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A SPECIAL EDUCATION GUIDELINE FOR ATTENTION DEFICIT DISORDERS — ISSUES OF DEFINITION & RECOMMENDED PRACTICES N U M B E R 2 TO: FROM: Principals, Special Education Staff, Student Support Team Members Kim Gibbons, Stuart Harder, Korky Gurkanlar RE: DATE: ADHD — Issues of Definition & Recommended Practices June 11, 2008 This is a revision. Please replace previous Guideline with this number and file this one. Attention Deficit Hyperactivity Disorder (ADHD) has become a significant family and educational issue. Defining the functional characteristics of students diagnosed with ADHD and formulating an appropriate educational response is currently a matter of concern and interest. The purpose of this guideline is to provide an overview of ADHD, school related problems, assessment, treatment, and best educational practices. Overview of ADHD Prevalence Epidemiological (population survey) studies indicate that approximately 3-7% of children in the United States can be diagnosed with ADHD (Barkley, 1998; Pastor & Ruben, 2002). In an average classroom of 20 students, this means that one student in every classroom will have ADHD. Boys with the disorder outnumber girls in both clinic–referred (approximately a 6:1 ratio) and community-based (approximately a 3:1 ratio) samples. More than 50% of children with ADHD receive psychotropic mediation for this condition, while approximately 12% and 34% receive special education and mental health services, respectively (Pastor & Ruben, 2002). Thus relative to other childhood conditions (e.g., autism, depression, cognitive disabilities), ADHD is a “high incidence” disorder that is particularly prominent among males. Sp.Ed.G.#2 Page – 1 of 17 School Related Problems of Children with ADHD Core Behavior Difficulties Children who are diagnosed with ADHD tend to have difficulty with inattention, impulsivity, and/or over-activity. Problems with inattention, impulsivity, and over-activity may serve as a “magnet” for other difficulties that are, in some cases, more severe than the core deficits of ADHD (Stoner & DuPaul, 2003) such as: 1. Difficulty completing independent seatwork due to problems sustaining attention to effortful tasks, 2. Inconsistent performance on class work due to lack of attention to task instructions, 3. Poor test performance, deficient study skills, disorganized notebooks, desks, and written reports; and a lack of attention to teacher lectures and/or group discussion, 4. Poor accuracy on class work and homework due to impulsive, careless response style on these tasks, 5. Leaving seats without permission, playing with inappropriate objects, repetitive tapping of hands and feet, and fidgeting in their chairs due to overactivity. The three most frequent correlates of ADHD are: 1. Academic underachievement, 2. High rates of noncompliance and aggression, and 3. Disturbances in peer relationships. Subtypes of ADHD The current definition of ADHD includes a list of 18 behavioral symptoms divided into two sets (inattention and hyperactivity-impulsivity) of nine symptoms each (American Pediatric Association, 2000). There are three subtypes of ADHD: 1. Combined Type (ADHD-CT): Children exhibit at least six of the inattention symptoms and at least six of the nine hyperactive-impulsive symptoms. 2. Predominantly Inattentive (ADHD-IA): Children exhibit at least six inattention symptoms but less than six hyperactive-impulsive symptoms. 3. Predominantly Hyperactive-Impulsive (ADHD-HI): Children exhibit at least Sp.Ed.G.#2 Page – 2 of 17 six hyperactive-impulsive symptoms but less than six inattention symptoms. Inattention Symptoms: a) Often fails to give close attention to details or makes careless mistakes in schoolwork or other activities; b) Often has difficulty sustaining attention in tasks or play activities; c) Often does not seem to listen when spoken to directly; d) Often does not follow through on instructions and fails to finish schoolwork, chores, or duties in the workplace; e) Often has difficulty organizing tasks and activities; f) Often avoids, dislikes, or is reluctant to engage in tasks that require sustained mental effort; g) Often loses things necessary for tasks and activities; h) Is often easily distracted by extraneous stimuli; i) Is often forgetful in daily activities. Hyperactivity-Impulsivity Items a) Often fidgets with hands or feet or squirms in seat; b) Often leaves seat in classroom or in other situations in which remaining seated is expected; c) Often runs about or climbs excessively in situation in which it is inappropriate; d) Often has difficulty playing or engaging in leisure activities quietly; e) Is often on the go or often acts as if driven by a motor; f) Often talks excessively; g) Often blurts out answers to questions before the questions have been completed; h) Often has difficulty awaiting turn; i) Often interrupts or intrudes on others. Sp.Ed.G.