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A Guide to the Rehabilitation clinic in Växjö Postadress: Box 1223, 351 12 VÄXJÖ Telefon: 0470-59 22 50 Besöksadress: J F Liedholms väg 14, Växjö Telefax: 0470-59 22 05 E-post: [email protected] Revised & collaborated with the management team Last rev: 2014-01-31 Table of Contents The Rehabilitation Clinic in Växjö ......................................................................... 3 Assignment and Organization ................................................................................. 3 Specialized Rehabilitation........................................................................................................ 3 Rehabilitations Place in the Chain of Care .............................................................................. 3 Criteria for Admission.............................................................................................................. 4 Health Care Levels ................................................................................................................... 5 The Three Units Within the Clinic ........................................................................................... 5 Documentation ......................................................................................................................... 7 Environment ............................................................................................................................. 7 Rehabilitation ................................................................................................................... 7 Biopsychosocial ground ........................................................................................................... 7 Ideology.................................................................................................................................... 8 Team ......................................................................................................................................... 9 Coordinator/Coach ................................................................................................................... 9 The Rehabilitation Process..................................................................................... 10 Duration and Intensity of Care ............................................................................................... 10 Treatments .............................................................................................................................. 10 Follow-up and outcomes ........................................................................................................ 11 Results and Statistics .............................................................................................................. 11 Integration .............................................................................................................................. 11 Cost, Charges, and Fees ......................................................................................................... 11 Travels .................................................................................................................................... 11 This Guide is a general overview to the rehabilitation clinic in Växjö. Additional information regarding the different programs could be provided for you upon request at the inpatient or outpatient rehabilitation clinics; Inpatient Traumatic Brain Injury and Neurological Rehabilitation Outpatient Traumatic Brain Injury and Neurological Rehabilitation Outpatient Pain Rehabilitation 2 The Rehabilitation Clinic in Växjö The rehabilitation clinic is located in Växjö at the St. Sigfrid’s Campus near Lake Trummen, in an area surrounded by trees and breathtaking nature. In 2001, the clinic moved from the central hospital downtown Växjö to this beautiful area. The clinic offers a peaceful, comfortable, and healing environment, which seeks to aid in your personal rehabilitation process. The environment around the rehabilitation center is built in a way to provide an extensive continuation of care, and an array of different activities are available outside the clinic, in nearby parks, and around the lake. A restaurant, library, and a kiosk are also available for your convenience on campus. Assignment and Organization Landstinget is responsible for the health care in Kronoberg’s County. This is governed by elected authorized political representatives. There are two hospitals, 33 primary care clinics, 15 dental care clinics, rehabilitation, and psychiatry located within this region. Landstinget Kronoberg is operated as a Federation with nine different units: Emergency unit, Children and Women unit, Surgery unit, Medical unit, Medicine Service unit, Primary care- and Rehabilitation unit, Psychiatry unit, Service unit, and Dental Care unit. The Rehabilitation clinic is part of the Primary Care and- Rehabilitation unit. Specialized Rehabilitation The rehabilitation clinic focuses on specialized rehabilitation for patients over 18 years old (most of them from Kronoberg’s County). This means that our expert faculty and staff have longstanding experiences, and in-depth knowledge of every different group’s health conditions. Our goal and mission is to