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Introduction to Core Data Set H
Young People
Simon Morgan [email protected]
Julie Marshall [email protected]
[email protected]
March 2011
Objectives
 To gain an understanding of all of the information required by NDTMS
 Clarify requirements and definitions of Core Data Set H (CDS H)
 Reiterate that CDS H effective from 1 April 2011
 Discuss avoidable Data Quality issues
Introduction to the NTA
 The National Treatment Agency for Substance Misuse (NTA) is a special health
authority within the NHS, established by Government in 2001 to improve the
availability, capacity and effectiveness of treatment for drug misuse in England
 NDTMS relates to the process of collecting, collating and analysing information
from and for those involved in the drug treatment sector
 NDTMS evidences your work and the impact of your work
 Numbers in effective treatment
 Public Health Outcomes Framework
 NDTMS is used to determine funding allocations
Introduction to NDTMS
 NDTMS was initially developed to collect data on adult substance
misusers receiving specialist drug treatment services. The new ten year
Drug Strategy (Drugs: Protecting Families and Communities) has
highlighted the importance of creating a data set that is young person
specific
 Core Data Set H for young people has been developed for all young
people’s services and should be completed for all people accessing
young people’s treatment services irrespective of age
Core Data Set H – why is it needed?
 Information reported to the NDTMS Young People’s data set is used to
ensure that effective specialist substance misuse treatment services are
available for all young people who require them
 Data is used to inform local needs analysis and commissioning; inform
NTA regional teams in supporting the continued development of
treatment services locally
 At national, regional and local levels it will also provide the opportunity to
collect and measure outcomes and outputs
What is specialist substance misuse treatment – YP?
 ‘Young People’s specialist substance misuse treatment is a care
planned, medical, psychological or specialist harm reduction intervention
aimed at alleviating current harm caused by a young person’s substance
misuse’
Interim Commissioning Guidance on young people’s specialist substance misuse
services NTA 2008
Core Data Set H
 http://www.nta.nhs.uk/core-data-set.aspx
Core Data Set H
 NDTMS core data set - reference data - Reference data is defined as
(relatively) static data. Generally it is employed as a means of validating
data entry and will typically be used to control the contents of drop-down
lists etc.
 NDTMS core data set – business definitions for young people's
treatment providers - Guidance for agencies on the core data set.
 NDTMS core data set – guidance for young persons' treatment
providers - Details the latest changes and explains which services
should report to NDTMS; provides relevant definitions, as well as
confidentiality and consent issues and answers to frequently asked
questions.
Core Data Set H
 NDTMS core data set - reference data
 NDTMS core data set –
Business Definitions for YP
Code
Text
Sort Order
1
Yes
1
2
No
2
98
Not Known
98
Core Data Set H
 The Core Data Set is made up of four data entities:
 Client information
 Episode (including regional fields)
 Interventions
 Treatment Outcome Profile (TOP)
Client Information
Finitial (key field) - the first initial of the client’s first name
Sinitial (key field) - the first initial of the client’s surname
DOB (key field) - the day, month and year that the client was born
SEX (key field) - the sex that the client was at birth.
Ethnicity - If a client declines to answer then ‘not stated’ should be
used. If a client is not asked, then the field should be left blank.
 Nationality - Country of nationality at birth (all case management
systems / DET will have a drop down list box) ‘Not stated’ added





NB - If you put the full name in your case management system, only
the initials will be submitted to NDTMS
Episode

An episode of treatment is a set of interventions with a specific care
plan. A client may attend one or more unique interventions of treatment
during the same episode of treatment.