#2 Page – 3 of 17 Given that the symptomatic profile will vary across individuals, children classified with ADHD are a heterogeneous group. In fact, there are at least 7,056 possible combinations of 12 out of 18 symptoms that could result in a diagnosis of ADHD-CT. To be considered symptoms of ADHD, the behaviors must have been initially exhibited in early childhood (i.e., prior to age 7) and must be chronically displayed across two or more settings. The ADHD diagnosis is usually determined by establishing the developmental deviance and pervasiveness of the symptoms. At the same time, it is imperative to rule out alternative causes for inattention, impulsivity, and over-activity. These may include poor academic instruction and management practices, gross neurological, sensory, motor, or language impairment, mental retardation, or severe emotional disturbance. ADHD With Versus Without Aggression Children with ADHD and aggression (i.e. oppositional defiant disorder or conduct disorder) exhibit greater frequencies of antisocial behaviors such as lying, stealing, and fighting than those who are hyperactive but not aggressive (Jensen, 1997). Children with ADHD and aggression will require more intensive and continuous professional service delivery to achieve favorable outcomes. ADHD With Versus Without Internalizing Disorder Approximately 13-50% of children with ADHD exhibit symptoms of an anxiety or depressive disorder (Jensen, 1997) Some studies have found diminished effect of psychostimulant medication for children with ADHD and internalizing symptoms relative to children with ADHD without internalizing symptoms. This finding may have implications on treatment. Possible Causes of ADHD There is no one single cause of ADHD. Most of the research examining etiology of ADHD is correlational. Thus, we need to be cautious about attributing “causal status” to identified variables. Variables that have received the greatest attention in the literature are neurobiological factors and hereditary influences. Environmental influences (e.g., family stress, poor parental discipline) appear to impact the severity of the disorder, but do not play a causal role (Barkley, 1998). “The most prudent conclusion regarding the etiology of ADHD is that “multiple neurobiological factors may predispose children to exhibiting higher rates of impulsivity and motor activity along with shorten that average attention spans Sp.Ed.G.#2 Page – 4 of 17 compared to other children. The most promising evidence points to a hereditary influence that may alter brain functioning” (Stone & DuPaul, 2003, p. 15). It is important to remember that EVERYONE exhibits symptoms of this disorder on occasion. What sets children with ADHD apart from their peers is that they may be genetically predisposed to exhibit these behaviors at a significantly higher rate than others of the same age and gender (Stoner & DuPaul, 2003). Long-Term Outcomes of Children with ADHD For many years, it was assumed that children with ADHD would outgrow their behavior control difficulties when they reached adolescence or adulthood. This assumption has not been supported through longitudinal studies of the disorder. As children with ADHD progress into their teenage years, the absolute frequency and intensity of their symptoms decline (Barkley, 1998). In other words, they improve with respect to attention, impulsivity, and especially overactivity as compared to their own behavior during preschool and elementary years. However, they typically remain discrepant from their same-age peers in these core areas. Over 60% of adolescents with ADHD exhibit frequent defiance and noncompliance with authority figures and rules (Barkley, Fisher, et al., 1990). More than 40% of teens with ADHD display antisocial behaviors such as fighting, stealing, and vandalism (Barkley, Fisher, et al., 1990). When compared to their non-ADHD classmates, adolescents with ADHD are at greater risk for grade retention, school suspensions, dropping out of school, and substance abuse. The two most significant childhood variable that predict adolescent and adult outcomes appear to be: 1. Early onset (prior to ages of 8-10) of antisocial behaviors, especially lying. Stealing, and fighting, and 2. Peer rejection in childhood. Rather than try to “cure” the disorder, school professionals and parents should help children “compensate” for their behavioral control problems. Assessment of ADHD in School Settings Multiple assessment techniques typically are used across home and school settings in the comprehensive evaluation of children who may have ADHD. While school personnel are not qualified to diagnose ADHD, school professionals must be knowledgeable regarding appropriate evaluation procedures. School psychologists and teachers are in a unique position to collect information relative to an ADHD diagnosis and provide this information to parents and Sp.Ed.G.