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Botulism – Questionnaire
For all cases please complete Sections 1 and 2.
If the patient is a drug user please complete Section 3.
If food Botulism is suspected please complete Section 4.
Please return completed questionnaire by post or fax to:
Andrea Marongiu
Unlinked Anonymous Surveys (Injecting Drug Use)
Centre for Infections
Health Protection Agency
61 Colindale Avenue
Fax:
020 8200 7868
London
Tel:
020 8327 7547
NW9 5EQ
Email: [email protected]
For queries regarding the Botulism
questionnaire please contact:
For CDSC use only:
Number:
Week of notification:
Source of reporting:
[email protected]
[email protected]
[email protected]
Tel: 020 8327 7930
Tel: 020 8327 6423
Tel: 020 8327 7118
SECTION 1: DEMOGRAPHIC INFORMATION
No.
Please circle answers where appropriate
Questions
Answers
Patient name
Surname……………………………………………
Q.1
First name …………………………………………
Q.2
Q.3
Q.4
Sex
Date of birth
Male
Female
………/………/…………. dd/mm/yyyy
Age (years)
Q.5
Address
……………………………………………………………………
……………………………………………………………………
……………………………………………………………………
Q.6
Q.7
Ethnic group
r White British
r White Irish
r White other
r Other
r Not known
r Black-Caribbean
r Black-African
r Black-Other
Occupation
…………………………………………..………………
Q.8
Has the patient been involved in any
activities that might expose wounds to
soil e.g. gardening, carpentry, etc?
Yes
No
DK
Q.9
Has the patient travelled away from
home or overseas in the last month?
Yes
No
DK
r Pakistani
r Bangladeshi
r Indian
r Chinese
r Asian other
Specify place:…………………………………………..
Specify dates: From…………………. To…………….
SECTION 2: CLINICAL DETAILS
No.
Questions
Answers
Q.10
Hospital Name
Q.11
Clinician in charge
Q.12
Name
Tel no.
Name
Address
GP
Please circle answers where appropriate
………………………………………………………………………
………………………………………………………………………
Tel no.
Q.13
Preliminary History:
………………………………………………………………………
Day
Month
Year
A. Onset date of symptoms
B. Date first seen by doctor
C. Was patient hospitalised?
Yes
No
DK
Yes
No
DK
Yes
No
DK
If yes: date hospitalised
D. Has the patient been
admitted to intensive care?
If yes: date admitted
E. Has the patient been
placed on a ventilator?
If yes: date intubated:
Q.14
Was the patient on any of the
following medications in the month
prior to onset?
Q.15
Clinical History:
Briefly describe history and general symptom progression:
a. Phenothiazine
b. Aminoglycoside
c. Anticholinergic
Yes
Yes
Yes
No
No
No
DK
DK
DK
2
SECTION 2: CLINICAL DETAILS (continued)
No.
Questions
Q.16
Specific symptom history:
Answers
Abdominal pain
YES
NO
DK
Nausea
YES
NO
DK
Vomiting
YES
NO
DK
Diarrhoea
YES
NO
DK
Constipation
YES
NO
DK
Blurred vision
YES
NO
DK
Diplopia
YES
NO
DK
Dizziness
YES
NO
DK
Slurred speech
YES
NO
DK
“Thick tongue”
YES
NO
DK
Change in sound of voice
YES
NO
DK
Hoarseness
YES
NO
DK
Dry mouth
YES
NO
DK
Difficulty swallowing
YES
NO
DK
Shortness of breath
YES
NO
DK
Subjective weakness
YES
NO
DK
Fatigue
YES
NO
DK
Paraesthesia
YES
NO
DK
If yes, please describe site of
paraesthesia:
Does the patient have a wound, boil
or abscesses, no matter how trivial?
If yes, please describe site and
nature:
Q.17
Please circle answers where appropriate
……………………………………………………………..
YES
NO
DK
……………………………………………………………..
Vital signs on admission:
Temperature (°C) …………..
Blood Pressure
………/……..
Heart Rate
…………..
Respiratory Rate
…………..
SECTION 2: CLINICAL DETAILS (continued)
No.
Questions
Q.18
Physical Examination Findings:
Altered mental state
YES
BILATERAL
NO
DK
Extraocular palsy
YES
BILATERAL
NO
DK
Ptosis
YES
BILATERAL
NO
DK
Pupils Dilated
YES
BILATERAL
NO
DK
Pupils constricted
YES
BILATERAL
NO
DK
Pupils fixed
YES
BILATERAL
NO
DK
Pupils reactive
YES
BILATERAL
NO
DK
Facial paralysis
YES
BILATERAL
NO
DK
Palatal weakness
YES
BILATERAL
NO
DK
Impaired gag reflex
YES
BILATERAL
NO
DK
Sensory deficit(s)
YES
BILATERAL
NO
DK
If yes, please describe deficit:
Q.19
Q.20
Please circle answers where appropriate
Answers
…………….
