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FEDUp!Coalitioncommitteemembers Chair,FEDUP!CoalitiontoEndtheOpioidEpidemic JudyRummler–FounderandPresident,SteveRummlerHopeFoundation JudyisthemotherofSteveRummlerwhodiedonJuly1,2011ofanaccidentaldrugoverdose.Stevehad sufferedwithchronicpainforfifteenyearsandhadbecomeaddictedtothemedicationsthatwereprescribed tohimforhispain.ShortlyafterSteve’sdeath,JudyandherhusbandBillfoundedtheSteveRummlerHope Foundationwhosemissionistoheightenawarenessofthedilemmaofchronicpainandthediseaseof addictionandtoimprovetheassociatedcareprocess.JudyreceivedherB.A.degreefromtheUniversityof Wisconsin,Madison,andhadacareerasaCertifiedFinancialPlanner.Shehasservedinmanynonprofit capacitiesinbothMinnesotaandFlorida,includingasChairoftheMethodistHospitalFoundation(nowthe ParkNicolletFoundation)andasChairoftheColonialChurchofEdinaFoundation.InherroleasPresidentof theSteveRummlerHopeFoundation,Judyhasbeenwidelyrecognizedforhereffortstoincreaseawarenessof theepidemicofopioidaddictionandoverdosedeaths.Sheispassionateaboutfindingwaystoimprovecare forthemanywhoarecurrentlysufferingwithchronicpainandthediseaseofaddiction.Sheisanadvocatefor neededchangesinlegislationandpolicyandasupporterofeducationonresponsibleopioidprescribing. Chair,FEDUP!RallySteeringCommittee AprilJ.Rovero-Founder/CEO,NationalCoalitionAgainstPrescriptionDrugAbuse(NCAPDA) OnDecember18,2009Aprilandherfamilyreceivedwordthather21-yearoldsonandcollegestudent,Joey, haddiedinhisoff-campusapartmentofwhatwaslaterdeterminedtobeanaccidentalprescriptiondrug overdose.ThisdevastatinglossledtothefoundingofNCAPDAjustafewmonthsafterJoey's death.NCAPDA'seffortsarefocusedonreducingprescriptiondrugaddictionandoverdosedeathsthrough communityeducation,legislativeadvocacyandpolicychangeonalllevels.Aprilhasworkedtoeducate thousandsofyouthandadultsinnumeroussettings.Shehastestifiedinstateandfederallegislativeandother hearingsandworkedwithSAMHSAtodefinehowprescriptiondrugsarebeingabusedoncollege campuses.Sheleadshercounty'sPrescriptionDrugAbusePreventionCoalition,isaco-leadofCalifornia’s PrescriptionDrugAbuseWorkGroupandleadstheSanRamonValleyPrescriptionDrugAbuseTask Force.Aprilandherfamilyhavebeenfeaturedinseveraldocumentariesandnumerousnewspaper,magazine, radioandTVsegments,includingTheDoctorsprogramin2012.Aprilhasreceivedmultiplerecognitionawards forhercommunityserviceefforts.Sheviewsoneofherorganization'sgreatestaccomplishmentsashaving beeninstrumentalintheestablishmentofMarchasPrescriptionDrugAbuseAwarenessMonththroughout California.Shebelievesthateveryoverdosedeathandaddictionisavoidablehasdedicatedherlifetohelping otherfamiliesnotsufferthetragiclosshershas. BarbaraAllen–ExecutiveDirector,JamesPlace,Inc DanielBusch,M.D.