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WELCOME • Host: Dr. David Bang Public Health Advisor, CDC • Lead: Dr. Carolyn Jenkins Latonya Fisher REACH U.S. SEA-CEED • Topic: Diabetes self-management and other related clinical practices and delivery care systems. Session Plan • Welcome and Ground Rules • Brief REACH SEA-CEED overview • Opportunity to hear from you (efforts, successes and challenges) Do YOU have a STORY? • What aspect of your work would be best served through a storytelling format? • What audience would react best to the storytelling format? • What storytelling formats are successfully being used by REACH awardees? REACH U.S. SEA-CEED Racial/ethnic groups include: • African Americans • American Indians & Alaska natives • Asian Americans • Hispanics/Latinos • Native Hawaiians/Pacific Islanders Health Disparities are focused on: • • • • • • CVD Diabetes Infant Mortality Breast & Cervical Cancer AIDs/HIV Adult Immunizations Disparities for African Americans with Diabetes in Charleston and Georgetown • Lower levels of: – – – – – – • Higher levels of: Per capita income Access to health care Funding and insurance Care and education Satisfaction with care* Medications and continuing care – Treatment – Trust in health systems* – Prevalence of diabetes – Complications including: • Amputations • Renal failure (dialysis) • CVD – – – – EMS and ED use Hospitalizations Costs of care paid by client* Deaths, especially CVD *All disparities were first identified through focus groups and validated with epidemiological or quantitative data except those with asterisk. For those with asterisk, quantitative data showed difference in outcome. Action Team for Change • 4 Coalitions • Diabetes Initiative of South Carolina • REACH Partners Coalition • 2 County Coalitions •85 partner organizations (SC DHEC, Statewide and Community Organizations, Neighborhood Groups, Health Care Systems, Greek Organizations, Faith-Based Groups, Public Libraries, Academic Institutions) REACH Charleston and Georgetown Diabetes Coalition Tennessee North Carolina SC DHEC Region 6 South Carolina Statewide REACH home-based in Columbia: Georgetown Diabetes CORE Group East Cooper Community Outreach Enterprise Health Center Enterprise Community Georgia Georgetown County Library Welvista SC DHEC SC DPCP American Diabetes Association Carolina Center for Medical Excellence S. Santee St. James Senior Center Tri County Black Nurses St. James Santee Health Center TriCounty Family Ministeries Alpha Kappa Alpha Sorority SC DHEC Region 7 Charleston County Library Trident United Way Franklin C. Fetter Family Health Center MUSC, MUHA VA Medical Center Diabetes Initiative College of Nursing Our Coalition Goals • Improve diabetes care and education in 5 health systems for >13,000 African Americans with diabetes. • Improve access to diabetes care and selfmanagement education, diabetes supplies and social services for people with diagnosed diabetes. • Decrease health disparities for African Americans at risk and with diabetes. • Increase community ownership and sustainability of program. Community Actions Community-driven educational activities and healthy learning environments where people live, worship, work, play, and seek health care. Evidence-based health systems change using continuous quality improvement teams (CQI). Coalition power built through collaboration, trust, and sound business planning and focused on systems, community, and policy change. Methods for Collaboration • The health professionals/scientists determine “science” or “evidence-base” for diabetes care. • Community leaders/members determine “what, when, where, and how” to apply “science” or “evidence” in their community while generating evidence for community empowerment. • Together we translate into skills for individual, organizational, systems, and community behavior change, advocacy, and policy change and we evaluate/report our results. Our Community Systems Wheel Faith Based E.T. Anderson and J.M. McFarlane (2006) Evaluation Logic Model External Influences Existing Activities Understanding Context, Causes, & Solutions for Health Disparity Coalition Community Action Plan Targeted REACH Action Community & Systems Change Change Agents Change Planning & Capacity Building Widespread Change in Risk/Protective Behaviors Other Outcomes Reduced Health Disparity Changes within Organizations • Partners working together developed database to collect health information (in their programs) • Wellness programs (exercise/physical activity, cooking classes, screenings for glucose, A1C, BP, lipids, kidney function, foot problems) based in and sustained by the community • Community gardens (four community in GT, 2 Chas., master gardener classes, and 4 in LPs) • Media Awareness (Television, Radio, Billboards, bus placards, Banners) Changes within County • Organizations have come into the community (FQHC, Public Library, MH, Youth Org., Park & Rec.) • Park & Rec. adding several activities sites in GT (workout, court, pool, tennis, daycare) • GT county schools removal junk food & sodas from vending machines • Local churches have changed foods served Changes within Health Systems • • • • DSME classes and group visits Weight management classes CQI Teams Community Health Workers for community education and linkage to health systems • Diabetes “PECS” (now EHRs) • Continuous Quality Improvement Teams Changes within Health Systems • • • • • • • • • 2 AADE certified sites Mandatory attendance at DSME classes Foot, shoe and wound clinics at sites New transportation systems New benefits bank to determine eligible services Influenza vaccines regardless of ability to pay Reduced payment for uninsured (some systems) Expansion of clinic hours Clinic based physical activity intervention Changes in Health Professionals • 10 new African American CDEs who trained with REACH (compared to 1 when REACH started) Statewide change •Diabetes Advisory Council established the Guidelines for Diabetes Care •Adopted in 9/2011 and updated in 3/2012 •Presented at the Diabetes Symposium September 2011, by MUSC President Dr. Greenburg •“Diabetes Under the Dome” Policy Change • • • • Statewide Guidelines Law requiring DSME coverage (ERISA) PCMH and Care Coordination Foot Care Training for Nurses Change across States • PCMH – Care Coordination training for provider offices integrating SDOH. – Potential National Certification for Care Coordination. The Community Chronic Care Conceptual Model REACH Charleston and Georgetown Diabetes Coalition External Environment, Resources, and Dissemination influences: Health Care Provider Systems Community Resource Systems Community Information System Prepared, Proactive Community Systems Clinical Information System Informed, Activated Persons Community & Service System Design Influences Community Decision Support Prepared, Proactive Health Systems Policies & Actions Delivery System Design Influences Social, Health, & Economic Clinical Decision Support Self-Management Support Improved Community-Wide Health Outcomes and Elimination of Health Disparities Patient SelfManagement Support (Jenkins, Pope, Magwood et al., PCHP 4 (1): 73) Limitations • Challenges – Health System in state of change – Time, funds and personnel changes – Contributions of external influences, community by-in – Legislative support For additional information Carolyn Jenkins, DrPH e-mail: [email protected] Phone: 843-792-4625