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CANCER:
PAEDIATRIC AND YOUNG ADULT
May 2010
This bulletin is produced every two months and relates to both cancer and the young adult and
paediatric oncology, and should be of interest to staff working in this area. Topics covered include
symptom management, screening/pathology/staging, psychological and survivorship issues. .
Many of the following articles are available online via the NHS Scotland eLibrary. Please use
the links where provided and your ATHENS password. A complete list of available online
journals and registration for ATHENS can be found at
http://www.knowledge.scot.nhs.uk/home.aspx
If the article you require is not available via the NHS Scotland e-Library and you would like
to request a print copy, please submit your request online at www.gglss.scot.nhs.uk
This bulletin contains a selection of material gathered from a search of the evidence base, and is
not intended to be comprehensive. Professional judgment should be exercised when appraising
the material. The Library takes no responsibility for the wording, content and accuracy of the
information supplied, which has been extracted in good faith from reputable sources. NHSGGC is
not responsible for the content of external internet sites.
Contents:
Communication and Decision Making ……………………………………………………………….2
Prognosis, Risk Factors and Incidence ……………………………………………………………. 2
Psychological Issues …………………………………………………………………………………..3
Screening/Pathology/Staging/Biomarkers …………………………………………………………..3
Survivorship Issues and Quality of Life ………………………………………………………………4
Symptom Management ……………………………………………………………………………… 5
Therapies ………………………………………………………………………………………………..5
Working with Paediatric and Young Adult Patients …………………………………………………6
Compiled by:
Alison McEwan
Assistant Librarian
Level 0, Education Suite, Beatson West of Scotland Cancer Centre, 1053, Great Western
Road, Glasgow G12 0YN
0141 3017283, [email protected]
Cancer: Paediatric and Young Adult, May 2010
Alison McEwan, Assistant Librarian, NHSGGC Library Network
1
Communication and Decision Making
Berg, S.L. (2010). Reasons for participation in optional pharmacokinetic studies in children
with cancer: A Children’s Oncology Group phase 1 consortium study. Pediatric Blood and
Cancer. 55(1): 119-122.
De Vries, M. (2010). Pediatric oncologists’ attitudes towards involving adolescents in
decision-making concerning research participation. Pediatric Blood and Cancer. 55(1): 123128.
Frazier, L. (2010). Decision analysis to compare treatment strategies for Stage I/favourable
histology Wilms tumor. Pediatric Blood and Cancer. 54(7): 879-884.
Hazen, R.A. (2010). A feasibility trial of a video intervention to improve informed consent for
parents of children with leukaemia. Pediatric Blood and Cancer. 55(1): 113-118.
Kars, M.C. (2010). Factors influencing parental readiness to let their child with cancer die.
Pediatric Blood and Cancer. 54(7): 1000-1008.
Liem, R.I. (2010). Parental attitudes toward research participation in pediatric sickle cell
disease. Pediatric Blood and Cancer. 55(1): 129-133.
Prognosis, Risk Factors and Incidence
Ahmed, H.U. (2010). Testicular and paratesticular tumours in the prepubertal population.
Lancet Oncology. 11(5): 476-483.
Barr, R.D. (2010). Imatinib mesylate in children and adolescents with cancer. Pediatric Blood
and Cancer. 55(1): 18-25.
Brennan, B. & Stevens, M. (2010). Synovial sarcoma in childhood and adolescence: a
retrospective series of 77 patients registered by the Children’s Cancer and Leukaemia
Group between 1991 and 2006. Pediatric Blood and Cancer. 55(1): 85-90.
Demir, A. (2010). Thoracic neuroblastic tumors in childhood. Pediatric Blood and Cancer.
54(7): 885-889.
D'Orazio, J. (2010). Inherited Cancer Syndromes in Children and Young Adults. Journal of
Pediatric Hematology/Oncology. 32(3):195-228.
Ginsberg, J. P., Carlson, C. A. & Lin, K. (2010) An Experimental Protocol for Fertility
Preservation in Prepubertal Boys Recently Diagnosed With Cancer: A Report of
Acceptability and Safety. Obstetrical & Gynecological Survey. 65(4):238-239.
Murray, M.J. & Nicholson, J.C. (2010). Germ cell tumours in children and adolescents.
Paediatrics and Child Health. 20(3): 109-116.
Tabori, U. & Baskin, B. (2010). Universal poor survival in children with Medulloblastoma
Harboring Somatic TP53 Mutations. Journal of Clinical Oncology. 28(2): 1345-1350.
Cancer: Paediatric and Young Adult, May 2010
Alison McEwan, Assistant Librarian, NHSGGC Library Network
2
Psychological Issues
Clinton-McHarg, T. (2010). Measuring the psychosocial health of adolescent and young adult
(AYA) cancer survivors: a critical review. Health & Quality of Life Outcomes. 8:25.