create the most comfortable rehabilitation possible. We strive to be able to help, support and enable the patient to move on to an active, productive, and as independent life as possible. The rehabilitation will guide and support the patient’s goals in family life, work, school, and recreation. It is important to us that a patient’s integrity and participation continues regardless of their disability. Rehabilitations Place in the Chain of Care Emergency Care Växjö or Ljungby / regional care Community home care Self care Home Rehabilitation clinic: specialized rehabilitation Primary care rehabilitation Continued support Most patients that are admitted to the rehabilitation clinic arrive from the hospital or regional care, but can also be referred from the primary care, or community home care. Patients can also contact the clinic later on in their rehabilitation process, if they feel the need to. In some cases there may be a need to extend or renew the rehabilitation period, if their functional status changes, or if the patient has other special requirements. 3 Follow ups are an example of continued support for patients after their treatments. Usually this is done by the clinics that discharge them, and/or it could be done by another health care or home care professional. Patients over 65 years old who live on the west side of the county, and do not need cognitive training, can be offered inpatient rehabilitation, or day rehabilitation at the hospital in Ljungby. There are guidelines for different diagnosis which Landstinget Kronoberg follows, to provide excellent safe care, and to assure the right level of care. These guidelines will decide if a specific diagnosis or condition will be treated at the clinic. If this is the case, it will also decide where in the chain of care the diagnosis will be treated. In some cases with some conditions, for example ALS and RA, the rehabilitation clinic is not part of the chain of care. For more information about the rehabilitation guidelines for a specific diagnosis and what is permitted, go to Landstinget homepage:”Fastställda rehabriktlinjer” Criteria for Admission All inclusion criteria have to be met. If one or more exclusion criteria are present, then the patient is not admitted for rehabilitation, or the ongoing rehabilitation is discontinued. Inclusion Criteria - Be 18 years of age or older - Have a need for specialized rehabilitation - Have rehabilitation potential, or have a need for specialized environmental changes Exclusion Criteria - Unstable cardiovascular and/or respiratory problems - Ongoing medical treatments and/or an assessment that will affect a good outcome for the rehabilitation program - Serious untreated psychological disease, or unstable behavioral condition, which can affect the patient or other patient’s rehabilitation - Apparent drug, narcotic, or alcohol addiction Criteria to transfer or to discharge a patient from the ongoing rehabilitation program - When any of the exclusion criteria occur, or are recognized during the rehabilitation period - When continued treatments will no longer benefit the patient and their goals - When the rehabilitation goals are achieved earlier than expected - When the need for specialized rehabilitation has been achieved and/or the rehabilitation goals can be reached in another way - When the need for highly specialized rehabilitation emerge during the rehabilitation Neuro rehab and brain injury rehab continue during that time period as determined from the planned goals and treatments. Both the goals and treatments can be revised during rehabilitation and may therefore also affect the rehabilitation length. The time period of pain rehabilitation follow the predetermined period for the pain management program. The planned period for rehabilitation is valid as long as the patient has clinical benefits, and is expected to reach their goals with the help of specialized rehabilitation, and if not any of the criteria for transfer or suspension of rehabilitation arises or is noted. Discontinuance of ongoing rehabilitation period When the rehabilitation period is discontinued due to the request of the patient or the rehab team, a regular discharge plan is done. To avoid any misunderstandings it is important to clearly explain, and 4 to give enough information in the most professional way, to the patient and the family why the treatment is being discontinued. The patient and their family should also be informed of other possible alternatives to the ongoing rehabilitation, and the possibility to return with a new referral. Health Care Levels The clinic accepts patients to both inpatient and outpatient care. The outpatient program includes rehabilitation reception or day time care. If patients have to travel far, then there is the possibility to stay at a patient hotel nearby. Inpatient care means that the patient stays either 7-days or 5-days/week. When changing care it is preferred to do so without any interruption in the rehabilitation process. The Three Units Within the Clinic The rehabilitation clinic and its treatments are divided into three different units: neurological rehab, brain injury rehab, and pain rehab. Neurological rehab: inpatient and outpatient program for patients with neurological injuries. For example, Multiple Sclerosis, Spinal