CLIENT
AGENCY 1
AGENCY 2
EPISODE
EPISODE
Referral Date
Discharge Date
Modality 1
Referral Date
Modality 1
YP Harm
Reduction Service
YP Psychosocial Counselling
Modality
Start Date
Discharge Date
Modality
End Date
Modality
Start Date
Client Treatment Journey
Modality 2
YP Psychosocial –
Relapse Prevention
Modality Modality
End Date Start Date
Modality
End Date
Episode
 Referral date (key field) - The date that the client was referred to the
agency for this episode of treatment – for example it would be the date a
referral letter was received, the date a referral phone call or fax was
received or the date the client self referred
 Agency code (key field) - A unique identifier for the treatment provider
that is defined by the regional NDTMS centres
 Client Reference - a unique number or ID allocated by the treatment
provider to a client - this must not hold or be composed of attributers
which might identify the individual. NB - The client reference is an
effective way of identifying any exceptions
Episode – Consent for NDTMS
 Clients must give explicit informed (typically written, but can be oral)
consent to share their information with NDTMS
 Clients should be informed about how their information is handled by
the NDTMS
 The NDTMS Confidentiality Toolkit is found under ‘Confidentiality
Toolkit’ on http://www.nta.nhs.uk/agency-daat-information.aspx
 Consent should be reviewed at the care plan review stage
 Values are now No person not consented; Yes person has consented
Only clients who have consented to information being submitted to
NDTMS will be included in numbers in treatment
Episode
 Previously treated - Has the client ever received structured drug
treatment at this or any other treatment provider
 Post code - The postcode of the client’s place of residence. Only the
truncated postcode is submitted to NDTMS (E5 9)
If a client states that they are of NFA, then this field is to be left blank
Episode – Accommodation Need YP
The accommodation need refers to the current situation (28 days prior
to treatment start) of the client with respect to housing need.
Text
Comments
YP living with relative
Young person living with parents or
other relatives
YP Independent - settled
accommodation
Young person living independently in
settled accommodation
Young Offender Living in Secure Care
Independent YP - unsettled
accommodation
Young person living independently in
unsettled accommodation
Independent YP with No Fixed Abode
Young person living independently with
No Fixed Abode
YP Supported Housing
Young person living in specifically
commissioned housing
Location of CLA
Text
CLA Living in care
CLA living in children’s home
CLA living in residential school
CLA living in educational behavioural unit
CLA living in secure children’s home
CLA living out of borough
CLA placed out of borough
CLA living independently in settled accommodation
CLA living independently in unsettled accommodation
CLA living in supported housing
CLA with Kin Carers
Episode - Parental Status
 Young people who are under the age of 18 years can also have
parental status and should be asked about parental status
Text
Comments
All the children The client is a parent of one or more children under 18 and all the
live with client client’s children (who are under 18) reside with them full time.
Some of the
children live
with client
The client is a parent of children under 18 and some of the client’s
children (who are under 18) reside with them, others live full time
in other locations.
None of the
children live
with client
The client is a parent of one or more children under 18 but none
of the client’s children (who are under 18) reside with them, they
all live in other locations full time.
Not a parent
The client is not a parent of any children under 18
Client declined to answer
Episode
 DAT of residence - The DAT in which the client normally resides. If
NFA then for tier 3 treatment providers, the DAT of the treatment
provider should be used as a proxy; and for tier 4 treatment providers,
the referring DAT should be used as a proxy
 PCT of residence - The PCT in which the client resides. If NFA the PCT
of the treatment provider should be used as a proxy
 Local Authority - The local authority in which the client currently
resides. Due to Partnerships and local authorities not being
coterminous in all cases, when the client is NFA the local authority of the
treatment agency should not be used as a proxy.
Episode
 Problem substance no. 1 - The substance that brought the client into
treatment at the point of triage
 Age of first use of problem substance 1
 Route of administration of problem substance 1 - Inject, Sniff,
Smoke, Oral or Other
 Drug 2 & Drug 3 - Additional substance that brought the client into
treatment at the point of triage / initial assessment. No Second Drug
and No Third Drug are introduced for data completeness. New drug
Methylone and Mephedrone are introduced
NB - ‘Poly drug’ should no longer be used
Episode
 Referral source - Detailed list in the reference data but new YP codes
are: Secure Children’s Home; Secure Training Centre; Youth Offender
Institute; and YP Housing
 Triage date - The date that the client made the first face to face
presentation to the treatment provider
 Care plan date - Date that the care plan was created and agreed with
the client for this episode
 Injecting status - Is the client currently injecting; previously injected;
never injected or client declined to answer?
