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Coaches, Trainers, Athletes and Eating Disorders: Connecting the Dots to Recovery November 2, 2007 Mary Tantillo PhD RN CS Director, Eating Disorders Recovery Center of Western NY Richard Kreipe MD Medical Director, Eating Disorders Recovery Center of WNY Director, Child and Adolescent Eating Disorder Program, Golisano Children’s Hospital Overview Introductions Athletes with Eating Disorders – Medical health issues (Kreipe) – Mental health issues (Tantillo) Panel: Four Perspectives – Coach (Wright) – Athlete (Padgham) – Trainer (Abegglen) – Parent (Patchen) Discussion Anorexia Nervosa (pursuit of thinness) Insufficient energy intake Wasting of the body Delusion of being fat Obsession to be thinner Does not diminish with weight loss Denial Inadequate Energy Intake Physical health Mental health Absent menses Disconnections Cold hands/feet Concentration Constipation Decisions Dry skin/hair loss Irritability Headaches Depression Fainting/dizziness Social withdrawal Lethargy Obsessiveness (food) Anorexia Bulimia Nervosa (avoidance of obesity) Recurrent, secretive binge-eating Fear of not being able to stop eating Awareness that eating pattern is abnormal Depressed moods and self-deprecating thoughts Temporary relief via avoidance of weight gain by – – – – Fasting Self-induced vomiting Catharsis or diuresis Exercise Signs & Symptoms of Binge Eating Physical health Mental health Weight gain Disconnection Bloating Guilt Fullness Depression Lethargy Anxiety Salivary gland enlargement Signs & Symptoms of Vomiting or Laxative Abuse Physical health Mental health Weight loss Disconnection Electrolyte disturbance Guilt – K Depression – CO2 Anxiety Confusion Dental enamel erosion Low blood volume Knuckle calluses Eating Disorders: Dispelling Myths An individual can have an eating disorder AND be medically compromised AND have normal lab values Some individuals starve themselves to look like they are in a “normal weight range for height and age.” Eating Disorders occur in either sex, in any race, ethnic or socioeconomic group, in any neighborhood, at any age, at any height AND at any weight. Dr. Kreepie Keys, et al The Biology of Human Starvation U Minnesota Press 1950 Bonus question: What was Ancel Keys’ claim to fame? Affected Biological Systems Neurologic (CNS and PNS) Skin and Hair Cardiovascular Hematologic Hepatic GI: motility, absorption Endocrine (hypothalamic) – Thyroid – Growth hormone – Adrenal – Gonads Musculoskeletal Kreipe RE. Assessment of Weight Loss in the Adolescent. Ross Labs. Columbus, OH 1988. Drawing by C. Lyons, MD Salivary gland enlargement Parotid Submandibular Dental Enamel Erosion www.maxillofacialcenter.com/bulimia.html - Dentin (yellow) visible beneath eroded enamel (white) - Worse on lingual than buccal surfaces www.thejcdp.com/issue001/gandara/ introgan.htm A: Less enamel loss on buccal surfaces B: Enamel sparing in gingival crevices Erosion of enamel (white) and dentin (yellow) from persistent vomiting, resulting in tooth decay, fracture, and loss Malnutrition and Hypometabolism Muscle wasting Lanugo Energy intake results in wasting of lean (muscle) > fat Metabolism occurs in the lean body mass>>>>>fat Energy conservation: BMR; Temp.; HR; Peripheral blood flow; Physical activity ~70% of regained weight is lean body mass Week 1: •Wt 91#; •S.G. 1.018; •HR: 62 70; •36.9°C Weekly visits Week 5: •Wt 91#; •S.G. 1.020; •HR: 4482 •35.3°Cl Recheck Wt. (observed) and physical exam Edema Slow Capillary Refill Acrocyanosis Carotenemia Livedo Reticularis Bluish discoloration of skin Reticular (“lacy”) pattern Asymptomatic, but often associated with low core temperature and metabolism www.pediatrics.wisc.edu/education/ derm/tutc/69.html Signs of Eating Disorders for Coaches, Trainers, Friends, Parents and Loved Ones Social withdrawal Evidence of binge eating (large amounts of food eaten in brief time period) Hoarding food, empty wrappers and food containers Use of laxatives or diuretics (or boxes) Leaving the table immediately after meals Creation of complex life style, schedule or rituals to make excuses to not eat, or time for exercise or bingepurge episodes Behaviors and attitudes indicating wt loss, dieting and control of food are primary concerns www1.ncaa.org/membership/ed_outreach/healthsafety/sports_med_education/triad/triad_prevention.htm Female Athlete Triad Usually begins with disordered eating in an attempt to lose weight Disordered Eating – More common in sports emphasizing leanness – Can negatively affect athletic performance Loss of menstrual periods – – – – Is often due to imbalance of eating and training May be the “norm,” but is never “normal” Can result in loss of bone; may be irreversible If prolonged, increases fracture risk, esp. stress Nutrition: key factor for good health Health: key factor for athletic performance (NCAA, 2005) Risks for Disordered Eating in Athletes Belief that low body weight/body fat improves performance (implicit/explicit messages?) Sport-body stereotypes Habits of good athlete eating disorder habits Presumption of health Revealing uniforms or sport attire Competitive thinness (college age & sports performance related) Coping with