughly 11.1 million Americans of all ages are receiving formal and informal care at any time. This represents about 4% of the population and is comprised of about 9.5 million receiving care at home or in the community and another 1.6 million residing in nursing home or in intermediate care facilities.11 National advisory mental health council states that about 1 in 5 children in the United states younger than 18 years have a mental health problem severe enough to require treatment.11 Schizophrenia affects 1% of the population in all cultures. Schizophrenia occurs equally in males 7 and females, although typically appears earlier in man with peek ages of onset being 22-28 years for males and 26-32 years for females . The life time prevalence of schizophrenia is 1-1.5%.12 According to Reshmi Nemade, (2007), 1.2% of Americans (3.2 millions) have schizophrenia disorder. About 1.5 million people will be diagnosed with schizophrenia this year around the world. In United states about 100000, people will be diagnosed which translates to 7.2 people per 1000 or about 21000 people in a city of 3 million who are suffering from schizophrenia.35 National Institute of Mental Health (NIMHANS),(2008),states that the prevalence rate for schizophrenia is 1.1% of the population over the age of 18, or in other words at any one time as many as 51 million people worldwide suffer from schizophrenia, they reported that; 4.3-8.7 million people in India 6-12 million people in China, 2.2 million people in USA, Over 2800000, people in Canada, Over 250000, in Britten, are suffering from schizophrenia.35 About 1in every 100 people suffers from schizophrenia or 2.5 million Americans, regardless of race, ethnic group or gender. In 3 out of 4 cases it begins between the ages of 17 and 25 years.95% of people with schizophrenia have it for their life time. The annual cost of family care giving and well fare related expenditure as a result of schizophrenia is 53 billion in the United States.11 8 People with schizophrenia occupy 25% of all inpatient beds. An estimated 1/3rd to one half of the homeless people have schizophrenia in the United states. Schizophrenia is ranked 4th world wide as terms of burden of illness. Patients with schizophrenia, 25% do not respond adequately to traditional antipsychotic drugs. 22-25% of patients with schizophrenia attempt suicide and 10-15% succeeded11. According to Stephen H, Shultz, Stephen W North and Clereland G Shields (2008), New York , schizophrenia begin usually in adolescence or early adulthood less than 20% patients maintain full recovers after 1st episode. Drug treatment and psychosocial interventions such as family therapy are the main approach and preventing relapse.4 Faith C D, (1993), states that prognosis is good for only 20-30% of sufferers, half of the patients diagnosed with schizophrenia will experience repeated relapse and hospitalization. The remaining 20-30%will experience moderate symptoms and a significant degree of disability. It is estimated that 10-16% of patients with schizophrenic die by suicide3. Pai and Kapoor (1993), evaluated the impact of home care for schizophrenia patients in terms of outcome. The findings of the study revealed better clinical outcome, better social functioning and significant reduction in burden on the family, compared to patients who are hospitalized and followed up on outpatient basis10. WHO (2009) started that 90% of people with untreated schizophrenia are in developing countries like India40.The life expectancy of individual with schizophrenia is shorter than that of general population for a variety of reasons. Suicide is an important factor, because approximately 10% of individual with schizophrenia commit suicide and between 20% and 40% make at least one suicide attempt. 4 9 6.2 REVIEW OF LITERATURE. “Literature reviews can serve number of important functions in the research process and they also play a critical role for nurses seeking to develop and evidence base practice.” 2 Review of literature has been presented under the following headings; 1) Literature related to care givers of schizophrenic patients. 2) Literature related to effect of burden of care givers on quality of care provided to schizophrenic patients. 3) Literature related to effects of psychoeducation and family interventions on schizophrenia. 1) Literature related to care givers of schizophrenic patients. Van Wijnguard. B. etal(2009) conducted a study regarding care giver consequences of care givers of patients with schizophrenia. Primary care givers of 252, mainly inpatients with schizophrenia selected. The findings of the study suggested that care givers of schizophrenia worry more and more about nursing tasks, they report less social support and less coping abilities. They explain that in schizophrenia mostly mothers are caring ill adult.37 Garbrecht. A, Grund Mann J (2009) conducted a research about relationship quality in families with schizophrenic adolescent among 43 patients and their care givers using a structured questionnaire. The findings of the study revealed that there is criticism, emotional over involvement, expressed emotion and hostile behavior showed by the care givers to the ill 10 member. This study enlights the need for parental counseling because it help care givers to develop alternative relationships style.27 Sinitz etal (2009) conducted a comparative study regarding routine care given by care givers of inpatients and outpatients with schizophrenia. 