Deep tendon reflexes:
Abnormal deep tendon reflexes
BRISK
NORMAL
REDUCED ABSENT
DK
Biceps/Triceps
BRISK
NORMAL
REDUCED ABSENT
DK
Brachial
BRISK
NORMAL
REDUCED ABSENT
DK
Patellar
BRISK
NORMAL
REDUCED ABSENT
DK
Ankle
BRISK
NORMAL
REDUCED ABSENT
DK
Please indicate if weakness or
paralysis was noted in the patient:
a. Upper extremities
YES
If yes: Distal weakness/paralysis
YES
BILATERAL
NO
DK
YES
BILATERAL
NO
DK
Proximal weakness/paralysis
NO
b. Lower extremities
YES
If yes: Distal weakness/paralysis
YES
BILATERAL
NO
DK
YES
BILATERAL
NO
DK
i. Ascending (beginning in the
lower extremities, moving to upper
extremities and then cranial nerves)
YES
BILATERAL
NO
DK
ii. Descending (beginning with
cranial nerves, moving to upper then
lower extremities)
YES
BILATERAL
NO
DK
Proximal weakness/paralysis
NO
If yes to any of the above please
describe weakness/paralysis:
4
SECTION 2: CLINICAL DETAILS (continued)
No.
Q.21
Questions
Answers
Please circle answers where appropriate
YES
NO
Laboratory Results:
a. Was a lumbar puncture done?
DK
If yes:
i.
ii.
iii.
iv.
v.
Date done:
RBC
WBC
Protein
Glucose
b. Was a tensilon test (Edrophonium
chloride) done?
If yes:
………/………/…………. dd/mm/yyyy
......................
.......................
.......................
.......................
YES
NO
DK
i. Date done:
………/………/………….dd/mm/yyyy
ii. Results:
..................................................................……
..................................................................……
c. Was electromyography (EMG)
done?
If yes: i.
Date done:
YES
NO
DK
………/………/………….dd/mm/yyyy
ii. Muscle group
...................................................................……
iii. Nerve conduction
results
..................................................................……
iv. Was rapid repetitive
stimulation conducted?
If yes: Hertz:
Result:
d. Was brain imaging done?
If yes:
Was a CT done?
...................................................................……
YES
NO
DK
.......................
...................................................................……
YES
NO
DK
YES
NO
DK
If yes: i. Date done:
ii. Findings:
………/………/………….dd/mm/yyyy
...................................................................……
...................................................................……
Was an MRI done?
If yes: i. Date done:
ii. Findings:
YES
NO
DK
………/………/………….dd/mm/yyyy
...................................................................………
...................................................................………
5
SECTION 2: CLINICAL DETAILS (continued)
No.
Questions
Answers
Please circle answers where appropriate
Q.22
Treatment
Was surgical debridement performed?
Yes
No
Yes
No
Was the patient treated with
antimicrobial agents?
DK
If yes, please state which agents were used
……………………………………………………………
Q.23
What samples have been sent to
test for botulinum toxin?
Serum r
Pus r
Wound tissue r
Other r (please state)
……………………………………………………..
Q.24
Botulinum antitoxin:
Was the patient given Antitoxin?
Yes
No
DK
If yes, how many doses were given?:
…………………….………
Dates given?
…………………………….
Q.25
Differential Diagnosis by Clinician:
Q.26
Patient outcome/status:
Still ventilated
Still in hospital
Discharged
Died
Date of outcome ……………………..
Q.27
Is the patient a known drug user?
Yes
No
DK
IF THE PATIENT IS A DRUG USER PLEASE COMPLETE SECTION 3.
IF FOOD BOTULISM IS SUSPECTED PLEASE COMPLETE SECTION 4.
6
SECTION 3: QUESTIONS FOR DRUG USERS
No.
Questions
Answers Please circle answers where appropriate
Q.28
In the last month have you injected any of
r Heroin
the following drugs?:
r Methadone (prescribed)
Tick all that apply
r Methadone (non-prescribed)
r Cocaine
r Heroin & Cocaine (together)
r Crack
r Heroin & crack (together)
r Anything else? Specify……………………………..