cord injuries, Post Polio, and Parkinson’s disease. This unit also treats leg amputee patients, and patients with multiple-traumas (patients with injuries occurring simultaneously in several parts of the body). Brain injury rehab: inpatient and outpatient program for patients with brain injuries. For example stroke, traumatic brain injury, infections, and tumors. Pain rehab: outpatient program for patient with chronic pain (not malignant). This is usually given as a class. Management Team Medical Physician Manager/”Medical director” Program Manager Specialized rehabilitation for patients with acquired brain injury inkl. Stroke Specialized rehabilitation for patients with chronic pain ”Brain-rehab” ”Pain-rehab” Inpatient-program Rehabilitation goals focus on ADL’s and transfers Outpatient-program Rehabilitation goals focus on ADL’s, transfers, living and recreational activities Program Manager Outpatient-program Rehabilitation goals focus on work/school or something equivalent to that. Specialized rehabilitation for patients with neurological injury as well as leg amputation ”Neuro-rehab” Program Manager Inpatient-program Rehabilitation goals focus on ADL’s and transfers Program Manager Pain rehab-program Classes that focus on understanding and managing pain, and ability to increase patient’s daily activities Outpatient-program Rehabilitation goals focus on ADL’s, transfers, living and recreational activities Program Manager Outpatient-program Rehabilitation goals focus on work/school or something equivalent to that. 5 For each program there is one person that is responsible to oversee the program. The head of the clinic is responsible for the entire rehabilitation clinic, together with the medical team, which includes the doctors and the unit supervisors. Referral There are two methods for admission to the rehabilitation clinic. One is a referral from a doctor, or you can get your own. This you print from the: rehabiliteringsklinikens hemsida, or have it mailed to you with help from the receptionist at the rehabilitation clinic: 0470-592250. Admission Facility Rejection of Referral; (usually because of wrong rehab choice) Referral Assessment of Referral Pain rehab program Day program Acceptance of Referral; (decision about rehab unit, priority level, level of care, program etc.) Acceptance; but need assessment Inpatient program Examination / assessment Discontinued specialized rehabilitation A referral that arrives to the rehabilitation clinic is assessed with help of criteria and Landstinget’s guidelines. After acceptance the patients are placed on a waiting list to be seen by a medical professional, or the patient will be accepted straight to rehabilitation. If a patient needs to change rehab care, or program during his/her already planned care, then we strive for a change without interruption of the rehabilitation process. We want the transition to happen as smoothly as possible, and with the need of the patient’s wishes and goals. The patients are usually referred to the rehabilitation clinic from the primary care clinic, or from the medical unit at the hospital in Växjö. During 2012, 727 referrals were handled at the clinic. The goal is for all referrals to be assessed within 5 working days and 1 working day for the referrals from the emergency unit at the hospital. The waiting time for treatment is validated by the warranty of care. Outpatient rehabilitation 2012: Median time for referral arrival to admission: 8 days Median time for the acceptance of the referral to admission: 6 days Day rehabilitation (not pain rehab) 2012: Median time for referral arrival to admission: 60 days Median time for the acceptance of the referral to admission: 43 days For similar information about pain rehab, please refer to the specific program brochure. 6 Documentation All professionals shall comply and follow the law and regulation:”patientdatalagen (2008:355)” and Socialstyrelsens regulation (SOSFS 2008:14), about how to handle information and documentation within the health care system. All documentations and patients are under confidential agreement. It is the responsibility of all professionals involved with a patient to read all documentation about that patient, and to make sure to follow any changes in their rehabilitation process. The patient has the right to be treated confidentially, but if necessary (and the patient gives permission) the patient’s information is allowed to be shared to other health units. For example, some of these units include home care, primary care etc. This can then be done either by phone, documentation, or planned meetings. All medical documentations are written in Cambio Cosmic; a computerized health care information system, which is used by Landstinget, the district, and many private health care professionals in the region. Environment The rehabilitation clinic is divided between two floors, and is adapted to accommodate the disabled patients. The clinic has rooms to rest in, a common area with a kitchenette, and a combined dining area/social area, for the patients, their friends and family, for when they come and visit. The rehabilitation clinic has two inpatient units with 21 beds. Of these beds are 13 single rooms. The rooms are efficiently accommodated and equipped with everything needed, including