- KarenJ.Carlini,CASAC–DynamicYouthCommunity,Inc. KarenCarliniisAssociateDirectorofDynamicYouthCommunity,Inc.,aNewYorkStatelicensedandfunded adolescentdrugrehabilitationprogramdedicatedtothecomprehensivetreatmentofadolescentalcoholand substanceabusers.DYCwasfoundedin1970andMs.Carlini,acredentialedalcoholandsubstanceabuse counselor,hasbeenwiththeorganizationsince1974.Ms.CarliniisaboardmemberofTherapeutic CommunitiesAssociationofNewYork(TCA),NYSAssociationofSubstanceAbuseProviders(ASAP),andThe CoalitionforCommunityServices,anallianceofNewYorkcommunity-basedsubstanceabuseagencies.Sheis theco-chairoftheNYSASAPAdolescent/YoungAdultCommittee.Ms.Carliniisco-authorofChapter10, “DynamicYouthCommunity,Inc.:AMultiphase,Step-DownTherapeuticCommunityforAdolescentsand YoungAdults”partofAdolescentSubstanceAbuseTreatmentInTheUnitedStates:ExemplaryModelsFromA NationalStudy(HaworthPress,2003). AmyCooper– MichaelDeLeon–SteeredStraight,Inc. DonFlattery–CitizenAdvocate,VirginiaTaskForceonPrescriptionDrugandHeroinAbuse Donisanimpactedparent,havinglosthistwenty-sixyearoldandonlysontoanopioid-relatedoverdose.He hasdedicatedhimselftopursuingneededpolicyandlegislativechangeswhichensureareturntomore cautiousprescribing,savethelivesofthosealreadyafflictedbyaddictionandexpandaccesstoimproved treatment,especiallywideracceptanceanduseofmedication-assistedtherapy.Hecontinuestospeakand writeonthesetopicsandhasprovidedpolicysupporttoPROP,ShatterproofandVirginiaChangeAddiction Now. AdaGiudice-Thompson–VicePresident,AdvocatesfortheReformofPrescriptionOpioids,Inc.(ARPO) AdaisaretiredHighSchoolteacherlivinginOntario,Canada.OnJune10,2004Ada’slifewaschanged forever.Michael,heronlychild,diedsuddenlyandunexpectedlyfromhydromorphone,anarcoticprescribed tohimbyhisdoctor.Adadidnotreturntoteachingbutbecameafull-timeadvocateforthereformof prescriptionopioids.Heradvocacyincludes:VicePresident,AdvocatesfortheReformofPrescriptionOpioids (ARPO),abi-nationalorganizationintheUnitedStatesandCanadaadvocatingforprescriptionopioidreform toendtheepidemicbyensuringthatopioidsareusedwithcareandselectively,andonlywhenallother options,aswellastheknownrisksofopioids,havebeenfullyconsidered,asindicatedandsupportedby research,MemberoftheCanadianNationalAdvisoryCouncilonthestrategydevelopmentand implementationof“FirstDoNoHarmRespondingtoCanada’sPrescriptionDrugCrisis”,MemberofthePatient AdvisoryCommittee(PAC)actingasaresearchconsultantwiththePatient-CenteredOutcomesResearch Institute(PCORI)–“EvaluationofaHealthPlanInitiativetoMitigateChronicOpioidTherapyRisks”,and MemberoftheFEDUP!CoalitionandSteeringCommitteetoRallyforaFederalResponsetotheOpioid Epidemic. ScarletGleeson–ClientServicesConsultant,LakeviewHealth ScarletGleesonhasbeenarecoveryadvocatefordecades.Shehasherownstoryofrecoveryfromdrugsand alcohol,duringwhichtimeshehaswitnessedthousandsrecover,whilealsolosingmanyfriendsandfamily memberstosubstanceusedisorders.Sheisanactivistandpassionatesupporterforrecoveryrights,anda proudmemberoftheFEDUP!Coalition.Byoccupation,Scarletisamarketingprofessionalpresentingthree decadesofexperience.ShecurrentlyworksintheaddictiontreatmentfieldasaClientServicesConsultantfor LakeviewHealth. Herprofessionalexperiencealsoincludes,DirectorofOperationsforLyndaCarter’sproduction companyforeightyears.ShewasinstrumentalinbrandingMs.Carter’snewidentityasasinger;movingher forwardandreinventingherimagefromtheinfamousWonderWomancharacter.Shealsoenjoyedtenyears asaconsultantatTheKennedyCenterforthePerformingArts.Scarlet’scommunityserviceworkincludes servingontheBoardofDirectorsforFatherMartin’sAshleyinHavredeGrace,MDfortwelveyears. WhethersheisatworkatLakeviewHealthorinherprivatepractice,Scarlet’spurposeistoconnect eachpersonwiththeirowninnateabilitytohealandflourish;emotionally,spiritually,mentally,physicallyand more.Shecontinuesherworkbysharingherstoryandpassingonthemanyrecoverysolutionsshehas embraced;onepersonatatime,onedayatatime. PeterW.Jackson–President,AdvocatesfortheReformofPrescriptionOpioids,Inc.