Q.29
Q.30
For how many years/months have you
been using these drugs?
……………….. Years ………………Months
What methods have you used for taking
these drugs in the last month?
Injecting into a vein or
mainlining
Skin popping
Muscle popping
Smoking
Snorting or sniffing
Main
method
Methods
also used
r
r
r
r
r
r
r
r
r
r
Other, please specify………………………………..
Into which parts of the body do you
inject?
……………………………………………………….…
Q.31
Have you changed your dealer or supply
of these drugs within the last month?
Yes
Q.32
In which areas have you bought drugs in
the last month?
Q.33
PLEASE SPECIFY THE NAME OF THE
DISTRICT AND THE TOWN OR CITY
FOR ALL PURCHASES IN THE LAST
MONTH
Have you noticed anything different about
your drugs recently in terms of:
Colour
Consistency
Effect
Dissolving
If yes to any of these please give details:
No
DK
District or Area
Town or City
……………………
……………………….
……………………
..………………………
……………………
………………………..
Yes
Yes
Yes
Yes
No
No
No
No
DK
DK
DK
DK
……………………………………………….
SECTION 3: QUESTIONS FOR DRUG USERS (continued)
No.
Questions
Q.34
Do you wash your hands before injecting?
Q.35
Q.36
Q.37
Q.38
Q.39
Answers
Please circle answers where appropriate
Yes
No
DK
Do you wipe the injection site with iodine,
alcohol or a mediswab before injecting?
Yes
No
DK
Do you wet your skin with saliva before or
after injecting?
Yes
No
DK
Yes
No
DK
Do you lick the needle before injecting?
During the last month have you used any
of the following to dissolve your drugs?
During the last month did you share any of
the following with anyone?
r Citric Acid
r Vinegar
r Lemon Juice (Jif)
r Lemon Juice (fresh)
r Descaler crystals
r Vitamin C
r Other
If other, please specify
r
r
r
r
r Water
r Other
If other, please specify
Citric Acid
Needles & syringes
Filter
Spoons
................................................
…………………………
If yes to sharing spoons, how often did you use a
spoon already used by someone else (including
your partner)?
……… times
Q.40
During the last month have you reused
your own needles/syringes?
If yes:
In the last month, what is the maximum
number of times you have reused the
same needle/syringe?
Q.41
Yes
No
DK
……… times
In the last month, where have you stored
your used needles/syringes before
reusing them?
r In a closed container
r Uncovered
r Other, please specify………….……………..…..
In the last month how many times have
you visited a needle exchange (including
pharmacy exchange)?
……… times
8
SECTION 3: QUESTIONS FOR DRUG USERS (continued)
No.
Questions
Answers
Q.42
In the last month, what kind of water have
you used to inject?
Tick all that apply
Q.43
When you injected in the last month, what
have you used to filter your heroin?
Tick all that apply
Q.44
r Boiled
r Bottled
r Sterile
r Tap (KITCHEN)
r Tap (BATHROOM)
r Other
r Cigarette filter
r Filter tips
r Cotton bud
r Cotton wool
r Clothing fibres
r Nothing
r Anything else
When you injected in the last month, have
you re-used the same filter?
Yes
If yes,
How often?
………………times
Where have you stored your used filters
before reusing them?
Q.45
Please circle answers where appropriate
During the last month, have you had any
area of skin with redness, swelling and
tenderness in an area that you inject?
No
Specify….……………
………………………..
Specify…………………
…………………….……
DK
r In a closed container
r Uncovered
r Other, please specify………….……………..…..
Yes
r
r
r
r
r
No
DK
Q.46
Compared to a 1 pence coin, how large
did it get?
Q.47
Did you seek medical attention for this
skin problem?
Yes
How many abscesses have you had
during the past year?
…………………………………..….
Is there anything else you that you think
contributed to or caused this illness?
…………………………………………………
Q.48
Q.49
Smaller
Same size
Larger
Much larger
Don’t Know
No
DK
………………………………………………….
THANK YOU FOR COMPLETING THE QUESTIONNAIRE
9
SECTION 4: FOOD HISTORY
No.