#2 Page – 5 of 17 physicians. 1. Problems with attention and behavioral control are two of the most common reasons for referral. 2. School psychologists have direct access to sources of information and data (e.g., observations of behavior in natural settings) crucial to the differential diagnosis of ADHD. 3. ADHD is prevalent among certain populations (e.g., children with learning disabilities). Sp.Ed.G.#2 Page – 6 of 17 Sp.Ed.G.#2 Page – 7 of 17 When special education eligibility is considered under the category of Other Health Disability (OHD), schools must verify that a medical diagnosis has been conducted using DSM-IV criteria. While the diagnosis of ADD/ADHD may be made by a licensed physician, mental health or medical professional licensed to diagnose the condition, a written and signed documentation of a medical diagnosis must be provided by a licensed physician. (See When ADHD is OHD above [Source: MDE Other Health Disabilities Manual].) Refer to the Other Health Disabilities (OHD) criteria worksheet located in this guideline. There is no single test for ADHD. Multiple assessment techniques are used across home and school settings. Overview of Assessment Methods There are five major components of an ADHD evaluation: 1. Interviews with parents and teachers to determine the presence or absence of DSM-IV symptoms as well as to identify the current factors serving to maintain identified problem behaviors. 2. Review of school records to help pinpoint the onset and course of ADHDrelated difficulties. 3. Questionnaires or rating scales completed by parents and teachers provide information to establish the severity of ADHD-related behaviors relative to a normative sample. Parent Rating Scales a) Child Behavior Checklist (CBCL; Achenbach, 1991b) b) Behavior Assessment System for Children-Second Edition (BASC-2; Reynolds & Kamphaus, 2004) c) Connors Parent Rating Scale (CPRS, Conners, 1997) d) ADHD Rating Scale–IV e) Home Situations Questionnaire Sp.Ed.G.#2 Page – 8 of 17 Teacher Rating Scales a) Teacher Report Form (TRF; Achenbach, 1991c) b) Behavior Assessment System for Children-Second Edition (BASC-2; Reynolds & Kamphaus, 2004) c) Connors Teacher Rating Scales (Conners, 1997) d) ADHD Rating Scale–IV (DuPaul et al,, 1998) e) School Situations Questionnaire (SSQ-R; DuPaul & Barkley, 1992). f) Social Skills Rating System (Gresham & Elliott, 1990) g) Academic Performance Rating Scale (DuPaul, Rapport, & Perriello, 1991) 4. Observation of student performance in and across natural settings on several occasions to establish the frequency and duration of various target behaviors. a) ADHD Behavior Coding System (Barkley, 1998) b) Behavior Observation of Students in Schools (BOSS, Shapiro, 1996) c) School Hybrid Observation Code for Kids (SHOCK) d) Deno Behavioral Rating System 5. Academic performance data are collected in basic skill areas. a) General Outcome Measures of Basic Skills 1) Oral Reading Fluency 2) Early Literacy Measures (Letter Sound Fluency, Blending, Segmenting, Nonsense Word Fluency) 3) Math Applications and Math Facts 4) Written Expression b) Completion and accuracy rates on assigned work c) Sp.Ed.G.#2 Organization and study skills Page – 9 of 17 Treatment of ADHD The prescription of psychotropic medication is the most common treatment for ADHD. Approximately 1.5 million children are treated with psychostimulant medications in the United States (Safer & Zito, 2000). The average duration for medication use is between 2 and 7 years, depending on the age of the child. Numerous studies have consistently demonstrated the short-term enhancement of behavioral, academic, and social functioning of the majority of children being treated with stimulant compounds. However, the limitations of pharmacology (i.e. side effects, lack of evidence for long-term efficacy) have led to the adoption of multimodal treatment approaches. Medication Effects, Non–effects, & Side–effects Pharmaceutical interventions are often prescribed to lessen the frequency and intensity of disruptive student behavior, and the change in behavior following medication startup is potentially sudden and striking. The experimental and clinical literature supports favorable short-term behavioral and self–control benefits (e.g., on-task improvement and increased ability to inhibit impulsive responding) to students taking stimulant medications. Long term, sustained improvements in behavior across settings, however, is variable and somewhat questionable. Reviews of stimulant medication effects on academic productivity and accuracy have found short-term improvements when using sensitive measures (i.e., Curriculum Based Measurement). However, it remains to be seen