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Bladder Cancer Date Dear Patient Name TREATMENT SUMMARY You have now completed your initial treatment for cancer. This Treatment Summary provides a summary of your diagnosis, treatment and on-going management plan. It includes information on the symptoms you should be aware of, and who to contact. Your GP will also receive a copy of this summary. Diagnosis: Date of Diagnosis: Organ/Staging Bladder Cancer Local/Distant Summary of Treatment and relevant dates: Treatment Aim: You have been treated with the intention of curing your bladder cancer Transurethral resection of bladder tumour for low-risk non-muscle-invasive bladder cancer Possible treatment toxicities and / or late effects: Blood in the urine – this is common (in more than one in 10 people) and you may experience a mild burning sensation when passing urine for a couple of days/week after your operation. Drink plenty of water (2-2.5 ltrs per day) to keep hydrated and flush your system. Urine infection – this happens occasionally (in between one in 10 and one in 50 people). If you have symptoms like a high temperature, painful urination, or frequency or urgency of urination you should ask your GP to test your urine for infection. You will be given antibiotics to treat the infection if this is confirmed. Deep vein thrombosis (a blood clot, usually in the large leg veins) Wear the anti-embolism stockings you are given until you are fully mobile after the procedure to prevent this. It will also help if you get mobile as quickly as possible after the procedure. Advise entry onto primary care palliative or supportive care register Yes / No DS 1500 application completed Yes/No Prescription Charge exemption arranged Yes/No Urinary symptoms Blood in your urine (haematuria) Pain on passing urine (urine infection/cystitis) Urinary symptoms (frequency and urgency) Unless otherwise advised you should be drinking 2 litres of water/cordials throughout the day and avoid caffeine drinks (tea/coffee/carbonated/fizzy) to help relieve your urinary symptoms. Other symptoms Pain when you ejaculate, less forceful ejaculation or a reduced amount of ejaculate. Erectile dysfunction Feeling tired Psychological issues Alert Symptoms that require referral back to specialist team: Potential post TURBT complications: If your stream of urine slows down or divides, stops and starts (stricture) – URGENT – Call your specialist nurse Unable to pass urine – URGENT – Get to your local A&E department Contacts for re referrals or queries: In Hours: Out of hours: Passing large blood clots Pulsating chest/calf pain (DVT/PE) - URGENT Pain on passing urine (urine infection/cystitis) Bladder or kidney pain (usually severe lower back pain) Other symptoms to seek advice about: Unintended weight loss (more than 3kg) Loss of appetite Secondary Care Ongoing Management Plan: (tests, appointments etc) Other service referrals made: (delete as nec) District Nurse AHP Social Worker Dietitian Clinical Nurse Specialist Psychologist Benefits/Advice Service Other The results of your TURBT will be available within 2 weeks of your operation. An appointment will be made for you before you leave the ward. . Required GP actions in addition to GP Cancer Care Review (e.g. ongoing medication, osteoporosis and cardiac screening) Summary of information given to the patient about their cancer and future progress: Additional information including issues relating to lifestyle and support needs: Contact your GP or practice nurse Completing Doctor: Signature: Date: PRIVATE AND CONFIDENTIAL cc. Patient GP Name Patient GP Address Patient GP Post Code Supporting Documents that may help – Please delete this section before giving to the patient Sexual Consequences for Men Prompt Tool (http://www.londoncanceralliance.nhs.uk/media/118596/lca-hna-male-sexual-consequences-january-2016.pdf) Sexual Consequences for Women Prompt Tool (http://www.londoncanceralliance.nhs.uk/media/118602/lca-hna-sex-consequences-women-prompt-sheet-january-2016.pdf) Fatigue Prompt Tool (http://www.londoncanceralliance.nhs.uk/media/122127/lca-hna-fatigue-prompt-sheet-january-2016.pdf) Pain Prompt Tool (http://www.londoncanceralliance.nhs.uk/media/122133/lca-hna-pain-prompt-sheet-january-2016.pdf) GP READ CODES FOR COMMON CANCERS (For GP Use only). Other codes available if required. (Note: System codes are case sensitive so always ensure codes are transcribed exactly as below) System 1 Diagnosis: Lung Malignant Tumour Carcinoma of Prostate Malignant tumour of rectum Bowel Intestine Large Bowel Female Malignant Neoplasia Male Malignant Neoplasia Histology/Staging/Grade: Histology Abnormal Tumour grade Dukes/Gleason tumour stage Recurrent tumour Local Tumour Spread Mets from 1° Treatment Palliative Radiotherapy Curative Radiotherapy Chemotherapy Radiotherapy Treatment Aim: Curative procedure Palliative procedure Treatment toxicities/late effects: Osteoporotic # Osteoporosis Infection Ongoing Management Plan Follow up arranged (<1yr) Follow up arranged (>1yr) No FU Referral PRN Referrals made to other services: District Nurse Social Worker Nurse Specialist SALT Actions required by the GP Tumour marker monitoring PSA Osteoporosis monitoring Referral for specialist opinion Advised to apply for free prescriptions Cancer Care Review Palliative Care Review Medication: New medication started by specialist Medication changed by specialist Advice to GP to start medication Advice to GP to stop medication Information to patient: DS1500 form claim Benefits counselling Cancer information offered Cancer diagnosis discussed Aware of diagnosis Unaware of prognosis Carer aware of diagnosis Miscellaneous: On GSF palliative care framework GP OOH service notified Carers details National Cancer Survivorship Initiative December 2010 (5 digit codes) XaOKG X78Y6 XE1vW X78gK X78gN B34.. B35.. 4K14. X7A6m XaOLF XaOR3 X7818 XaFr. 5149. XalpH x71bL Xa851 Xallm XaiL3 Xa1TO XaELC Xa9ua 8H8.. XaL.. 8HA1. 8HAZ. XaBsn XaBsr XaAgq XaBT6 Xalqg Xalqh XalSd Xalst 9D05 Xalyc XalG1 XEOhn 8B316 XaKbF XaJC2 All other systems Version 3 five byte codes (October 2010 release) Diagnosis Malignant neoplasm of bronchus or lung Malignant neoplasm of prostate Malignant neoplasm of Rectum Malignant neoplasm of Colon Malignant neoplasm of female breast Malignant neoplasm of male breast B22z. B46.. B141. B13.. B34.. B35.. Histology/Staging/Grade: Histology Abnormal Tumour staging Gleason grading of prostate Ca Recurrence of tumour 4K14. 4M… 4M0.. 4M6.. Metastatic NOS Treatment Radiotherapy tumour palliation Radiotherapy Chemotherapy BB13. 5149. 7M371 8BAD. Treatment Aim: Curative treatment Palliative treatment 8BJ0. 8BJ1. At risk of osteoporosis Osteoporosis 1409. N330. Ongoing Management Plan Follow up arranged 8H8.. No follow up arranged 8HA.. Referrals made to other services: Refer to District Nurse Refer to Social Worker 8H72. 8H75. Actions required by the GP Tumour marker monitoring PSA Osteoporosis monitoring 8A9.. 43Z2. 66a.. Entitled to free prescription Cancer Care Review Palliative Care Plan Review Medication: Medication given Medication changed 6616. 8BAV. 8CM3. 8BC2. 8B316 Information to patient: DS1500 completed Benefits counselling Cancer information offered Cancer diagnosis discussed 9EB5. 6743. 677H. 8CL0. XaJv2 Xaltp Miscellaneous: On GSF Palliative Care Framework GP OOH service notified 8CM1. 9e0.. 9180. Carer details 9180. XaCDx 6743. XalmL XalpL XaQly XaVzE XaVzA