 TOP Care Co-ordination - Does the treatment provider currently have
care co-ordination responsibility for the client in regards to completing
the TOP?
Episode
 Children - How many children live with the client at least part of the
time? A child is a person who is under the age of 18. Young people
who are under the age of 18 years can also have parental status and
should be asked about parental status
Data
Entry
Text
0
0 children living with client
1
1 child living with client
2
2 children living with client
0-30
n children living with client
98
Client declined to answer
Episode
 Pregnant - All sexually active woman should be asked about pregnancy
 Drinking days – No. of days in the 28 days prior to initial assessment
the client consumed alcohol
 Units of alcohol - Typical number of units consumed on a drinking day
in the 28 days prior to initial assessment
Episode
 Hep C Tested – (Yes/No/Not Asked) If Yes, then complete test date.
 Hep C latest test date - Date that the client was last tested for Hepatitis
C. This test may be within the current treatment episode or previously to
the episode.
This test may be in the current treatment episode or previous to the
episode
If the date is not known; the 1st of the month
If the month is not known; the 1st January of the known year
Episode
 Hep B vaccination count - No. of Hep B
vaccinations given to the client within the
current episode of treatment
One vaccination
Two vaccinations
Three vaccinations
Course completed
Offered and accepted
 Hep B intervention status - Within the current
treatment episode, whether the client was
assessed and offered a vaccination for Hep B
Offered and refused
Immunised already
Not offered
Acquired immunity
Assessed as not
appropriate to offer
Episode
 Hep C intervention status
codes - Within the current
treatment episode, whether a
client was assessed and offered
a test for Hep C?
 Drug Treatment Health Care
Assessment Date - The date
that the initial healthcare
assessment was completed.
Offered and accepted
Offered and refused
Not offered
Accessed as not appropriate
to offer
Episode – status questions at treatment start and exit
These items focus on the status of the YP coming into and exiting
treatment and are an acknowledgement that young people sometimes
present with complex needs and vulnerabilities that may impact on their
substance misuse and that, as a consequence, they may also be
engaged with a range of other targeted and specialist services.
Episode – treatment entry status
 YP in contact with Mental Health Services at
treatment start - Is the YP currently in contact with
inpatient or outpatient mental Health Services?
 YP in contact with YOT at treatment start - in contact
with the Youth Offending Team as a result of receiving a
reprimand or final warning, acceptable behaviour contract,
Text
anti social behaviour order or community sentence
 YP involved in self harm at treatment start - This refers Yes
to the YP’s current involvement or suspected involvement No
in activities such as cutting, burning, banging, hair pulling
Not known
or poisoning. This includes accidental or non-accidental
overdose
 YP involved in offending at treatment start - This refers
to a YP’s current or suspected involvement in activities
which may or may not have come to the attention of the
police, YOT or LA
Episode – treatment entry status
 YP involved in sexual exploitation at treatment start This refers to a young person’s current involvement, or
suspected involvement in activities such as prostitution,
production of pornography or age inappropriate
relationships with adults
 YP involved in unsafe drug use at treatment start - This
refers to a YP’s current involvement or suspected
involvement in unsafe drug and alcohol related activities.
 YP Lead Professional at treatment start - This refers to
the professional, who as part of the CAF process has been
appointed to act as a single point of contact and coordinate
provision for a child and their family.
 YP has a CAF at treatment start - This refers to a YP
who has been identified as requiring additional needs and
assessed using the Common Assessment Framework
Text
Yes
No
Episode – treatment entry status
 YP Frequency of use of drug 1 at
Treatment Start – number of days
use of drug 1 in the last 28 days
 YP registered with a GP at
treatment start - Has the YP
registered with a GP at the point of
treatment entry
 YP a Looked After Child
Code
Text
0 - 28
Number of days used
98
Client declined to answer
Text
Yes
No
Not known
Episode – treatment entry status (new)

YP in contact with disability
services at treatment start - At the
start of the current treatment
episode, is the client in contact with
services, which assist in the support
or management of their physical or
mental disability?