147 care givers of both inpatients and outpatients are assessed using a questionnaire. The findings of the study suggested that care giver of outpatients have lower quality of care, high subjective burden and less positive attitude towards patient. They have feeling of timidity, fear and shame36. Brelt Borde. N. J. etal (2009) analyzed the emotional over involvement of care givers towards schizophrenia and patients course of illness. The study conducted using a cross sectional analysis, in a sample of 37 care givers and their ill relatives. The findings revealed that emotional over involvement and burden of care negatively affects the patients outcome. The study also stated that the lack of social support and stigma experienced by care givers of schizophrenic patients.14 Honsy and suye(2008), conducted a study which investigated the burden of the primary family care givers of schizophrenic patients and factors that affect care giver burden. An interview session has conducted among 126 patients and primary care givers . The findings concluded that, the physical and mental health condition of the primary care giver of schizophrenic patients was the most important factor determining the care giver burden level.30 Caquneo Urizar . A. etal(2008), conducted a research to analyze the quality of life and family functioning in schizophrenia patient care givers. A family function questionnaire was administerd to a sample of 49 patients and 70 relatives. The findings revealed that caregivers of 11 schizophrenic patient have poor family functioning, social support and very low quality of care provided to the ill member.25 Karanagn. D.J, White A and Robertson. D(2008) conducted a study, which checked the relationship between expressed emotion is family and relapse of the schizophrenia. Two groups of care giversare selected, one with 54 care givers of psychosis patients and second with care givers of patient having early psychotic episodes.They are assessed using family altitude scale.The findings confirmed that expressed emotion in care givers are strongly associated with relapse of schizophrenia.18 Fredl. M, Wancata. J etal (2008) conducted a research which assessed the gender specific difference between mothers and fathers caring for a schizophrenic patient. They investigated the time spend with patients as well as other aspects of caring. 101 mothers and 101 fathers of same patients suffering from schizophrenia included in study. The findings of the study suggested that about half of mothers spend more time with patients than fathers. Mothers are more involved in patients care than fathers.17 Lueboontha Vatchai. P and Leubothanetchai. O(2006) conducted a study on quality of life, correlated health status and social support of schizophrenic patient care givers. 120 schizophrenic care givers were studied,The findings suggested that 70% of the relatives were with low moderate level of quality of life. Health status and social support of care givers were positively correlated with quality of life.19 Klinik and Poliklinic for Psychiatric and Psychotherapy (2003) conducted a research study regarding the attitudes of relatives of schizophrenic patients, especially those dealing with 12 attitude of social distance and restrictions. 161 relative and close reference patients with schizophrenia were interviewed. The findings, suggested that relatives of schizophrenic patients displaying greater social distance towards any mental disorders.31 2.Literature related to the effect of burden of care givers on quality of care provided to schizophrenic patients. Aggarwal M and Avasthi. A (2009), India, conducted a research on burden of schizophrenia on care givers. 50 care givers of patients with schizophrenia were assessed, the findings revealed that the care givres of patients with schizophrenia experience a huge amount of burden. They have lack of proper socialization. So the care giving to the ill member is low quality and inadequate 23. Caqueo-utizara etal (2009) conducted a research regarding burden experienced by care givers of schizophrenic patients. 258 primary care givers were included. The findings suggested that the poor quality of care given to the ill member is related to the emotional, economic distress number of unfulfilled needs and family relationship problems.24 Higarthag F etal (2008), conducted a study of burden of relatives who have a schizophrenic member in the family. 99 close relatives, 34men and 65 women were assessed using care burden scale. The findings of the study reveals significant greater family burden and poor quality of care provider to ill family member.29 Granden . P and Jenaro. C(2008) explored the care giver burden and social functioning in schizophrenia 101 primary care givers, mostly mothers assessed using a structured questionnaire. 13 The findings suggested higher frequency of relapses, decreased social interaction and very low quality of care provided to patient.28 Moller – Leim Kubler. AM. etal (2008), conducted a research to identify the best predictors of the course of burden during two year follow up period. 60 care givers assessed based on transactional stress model concerning burden well being and quality of care. The findings of the study suggested that after identification of predictors of burden and proper intervention care giver life quality improved, the quality of care provider to ill member increased.20 Garabiaghi A etal(2007) conducted a study to identify the relationship between distress and quality of care provided to the ill family member among care givers of schizophrenic patients. 