whether shortterm improvements in academic performance lead to greater scholastic success in the long run. When CBM measures are used, findings typically show a wider range of individual responsivity to medications. As such, greater use of these measures is strongly recommended for determining individual dosage levels. It is likely, because of misdiagnosed ADHD, that neuroleptic medications (e.g., Ritalin or Imipramine) are prescribed in cases for which no need have been established. As all neuroleptic medications produce side–effects of varying intensity, frequency, and severity, it is the case that a potentially significant number of students are exposed to unnecessary risk. Moreover, because use of medication is the preferred treatment by physicians, parents, and teachers, behavior-environmental interventions are often not attempted or are implemented without the necessary thoroughness. The most frequently reported acute side effects to stimulant medications are appetite reduction (particularly at lunch) and insomnia. Other less-common side effects include irritability, headaches, stomachaches, and, in rare cases, motor and/or verbal tics. Sp.Ed.G.#2 Page – 10 of 17 One other side effect is “behavioral rebound” in the late afternoon. This behavioral rebound phenomenon is typically described as deterioration in conduct that occurs in the late afternoon or early evening following daytime administration of the medication. This effect occurs in about 33% of children treated with stimulant medication, however, the magnitude of the rebound varies considerably across days for individual children. The only long-term side effect of stimulant medication is suppression of height and weight gain. A rebound in growth following discontinuation of the treatment seems to occur with little change in eventual adult height or weight. The decision to begin a trial of medication should not be an automatic response following a diagnosis of ADHD. The parents and physician, in collaboration with the school, should consider the following factors prior to recommending a medication trial: 1. Severity of the ADHD symptoms and disruptive behavior. The greater the severity of attention and behavioral problems, the more likely a medication trial will be necessary as a supplement to other interventions. 2. Prior use of other treatments. If other interventions (e.g., classroom behavior management program) have not been implemented, a trial of medication may be postponed. If limited success has been obtained with other interventions, then medication should be considered as an adjunctive treatment. 3. Empirical support for medication. The specific medication to be used should be determined, in part, based on prior empirical studies of this treatment. CNS stimulants have a strong track record of success in treating this disorder. However, in practice, other medications may be used in isolation or in combination with stimulants, despite minimal research literature to support the decision. 4. Parent attitude toward use of medication. Parents who are strongly “antimedication” should be offered the opportunity to research the advantages and disadvantages of pharmacotherapy. Parents should not be coerced into a mediation trial given the higher likelihood of low treatment compliance in such cases. 5. Adequacy of adult supervision. The parents must be functioning at a level where they will adequately supervise the administration of the medication and guard against its abuse. All adults associated with the child’s treatment program must make an ongoing investment of time necessary to determine the short and long –term efficacy of the medication regimen. Child attitude toward medication. It is important that the use of medication is discussed with the child and that the rationale is explained. Sp.Ed.G.#2 Page – 11 of 17 Measures to Assess Medication Response in the Classroom 1. Teacher Rating Scales a) Connors Teacher Rating Scales (Conner’s, 1997) b) ADHD Rating Scale –IV (DuPaul, Power, Anastopoulos, &Reid, 1998) c) School Situations Questionnaire-R (DuPaul & Barkley, 1992) d) Academic Performance Rating Scale (DuPaul et al., 1991) e) Side Effects Rating Scale (Barkley, 1990) 2. Parent Rating Scales a) Connors Parent Rating Scale (Conners, 1997) b) ADHD Rating Scale –IV (DuPaul, Power, Anastopoulos, &Reid, 1998) c) Home Situations Questionnaire-R (DuPaul & Barkley, 1992) d) Side Effects Rating Scale (Barkley, 1990) 3. Direct Observations of School Performance a) Classroom Observation Code (Abikoff et al., 1997) b) ADHD Behavior Coding System (Barkley et al, 1988) c) Behavior Observation for Students in Schools (Shapiro, 1996) d) On-Task Behavior Code (Rapport & Denney, 2000) e) ADHD School Observation Code (Gadow et al., 1996) 4. Academic Performance Measures a) Percentage of assigned work completed correctly b) Curriculum Based Measures 5. Self-Reporting Scales a) Conners-Wells Adolescent Self-Report of Symptoms (Conners et al., 2000) Sp.Ed.G.