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5 mins on last days of life and palliative care emergencies ! Dr. Ros Taylor Hospice Director Hospice of St. Francis Berkhamsted June 2012 Know who to ring !!! Know where the resources are ! • Mount Vernon Cancer Network Advice 01923 844281 • Hospices….open all hours • Peri-patetic Marie Curie Nurse • OOH District Nurses Last moments of life • Precious • Very symbolic to be together • Hours at bedside - focus on separation and memories Acknowledge death is near • Fundamental to good management Allows symptom control and decisions Allows final business and acceptance • If ignore closeness to death No care of dying Inappropriate treatment Surprise Question “ would I be surprised if this patient died in ………..a few days ??” Anticipate We can see the future…..often Clinical intuition • • • • • • Declining mobility Distracted and distant Breathless Difficulty swallowing Circulation changes PEOPLE KNOW !! Limit treatment to : • Analgesia s/c diamorphine or morphine • Sedation if needed s/c midazolam or levomepromazine • Anticholinergic s/c glycopyrronium or hyoscine Just in Case Boxes • 3-5 days of –Analgesia –Sedation –Drying agent –Anti-nausea Stopping medication • Stop futile medication - treat symptoms only • If unable to swallow - use parenteral route Syringe drivers • When to use Unable to take oral medication Nausea and vomiting Dysphagia Unconscious • What to use Fentanyl in the last days • Keep patch on at same dose death • Add extra analgesia as morphine in a driver The Pain of it all Managing terminal pain Continue analgesia until death If not swallowing then s/c infusion of diamorphine with 1/3 of previous oral morphine dose Breakthrough pain Use sixth of 24hr opioid dose If not had opioids Then 10 - 20mg diamorphine s/c per 24 hrs Plus anti-emetic Terminal Dyspnoea INSPIRE EXPIRE Powerful words When midazolam fails • Short acting 1-3 hrs • amnesic not analgesic • in some people acts like alcohol – increase agitation and aggression • Alcohol and benzo use affects its activity • try Nozinan or Phenobarbitone Terminal restlessness • Look for reversible cause Bladder, bowel, pain, hypoxia • Best drug is midazolam 2.5mg – 5mg s/c midazolam 20 mg++ per 24 hrs midazolam Or lorazepam SL Sedation “If you want to die in your sleep you have to sleep first..” Liverpool Care Pathway for the Dying ?? Stairway to Heaven Or ?? Improve everyones care to a minimum standard Know who to ring !!! Know where the resources are ! • Mount Vernon Cancer Network Advice 01923 844281 • Hospices….open all hours • Peri-patetic HUC Marie Curie Nurse • OOH District Nurses