Questions
Answers
During the week before the onset of symptoms, have you eaten?:
Q.50
Q.51
Home made preserves
(pickles, jam, bottled veg, bottled fruits)
Yes r
No r
Don’t Know r
Canned food
Yes r
No r
Don’t Know r
Casserole food eaten without re-heating
Yes r
No r
Don’t Know r
Any food from the freezer or refrigerator
kept at room temperature and eaten
without thorough reheating
Yes r
No r
Don’t Know r
Yes r
No r
Don’t Know r
Vacuum packed or extended shelf life
foods
Meat or dish prepared with meat
Beef
Chopped beef
Veal
Pork
Lamb
Ham
Dry sausage, e.g. salami
Fresh sausages
Pâté
Other……..…………………………………
Q.52
Home-made food
RT
Canned food
Casserole food eaten without re-heating VPF
CF r
CF r
CF r
CF r
CF r
CF r
CF r
CF r
CF r
CF r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
RT r
RT r
RT r
RT r
RT r
RT r
RT r
RT r
RT r
RT r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
Tick all that apply
HM r
HM r
HM r
HM r
HM r
HM r
HM r
CF r
CF r
CF r
CF r
CF r
CF r
CF r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
RT r
RT r
RT r
RT r
RT r
RT r
RT r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
HM r
CF r
NRH r
RT r
VPF r
Wild game or dish prepared with wild
game
Rabbit
Hare
Pheasant
Partridge
Pigeon
Venison
Wild Boar
Other: ……………………………………..
HM
CF
NRH
HM r
HM r
HM r
HM r
HM r
HM r
HM r
HM r
HM r
HM r
Salted, cured, cold or hot smoked foods
Beef
Duck
Chicken
Lamb
Venison
Turkey
Fish (eg smoked salmon, smoked
mackerel)
Other:…………………………………………
Q.53
Tick all that apply
Tick all that apply
HM r
HM r
HM r
HM r
HM r
HM r
HM r
HM r
CF r
CF r
CF r
CF r
CF r
CF r
CF r
CF r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
RT r
RT r
RT r
RT r
RT r
RT r
RT r
RT r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
Any food from the freezer or refrigerator kept at room
temperature and eaten without thorough reheating
Vacuum packed or extended shelf life foods
10
SECTION 4: FOOD HISTORY (continued)
No.
Questions
Answers
During the week before the onset of symptoms, have you eaten?:
Q.54
Poultry or dish prepared with poultry
Chicken
Turkey
Duck
Other:……………………………………….
Q.55
Raw vegetable that have not been washed
Which kind?
Q.58
NRH r
NRH r
NRH r
NRH r
RT r
RT r
RT r
RT r
VPF r
VPF r
VPF r
VPF r
CF r
CF r
CF r
CF r
CF r
CF r
CF r
CF r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
RT r
RT r
RT r
RT r
RT r
RT r
RT r
RT r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
Tick all that apply
HM r
HM r
HM r
HM r
HM r
HM r
HM r
HM r
HM r
HM r
HM r
CF r
CF r
CF r
CF r
CF r
CF r
CF r
CF r
CF r
CF r
CF r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
RT r
RT r
RT r
RT r
RT r
RT r
RT r
RT r
RT r
RT r
RT r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
…………………………………………………
Tick all that apply
HM r
HM r
HM r
HM r
HM r
Condiments
Pickles
Oil with fresh herbs or garlic
Nut purée
Olives
Pesto sauce
Other: ……………………………………..
HM
CF
NRH
HM r
HM r
HM r
HM r
HM r
HM r
HM r
HM r
Cheese and dairy products
Mascarpone
Plain Yoghurt
Flavoured yoghurt
Cheese sauce
Other: …………………………………….
CF r
CF r
CF r
CF r
Tick all that apply
Vegetables or dish prepared with
vegetables
Beans
Green beans
Carrots
Eggplants
Tomatoes
Spinach
Potatoes
Vegetable juice
Vegetable soup
Salad
Other: .…………………………………….
Q.57
HM r
HM r
HM r
HM r
Fish or dish prepared with fish
Salted or dried fish
Roll mops herring
Lump fish caviar
Sea Food
Tuna fish
Other fish
Fish soup
Other: ……………………………………..
Q.56
Tick all that apply
CF r
CF r
CF r
CF r
CF r
NRH r
NRH r
NRH r
NRH r
NRH r
RT r
RT r
RT r
RT r
RT r
VPF r
VPF r
VPF r
VPF r
VPF r
Tick all that apply
HM r
HM r
HM r
HM r
HM r
HM r
CF r
CF r
CF r
CF r
CF r
CF r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
RT r
RT r
RT r
RT r
RT r
RT r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
Home made food
RT
Any food from the freezer or refrigerator kept at room
Canned food
temperature and eaten without thorough reheating
Casserole food eaten without re-heating VPF Vacuum packed or extended shelf life foods
11
SECTION 4: FOOD HISTORY (continued)
.
No.