(ARPO) OnAugust18,2006Mr.Jacksonsufferedanunspeakabletragedywhenhelosthissweet,18year-olddaughter EmilytooneOxyContinpillinanaccidentaloverdose.Shewasthreedaysfromherfirstdayincollege,herlife aheadofher.Mr.Jacksonsubsequentlylearnedthatmanyotheryoungpeople(andmanynot-so-young people,includingpainpatientswhowereprescribedopioidsbytheirdoctor)havediedorbecomeaddictedto thesedrugs.Mr.JacksonbegantoattendFDAmeetingstoadvocateforsaferprescribingindicationsfor opioids,andhisadvocacyworkledtoco-foundingARPO,a501©(3)non-profitcorporationin2011.ARPO’s missionistoendtheepidemicofdeathandaddictioncausedbyprescriptionopioiddrugsbyensuringthat opioidsareregulated,marketed,prescribedandusedinanevidence-basedmanner.ARPOisbi-national, advocatinginsupportofitsmissionintheU.S.andCanada.Mr.Jacksonisabiologistbytradeandholds BachelorsandMastersDegreesinbiology. MaureenKielian-STOPPnow AndrewJ.Kolodny,M.D.–President,PhysiciansforResponsibleOpioidPrescribing(PROP) Dr.AndrewKolodnyistheChiefMedicalOfficerofPhoenixHouse,anonprofitaddictiontreatment organizationandheisPresidentofPhysiciansforResponsibleOpioidPrescribing(PROP).DrKolodnywas previouslytheChairofPsychiatryatMaimonidesMedicalCenterinNewYorkCity. Dr.KolodnyhasalongstandinginterestinPublicHealth.PriortohispositionatMaimonides,hewas theMedicalDirectorforSpecialProjectsintheOfficeoftheExecutiveDeputyCommissionerfortheNewYork CityDepartmentofHealthandMentalHygiene.ForNewYorkCity,hehelpeddevelopandimplementmultiple programstoimprovethehealthofNewYorkersandsavelives,includingcity-widebuprenorphineprograms, naloxoneoverdosepreventionprogramsandemergencyroom-basedscreening,briefinterventionandreferral totreatment(SBIRT)programsfordrugandalcoholmisuse. CindyKoumoutzis–Co-Founder,ChangeAddictionNow(C.A.N.) SandraKresser–Treasurer,AdvocatesfortheReformofPrescriptionOpioids(ARPO) In2004Sandra'ssonJosh,then22yearsold,injuredhisbackatworkresultingintwoherniateddiscs.His doctorfirstprescribedMethadonetohimforthepainandtwoweekslaterswitchedhimtoOxyContin.Four daysafterreceivingtheprescriptionforOxyContinheoverdosedforthefirsttime.Fromthatpointforwardhe plungedheadfirstintoanaddictionsopowerfulthatnomatterhowhardhetriedhecouldn’tbreakfree.Over thenext2.5yearshespentover404daysintreatmenttryingtoovercomehisaddiction.Heoverdosedfive differenttimesandforabrieftimeswitchedtoheroin.Aftercompletinghisthirdandfinalinpatienttreatment, wherehespentsixmonths,hewenttoseeaneurologisttoseeifhewasacandidatefordiscreplacement surgerybecausehisbackwasstillbotheringhim.Joshsharedwiththisdoctorhiscompletehistoryofopiate addiction,heroinuse,multipleoverdoses,rehabsandrelapsesandthefactthathewastakingAtivan,which wasbeingcloselymonitored.ThisneurologistignoredallofthisandprescribedVicodinandSomatoJosh.Two dayslateronSeptember30,2006JoshpassedawayfromalethalcombinationofVicodin,SomaandAtivan,all