51 care givers over 5 years were assessed; The findings revealed there is a strong positive relationship between the emotional burden of care givers with the quality of care provided to the ill member.34 Chadd R. K and Ganguly K. K (2007) conducted a research regarding care givers burden and care giving strategy of care givers of schizophrenic patients. A comparative study done with 100 care givers of schizophrenic patients and 100 care givesr of bipolar affective disorder. .The findings of the study revealed, burden remained high in case of schizophrenia and confirmed a positive correlation between burden and care giving strategy.15 Chien W. T. and Chan . S. W(2007) assessed the level of perceived burden of the families caring for a relative with schizophrenia and care giving pattern. A total of 203 family care givers selected and assessed using a social support questionnaire. The findings suggested that family 14 who perceived a higher level of burden were those who lived in family with poor function and showed neglected care for the ill member. 27 Maganasm and Ramirez Garcia J (2007), conducted a study on relation between care giver burden and characteristics of care giving pattern. 85 care givers were selected. The findings concluded that 12 to 18% care givers being at risk of depression. Care giver burden have significant association between strategies and quality of care.33 Chrzastowski. S(2006) explored the relation between the burden of care in parents of patients with schizophrenia and family interactions. Three groups of families were selected having adult schizophrenic patients. They are assessed using a structured questionnaire.The findings revealed high level of burden among families having schizophrenic adult. Parental burden correlated with care giving strategies16. 3) Literature related to effects of psychoeducation and family interventions on schizophrenia; Worakul. P etal (2007) conducted a study on effect of psychoeducation programme on knowledge and attitude upon schizophrenia on primary care givers of schizophrenic patients. After one day psychoeducation programme, which included lecture, group discussion etc, the participants evaluated for knowledge and attitude, before and after the programme The findings revealed that there is a significant difference in the knowledge and attitude of care givers before and after psychoeducation programme. The psychoeducation programme increase knowledge and shape the attitude of care givers. 22 15 Magliano etal (2006) explored the effectiveness of psychoeducation programme family intervention for schizophrenia on patients personal and social functioning as well as relatives burden and perceived support. 71 families were assessed. The findings suggested that psycho education family intervention have a significant impact on functional outcomes of schizophrenia when provided to patients and care givers in real world settings.32 Chien N. T and Chan S. N(2004) conducted a research on effectiveness of multiple family group intervention for families of patient with schizophrenia, in terms of patients psychosocial functioning, rehospitalization compared with a psychoeducation intervention and standard care. 96 families who were caring for a relative with schizophrenia provided with psychoeducation sessions and assessed. The findings of the study reveled that psychoeducation intervention was associated with greater improvement in patient functioning rehospitalization and standard care.26 Barhato A. D and , Aranzo. B (2000) conducted a study on family intervention in schizophrenia. 25 studies were reviewed. The findings concluded that the relapse of schizophrenia is relatively well associated with the psychoeducational approaches, having a positive outcome of illness course and relapse13. Schneider. F etal (1991) explored the effectiveness of psychoeducation group intervention with family members of psychosis patients in terms of benefits for patients clinical outcome. The study involved 16 patients and 16 family members. At 9 month follow up the relapse rate was zero. There was decreased burden experienced by family members, and family functioning improved.21 16 6.3(A) STATEMENT OF THE PROBLEM. “A study to assess the effectiveness of structured teaching programme on home care practice among parents having children with recurrence of schizophrenia between the age group of 20-30 admitted in family therapy wards at selected psychiatric hospital, Bangalore.” 6.3(B) OBJECTIVES. To assess the pre-interventional knowledge of parents regarding home care practices of schizophrenia. To assess the effectiveness of structured teaching program regarding home care practices of schizophrenia. To assess the post-interventional knowledge of parents regarding home care practices of schizophrenia. To associate the knowledge regarding home care practices of schizophrenia with selected demographic variables. 17 6.3(C) OPERATIONAL DEFINITION. Assess It refers to evaluation of desired or intended outcome of the study. Effectiveness It refers to the extent to which the structured reaching program has achieved the desired result that is brought by administration of structured teaching programme. Structured teaching program It refers to the systematically developed instruction and teaching aids, designed for giving instruction and teaching regarding home care practices of schizophrenia. Parent It refers to a father or mother having children with reccurence of schizophrenia Home care practice It refers to the action of providing care for the children with recurrence of schizophrenia in the home setting, by the family members. Child It refers to son or daughter between the age group of 20-30, with recurrence of schizophrenia. 