 YP engaged in unsafe sex at
treatment start - This refers to a
YP’s current or suspected
involvement in unsafe sexual
activities such as unprotected
vaginal, anal or oral sex
Text
Yes
No
Not known
Text
No
Yes
Not Asked
Episode – treatment entry status
Text
Mainstream education
Alternative education
Temporarily excluded (no more than 45 days a year)
 YP education
status at treatment
start
Permanently excluded
Persistent absentee
Apprenticeship or Training
Employed
Not in employment or education
Economically Inactive Caring Role
Economically Inactive Health Issue
Client Declined to Answer
Episode – treatment exit status
 YP Lead Professional at treatment exit This refers to the professional, who as part
of the CAF process has been appointed to
act as a single point of contact and
coordinate provision for a child and their
family

YP Frequency of use of drug 1 at
Treatment Exit – number of days
use of drug 1 in the last 28 days
Text
Yes – LP at Drug
Agency
Yes – LP not at Drug
Agency
No
Code
Text
0 - 28
Number of days used
98
Client declined to answer
Episode – treatment exit status
 YP in contact with YOT at treatment exit - in
contact with the YOT as a result of receiving a
reprimand or final warning, acceptable behaviour
contract, anti social behaviour order or community
sentence
 YP in Contact with Mental Health Services at
Treatment exit - Is the YP currently in contact with
inpatient or outpatient mental Health Services?
 YP involved in self harm at treatment exit - This
refers to the YP’s current involvement or suspected
involvement in activities such as cutting, burning,
banging, hair pulling or poisoning at point of
discharge
 YP in contact with disability services at treatment
exit - At the point of discharge, is the client in contact
with services, which assist in the support or
management of their physical or mental disability
Text
Yes
No
Not known
Episode – treatment exit status
 YP involved in sexual exploitation at
treatment exit - This refers to a young person’s
current involvement, or suspected involvement
in activities such as prostitution, production of
pornography or age inappropriate relationships
with adults
 YP involved in unsafe drug use at treatment
exit - This refers to a YP’s current involvement
or suspected involvement in unsafe drug and
alcohol related activities.
 YP has a CAF at treatment exit - This refers to
a YP who has been identified as requiring
additional needs and assessed using the
Common Assessment Framework
Text
Yes
No
Episode – treatment exit status
 YP involved in offending at treatment exit - This
refers to a YP’s current or suspected involvement in
activities which may or may not have come to the
attention of the police, YOT or LA
 YP registered with a GP at treatment exit - Has
the YP registered with a GP since the point of
treatment exit
 YP engaged in unsafe sex at treatment exit - This
refers to a YP’s current or suspected involvement in
unsafe sexual activities such as unprotected vaginal,
anal or oral sex
Text
Yes
No
Not known
Text
No
Yes
Not Asked
Episode – treatment exit status
 YP sexual health interventions at treatment
exit - At the point of discharge, has the YP had
a sexual health intervention?
