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JoshProvides Epilepsy Assistance Foundation SUMMARY Mission The mission of JoshProvides is to improve the quality of life for those living with epilepsy or other seizure disorders. The organization does this thru education, awareness, volunteerism, and fundraising activities. In addition, JoshProvides strives to eliminate the negative stigma associated with epilepsy and to provide financial and benevolent assistance for people living with epilepsy and seizure disorders, their families, and the community at large. Contact Information Primary Address 5428 Sundew Drive Sarasota, FL 34238- Phone 800 706-2740 Alternate Phone 941 286-1962 Email [email protected] Website www.joshprovides.org Facebook JoshChapnickFund Twitter joshprovides General Information Nonprofit JoshProvides Epilepsy Assistance Foundation Organization Does Business As (DBA) JoshProvides Former Names 1 JoshProvides Epilepsy Foundation, Inc. JoshProvides Epilepsy & Seizure Disorder Fund Tax Exempt Status Public Supported Charity Incorporation Year 2013 State Charitable Solicitations Permit Yes July 2017 State Registration Yes Aug 2016 2 BACKGROUND & NEEDS Impact Statement Our top accomplishments this year are: • The establishment of a support group in West Palm Beach and the continued success of the JoshProvides support group in Sarasota • The awarding of financial grants as described in the Program Section of this Profile for the benefit of qualified people living with epilepsy; • The establishment of collaborative relationships with many surrounding organizations, including Epilepsy Services of Southwest Florida, Epilepsy Foundation of Florida, Epilepsy Services of Central Florida, the Manatee County Department of Health, and many others • The continued success of our annual epilepsy awareness walks: The fourth annual "Family and Dog Walk for Epilepsy Awareness" will be held in November in support of National Epilepsy Awareness Month. The main walk is in Sarasota and additional walks will be held in West Palm Beach, Ft. Lauderdale, and other areas in Florida and throughout the country. • Our accomplishments are supported by the many testimonials which can be read in the Testimonials listed in "Other Documents" as well as those listed on the JoshProvides website. Needs Statement The needs of JoshProvides during the 2016 fiscal/calendar year include: 1.Financial support for client services: This includes providing seizure alert monitors and seizure response dogs for individuals and families - $100,000 2.Funding for the creation and support of new support groups; The expenses for a year of operations that includes a counselor, snacks, and activities for youth is approximately $5000/group. 3.Funding for transportation: The JoshProvides transportation program supports youth and young adults who are unable to drive due to seizures and need transportation to college and individuals of any age who are in need of transportation for epilepsy treatment - $35,000 4.JoshProvides is launching a new earned income initiative to support its seizure response dog program. This initiative will be self-funding within three years, however, has start-up costs for which the organization is seeking funding. The needs equal approximately $75,000 Background Statement Shortly after Josh passed away from a fatal seizure, Sandi, Nicole and Bruce Chapnick (the Chapnick Family) established with the Community Foundation of Sarasota County (CFCS) the Joshua David Chapnick Memorial Fund (JCF) in honor and memory of Josh. The JCF was organized to assist people living with epilepsy with their transportation expenses and seizure medications. The fund was established because when Josh had a seizure he was not allowed to drive for six months and then, only if he could demonstrate he was taking his medications and had no other seizures during that period of time. Josh was living by himself in West Palm Beach, FL, and incurred transportation costs averaging $200.00 per day for someone to pick him up in the morning, drive him to school, pick him up after culinary school and then drive him to work at Seasons 52 and then pick him up after work and drive him home late at night. His medication often cost over $500 for a thirty day supply of Depakote. Josh realized he was fortunate that his family could financially assist him with these costs and the Chapnicks knew there were many families who could not afford to incur these additional expenses. The fund was established to assist these families. Originally, the