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Managing Symptoms in Palliative Care Aims To gain an awareness of the most common symptoms in patients with life limiting diseases and why these occur To identify your role in supporting patients and their families with these symptoms To understand how to promote patient comfort and improve the quality of care What are the most common symptoms? Pain Anorexia/Cachexia Constipation Pain ¾ of patients with cancer Common in heart, respiratory and renal disease Neurological conditions, e.g. MS Arthritis/Rheumatoid disease Many other causes e.g. constipation. headache Factors that can make pain worse Fear, worry, distress Lack of knowledge Poor communication Other symptoms/illnesses Social circumstances Spiritual well-being Movement/positioning Factors that can make pain better Information about condition and cause of pain Time, listening, understanding, knowing someone cares Analgesia/other interventions Support from and for family Other symptoms including social and spiritual needs addressed The key to effective pain control is thorough assessment Assessment Where is/are the pain(s)? What does the pain feel like? Ask about each pain separately What brings the pain on? What makes it better? Does your medicine help? Pain Control Generally through medication Different types of medication e.g. paracetemol, anti – inflammatory drugs, morphine Different routes Benefits/ side effects What is your role? Communication, i.e. listening, being there, physical contact Reporting pain – where, description, score if possible Adapting nursing care - reporting if analgesia has helped Patient and family involvement Building trusting relationship Challenges/ Anorexia Decreased appetite often caused by disease process Anorexia - Cachexia syndrome in cancer Alterations in normal break down of carbohydrate, proteins and fats - Increased energy expenditure leading to increased weight loss Common source of distress for patients and families Causes of Anorexia Many causes Indigestion, difficulty swallowing, painful mouth, nausea and vomiting, constipation, pain and breathlessness Secondary to treatment e.g. chemotherapy/radiotherapy, drug therapy. Anxiety/depression Blood abnormalities e.g. high calcium levels, low sodium Hospital food/odours Impact on Patient/Families Altered nutritional state – weight loss Fatigue/Altered body image Decreased energy/mobility Social isolation Low mood/depression Frustration/despair for patients and families Conflict Your Role Maintain and where possible improve nutritional state Try and identify why patient is anorexic/report Drug therapy e.g. Dexamethesone/Megace or creative supplements may help Work as part of the multidisciplinary team Be observant/report any changes Support relatives not to talk about food all the time Appreciate that eating can be hard work and gradual reduction of food is common as end of life Constipation Extremely common in palliative care Major source of distress for patients and families Usually avoidable Often linked to other symptoms Causes Of Constipation Disease process Immobility Anorexia Insufficient fluid and dietary intake Hospital environment Drug therapy in particular pain killers How Can It Be Prevented Good basic nursing care. Assess the patient – know their risk factors Encourage fluids/diet/mobility Monitor/chart bowel function as part of daily nursing care Observe for signs that may indicate constipation e.g. abdominal pain, agitation, nausea, vomiting, anorexia Drug Treatment of Constipation Lactulose Senna Movicol Suppositories/Enemas