takenasdirectedandattherapeuticlevels. FromthatpointforwardSandravowedtodowhatevershecouldtospareanothermotherfrom sufferingthedevastatinglossofapreciouschildduetotheinappropriateoverprescribingofpowerful narcotics.Sheisveryinvolvedonalocalandnationallevelfightingtheprescriptiondrugepidemic.Shortly afterJosh'sdeathSandraandherhusbandLaynestartedanendowmentfundinhisnameattheUniversityof UtahNeuropsychiatricInstitutetohelppayforoutpatienttreatmentforyoungpeopleages18-25suffering fromaddictiontoopiates. TeriKroll-Coordinator,PUSH/LICADD TeriKroll’sinterestinLICADDandnowPUSHstemsfromherdesiretoensurethatfamiliesinthethroesof heroinaddictionandrecoveryhaveaplacetoturnforhelp.InAugustof2009,Teri’s23year-oldson,Timlost hiscourageousbattlewithheroinaddictioninherarms.TheKroll’shadenduredatumultuousthreeyear journeytobringTimtoasoberplace.Ashenearedapointofsteadyrecovery,gainfulemployment,active maintenanceofhissobriety,andworkinghardtorebuildthefamilytiesthathadbeenstretchedthin,Tim expressedadesiretomakesureotheryoungpeoplecouldavoidthechaoticandterrifyingordealhehad experienced.ArmedwithdetailsfromTimandTeri,anundercoverpolicetaskforcewasinitiatedtoarrestand convictaMassapequamanwhowassellingdrugsfromhismedicaloffice.WhileTimdidnotsurvivetoseethe outcomeofhisbraveandunselfishact,thatdrugdealerwascaught,arrested,triedandconvicted.Teriandher husbandFrankfollowedeverydetailofthecaseandworkedcloselywiththeDistrictAttorneytocementthe conviction.Manypresentinthecourtroomwerebroughttotearsastheprosecutorsharedvictimimpact statementswrittenbyTeriandFrank.Unabletoheedadvicefromfamilyandfriendstobesatisfiedbythe convictionandgetbackto‘normallife’,Tim’slegacyhasinspiredTeritosharenotonlyhisstorybutherown. WithTeriasPublicAdvocate,PUSHwillbecomeahouseholdwordinLongIslandandthehiddenstoryofthe localanddeadlyheroinepidemicwillbeunearthedandattendedto.TeriandFrankhavebeenmarriedfor37 yearsandliveinLindenhurstneartheirdaughter,son-in-lawandbeautifulgrandsonsBrendanandBrody. DianaLunas,Founder,LoveEverAfter Dianaisthemotheroffourchildren,whobecameabereavedparentin2008,whenhereldestchild,Josh,died fromanoverdosefollowingmonthsofresidentialtreatmentandsobriety.Herexperiencewiththediseaseof substanceusedisorder(SUD)didnotendthere.Afterstrugglingwithdepression,withdrawalandanxiety followingthelossofhisbrotherandbestfriend,theyoungest,Logan,self-medicatedthroughhisemotional painandbecameaddictedtoprescriptionpainmedications.Healsosuccumbedtoanoverdosepassingin 2014atage22followingmonthsofsobrietyandresidentialtreatment.Dianaisdevotedtocreating opportunitiesforhealingheartsthroughserviceasdemonstratedbyheradvocacyeffortsandnonprofit,Love EverAfter:LosingAChildtoSUD.ThediseaseofSubstanceUseDisorderhastakenhalfofherfamily.Her dedicationtoeducationandhealingheartsthroughservicefollowingsubstancelossisnowherpassion.Diana believesstronglythatitisnecessarytoputourchildren’sfacesonthesubjectofSUDtochangetheway societyviewsaddiction.SheislendingJoshandLogan’svoicesinanefforttoeliminateshame,secrecyand stigmainordertoencouragecommunitiestoseeSUDwithadifferentsetofeyes.Sheisretiredfroma30year careerasaparalegaland10yearsasavolunteerproduceroflocalhighschoolmusicals.Dianacontinuesa