Questions
Answers
During the week before the onset of symptoms, have you eaten?:
Q.59
Tick all that apply
CF r
NRH r
RT r
CF r
NRH r
RT r
CF r
NRH r
RT r
CF r
NRH r
RT r
RT r
CF r
NRH r
Fruits
Jam
Honey
Fruit juice
Other: ………………………………………
HM r
HM r
HM r
HM r
HM r
Fresh fruits that have not been washed
Which kind?
…………………………………………………………
Q.60 Modified atmosphere, extended shelf life
foods?
Tick all that apply
Pasta
Crumpets or other confections
Salad
Beetroot or other vegetables
Milk
Other: ………………………………………..
Q.61 Have you eaten from a tin can that was
blown, swollen or rusted?
CF r
CF r
CF r
CF r
CF r CF
r
NRH r
NRH r
NRH r
NRH r
NRH r
NRH r
RT r
RT r
RT r
RT r
RT r RT
r
VPF r
VPF r
VPF r
VPF r
VPF r
VPF r
No r
…………………………………………………………
…………………………………………………………
…………………………………………………………
Which brand?
Q.62 Have you eaten from a vacuum pack that
was blown?
Yes r
If yes, which kind of food?
No r
…………………………………………………………
…………………………………………………………
……………………………………………………....
Which brand?
Q.63 Do you think there is a problem with the
temperature of your fridge?
During the week before the onset, was your
fridge turned off?
If yes, for how long?
Yes r
No r
Yes r
No r
……………………..Hours
……………………..Days
Q.64 How often is your fridge cleaned?
Home made food
Canned food
Casserole food eaten without re-heating
HM r
HM r
HM r
HM r
HM r
HM r
Yes r
If yes, which kind of food?
HM
CF
NRH
VPF r
VPF r
VPF r
VPF r
VPF r
Less than once a month
Once a month
Once every 3 months
Once every 6 months
Once a year
Never
Don’ know
r
r
r
r
r
r
r
RT
Any food from the freezer or refrigerator kept at room
temperature and eaten without thorough reheating
VPF Vacuum packed or extended shelf life foods
12
SECTION 4: FOOD HISTORY (continued)
Questions
Answers
What have you eaten :
Q.65
The day you became
ill:
Breakfast: ...........................................................................................................
............................................................................................................................
............................................................................................................................
Lunch: ................................................................................................................
............................................................................................................................
............................................................................................................................
............................................................................................................................
Dinner: ...............................................................................................................
............................................................................................................................
............................................................................................................................
............................................................................................................................
Sweets/Confectionery: ......................................................................................
............................................................................................................................
............................................................................................................................
............................................................................................................................
Other: ...............................................................................................................
............................................................................................................................
............................................................................................................................
............................................................................................................................
13
SECTION 4: FOOD HISTORY (continued)
No.
Questions
Answers
What have you eaten :
Q.66
The day before you
became ill:
Breakfast: ..........................................................................................................
...........................................................................................................................
...........................................................................................................................
...........................................................................................................................
Lunch: ...............................................................................................................
...........................................................................................................................
...........................................................................................................................
...........................................................................................................................
Dinner: ...............................................................................................................
...........................................................................................................................
...........................................................................................................................
...........................................................................................................................
Sweets/Confectionery: ......................................................................................
...........................................................................................................................
...........................................................................................................................
...........................................................................................................................
Other:
..............................................................................................................
...........................................................................................................................
...........................................................................................................................
...........................................................................................................................
14
SECTION 4: FOOD HISTORY (continued)
No.
Questions
Answers
What have you eaten :
Q.67
Two days before you
became ill:
Breakfast: ...........................................................................................................
............................................................................................................................
............................................................................................................................
............................................................................................................................
Lunch: ................................................................................................................
............................................................................................................................
............................................................................................................................
............................................................................................................................
Dinner: ...............................................................................................................
............................................................................................................................
............................................................................................................................
............................................................................................................................
Sweets/Confectionery: .......................................................................................
............................................................................................................................
............................................................................................................................
............................................................................................................................
Other: ...............................................................................................................
............................................................................................................................
............................................................................................................................
............................................................................................................................
15
SECTION 4: FOOD HISTORY (continued)
No.
Questions
Answers
What have you eaten :
Q.68
Three days before
you became ill:
Breakfast: ..........................................................................................................
...........................................................................................................................
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Lunch: ...............................................................................................................
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Dinner: ...............................................................................................................
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Sweets/Confectionery: ......................................................................................
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Other:
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THANK YOU FOR COMPLETING THE QUESTIONNAIRE
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