pressures associated with sport (NCAA, 2005) Approach to Student with Female Athlete Triad Someone in authority who has a good relationship with the athlete Convey caring and concern, not criticism Talk privately – focus on health Listen non-judgmentally and with compassion Inform athlete of need for evaluation and plan Athlete considered “injured” until evaluation and recommendations offered (standard policy) Confidence in evaluation and hope for return to sport Communicate with treatment team, parents (<18 yo) to form collaborative partnership (NCAA. 2005) Symptomatic Athletes Are Unlikely to Recover without TreatmentIt is Required Athlete becomes isolated, gets less support, making disordered eating more difficult to monitor. Deterioration physically and psychologically has negative effect on performance. Poor performance (related to self-concept) results in increased pressure to try to improve performance. Ineffective attempts to improve performance increases worry that others will be disappointed. Disordered eating becomes a coping mechanism that helps athlete deal with the negative effects of disordered eating (positive feedback loop). (NCAA, 2005) The physical attributes of the athlete establish the ceiling on performance, the mental and emotional skills of the athlete determine how close she/he comes to reaching that ceiling. (NCAA, 2005) Female Athlete Triad Focus on health, not body weight or fat to: 1. Nutrition – (over/under-eating, unbalanced diets, nutrientpoor foods, unusual or no schedule): need nutritional info. 2. Sleep/rest - Many student-athletes sleep <6 hrs/day, decreasing resilience and performance. 3. Substance use - (alcohol, prescription or illegal drugs, nicotine, and dietary or “ergogenic” supplements). 4. Psychological factors (cognitive and emotional) can affect performance. A focus in these areas does not put the athlete at risk. These factors can enhance performance by improving physical and psychological health. (NCAA, 2005) Screening Tests for Athletes with Eating Disorders The Athletic Milieu Direct Questionnaire (Nagel et al., 2000); Newer test for detecting ED’s in athletes but respondents know what test is looking for Physiologic Screening Test for ED’s/Disordered Eating Among Collegiate Female Athletes (Black et al., 2003); 18 items including: -4 physiological symptoms (e.g., percent body fat, waist-hip ration, standing systolic BP, parotid gland enlargement) -6 interviewer questions (e.g., dizziness, ABD bloating) -8 self report items (e.g., hours exercised outside practice, menstrual irregularity) Highly sensitive (87%) and highly specific (78%) for detecting athletes who either have disordered eating or ED’s EATING DISORDERS ARE DISEASES OF DISCONNECTION - Disconnect patient from herself and others - Disconnect family from other families - Disconnect family from staff - Disconnect treatment team from one another Disconnections Disconnection: A disturbance in the flow of relationship that prevents or interrupts the experience of perceived mutuality and is characterized by: Low self-worth Disempowerment Low energy, tension, feeling locked up or out Feeling confused re: the self, other, and the relationship; intolerance of difference Wanting less connection; isolation Disconnecting from Oneself to Maintain Connections “In situations with family, it’s so inappropriate to have different opinions,…the smallest trace of being different makes it easier to not be liked…I was so cautious of the way I sat and the words I used when I was over there tonight. I didn’t want to make a wrong move, make the wrong comment, or even sit, walk wrong. I have to close off every part of myself when I’m with them. I have to lock it away.” (Betty, 10/21/03) EATING DISORDERS – DISEASES OF DISCONNECTION Biopsychosocial Risk Factors: Biology: Serotonergic Disturbance; Starvation; Binging/Purging Psychology: Disconnections; Relational mismatches Socio-Cultural: Toxic Societal Values that objectify women’s (and men’s) bodies and teach us to value ourselves from the outside in Spirituality: Hopelessness; Meaninglessness; Isolation Signs of Eating Disorders for Coaches, Trainers, Friends, Parents & Loved Ones Preoccupation with weight, food, calories, fat & dieting Rapid or dramatic weight loss Refusal to eat certain (“unhealthy”) foods Frequent comments about feeling fat (despite wt loss) Anxiety about being fat or gaining weight Denial of hunger Food rituals Consistent excuses at meal times Rigid exercise routine (despite illness, fatigue, injury) RECOVERY IS ALL ABOUT CONNECTIONS: Between the body and self With others Among all the adults who care for the student at home and school and in the community Mutual Relationships Mutual relationships are characterized by “The Five Good Things:” Self-worth Sense of energy/zest Increased clarity re: oneself, the other, and the relationship Increased sense of empowerment Increased desire for more connection Women with eating disorders require mutually empathic and empowering relationships to work through the intense denial, ambivalence, and fear that keep them stuck in the early stages of change. (Tantillo, Nappa Bitter, & Adams, 2000) “Having an eating disorder is like being