lifetimeofcommunityleadership,asthefoundingmemberandchapterleaderfortheonlyTheCompassionate Friendsorganizationinherarea.Inaddition,shenowservestheorganizationatitsNationalConferencelevel asapanelandworkshoppresenter.Hereffortsarefocusedoncontinuingeducatingforyouthandparentson thesubjectofsubstanceuse/abuse,aswellasworkingtoputanendtotheshameandstigmaassociatedwith SUD. JanisMcGrory-Founder,LowerCapeCommunityAnti-drugNetwork In2011,Janislostherbeautiful23yearolddaughter,ElizabethLeFort,toanaccidentalheroinoverdose.After experimentingwithprescriptionopioiddrugswhileinhighschool,Lizquicklybecameaddictedwhichledto herheroinuseandherultimatedeath.Eightweekslater,Janandherdaughter,AmyLeFort,wereaskedto speakatalegislativebreakfastinsupportofIndependenceRecoveryHighSchoolinBrockton,Ma.which begantheiractivistworkindrugeducationandawareness.JanisisafacilitatorforLearntoCope,aparent supportgroupandsheisonthesteeringcommitteeofFEDUP.Mostrecentlyshewasawardedthe2014 DistinguishedAlumniHumanitarianAwardfromMassachusettsCollegeofLiberalArtforherwork.Inaddition, shereceived2015HarwichCitizenoftheYearAwardforheradvocacyworkindrugabuseandaddiction.She hasbeenaskedtospeakinmanyvenues,includingschools,cableandradioshows.InJanuary2015,Janis participatedinadrugaddictionreenactmentdocumentarymovieproducedbytheWahlbergbrothers,called “IfOnly”.AlsoaspartofMassachusettsdeclaredpublichealthcrisisinopioidoverdosesanddeaths,Governor BakeraskedJanandAmytoshareLiz’sstoryonWCVB-TVPublicServeAnnouncementsrecentlyaswellasjoin himathispressconference,announcinghisinitiativestostopthisepidemic. JanishasaBachelor’sdegreeinPhysicsandaMastersinEducation.Sheiscurrentlyahighschoolmathteacher inHarwich,Maafterspending20yearsasanengineerintheprivatesector. MicheleMcTiernan-Gleason,AADP-AdvisoryCommittee,PublicRelationsforConnectthePieces(CTP) ConnectthePieceswasfoundedbyExecutiveDirectorMelanieCurtis,aftertragicallylosingherbelovedson MichaelCampbelltoanaccidentalprescriptionoverdoseonNovember10,2011.Mikewasprescribedand thenbecameaddictedto,painmedicationafterbreakingbothwristsplayingsports.In2012theCTPcampaign waslaunchedtoraiseawarenessastothemisuseandabuseofprescriptionmedications.Rutterjoinedforces withCurtisandCTPin2012,aftera10yearstrugglewithherownsonSamuel,whowasprescribedOxyContin aftersustainingsevereinjuriesinanautomobileaccident.Hebecameaddictedalmostimmediatelyandthus beganhisdecline.Samueliscurrentlyinrecovery.RutterreceivedherB.S.MagnaCumLaudeinSpeech CommunicationsandPublicRelationsfromMillersvilleUniversityinPennsylvania.Shehasservedinmany nonprofitcapacitiesinMaryland,PennsylvaniaandIdaho;includingCaronHospitalattheCaronFoundation. Caronisanon-profitleadingproviderofdrugandalcoholaddictiontreatment.Currently,Rutterservesas CommunicationsCouncilManagerfortheJuniorLeague.CertifiedbytheAmericanAssociationofDrugless PractitionerssheattendedtheInstituteofIntegrativeNutritionatSUNYandisthefounderofBioDistinct Wellness,LLC.Rutteriscommittedtoabsolvingtheprescriptiondrugepidemicandhelpingthoseinrecovery leadhappierandhealthierlives. JoannePeterson-FounderandExecutiveDirectorofLearntoCope LearntoCopewasstartedin2004.Joanneisalsoaparentofasoninlongtermrecoveryfromopiate