Text
Yes
No
Inappropriate
question
 YP met goals agreed on care plan at
treatment exit - Has the YP met the main
goals of their care plan at treatment exit
Text
Yes
No
Episode – Discharge
 Discharge Date - The date that the client was discharged ending the
current structured (Tier 3/Tier 4) treatment episode
 If a client has had a planned discharge then the date agreed within
this plan should be used
 If a client’s discharge was unplanned then the date of last face to
face contact with the treatment provider should be used
 If a client has had no contact with the treatment provider for two
months then for NDTMS purposes it is assumed that the client has
exited treatment and a discharge date should be returned at this point
using the date of the last face to face contact with the client
Episode – Discharge Codes
Text
Comments
Treatment completed –
drug-free
The client no longer requires structured drug treatment
interventions and is judged by the clinician not to be using heroin
(or any other opioids) or crack cocaine or any other illicit drug
Treatment completed –
alcohol-free
The client no longer requires structured Alcohol interventions and
is judged by the clinician and is judged by the clinician to no
longer be using alcohol
Treatment completed –
occasional user (not
heroin or crack)
The client no longer requires structured drug treatment
intervention and is judged by the clinician not to be using heroin
(or any other opioids) or crack cocaine. There is evidence of use
of other illicit drug use but this is not judged to be problematic or
to require treatment
Treatment Completed – The client no longer requires structured Alcohol treatment
occasional user
interventions, there is evidence of alcohol use but this is not
(alcohol)
judged to be problematic or to require treatment
Episode – Discharge codes
Text
Comments
Transferred – Not in
custody
A client has finished treatment at this provider but still
requires further drug / alcohol interventions and the
individual has been referred to an alternative nonprison provider for this. This code should only be used if
there is an appropriate referral path and care planned
structured drug treatment pathways available
Transferred – In custody
A client has received a custodial sentence or is on
remand and a continuation of structured treatment has
been arranged. This will consist of the appropriate
onward referral of care planning information and a two
way communication between the community and prison
treatment provider to confirm assessment and that care
planned treatment will be provided as appropriate
Incomplete – Dropped
Out
The treatment provider has lost contact with the client without a
planned discharge and activities to re-engage the client back into
treatment have not been successful
Incomplete – Treatment
withdrawn by provider
The treatment provider has withdrawn treatment provision from the
client. This item could be used, for example, in cases where the
client has seriously breached a contract leading to their discharge;
it should not be used if the client has simply ‘dropped out’
Incomplete – Retained
in custody
The client is no longer in contact with the treatment provider as
they are in prison or another secure setting. While the treatment
provider has confirmed this, there has been no formal two way
communication between the treatment provider and the criminal
justice system care provider leading to continuation of the
appropriate assessment and care-planned structured drug / alcohol
treatment
Incomplete – Treatment
commencement
declined by the client
The treatment provider has received a referral and has had a face
to face contact with the client after which the client has chosen not
to commence a recommended structured drug / alcohol treatment
intervention
Incomplete – Client died During their time in contact with structured drug / alcohol treatment
the client died
Episode – Discharge destinations
Discharge destination - The lead agency that the treatment
provider has referred a young person back or onto once the
treatment episode has been completed
Text
Comments
Back to
Referrer
refers to a young person, who at the end of the treatment episode is
referred back to the lead agency that originally referred them into
specialist treatment
Generic
Children’s
Services
refers to a young person, who at the end of the treatment episode is
referred onto Children and Family, Child Looked After or Universal
Education services. See APPENDIX D for a more detailed description
of Children and Family, Child Looked After and Universal Education
Targeted
Youth
Support
refers to a young person, who at the end of the treatment episode is
referred onto services providing prevention, early intervention or
support for vulnerable young people. This includes generic youth
services providing Information, Advice and Guidance, and targeted
services such as Connexions and Positive Activities for Young People
Episode – Discharge destinations (cont)
Lead
Professional
refers to a young person, who at the end of the treatment episode is
referred onto a Lead Professional. As part of the CAF process a lead
professional takes the lead to coordinate provision and acts as a single
point of contact for a child and their family when a range of services are
involved and an integrated response is required
Alternative
Education
refers to a young person, who at the end of the treatment episode is
referred onto education services for young people who cannot access
universal education provision for any reason.