18 Recurrence It refers to the occurrence of schizophrenia often or repeatedly, more than one time. Schizophrenia It refers to the psychotic condition charecterised by a disturbance in thinking, emotion, volitions and faculties in the presence of clear consciousness, which usually leads to social withdrawal. Family therapy ward It refers to a specialized area of psychiatric hospital where the patients along with care givers are treated and the efforts aimed at helping patient’s family to understand and cope with patient’s disease and help in patients recovery. 6.3(D) HYPOTHESIS There is a significant difference between pretest and post test level of knowledge of parents after structured teaching program regarding home care practices of schizophrenia. There is a significant association between post test level of knowledge of parents with selected demographic variables. 6.3(E) LIMITATION This study is limited to the parents of children with recurrence of schizophrenia. This study is limited tom children between the age group of 20-30 having recurrence of schizophrenia. 19 7. MATERIALS AND METHODS 7.1 Sources of data The data will be collected from parents having children with recurrence of schizophrenia between the age group of 20-30, who are admitted in the family therapy ward in selected psychiatric hospital at Bangalore 7.2 Methods of data collection I. Research design Non -experimental method II. Research approach Descriptive approach III. Research variables a) Independent variable Structured teaching programme regarding home care practices of schizophrenia b) Dependent variable Knowledge of parents regarding home care practices of schizophrenia 20 c) Demographic variable It includes characteristics of parents such as age, sex, occupation, income and socioeconomic status. IV. Setting The study is planned to conduct in family therapy ward in selected psychiatric hospital at Bangalore. V. Population The accessible population of the study includes the parents having children between the age group of 20-30, with recurrence of schizophrenia admitted in family therapy ward at selected psychiatric hospital, Bangalore VI . Sample All parents who full fill the inclusion criteria, that is having children between the age group of 20-30, with recurrence of schizophrenia and willing to participate in the study are considered as sample. The sample size of the pilot study will be 6 and for the main study will be 60. VI. Criteria for sample selection a) Inclusion criteria Parents having children between the age group of schizophrenia. 20-30, with recurrence of 21 Both father and mother of patient with reccurence of schizophrenia Parents who can communicate freely in Kannada or English b) Exclusion criteria parents who are willing to participate in the study Children who does not belong to the age group between 20-30. VII. Sampling technique Non probability convenience sampling technique is used for selecting the sample. VIII. Tool for data collection Structured questionnaire scheduled consists of following session, which is constructed in English/Kannada language. Section A Demographic proforma includes sample number, age, sex, educational status, occupation, income/socio-economic status Section B Questionnaire on knowledge This consists of questionnaires to assess the knowledge regarding home care practice of schizophrenia among parents. 22 VIII. Methods of data collection Formal permission will obtain from the managing director of selected hospital, to conduct the study. Informed consent will be taken from samples and the sample will be selected on the basis of selection criteria. After that the researcher will collect data from the samples. Phase 1 Pretest will be conducted to assess the knowledge of parents using a self administered questionnaire. Phase 2 A structured teaching progarmme on home care practices of schizophrenia will be given to the parents. They are encouraged to clarify their doubts Phase 3 After that post test will be administered to assess the level of knowledge to the same subjects by using the same questionnaire. Duration of the study ; 10 days IX. Plan for data analysis Data planned to be analysed by using descriptive and inferential statistics. a) Descriptive statistics Used to analyse the frequency percentage, mean, median, standard deviation, used to assess the knowledge of parents. 23 b) Inferential statistics Chi-squire test will be used to associate knowledge of parents with selected demographic variables. c) Projected outcomes After the pretest, the investigator administers structured teaching programme to parents regarding home care practices of schizophrenia. Which will help them to initiate a positive step in preventing recurrence of schizophrenia using family interventions. 7.3 Does the study requires any investigation or intervention to the patients or other human being or animals? No. 7.4 Has ethical clearance been obtained from the concerned authority to coduct the study? Yes. After obtaining ethical clearance from the institution, permission obtained from the concerned authority of selected hospitals and informed consent from subject to conduct the study. 24 8. 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Sinitz L, Schrank B, Amering M,(2009), Utilizationnof a group for relatives;179(1):613-627, http:/www.ncbi.nlm.nih.gov/pubmed19272289, www.pubmed.com 29 37.Vanwijingaurden B, Koeter M, Knapp M(2009), Caring for schizophrenia;161(1):62-69 http:/www.ncbi.nlm.nih.gov/pubmed/19625067, www.pubmed.com 38.WHO,(2009), Schizophrenia, http:/www.who.in/entity/mentalhealth/policy/en/schizophrenia, www.google.com people with 30 9. Signature of the candidate : 10. Remarks of the guide : 11. Name and designation of 11.1 Guide : 11.2 Signature : 11.3 Co-guide : 11.4 Signature : 11.5 Head of the department : 11.6 Signature : 12. Remarks of the Principal : 12.1 Signature : 31 32