fund benefited Epilepsy Services of Southwest Florida. As the fund grew, requests for assistance began pouring in from individuals and families. On March 22, 2013, the Chapnick Family organized the JoshProvides Epilepsy Assistance Foundation as a Florida public, not-for-profit corporation. The Foundation was organized with a thirteen member Board of Directors in order to complete an effective succession plan for the Chapnick Family to ensure the perpetuation of the charitable purposes established by the Chapnick Family. On July 19, 2013, the Foundation signed agreements with Community Foundation of Sarasota County to handle the investments of the Foundation, by establishing both an endowed fund and a non-endowed fund. On July 24, 2013, the Foundation registered under the Florida Solicitation Contributions Act and received Registration Number: CH39093. On September 24, 2013, effective March 22, 2013, the Internal Revenue Service, following a review of the Foundation’s application for tax exempt status, determined that the Foundation is a Section 501(c)(3) tax exempt public charity. 3 Statement from the Board Chair While JoshProvides is a new and growing foundation, our impact is great for those we help. We fill a temporary, and often critical, need for these individuals. As an example, we recently approved the purchase of seizure medication due to a loss of family insurance coverage. Without having medication, this individual would be subject to a sudden onslot of seizures. This incident happened on a weekend. We are able to react quickly when time is of the essence. When we provide assistance, we follow up and maintain relationships with our recipients. They become part of the JoshProvides family. In this manner, we can continue to provide support to them, as well as, maintain accountability for our financial assistance. The need of individuals with seizure disorders is great. What might seem like a small amount of financial assistance has a significant and immediate affect on these individuals and their families. Statement from the CEO/Executive Director “Our ultimate goal is to make life easier for those living with epilepsy. This is what Josh would want us to do”. – Sandi, Nicole and Bruce There is no loss like losing a child or a sibling. In the English language, when you lose both parents you are an “orphan” and when you lose a spouse you are either a “widow” or “widower”. There is no term when you lose a child or a sibling. It has now been 8 years since Josh passed away from a fatal seizure. Sandi knew right away we needed to do something for families who could not afford transportation expenses and the cost of their prescription seizure medication. Look how far we have come and there are many miles yet to go. We have taken a tragedy and established support and a chance for those less fortunate. We often receive requests for help from parents telling us their children are sleeping with them because they fear not being able to hear them if they have a seizure at night. Today, there are methods, medications, dogs and devices that can save lives when someone has a seizure. A gift from JoshProvides that purchases a monitor for a family is also proving them with peace of mind and the comfort of knowing they will be alerted should something happen while their loved one is sleeping. JoshProvides is proud to be able to assist these parents and their doctors with the financial assistance they may need. Josh is a special child, no different than our daughter and each of your children. Josh loved being a chef. It was his way of providing for people. Because of Josh’s persona, his epitaph states: “You open your hand and providefor all of the living”. Hence, in furtherance of our responsibility to all families living with a family member who has epilepsy or another seizure disorder, and to perpetuate Josh’s persona, we named our Foundation with the words “JoshProvides”. This is our brand and is what we do. We thank all of our many donors and volunteers who have helped JoshProvides to be a caring and supportive arm to the epilepsy community at large. We pledge to you our continuing efforts to do what Josh would want us to do to continue to advocate for a “seizure free day for all”. Areas Served FL- Sarasota FL- Manatee FL National The headquarters of JoshProvides is located in Sarasota, FL. Although the organization certainly serves the communities of Southwest Florida and has a strong footprint in Sarasota and Manatee Counties, JoshProvides offers services to individuals and