Hardy, K.K. & Willard, V.W. (2010). Perceived social competency in children with brain
tumors: comparison between children on and off therapy. Journal of Pediatric Oncology
Nursing. 27(3): 156-163.
Kazak, A.E., Derosa, B.W. & Schwartz, L.A. (2010). Psychological outcomes and health
beliefs in adolescent and young adult survivors of childhood cancer and controls. Journal
of Clinical Oncology. 28(12): 2002-7.
Larsson, G. & Mattsson, E. (2010). Aspects of quality of life, anxiety, and depression among
persons diagnosed with cancer during adolescence: A long-term follow-up study. European
Journal of Cancer. 46(6): 1062-1068.
Michel, G. (2010). Psychological distress in adult survivors of childhood cancer: the Swiss
Childhood Cancer Survivor Study. Journal of Clinical Oncology. 28(10): 1740-1748.
Robert, R.S. (2010). Psychosocial and functional outcomes in long-term survivors of
osteosarcoma: a comparison of limb-salvage surgery and amputation. Pediatric Blood and
Cancer. 54(7): 990-999.
Williamson, H. & Harcourt, D. (2010). Adolescents’ and parents’ experiences of managing the
psychosocial impact of appearance change during cancer treatment. Journal of Pediatric
Oncology Nursing. 27(3): 168-175.
Yi J. Z. (2010). Self-portraits of families with young adult cancer survivors: using
photovoice. Journal of Psychosocial Oncology. 28(3):219-43.
Screening/Pathology/Staging/Biomarkers
Bate, J. (2010). Immunisation practices of paediatric oncology and shared care oncology
consultations: a United Kingdom survey. Pediatric Blood and Cancer. 54(7): 941-946.
Carlos, R.C. & Dempsey, A.F. (2010). Cervical cancer prevention through human
papillomavirus vaccination: using the "teachable moment" for educational interventions.
Obstetrics & Gynecology. 115(4):834-8.
Conter, V. & Bartram, CR. (2010). Molecular response to treatment redefines all prognostic
factors in children and adolescents with B-cell precursor acute lymphoblastic leukemia:
results in 3184 patients of the AIEOP-BFM ALL 2000 study. Blood. 115(16):3206-14.
Cooper Robbins, S.C., Bernard, D. & McCaffery, K. (2010). "Is cancer contagious?":
Australian adolescent girls and their parents: making the most of limited information about
HPV and HPV vaccination. Vaccine. 28(19):3398-408.
Ridenour, R.V. (2010). Clinical and histopathologic features of chordomas in children and
young adults. Pediatric & Developmental Pathology. 13(1):9-17.
Cancer: Paediatric and Young Adult, May 2010
Alison McEwan, Assistant Librarian, NHSGGC Library Network
3
Survivorship Issues and Quality of Life
Andres, M.M. & Wallace, W. (2010). Practical and ethical issues for fertility preservation for
children and young people with cancer. Paediatrics and Child Health. 20(3): 135-142.
Bekkering, W.P. & Vliet, V. (2010). Quality of life in young patients after bone tumor surgery
around the knee joint and comparison with healthy controls. Pediatric Blood & Cancer.
54(5):738-45.
Castellino, S., Muir, A. & Shah, A. (2010). Hepato-biliary late effects in survivors of childhood
and adolescent cancer: A report from the Children's Oncology Group. Pediatric Blood &
Cancer. 54(5):663-9.
Henderson, T.O. (2010). Systematic review: surveillance for breast cancer in women treated
with chest radiation for childhood, adolescent, or young adult cancer. Annals of Internal
Medicine. 152(7):444-55.
Knopman, J.M. (2010). Surviving childhood and reproductive-age malignancy: effects on
fertility and future parenthood. Lancet Oncology. 11(5): 490-498.
Lancashire, E.R. & Frobisher, C. (2010). Educational attainment among adult survivors of
childhood cancer in Great Britain: a population-based cohort study. Journal of the National
Cancer Institute. 102(4): 254-270.
Madden, J.R. & Mowry, P. (2010). Creative arts therapy improves quality of life for pediatric
brain tumor patients receiving outpatient chemotherapy. Journal of Pediatric Oncology
Nursing. 27(3): 133-145.
Revel-Vilik, S. & Menahem, M. (2010). Post-thrombotic syndrome after central venous
catheter removal in childhood cancer survivors is associated with a history of obstruction.
Pediatric Blood and Cancer. 55(1): 153-156.
Schwartz, L.A. & Mao, J.J. (2010). Self-reported health problems of young adults in clinical
settings: survivors of childhood cancer and healthy controls. Journal of the American Board
of Family Medicine: JABFM. 23(3):306-14.
