Survey
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
F: SEND ME STUF YOUR SHOUT y JB, The Youth Gu cent 11 Greenfield Cres Edgbaston Birmingham B15 3AU 82 Phone: 0121 455 89 53 Mobile: 07590 5311 .uk email: [email protected] Issue 4 Look good? NEWSFLASH! Kev told you about this at the Open Day, and loads of you said you wanted the recipe, so here it is! What happened @ LHM last month... ♦ The new main LHM website went up! Deb and Gwen spent AGES making sure that it was just right. Check it out at www.lhm.org.uk Riddle me this... Recipe 1. What goes up and down stairs without moving? 2. Give it food and it will live; give it water and it will die? 3. What can you catch but not throw? 4. I run, yet I have no legs. What am I? 5. Take one out and scratch my head, I am now black but once was red. 6. What goes around the world and stays in a corner? 7. What gets wetter the more it dries? 8. I am full of holes, yet I still hold water, what am I? 9. The more there is, the less you see? 10. They come at night without being called and are lost in the day without being stolen. What are they? Need the answers? Email [email protected] with “Riddle” in the subject line and it’ll be sent right along to you. Or text 07590 531153 with the word riddle and the question number (eg Riddle4). Usual text rate, ask bill payer please! If you want this delicious cake to eat, then you will need… Ingredients 4 tablespoons flour 4 tablespoons sugar 2 tablespoons cocoa 1 egg 3 tablespoons milk 3 tablespoons oil 3 tablespoons chocolate chips (optional) a small splash of vanilla extract (optional) 1 large coffee mug Method ♦ Add dry ingredients to mug, and mix well. ♦ Add the egg and mix thoroughly. ♦ Pour in the milk and oil and mix well. ♦ Add the chocolate chips (if using) and vanilla extract, and mix again. ♦ Put your mug in the microwave and cook for 3 minutes at 1000 watts (high). ♦ The cake will rise over the top of the mug, but don't be alarmed! ♦ Allow to cool a little, and tip out onto a plate. ♦ You can add a dollop of ice cream if you like, too! There you have it. You are now only ever 5 minutes away from a delicious chocolate cake! Bon Apetit Patron Baroness Howarth of Breckland OBE A company limited by guarantee, registered in England and Wales, number 06442071, registered office 11 Greenfield Crescent, Edgbaston, Birmingham, West Midlands, B15 3AU Registered charity number 1123290 OPEN DAY 2009 ♦ Well, as you can see, we had our Open Day. I think it was a big success, and I hope that more of you will be able to make our next Youth Event I’ve started to ge t a few things se nt in, which is great! Get involv ed and post or em ail me a joke, story, or review , and if it gets pu blished I’ll send you somet hing to say than ks! Can you crack these ten tricky riddles? March/A pril 200 9 ♦ Half of the Youth Council met and gave our Chief Exec, Suzie, a real grilling. They asked questions like “Can the young members have a say in the really important decisions?” and “What has LHM got planned to help the siblings?” ♦ We had some more meetings about our research questionnaire. When it is ready, I would love for as many of you to get involved as possible! ♦ I found a new charity called ‘Over The Wall’ that does camps for any kid with a heart condition, more next month! Young members of LHM are joined by Alex Bicknell (far left) and Caroline Duffy (far right), both grown ups with a heart condition, who joined the team to share advice and get stuck in with the sport and drama I think that the Open Days are They help adults with poorly hearts, just like we help children with heart conditions. my favourite bit of my job. We also talked about transition, which is a Actually, any time that I get to spend with long posh word, but all it means is change. any of you lot is ace. I love being able to We talked about the transition (or change) mess about for a weekend. from your child doctor to your adult doctor, I know that a lot of you couldn’t make this and how we can make this easier, and less last Open Day, scary! because it was too We also did a quick talk on the research I far to travel, so we keep batting on about, and lots of footy and will do our best to drama, which was loads of fun. make sure that next time we can have one a bit closer to where you are. Obviously we can’t get it right every time, but we’ll do our best. I want to meet as many of you as I can, and I’d love for you all to have the chance to chat to each other. In case you weren’t at our Open Day on the 15th March, I thought you might like to know what we did. If you have any questions on any of these We had a talk from GUCH, which is a things (transition, GUCH, footy) you can charity for Grown Ups with Congenital email me of ring me! Hearts. So what do the surgeons do? Single ventricle (this means one pump) heart conditions like Hypoplastic Left Heart Syndrome are non-correctable. This means, unfortunately, there are no procedures or operations that can turn a Hypoplastic Heart into a normal hearts like the one on the opposite page. Check out January’s newsletter to recap on how a normal heart works, and what the heart’s job is. Then have a look at how a Hypoplastic Left Heart is different. Think about what the problems with a Hypoplastic left heart could be? BUT, what they can do, is redirect the blood, so that the red (oxygenated) blood is being pumped to the body by the hearts one working pump: the right ventricle. This is called ‘palliative’ surgery. So this is a perfectly healthy, normal heart. Your heart has two main jobs: 1. It pumps blood full of lovely oxygen to your brain and your body 2. It pumps blood without any oxygen to your lungs, where it can get the lovely oxygen! Follow the steps and see if you understand how the surgeon re-directs the blood through the heart, so that it can be pumped by the right ventricle to the body and the brain. For some of you, this is the first part of the Fontan operation, and is normally done when you are aged between 3 months and 9 months. The ‘ventricles’ (big word, but it just means chambers or compartment) are the two big bags at the bottom of the heart. They are strong and pump the blood. The right ventricle pumps the blue blood to the lungs. The left ventricle pumps the red blood to the body. Sometimes hearts don’t come out like this though. Sometimes they come out different. Stage 1 This surgery is normally done when you are only a few days old. The surgeon does three things to make sure that blood with oxygen (red blood) can get around the body, and to the brain! Hypoplastic mea ns ‘small’ or unde rdeveloped 4 There are usually FOUR big differences between a Hypoplastic Left Heart and a normal heart 1 There is a hole between the left and the right collecting chambers (atriums). The posh name for this is a Atrial Septal Defect. 2 Good question! The left pumping chamber (ventricle) is very small and hasn't developed very well. This means that is not strong enough to pump red (oxygenated) blood to the body and the brain. The Aorta is the tube (or blood vessel) which carries red (oxygenated) blood to the body and brain. Because the left pumping chamber doesn’t work, the aorta is very small and thin. 3 Valves are like little doors in the heart. They only open one way though, this stops blood going the wrong way through the heart. The valves on the left hand side of the heart will usually be blocked. The hole between the left and right collecting chambers (atriums) is made bigger so that more red (oxygenated) blood can get into the right side of the heart, where it can be pumped around the body by the right ventricle. After this surgery, any blue blood coming from the head and the neck goes straight into the lungs, where it can get some oxygen. The surgeon cuts the ‘vena cava’, and sews it to the ‘pulmonary artery’. The pulmonary artery takes the blue blood straight to the lungs, so it can get oxygen and turn into red blood. The bottom (or trunk) of the ‘pulmonary artery’ (look back to the normal heart picture) is attached to the ‘aorta’. This makes the aorta bigger, and means more blood can get to the body A small tube connects the aorta to the pulmonary artery, which means used blood can get to the lungs to get oxygen. This tube is called a ‘shunt’. This is pretty tough stuff! If you are struggling, why don’t you ask your parents to walk you through it. It is much easier to learn when somebody is showing you! Stage 2 Next month….right-sided conditions and the Fontan operation!