in a frying pan surrounded by horrendous flames. On the other side of those flames is recovery. My therapist and others are on the recovery side telling me to step out of the pan into the flames and to walk through the fire to reach recovery. I think to myself, “Are they nuts?!” Don’t they know how frightened I am to step into the fire? It will destroy me. I will die.This frying pan (eating disorder) is safe and protective because I know how to live in it. I know how to “be” in the pan.” Cindy Nappa Bitter, 2001 Stages of Change Model (Prochaska & DiClemente) Pre-contemplation: no perceived need to change, denial Contemplation: able to consider change, ambivalent Preparation: ready to change Action: implementation of plan to change Maintenance: feedback to maintain change Supporting Change in College Health Settings: Consciousness-Raising, Helping Relationships, and Social Liberation Provide information about –How we get in our own way –Recovery process –Illness Coaching/therapeutic relationship (alliance), support groups and recovered peer mentors Awareness of influence of language, environment and social norms Self-monitoring/Journaling (food, emotions, relationships) Discuss/write about how the eating disorder helps or hinders the student achieve life goals and live out values (e.g., athletic goals) (Prochaska, Norcross, & DiClemente, 1994) Coach and Health Care Provider Approach Validation (shame/secrecy) Direct and specific questions Don’t assume Cognitive distortions, reasoning errors (all/nothing thinking, overgeneralizations, negative mental filtering, etc.) Be genuine, real (not opaque and distant) Warmth and humor Be consistent and persuasive Educate Team approach and good communication helps avoid splitting Potential Obstacles/Challenges in Referring & Managing Students with Eating Disorders School personnel anxiety, lack of education and training Inconsistency/Lack of communication among school personnel (e.g., coach, health services, mental health), family, and/or outside professionals Family Shame/Assumption of blame, parental anxiety, denial, or anger Potential Obstacles/Challenges in Referring and Managing Students with Eating Disorders (continued) Not understanding that the Eating disorder decreases the student’s ability to make healthy decisions (they are adults but are impaired) Lack of a trusted person to routinely eat with the student and monitor intake Lack of routine check-in meetings with all team members and student/family Referral to and Collaboration with Other Health Care Providers (continued) Ensure good communication with team members in school (school nurse, coach, counselors, teachers, etc.) Maintain consistency of treatment plan. Clearly identify for student and family supportive school personnel. Set up check-in times with team and student/family. Specify roles and responsibilities (weekly weigh-ins, lab work, lunch supervision, etc.) for all adults involved in treatment plan. Collaboration among School Personnel, Mental Health Providers, and Family Validate the burden incurred by the illness. Educate and share information. Encourage student and family to connect ion ways that don’t involve the eating disorder. Encourage and model communication/problemsolving skills. Prevention Strategies for Coaches to Decrease Risks in the Athletic Environment • • • • • De-emphasize weight. Do not compare one athlete’s body/performance to another athlete’s body/performance (the other high performance athlete may have an eating disorder) Remember young women are sensitive about their weight and body image Enhance performance without a focus on weight Promote development of mental and emotional skills (imagery, positive self-talk, goal-setting, mental preparation, mindfulness, and relaxation training) . (NCAA, 2005) Prevention Strategies for Coaches to Decrease Risks in the Athletic Environment • • • • Foster mutual connections among athlete and coach/trainer, team members, and other adults/peers Recognize individual differences in athletes (athlete profiles describe but don’t predict) Increase education of athletes, coaches athletic trainers, and other sport personnel (re: DE, eating disorders, nutrition, Female Athlete Triad) Involvement by Sport Governing Bodies (NCAA). (NCAA, 2005) “Lean Sports” Increase Risk for Disordered Eating and Eating Disorders Judged sports aesthetic (diving, figure skating, gymnastics) appearance (ballet, cheerleading) endurance (distance running, ski jumping), weight-class sports (lightweight rowing, wrestling) revealing sport attire (swimming, volleyball) Screening Tests for Athletes with Eating Disorders/Disordered Eating The Athletic Milieu Direct Questionnaire Nagel, D.L., Black, D. R., Leverenz, L. J., & Coster, D.C. (2000), Evaluation of a screening test for female college athletes with eating disorders and disordered eating. Journal of Athletic Training, 35, 431-440. Physiologic Screening Test for ED’s/Disordered Eating Among Collegiate Female Athletes Black, D. R., Larkin, L J. S., Coster, D. C., Leverenz, L.J., & Abood, D. A. (2003). Physiologic Screening Test for Eating Disorders/Disordered Eating Among Female Collegiate Athletes. Journal of Athletic Training, 38, 286297.