families throughout the United States. Service Categories 4 Primary Organization Type Human Services Secondary Organization Type Diseases Disorders & Medical Disciplines Tertiary Organization Type Education 5 PROGRAMS Epilepsy Services for Epilepsy Patients and Families Description JoshProvides assists individuals of all ages who have epilepsy or another seizure disorder with: Financial assistance for • Transportation expenses to and from home, school, medical services and employment, through the purchase from third parties of gas cards, bus passes, taxi cab cards, or other third party transit options • Medical services • Prescription anti-seizure medication • Seizure response dogs • Seizure alert monitors (when recommended by the patient’s medical doctor and not covered by insurance, other reimbursement plans, or government-funded programs) • Other expenses which are within the spirit of the Foundation’s charitable purposes approved from time to time by the Foundation's Assistance Review Committee Budget $100,000.00 Category Health Care, General/Other Patient Care/Health Care Delivery Program Linked to Organizational Yes Strategy Population Served Children and Youth (0 - 19 years) Adults People/Families of People with Health Conditions Short Term Success JoshProvides provides itself in providing prompt response to inquiries for assistance. Our review process includes an applicant completing a Request for Financial Assistance Application and it is signed by the patient or the parent if the patient is a minor. The Application is also signed by the patient's doctor approving the specific request. If the request requires seizure medication, the pharmacy must also sign the Application. The Application and background information is then submitted to an independent Assistance Review Committee for review. The response time is generally within forty-eight hours thereafter. This is important especially if the request is for seizure medication as it is time released and if the body does not receive medication based on the patient's regimen, the patient may be subject to uncontrolled seizures. Time is of the essence. We are fortunate that this process works efficiently. Long Term Success Our grant award program allows both parents and patient independence and the ability to have a normal daily life. For example, we purchase: (a) seizure detection devices that set off an alarm or send a signal to a parent or friend; (b) a seizure response dog to protect the patient from injury; and (c) devices which minimize seizures. We are also exploring underwriting pilot studies that seek a cure for epilepsy. The ultimate success is determined by a person having a seizure free day. Today, there is no cure and we must do what we can to help the families who are living with the "FEAR": "Will I have a seizure today?" "Will I be called to school to pick up my child following a seizure?" "Will my child die from having epilepsy?" You cannot predict when a seizure will take place. Statistics show the mortality rate for people with epilepsy is two or three times higher - and the risk of sudden death is 24 times greater than that of the general population. This is why we do what we do. 6 Program Success Monitoring We believe our Program is successful based on our receipt of favorable testimonials from our applicants. We also believe our success is on-going as evident with the cross referrals we receive from epilepsy organizations which do not provide the services we do and/or cannot react as quickly as we can. The cross-collaboration among the various epilepsy foundations is what makes this work. See our Testimonials in the Other Documents Section of this Profile to observe how appreciative these families are. Giving them peace of mind is worth its weight in gold. When a family can say they have peace of mind, we know we have done something correctly. Program Success Examples Our program is doing well as reflected in the Testimonials listed in the Other Documents section of this Profile. The following summaries demonstrate our success: (1) I cannot begin to express into words how thankful I am for you providing Joseph with an EMFIT seizure monitor. At 17 yrs old, Joey wanted his privacy. After reading Josh's story, I contacted you for help. Joseph now has his privacy. I have peace of mind knowing that Josh is keeping a watchful eye on Joey. You have given me more than you know. May God bless JoshProvides; and (2) We wish to express our gratitude for the generous financial aid you provided us when my daughter’s insurance coverage was abruptly canceled. Your assistance paid for the prescription cost. The caring manner in which you quickly responded to our initial contact and the expeditious processing of your financial contribution is a true blessing. Thank you for your care, commitment and generosity. We are honored to be part of Joshprovide’s family. 