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National Cancer Survivorship Initiative
Central Hall, Westminster
Monday 21 September 2009
Active and Advanced Disease
Active and Advanced Disease
Today:
• Overview of priorities
• Look at our plans
• Get your feedback
Steven Wibberley – Macmillan Cancer Support
Amanda Whetstone – Service User
Tariq White – Cancer Network nurse Director
Our ideal world would look like ...
Everyone has a
personalised care
plan
Easy access to
support and
rehab services
Prompt and
sensitive
pathways back
into the system
EoLC decisions are
made together by
patients and
professionals
Priorities
Well-being - living with and beyond cancer
Coping, wellness, the ‘new normal’, relationships
Getting back into the system on recurrence
Self-referral, pathways from primary care,
treatment by MDT, role of A&E
Transition to End of Life Care
Who decides and when, communications – early
involvemnent of palliative care
Ongoing assessment and care plans
Well-being - living with and beyond cancer
Coping, wellness, the ‘new normal’, relationships
Our plans.....
• Focus on “patient centred care”
• Link with the evidence review on “what makes a
difference”
• Gather examples of good-practice around well-being
(and navigation) in cancer and LTC.
• Develop models of care manager / navigator
• Patient info and pathways –directories of service info
• Produce principles and guidance for good practice.
Getting back into the system on recurrence
Self-referral, pathways from primary care,
treatment by MDT, role of A&E
Our plans…
• Identify current best practice
– developing access pathways for suspected recurrence
– multi-disciplinary approaches to treating recurrence
and advanced disease
• Through 3rd wave of test communities (late 2009)
identify pilot sites for improvements in pathways
and approach to treatment for patients with
recurrence / active cancer.
• Produce good practice guidance
Transition to End of Life Care
Who decides and when, communications – early
involvemnent of palliative care
Our plans…
• Identify and work with test communities looking
at assessment at the transition to EoL.
• Work with Dept of Health EoL team to identify
understand implementation and issues for cancer
survivors
• Produce good practice guidance
Ongoing assessment and care plans
Our plans…
• Involvement in next phase of test
communities
• Evaluation of A&CP on later stages of pathway
and transition to EoL
• Input into the final report to ensure
recommendations relating to patients with
advanced disease or at the transition to end of
life are included.
Questions…
• From what you have heard today, what is
most important?
• What, if anything, has been left out?
• What will be the difficulties in
implementation?
• How can we overcome these difficulties?
• What other points come out of this
discussion?