Children’s
Mental Health
Services
refers to a young person, who at the end of the treatment episode is
referred onto inpatient or outpatient Child and Adolescent Mental Health
Services. This includes referrals from mental health services that work
across the age range (i.e.16-25) such as early interventions teams
Crime
Prevention
refers to a young person, who at the end of the treatment episode is
referred onto services working with young people identified as at risk of
offending and who are not due to attend court and are not currently under
sentence such as YIPs, YISPs or any arrest referral schemes in operation
Episode – Discharge destinations (cont)
Text
Accommodation
Services
Comments
refers to a young person, who at the end of the treatment episode is
referred onto accommodation services specifically commissioned to
meet the needs of young people such as supported housing
Other YP
refers to a young person, who at the end of the treatment episode is
Treatment Service referred onto another young persons specialist treatment service
Adult Treatment
Services
refers to a young person, who at the end of the treatment episode is
referred onto services providing drug or alcohol treatment services
predominantly for those aged 18 or over. This includes needle exchange
programmes and other services to address adult substance misuse
No onward
referral
refers to a young person who, due to unforeseen circumstances, is not
referred back or onto other services at the end of the treatment episode
No referral
required
refers to a young person, who at the end of the treatment episode does
not require an onward referral
Intervention
 A client may have more than one treatment intervention running
sequentially or concurrently within an episode
 Only tier 3 and 4 interventions are submitted to NDTMS and are counted
towards numbers in effective treatment
Intervention
Text
 Treatment Intervention
(key field) - The treatment
intervention a client has
been referred for or has
commenced within this
treatment episode
Tier
YP harm reduction service
3
YP specialist pharmacological
intervention
3
YP non structured intervention
2
YP Psychosocial - counselling
3
YP Psychosocial – Cognitive
Behavioural Therapy
3
YP Psychosocial – Motivational
Interviewing
3
YP Psychosocial – Relapse
Prevention
3
YP Psychosocial - family work
3
Intervention
 Date referred to intervention (key field) - The date that it was mutually
agreed that the client required this treatment intervention. For the first
intervention in an episode this should be the date that the client was
contacted and agreed to a referral into the treatment system for a
specialist substance misuse treatment intervention. The date a referral
letter or fax was received should not be recorded as the date that the
client was referred to the intervention.
 For subsequent interventions it should be the date that both the client
and the key worker agreed that the client is ready for this intervention.
Intervention
 Date of First Appointment Offered for Intervention - The date of the first
appointment offered to commence this intervention. This should be
mutually agreed to be appropriate for the client
 Intervention Start Date - The date that the stated treatment intervention
commenced i.e. the client attended for the first appointment
 Intervention End Date - The date that the stated treatment intervention
ended. If the intervention has had a planned end then the date agreed
within the plan should be used. If it was unplanned then the date of last face
to face contact date within the intervention should be used
Intervention
Text
 YP treatment being
delivered in a
specific residential
placement
No
Yes – Detox CAMHS Patient
Yes – Dedicated YP
detox and rehab
Yes – Detox Adult Ward
Yes – Paediatric
hospital detox
Yes – In Reach Community
Detox
Yes – Other
Yes – In Reach Psychosocial
 Intervention exit
Text
status - Whether the
Mutually agreed planned exit
exit from the treatment
intervention was
Clients unilateral unplanned exit
planned or unplanned
Intervention withdrawn
Comments
Also used when
client died
Treatment Outcome Profile - TOPs
 The implementation of the Treatment Outcomes Profile (TOP) in routine clinical
practice began from 1 October 2007; its completion and submission via the
National Drug Treatment Monitoring System (NDTMS) is requested for all clients
(16 and over) accessing tier 3, and 4 structured drug treatment
 The TOP consists of a short set of simple questions that focus on the four key
areas (substance use, injecting behaviour, criminal activity, health and social
functioning) that are used to judge improvement during and after treatment.
Outcomes from treatment are evidenced by looking at changes in the
behaviours recorded over time
 It is requested that the TOP be completed with all clients at the start of their first
treatment modality (Treatment Start TOP) and then around every 26 weeks
throughout the treatment journey as part of the care plan review process
(Review TOP) and at treatment exit (Treatment Exit TOP)
Treatment Outcome Profile - TOPs
 TOP date (key field) - All outcome status submitted in this section of
the data - set will be associated and stored as being the status as of
this date.
Note: TOP data should only be collected for young people aged
16 and over.