7 JoshProvides Peer Support Group Description JoshProvides assists in the establishment and maintenance of strategic support groups for people living with epilepsy or another seizure disorder and their families, friends, and caregivers. The Support Groups are organized with a trained facilitator or counselor to monitor how families are coping with their own family situation and engaging the other families to explain how they are handling similar situations. It demonstrates that the families are not alone and it provides them an outlet for their concerns. A separate qualified facilitator meets with the youth and young adults to get them to open up about their own feelings and concerns. Budget $5,000.00 Category Human Services, General/Other Family-Based Services Program Linked to Organizational Yes Strategy Population Served Adolescents Only (13-19 years) Families Other Named Groups Short Term Success Our short term success is measured the same as our long term success. Do our families keep coming back? Yes. Do we want more families to attend? Absolutely! We generally gain a new family from time to time and another may not attend again. We encourage our participants to help by asking families they know who have a family member with epilepsy to attend. During the summer months there is clearly a drop off in attendance due to vacations. We started with two families and at one meeting we had over 20 in attendance. Are we successful? Yes! You see it in the paricipants' eyes both before and after the meeting. Our sponsorship of a support group is one of our most important endeavors. One of our goals is to help organize many more support groups for people of different age groups. Long Term Success The success of our Support Group Program is measured by the feedback we receive from the participants both parents and young adults. After each meeting, our participants thank the facilitators for the giving of their time (an hour and a half) to be with them. Likewise, when you observe a child who arrives at the meeting completely withdrawn and at the end of the young adults session is smiling and talking you know we have done something right. It is a credit to our facilitators and we are only the catalyst to provide a meeting place for these families to interact with other similarly situated families. Our success is measured by the relief we provide these families and letting them know, "You are not alone!" Program Success Monitoring As described in Short Term Success, we know we are successful because our participants thank us each month. They have no other outlet to discuss their issues with anyone else who is experiencing the same or similar issues. The children who attend leave smiling and talkative after a Support Group Meeting because they know they are not alone. Epilepsy can be socially isolating. As the Executive Director, I can speak from personal experience. 8 Program Success Examples The Support Group Meetings speak for themselves. Everyone leaves the meetings feeling positive about themselves and their new friends. Helping someone without expecting something in return is extremely gratifying and rewarding. People who can share their experiences and situations with someone else who experiences the same issues is worth its weight in gold. Unless you have lived through it, it is hard to imagine what parents and the children who have epilepsy go through on a daily basis. The "FEAR" discussed at out meetings includes: "Will I have a seizure today in front of my peers?" or as the parent: "Will I be called to school because my child has had a seizure"; or "How do I tell my 16 year old you cannot drive for 6 months after a seizure and what the next 6 months will be like". Our families share these stories. They provide an outlet, hope and support for each other, especially new parents of a child recently diagnosed with epilepsy. This is how we are making a difference. 