addictionwhichbeganwithOxyContin.LearntoCope,anonprofitorganizationisauniquesolutions-based support,advocacyandeducationalpeerledorganizationforfamilymembersofthoseaddictedtoopiatesand otherdrugs.LearntoCopehasawebsitewhichprovidesasupportforumwithover4000registeredfamilies locallyandnationallyaswellasninechaptersinMassachusettswith3moreopeninginCapeCod,Springfield andNewBedfordinthefallof2013.LTCprovidespeersupportandeducationwiththefocusoncopingwith thedanger,stressandemotionsrelatedtothissituation. LTCprovidesinformationalresourcesregardingthediseaseofaddictionandrealisticstrategiesfor treatmentandrecoverybasedonthereal-worldexperiencesofmembers.LTCprovidestrainingonOverdose preventionandhowtosavethelivesoffamilymembersiftheyshouldseethesymptoms.LTCisthefirst parentnetworktoprovidetheoverdosereversalantidoteNarcan(NasalNaloxone)ateachchapter.Todate13 membershavesavedalifesinceDecember2011.LTChasbeensuccessfulingettingmanyyoungpeoplethe treatmenttheyneedandoffthestreetsandalsohelpsfamiliestocopeandrecover.LearntoCopehasbeen recognizedNationallybyTimeMagazine,theNewYorkTimes,Renewmagazine,A&E’SIntervention,NPR Radio,CapeCodTimes,BrocktonEnterprisesWastedYouth”series,GeraldoatLarge,FoxNews,BostonGlobe, BostonHerald,WCVBTVSChronicleandmostrecentlyparticipatedinafollowupdocumentaryfortheEmmy winningCurrentTV’SOxyContinExpresswhichairedinMay2011.Joannehastestifiednumeroustimesatthe StateHouseinBostonaswellasinCongressinWashingtonDC.LTChasreceivedawardsforitsadvocacy regardingthedangersofPrescriptiondrugsinmanycommunitiesinMassachusetts. LexiReedHoltum–ExecutiveDirector,SteveRummlerHopeFoundation LexiReedHoltumisExecutiveDirectoroftheSteveRummlerHopeFoundationandhasbeendedicatedtothe workoftheFoundationsinceitsinception.Herresponsibilitiesinclude:overseeingtheFoundation’sprograms, coordinatingspecialevents,buildingrelationshipsandcreatingcollaborativeeffortswithotherorganizations, managingandtrainingvolunteersandinterns,andpublicspeakingonbehalfoftheFoundation.Lexiisalsoa mastermassagetherapistandeducatorhavingworkedinthefieldforovertwentyyears.Shehasanextensive backgroundineducationwhichincludeswritingcurriculum,andteachinganatomy,physiology,pathology, professionaldevelopment,andvarioushandsonmassageandspatechniques.Lexihasalsohadtheprivilege ofworkinginanintegrativemedicineclinic,TheMindBodySpiritClinic,withinFairviewRiversideHospital, whereshewasabletocontributetoapowerfulmedicalmodelofcare.Lexibelievesfirmlyinthebenefitsofan integrativemedicalapproachinthetreatmentofchronicpainandaddiction.Lexiisgratefultobelivinginlong termrecovery.SheisthemotherofonechildandwasSteveRummler’sfiancée. EmilyWalden–STOPPNOWKentucky EmilyisthemotherofTJWaldenwholosthislifetoanoverdosein2012.TJwasamemberoftheKentucky NationalGuardandthemostrespectfulyoungmanyoucouldhaveevermet.Hestruggledwithaddictionafter experimentingwithOxycontinandthenmovingtothedrugOpana.By2011therewere33deathsfromOpana intheCityofLouisville.EmilymetwiththeLouisvilleMedicalSocietyinNovember2011onlytofindoutthey hadnotheardofdrugOpana.ShestartedresearchingandmeetingwithGovernmentOfficialsintheStateof KYandinthelastthreeyearshasworkedtomeetwithOfficialsonaFederallevel,includingtheSenate MajorityLeadertopushforchangeandpreventfuturedeaths.