Treatment Outcome Profile - TOP
Text
 There are 4 TOP treatment stages
Treatment Start
Review
Treatment Exit
Post-Treatment Exit
TOPs - Substance use in the last 28 days
 Alcohol Use - Number of days in previous 28 days that client has used
alcohol
 Opiate Use - Number of days in previous 28 days that client has used heroin
 Crack Use - Number of days in previous 28 days that client has used crack
 Cocaine Use - Number of days in previous 28 days that client has used
powder cocaine
 Amphetamine Use - Number of days in previous 28 days that client has
used amphetamines
 Cannabis Use - Number of days in previous 28 days that client has used
cannabis
 Other Drug Use - Number of days in previous 28 days that client has used
other problem drug
TOPs - Injecting risk behaviour in the last 28 days
 IV Drug Use - Number of days in previous 28 days that client has
injected non prescribed drugs
 Sharing - Has client shared needles or injecting paraphernalia in last 28
days?
TOPs - Crime in the last 28 days
 No. of days in previous 28 days that client has been involved in shop
theft
 No. of days in previous 28 days that client has been involved in selling
drugs
 Has client has been involved in theft from or of vehicle, property or been
involved in fraud in last 28 days (Y/N)
 Has client committed assault/violence in last 28 days (Y/N)
TOPs - Health and social functioning
 Psychological Health Status - Self Reported Score 0-20
 Number of days in previous 28 days that client has had paid work
 Number of days in previous 28 days that client has attended
college/education system
 Has client had acute housing problem (been homeless) in last 28 days
 Has client been at risk of eviction within past 28 days
 Physical Health Status - Self Reported Score 0-20
 Quality of Life - Self Reported Score 0-20
TOP treatment start – When?
 For a completely new treatment journey. The client
has not received tier 3 or 4 treatment at another
agency 21 days before starting at the new agency
 TOPs should be completed 2 weeks either side of
the client’s first tier 3 or 4 modality start
TOP review – When?
 Using the modality start date TOP as an anchor point, the review TOP
should be completed at least every 26 weeks.
TOP treatment exit – When?
 Treatment exit TOPs should be completed up to 2 weeks before and up to 2
weeks after the client’s discharge date
 Treatment exit TOPs should be conducted when the client leaves the treatment
system regardless of when the last review TOP was conducted
 Treatment exit TOPs can be carried out over the telephone if the client does
not attend their last appointment
TOP post treatment exit – When?
 After the client has left the treatment system they can be contacted to
review how they are getting on. The Post Treatment Exit TOPs can be
completed whenever it is suitable for the client and the Key Worker.
This should be approximately 3 months after the client’s discharge date
TOP key points
Regional fields
 Injected in the last 28 days
 Ever shared (heroin only paraphernalia)
 Referred to hepatology
 Previously Hep B infected:
 Hep C positive:
Employment Status Codes
Text
Regular Employment
Not receiving benefits
Pupil/Student
Unpaid voluntary work
Long Term Sick/
Disabled
Retired from Paid Work
Homemaker
Not stated
Unemployed and
Seeking Work
Other
Not Known
Data Quality
 Good quality data is data which provides the most accurate picture of a
provider’s work
 NDTMS figures are used to determine funding and establish whether a
partnership or agency is meeting it’s targets; it is important to have
accurate data
 There is no ‘acceptable level’ for data quality; any errors in data need to
be resolved
Data Quality
 There are three main causes of data quality problems:
 User error
 Changes to data; when changes are made to ‘key fields’,
duplicates are created
 System error; it is important for software providers to stay up to
date with changes in the dataset, and for agencies to report any
software issues promptly to both suppliers and NDTMS
Data Quality
When a provider submits a file, a validation is performed, the file
must score 100% for both data load and data quality before it can
be submitted
Data Quality
Core Data Set H – Key Fields
Further guidance
 www.nta.nhs.uk
 http://www.nta.nhs.uk/core-data-set.aspx
 NDTMS Data Set – Reference Data
 NDTMS Data Set – Business Definition for Young People’s
Treatment Providers
 NDTMS Core Data Set – Technical Definitions
 [email protected]