9 JoshProvides Epilepsy Education Description JoshProvides incurs expenses for educating the general public regarding epilepsy and seizure disorders and the elimination of the negative stigma associated with epilepsy. Budget $5,000.00 Category Human Services, General/Other Family-Based Services Program Linked to Organizational Yes Strategy Population Served Adolescents Only (13-19 years) Families Other Named Groups Short Term Success Our short term success is the same as our long term success goal. It is a 24 hour per day 365 days a year responsibility. Long Term Success Epilepsy Awareness is a 24 hour per day 365 days a year responsibility. Each program we sponsor includes as its underlying theme epilepsy awareness. It is our goal to continue to use social media, the press, Public Service Announcements, e-blasts and general letter writing campaigns to educate the public about epilepsy and seizure disorders. We forget that many of our brave troops coming home from Afghanistan and Iraq suffer from seizure disorders. We must educate the public that: (a) epilepsy is a disorder and not a disease; (b) the incidence of epilepsy is equal to that of breast cancer and takes as many lives; and (c) newly diagnosed cases are greater than cerebral palsy, multiple sclerosis, muscular dystrophy, and parkinson's disease combined. We annually celebrate November as National Epilepsy Awareness Month. Success will be determined when we can say all people with epilepsy have "Seizure free days" and there is no longer a negative stigma associated with epilepsy. Program Success Monitoring We know our Epilepsy Awareness Program is working when we meet new people and they advise us, "yes, we are very familiar with the statistics regarding epilepsy and what must be done". Our education includes not only the general public but also our schools and teachers. Epilepsy is not contagious, it is a disorder. Program Success Examples Examples of our Awareness Programs include: (a) disclosure at each of our fund raising events; (b) recipients of our grants advocating epilepsy awareness by email and social media; (c) our own email and mail campaign, website at www.joshprovides.org, social media and one on one conversations. At each of our events, we try and have one of our recipients talk about their experience with epilepsy. When people stand up and applaud, you know we have reached them. Comments Program Comments by Organization There are over 350,000 people in Florida with epilepsy. Although we cannot help everyone, we want to be the Foundation people know that can provide prompt assistance when called upon. The programs and services of JoshProvides immediately impact the lives of those with epilepsy. Whether it is a lifesaving device, a dog that becomes both a lifesaver and best friend, or an understanding shoulder during a support group meeting, JoshProvides is making a difference and donors like you make it possible. 10 MANAGEMENT CEO/Executive Director CEO/Executive Director Bruce Paul Chapnick Esq. CEO Term Start Mar 2013 CEO Email [email protected] Experience With over thirty-nine years of legal and business experience, Bruce is a member of the business and corporate planning group and estate and gift tax planning group in the Sarasota law firm of Icard, Merrill, Cullis, Timm, Furen & Ginsburg, P.A. He received his undergraduate degree in 1969 from West Virginia University, a Masters degree in 1970 from The Ohio State University and his law degree in 1974 from West Virginia University. Bruce serves as a member of the Business Law, Real Property, Probate and Trust Law Sections of the American Bar Association and The Florida Bar. He is also an active member of the American Bar Association, The Florida Bar, and the Sarasota County Bar Association; and an inactive member of The Ohio State Bar Association and West Virginia Bar Association. Bruce’s experience includes working in financial services, developing creative and sophisticated estate, gift and charitable tax planning techniques and retirement benefit planning. He also served as Executive Vice President, Secretary and Director of American Waste Services, Inc. and was responsible for coordinating the initial public offering of the Company in October 1990. For fifteen years, Bruce practiced inYoungstown, Ohio, wherein his practice emphasis was on business and corporate planning, mergers and acquisitions, capital financing and lending, business succession, and estate and gift tax planning. Bruce has spoken at a number of notable conferences and seminars on business organizations and planning, estate and gift tax planning, tax shelters and security matters. He has taught advanced estate and gift tax planning on behalf of the American College, of Bryn Mawr, Pennsylvania. Bruce has served as a Board Emeritus for Epilepsy Services of