#2 Page – 12 of 17 Steps to School-Based Medication Evaluation 1. Parent obtains prescription (e.g., Ritalin, 5 mg) from pediatrician. 2. Staff member not directly involved with evaluation (e.g., school nurse) and physician determine the order of administration of several doses (i.e., 5, 10, 15, 20 mg), including a nonmedication trial (placebo). 3. Parent (or school nurse) administers dose according to predetermined schedule on a daily basis. 4. Assessment measures collected on a weekly (daily) basis: a) Teacher ratings b) Parent ratings c) Side Effects rating d) Observation of classroom behavior by an independent observer during independent seatwork e) General Outcome Measures of Basic Skills 1. Assessment measures must be taken to reflect the child’s behavior during the active phase of the medication (i.e., 2-4 hours post ingestion for short-acting preparations). 2. Are there “significant” changes in behavior (especially academic) at any dose? 3. If so, what is the lowest dose that brings about the greatest change with the fewest side effects? 4. Report results to child’s pediatrician. Ongoing Monitoring of Medication Response Once a student’s optimal dosage is established, the measures described above should be collected periodically throughout the school year to evaluate the need for dosage adjustments or the onset of side effects. It is usually a good idea to have the parents complete the Side Effects Rating Scale on a monthly basis and submit this to the physician. The Educational Issue In short, it has become acceptable and desirable in our culture to see some children as disordered rather than as unique learners needing individualized instructional or medical interventions. 1. ADHD can be a catch–all phrase describing students who have long been Sp.Ed.G.#2 Page – 13 of 17 problematic and challenging to school programming. Terms used in the past to label or describe student behavior ranged from unflattering and demeaning to terms more medically–centered. Differences in terminology can create confusion and misunderstandings between parents and school personnel and can lead to turf issues between professionals. Teams must replace vague and imprecise conceptualizations of student behavior with clear accurate statements. Accuracy allows concise problem identification leading to meaningful interventions for students, builds trust in the competence of school personnel by parents and advocates, and promotes a confidence among school administrators and staff in their ability to positively affect students' lives. 2. The suitability, adequacy and efficacy of special education's categorical service–delivery model is under close scrutiny by parents, advocates and educators. Also, the increasing expense of providing a civil rights–based educational program is provoking a public backlash that may hasten changes in the provision of services to students with disabilities. On the positive side, however, is a growing recognition among educators that all students can learn if provided the right instruction. The previous Congress denied ADHD the status of a separate category but the Education Department provided the equivalent of categorization by allowing ADHD– diagnosed students to be easily classified as Other Health Disability (OHD), Emotional/Behavioral Disability (EBD) or Specific Learning Disability (SLD). 3. There is controversy over the diagnosis of students with these needs. School districts retain their role as decision makers regarding special education assessment and eligibility, subject to parental rights. Schools are being called on to make staff available to diagnose ADHD. However, ADHD is currently not a special education category but is a medical diagnosis. School staff is not licensed to make medical diagnoses as part of special education assessments. Minnesota eligibility rules require a medical condition to be identified by a physician as one part of Other Health Disability eligibility. 4. Education District schools are currently using a problem-solving model that emphasizes the appropriateness of the regular classroom for most students and sees student problems as program and intervention challenges. The model places responsibility for problem resolution on all school staff who by assignment or position have a role to play in a particular student's education. Since large numbers of staff are not available for pull–out programs, the model uses pre-referral and formal behavioral consultation as the preferred process for intervention. Sp.Ed.G.