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Theodore C. Friedman, M.D., Ph.D. Associate Professor of Medicine-UCLA Chief, Division of Endocrinology, Molecular Medicine and Metabolism Charles R. Drew University Why are there so few Endocrinologists treating adults with pituitary problems/How to dealwith your doctor MAGIC Foundation Affected Adult Convention February 5, 2006 What do Endocrinologists treat? • Diabetes, diabetes, diabetes • Thyroid diseases • Lipid disorders • Reproductive Disorders? • • Pituitary Disorders Adrenal Disorders Why are pituitary disorders hard to diagnose and treat? • • • • Rare? Testing can be difficult and is less than optimum Can’t just do one test Except for Acromegaly and growth hormone deficiencylittle pharmaceutical backing • Patients are complex, careful history takes a lot of time • Hormones interact-adjusting one requires retesting others How to find a pituitary doctor • Chat rooms • Other patients • Endocrine Society – http://www.endosociety.org/apps/FindAnEndo/index.cfm • Someone doing research or at least attending national meetings • Good listener • Helpful staff • May need to travel What should you do? • You are the boss -if needed you can fire your doctor • Need to be the primary manager of your health care • But need to work with your doctor • Remember your doctor is (or should be) very busy. • Make his/her lives easier Records • Need to keep good records-spreadsheets of values, with hard copies in a notebook • Get results of testing from your doctor after each visit • Need to be organized • Know your medications and doses • Know what medications you’ve tried in the past and if they helped • Have reports and films of imaging studies • Have dictations from other doctors How to be a great patient • Don’t go off on tangents • Don’t be afraid to talk about “personal” issues (sex). He’s probably heard it all before • Don’t whine or threaten • Be courteous to staff • Take notes on what to do /Follow directions • But, ask questions if you don’t understand something • If you don’t like a treatment she suggests, say so and ask for alternatives. Magic Foundation • Use and support the Magic Foundation-it’s a great resource.