Southwest Florida and is a Co- Founder of JoshProvides Epilepsy Assistance Foundation organized in memory of Joshua David Chapnick (www.joshprovides.org). Co-CEO/Executive Director Experience Senior Staff Beth Bush Vice President of Philanthropy Staff & Volunteer Statistics Full Time Staff 1 Part Time Staff 0 Staff Retention Rate % 100 Professional Development Yes Contractors 0 Volunteers 50 Management Reports to Board Yes CEO/Executive Director Formal Evaluation Yes 11 Senior Management Formal Evaluation Yes NonManagement Formal Evaluation N/A Collaborations JoshProvides has collaborated with Epilepsy Foundation of Florida, Suncoast Epilepsy Association, Epilepsy Services of Southwest Florida, Epilepsy Services Foundation, Inc. (Tampa), Chelsea Hutchison Foundation, Epilepsy Foundation of Florida and National Epilepsy Foundation to assist epilepsy patients referred to us for services including medication, surgeries, transportation, seizure detection devices, and seizure detection dogs. JoshProvides also has collaborations with hospitals that include Sarasota Memorial Hospital, Doctors Hospital, Palm Beach Gardens Medical Center, Cleveland Clinic, and Mission Healthcare. Comments Management Comments by Organization JoshProvides is excited about the growth and potential of the organization. During 2015, its first full-time paid staff person was added. Requests for support and assistance have increased and it is the goal of JoshProvides that its fundraising activities and human resources increase as well to keep up with the needs of the epilepsy community. 12 GOVERNANCE Board Chair Board Chair Ms Ruth Harshman Company Affiliation Community Volunteer Board Term Mar 2106 to Jan 2018 Board Chair Email [email protected] Board Members Name Affiliation Status Dr. Ronald Aung-Din AfGin Pharmaceuticals Voting Mr. John K. Cannon President of John Cannon Homes, Voting Inc. Ms. Rose Chapman President and CEO of Jewish Family & Children Services Mr. Bruce P. Chapnick Esq. Executive Director of JoshProvides Voting Epilepsy Assistance Foundation, Inc. and Senior Counsel of Icard, Merrill, Cullis, Timm, Furen & Ginsburg, P.A. Mr. Michael J. Furen Esq. Chairman of the Board of Icard, Merrill, Cullis, Timm, Furen & Ginsburg, P.A. Voting Mr. Burton Golumbic DDS Burton Golumbic, DDS Voting Ms. Ruth Harshman Community Volunteer Voting Dr. Dileep Nair Head of Cleveland Clinic Adult Epilepsy Center Voting Mr. Alfred Rose Community Volunteer Voting Mr. Edward Scharf Executive Vice President of The Portfolio Strategy Group Voting Mr. Paul Schwebel President of Schwebel Baking Company Voting Ms. Traci Smullen Altmed, LLC Voting Mrs. Deborah Vaughan Gateway Bank Voting Mr. Daniel Vigne Executive Vice President of Northern Trust Company Voting Ms. Anne Weintraub Esq. Anne Weintraub, P.A. Voting Mr. Merrill D. Wynne CPA Founding Partner of Habif, Arogeti Voting & Wynne, CPA Board Demographics - Ethnicity African American/Black 0 Asian American/Pacific Islander 1 Caucasian 14 Hispanic/Latino 0 Native American/American Indian 0 13 Voting Other 0 1 (Indian) Board Demographics - Gender Male 11 Female 5 Not Specified 0 Governance Board Term Lengths 3 Board Term Limits 2 Board Orientation Yes Number of Full Board Meetings Annually 4 Board Meeting Attendance % 96 Board Self-Evaluation Yes Written Board Selection Criteria No Percentage of Board Making Monetary Contributions 100 Percentage of Board Making In-Kind Contributions 100 Constituency Includes Client Representation No Standing Committees Development / Fund Development / Fund Raising / Grant Writing / Major Gifts Board Governance Finance Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala) Comments Governance Comments by Organization No different then any other organization, you need people with passion for the cause. We are fortunate to have the committed board members and committee members we have. JoshProvides has worked hard to add board members who represent diverse cultures, education levels, geography, and professions. We will continue to do so and will also add youth or young adult to the board. 