#2 Page – 14 of 17 Recommended Practices 1. Students diagnosed as having an attention deficit disorder should be served and their educational needs met. This should be done through the problem solving process) rather than through special education assessment and placement. If problem-solving interventions are ineffective and the instructional needs of the student exceed what can be provided by the regular education teacher, then the team may consider a special education evaluation. Provision of special education services to an ADHD student is the first option only when parents insist on a special education assessment, and only after a discussion with the parents concerning other options. 2. Whether in problem-solving intervention development, implementation of 504 plans, or special education service delivery, interventions must be tailored to the functional characteristics of the student’s behavior and not the diagnostic category. (Keeping this caution in mind, the appendix contains a number of potential interventions for students having ADD diagnoses.) 3. If and when special education assessment and placement occur, the preferred service–delivery category should match the needs of the student. Teams should consider the labels of EBD, SLD, and/or OHD. No matter what eligibility category is considered, eligibility criteria must be met. In a problem solving non-categorical system, the labeling and categorization of children is done for child count and other administrative reasons only. Most parents will be supportive of this concept if staff embrace and support it. Case managers will be assigned based on the needs of the student, however, a staff member licensed in the area of student disability must be on the IEP team. 4. It is important that school staff shows great sensitivity to parents' and outside professionals' beliefs regarding this matter as great value may be placed on the explanatory potential of the ADD label. School staff members must take sufficient time to explain our problem solving model to parents and show how their child's needs will be met using existing services. We are, of course, assuming that the student's needs have been accurately identified. 5. Until the political issues surrounding the needs of ADHD–diagnosed students are resolved, and to ensure a productive smooth process, school psychologists in each district are designated by their official job description as the ADHD contact person. The responsibilities of the contact person should be: a) To serve as a contact source for parents, teachers and outside professionals. Other school staff should allow the school psychologist to function effectively in this role. Sp.Ed.G.#2 Page – 15 of 17 b) To handle contacts and inquiries from the sources listed above in an expeditious manner that leaves parents and others satisfied that the school will meet the needs of their child or client. c) To encourage the use of the problem-solving model and to facilitate whichever process is selected for problem resolution. d) To hand over responsibilities when parents, and internal and external contacts seem satisfied with the process and when those assuming responsibility seem comfortable with the process. 6. Other school staff have roles in the problem solving process, particularly in the case of ADD: a) The school nurse should interpret medical information, facilitate medication dispensation, and assist, when necessary, in the evaluation of medication efficacy and side effects. The nurse's role is consultative to the ADD contact person or case manger. b) OHD staff should not be involved in problem resolution. Even in the case where a student has been given the OHD category, the requirement to have a member on the IEP team "knowledgeable" about the disability is met by having the school nurse, school psychologist, and/or social behavior service provider on the team. OHD services may be provided to individual students to assist the team with interventions. c) Social behavior staff and Teacher Assistance Teams (TATs)/Student Assistance Teams (SATs) facilitators should retain their roles in providing services. Students referred to as ADHD are particularly likely to need the consultation services of social behavior service providers. 7. School staff should refer students and their families for medical assessment only after implementing a behavior consultation–based intervention and a team–based intervention. These referrals are always just suggestions for parental consideration and not formal school recommendations. School staff should provide full cooperation in making the referral and cooperating in assessment and programming with outside agencies. 8. Diagnosis of a child as ADHD should not alone be the impetus for special education placement. This process should be used when student behavior is resistive to treatment after documented interventions and after medication trials. Sp.Ed.G.#2 Page – 16 of 17 QuickTime™ and a TIFF (Uncompressed) decompressor are needed to see this picture. Sp.Ed.G.#2 Page – 17 of 17