Skinner, R. (2010). Glomerular toxicity persists 10 years after ifosfamide treatment in
childhood and is not predictable by age or dose. Pediatric Blood and Cancer. 54(7): 983-989.
Sudour, H. (2010). Fertility and Pregnancy Outcome After Abdominal Irradiation That
Included or Excluded the Pelvis in Childhood Tumor Survivors. International Journal of
Radiation Oncology Biology Physics. 76(3): 867-873.
Tai, E. & Pollack, L.A. (2010). Differences in Non-Hodgkin Lymphoma Survival Between
Young Adults and Children. Archives of Pediatrics and Adolescent Medicine. 164(3): 218-224.
Taylor, N. & Absolom, K. (2010). Comparison of self-reported late effects with medical
records among survivors of childhood cancer. European Journal of Cancer. 46(6): 1069-1078.
Tukenova, M. (2010). Role of cancer treatment in long-term overall and cardiovascular
mortality after childhood cancer. Journal of Clinical Oncology. 28(2): 1308-1315.
Wasilewski-Masker, K. (2010). Severity of health conditions identified in a pediatric cancer
survivor program. Pediatric Blood and Cancer. 54(7): 976-982.
Yeh, J. (2010). A Model-Based Estimate of Cumulative Excess Mortality in Survivors of
Childhood Cancer. Annals of Internal Medicine. 152(7):409-417.
Cancer: Paediatric and Young Adult, May 2010
Alison McEwan, Assistant Librarian, NHSGGC Library Network
4
Symptom Management
Ammann, R.A. & Bodmer, N. (2010). Predicting adverse events in children with fever and
chemotherapy-induced neutropenia: the prospective multicenter SPOG 2003 FN Study.
Journal of Clinical Oncology. 28(12): 2008-2014.
Gibson, F. & Auld, E. (2010). A Systematic Review of Oral Assessment Instruments: What
Can We Recommend to Practitioners in Children's and Young People's Cancer Care?
Cancer Nursing. Published ahead of print.
Glenny, A.M. (2010). The development of evidence-based guidelines on mouth care for
children, teenagers and young adults treated for cancer. European Journal of Cancer. 46(8):
1399-1412.
Nguyen, T.N. (2010). Music therapy to reduce pain and anxiety in children with cancer
undergoing lumbar puncture: a randomized clinical trial. Journal of Pediatric Oncology
Nursing. 27(3): 146-155.
Pritchard, M. (2010). Factors that distinguish symptoms of most concern to parents from
other symptom of dying children. Journal of Pain and Symptom Management. 39(4): 627-636.
Rajapakse, D. (2010). Symptom management during chemotherapy. Paediatrics and Child
Health. 20(3): 129-134.
Rugiero, A. & Barone, G. (2010). Groshong catheter-related complications in children with
cancer. Pediatric Blood and Cancer. 54(7): 947-951.
Tomlinson, D. & Gibson, F. (2010). Refinement of the Children’s International Mucositis
Evaluation Scale (ChIMES): Child and parent perspectives on understandability, content
validity and acceptability. European Journal of Oncology Nursing. 14(1): 29-41.
Wedrychowicz, A., Spodaryk, M. & Krasowska-Kwiecien, A. (2010). Total parenteral nutrition in
children and adolescents treated with high-dose chemotherapy followed by autologous
haematopoietic transplants. British Journal of Nutrition. 103(6):899-906.
Therapies
Bisogno, G. & Ferrari, A. (2010). Sequential intensified chemotherapy with stem cell rescue
for children and adolescents with desmoplastic small round-cell tumor. Bone Marrow
Transplantation. 45(5):907-11.
Dunkel, I.J. (2010). High-dose chemotherapy with autologous hematopoietic stem cell
rescue for stage 4B retinoblastoma. Pediatric Blood and Cancer. 55(1): 149-152.
Dunkel, I.J. (2010). Intensive multimodality therapy for patients with stage 4a metastatic
retinoblastoma. Pediatric Blood and Cancer. 55(1): 55-59.
Eftekhari, F. (2010). Imaging assessment of osteosarcoma in childhood and adolescence:
diagnosis, staging, and evaluating response to chemotherapy. Cancer Treatment & Research.
152:33-62.
Horton, T.M. (2010). Toxicity assessment of molecularly targeted drugs incorporated into
multiagent chemotherapy regimens for pediatric acute lymphocytic leukaemia (ALL): Review
from an international consensus conference. Pediatric Blood and Cancer. 54(7): 872-878.
Cancer: Paediatric and Young Adult, May 2010
Alison McEwan, Assistant Librarian, NHSGGC Library Network
5
Laufer, M.R. & Upton, J. (2010). Ovarian tissue autologous transplantation to the upper
extremity for girls receiving abdominal/pelvic radiation: 20-year follow-up of reproductive
endocrine function. Journal of Pediatric & Adolescent Gynecology. 23(2):107-10.