14 FINANCIALS Current Financial Info Fiscal Year Begins 2016 Fiscal Year Ends 2016 Projected Revenue $200,000.00 Projected Expenses $175,000.00 Endowment Value $10,000.00 Spending Policy Income Only Spending Policy Percentage 0 Tax Credits No Capital Campaign In a Capital Campaign No Campaign Goal 0 Anticipate Campaign Within Next 5 Years? Yes IRS Form 990s IRS Extension Letter 990 Form 990 2013 Solvency Short Term Solvency Fiscal Year Current Ratio: Current Assets/Current Liabilities Long Term Solvency Fiscal Year Long-Term Liabilities/Total Assets 2014 -- 2013 -- 2012 -- 2014 0% 2013 0% 2012 -- 2014 $82,897 $54,493 2013 $210,707 $12,835 2012 --- Historical Financial Review Revenue and Expenses Fiscal Year Total Revenue Total Expenses Revenue Sources 15 Fiscal Year Foundation and Corporation Contributions Government Contributions Federal State Local Unspecified Individual Contributions Indirect Public Support Earned Revenue Investment Income, Net of Losses Membership Dues Special Events Revenue In-Kind Other Expense Allocation Fiscal Year Program Expense Administration Expense Fundraising Expense Payments to Affiliates Total Revenue/Total Expenses Program Expense/Total Expenses Fundraising Expense/Contributed Revenue Assets and Liabilities Fiscal Year Total Assets Current Assets Long-Term Liabilities Current Liabilities Total Net Assets 2014 $0 2013 $0 2012 -- $0 $0 $0 $0 $0 $54,884 $0 $0 $8,897 $0 $19,116 $0 $0 $0 $0 $0 $0 $0 $182,786 $0 $0 $4,817 $0 $23,104 $0 $0 $0 2014 $49,324 $5,169 $0 $0 1.52 91% 0% 2013 $12,835 $0 $0 $0 16.42 100% 0% 2012 -------- 2014 $227,817 $227,817 $0 $0 $227,817 2013 $197,872 $197,872 $0 $0 $197,872 2012 ------ Top Funding Sources Fiscal Year Top Funding Source & Dollar Amount 2014 Contributions, gifts, grants $54,884 Second Highest Funding Source & Dollar Fundraising $19,116 Amount Third Highest Funding Source & Dollar Investment Income Amount $8,897 --------- 2013 2012 Contributions, gifts, -grants $182,786 Fundraising $23,104 -Investment Income $4,817 -- Comments Financial Comments by Organization There are national organizations everyone in this country knows by name or even by their initials. JoshProvides is a smaller, community based organization born out of the need to fill gaps for those living with epilepsy. There are diseases people readily support and understand. Children and adults with epilepsy are shunned because of their seizures. Friends and co-workers become scared and distant. The challenge for JoshProvides is removing the negative stigma associated with epilepsy, encouraging communities to wrap their arms around those affected by epilepsy, and to tell our story in a way that enables us to generate the funds to meet the needs of those served by the organization. Our success can be measured by the testimonials we receive. For example: Hello to all of you @ Joshprovides.org. We eagerly await receipt of the Emfit Monitor which you’ve agreed to graciously provide. Our Emily has DX of Lennox-Gastaut Syndrome, a very severe intractable form of Epilepsy. 16 She bravely battles seizures most days. The effects of the seizures and the mental retardation, along with the risks for injury from falls make a very difficult life at times for all of us. Her nights are often disrupted, which means concerns for her health and safety are always upon us. When I became aware of the monitors I began to wonder…… could that bring us peace of mind? From the first contact with your organization, I have been treated respectfully and in a caring manner. I so appreciate that the process has been straightforward and easy to access for your consideration. I want to sincerely express our gratitude and hope to report back very soon about how this is helping us to establish timely and appropriate care response for our daughter’s needs and a peace of mind to us, her parents and caregivers. Your focus toward giving to families who have genuine needs in living this life with Epilepsy are truly needed and remarkable. God continue to bless you and many through you. Kim Financial Comments by Foundation Financial information taken from IRS Form 990. Contributions include foundation and corporate support. 17 PLANS, POLICIES & LICENSES Plans Fundraising Plan No Communication Plan No Strategic Plan Yes Strategic Plan Adopted Oct 2015 Years Strategic Plan Considers 3 Management Succession Plan Yes Continuity of Operations Plan No Policies Organizational Policies and Procedures No Written Conflict of Interest Policy Yes Nondiscrimination Policy Yes Directors and Officers Insurance Policy No Whistle Blower Policy Yes Document Destruction Policy Yes Awards & Recognition Award/Recognition Organization Year Gold Rating GuideStar 2015 Platinum Rating GuideStar 2016 Top-Rated Nonprofit GreatNonProfits.org 2015 Government Licenses Is your organization licensed by the Government? No Planning & Policies Comments Planning & Policies Comments by Organization Planning & Policies Comments by Foundation Created 10.20.2016. 18 Copyright © 2016