Mulder, R.L. (2010). Cyclophosphamide versus ifosfamide for paediatric and young adult
bone and soft tissue sarcoma patients. Cochrane Database of Systematic Reviews.
Spunt, S.L. & Irving, H. (2010). Phase II, Randomized, Open-Label Study of PegfilgrastimSupported VDC/IE Chemotherapy in Pediatric Sarcoma Patients. Journal of Clinical Oncology.
28(2): 1329-1336.
Tai, B.C. (2010). On the importance of accounting for competing risks in pediatric cancer
trials designed to delay or avoid radiotherapy: I. Basic concepts and first analyses.
International Journal of Radiation Oncology Biology Physics. 76(5): 1486-1492.
Working with Paediatric and Young Adult Patients
Anderson, A.K. (2010). The use of emergency boxes for children with advanced cancer.
European Journal of Palliative Care. 17(2): 80-83.
Bishop, F.L. (2010). Prevalence of complementary medicine use in pediatric cancer: A
Systematic Review. Pediatrics. 125(4): 768-776.
Burns, D. (2010). Parental Perspectives of an Adolescent/Young Adult Stem Cell Transplant and a
Music Video Intervention. Cancer Nursing. Published ahead of print.
Dang-Tan, T. & Trottier, H. (2010). Determinants of delays in treatment initiation in children
and adolescents diagnosed with leukemia or lymphoma in Canada. International Journal of
Cancer. 126(8):1936-43.
Davis, C. (2010). Treating young cancer patients in a place they can call their home. Cancer
Nursing Practice. 9(3): 16-19.
Dussel, V. & Joffe, S. (2010) Considerations About Hastening Death Among Parents of
Children Who Die of Cancer. Archives of Pediatrics and Adolescent Medicine. 164(3): 231-237.
Forinder, U. (2010). “Now we have to cope with the rest of our lives”. Existential issues
related to parenting a child surviving a brain tumour. Supportive Care in Cancer. 18(5): 543552.
Latham, G. & Greenberg, R. (2010). Anesthetic considerations for the pediatric oncology
patient - part 2: systems-based approach to anesthesia. Pediatric Anesthesia. 2(5):396-420.
Link, N.J. & Maurer, E. (2009). Kids, adolescents, and young adult cancer study-a
methodologic approach in cancer epidemiology research. Journal of Cancer Epidemiology.
2009: E publication 2010, 354257.
Neil, L. & Clarke, S. (2010). Learning to live with cancer: a literature review of the parental
perspective. International Journal of Palliative Nursing. 16(3): 110-119.
Pearson M. (2010). Caring for children and adolescents with osteosarcoma: a nursing
perspective. Cancer Treatment & Research. 152:385-94.
Punzalan M. & Hyden G. (2010). The role of physical therapy and occupational therapy in the
rehabilitation of pediatric and adolescent patients with osteosarcoma. Cancer Treatment
Cancer: Paediatric and Young Adult, May 2010
Alison McEwan, Assistant Librarian, NHSGGC Library Network
6
& Research. 152:367-84, 2010.
Please note that the journal articles you are accessing may be protected by copyright legislation so
there may be a limit on the number of articles you can download or print from any single issue of a
journal. If you obtain a copy via your local library's document request service, you may be required
to complete a copyright declaration form. Consult your local library with any queries, or for further
information see the website of the Copyright Licensing Agency at www.cla.co.uk.
If you have any questions regarding this or any other library services please contact Library staff –
contact details are at the beginning of the bulletin.
Sources used for this bulletin:
Jornals scanned:
Annals of Oncology
Cancer
European Journal of Oncology Nursing
Journal of Clinical Oncology
Neuro-Oncology
Pediatric Blood and Cancer
Psycho-Oncology
Seminars in Oncology
Supportive Care in Cancer
Journal alerts:
Archives of Diseases in Childhood
Archives of Pediatrics and Adolescent Medicine
Clinical Journal of Oncology Nursing
Current Problems in Pediatric and Adolescent Health Care
Journal of Adolescence
Journal of Adolescent Health
Journal of Cancer Nursing
Journal of Pediatric and Adolescent Gynecology
Journal of Pediatric Health Care
Journal of Pediatric Hematology/Oncology
Journal of Pediatric Nursing
Journal of Pediatric Oncology Nursing
Paediatric Nursing
Pediatrics
Paedatrics and Child Health
Pediatrics and Neonatology
Seminars in Oncology Nursing
Alerting services:
Zetoc alert
OvidSP Auto Alerts – MEDLINE and CINAHL
Cancer: Paediatric and Young Adult, May 2010
Alison McEwan, Assistant Librarian, NHSGGC Library Network
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Cancer: Paediatric and Young Adult, May 2010
Alison McEwan, Assistant Librarian, NHSGGC Library Network
8