all adaptive equipment for the patient during the duration of the rehabilitation. All of these necessities are provided by the clinic. In case the patients have adaptive equipment from prior therapy, it is recommended that they bring it, in order to accomplish the best result possible in practicing their transfer technique. We have well equipped exercise rooms, weight rooms, group rooms, and individual rooms. There is a swimming pool, a computer room, a woodworking room, an exercise garden and a kitchen available. There are also equipments to coordinate recreational sporting activities in the big hall, and also for outside. The outside environment around the clinic offers a wide range of possibilities. There are paved paths right by the entrance of the clinic to make the outdoor available for patients with wheelchairs, walkers, etc. The green park surrounding the area is ideal for wonderful walks and other outdoor activities. We also have tennis, lawn bowling, mini golf, and fishing possibilities. Rehabilitation Biopsychosocial ground The theory behind rehabilitation comes from a biopsychosocial ground that is based from WHO International Classification of Functioning, Disability and Health, ICF. 7 A patient’s functional state and functional limitation is a dynamic interaction between health conditions (diseases, disorders, injuries, trauma etc.) and contextual factors. - - Body Functions are physiological functions of body systems (including psychological functions) Body Structures are anatomical parts of the body such as organs, limbs, and their components. Activity the execution of a task or action by an individual Participation is involvement in a life situation Participation Restrictions are problems an individual may experience in involvement in life situations Environmental Factors make up the physical, social and attitudinal environment in which people live and conduct their lives. Environmental Factors influence some components of functional state and functional limitation Personal Factors make up one component of the Contextual Factors. These factors are not classified in the ICF, because of the great social and cultural variation that are connected to it The rehabilitation process does not only include the medical part of rehabilitation but also the social, psychological, and work related activities. This can lead to treatments that focus on improving the physical and psychological function and/or to change the environment or the use of adaptive equipments to compensate for ones disability. Ideology We believe in an individual based mission statement that states: All patients have the right to be treated with dignity and respect All patients should have access to all rehabilitation resources to accomplish the best possible outcome All patients have the right for the best possible and most fair choices This includes working towards: - The best rehabilitation possible for an individual. This is accomplished for each patient by offering continuing education to patients, families, the professional team, outcomes of results, and access to quality register - That the patient/patient group will have good continuation of the health care process with Landstinget. Also, when necessary, a good transition to another care giver - That we continue to conduct education to our professionals about questions that deals with how to greet patients and family, cultural differences etc. and to adjust to the clinic’s routines and polices to be able to correspond to many different perspectives - That the patient is part of the team, and that the goals and arrangements are built on the patient’s wants and needs. We also want, if the patient wishes to, that the patient’s family participates in the rehabilitation process - That the patient and their families receive as much information and education as possible to elevate the potential for the best, and just rehabilitation result - That the patients with difficulties in communicating have access to an interpreter when needed 8 Team A team is used when the rehabilitation process needs involvement from many different professionals. An interdisciplinary team works towards a coordinated, goal oriented, and time limited achievements. The coordination of the rehabilitation process is determined by what is necessary for the patient, and can change over time. Beside the patient, close family (if appropriate), the team of one or more could also include: From neurological rehab or brain injury rehab: - Medical Doctor: have full responsibility medically for the patient’s rehabilitation and decides the need for special rehabilitation, the adequate level of care, and when a patient is medically treated - Registered Nurse: responsible for the overall rehabilitation care in support of the physician - Practical Nurse: help with the rehabilitation care in support of the registered nurse - Physical Therapist/Rehabilitation assistant: focus on “movements,” possible movements, movement potential, and behavior of movement - Occupational Therapist/Occupational Therapist assistant: focus on activities to enhance functional performance and participation in daily activity - Speech Therapist: focus to improve communication, language, speech, and patients with swallowing difficulties - Social Worker: focus on being an advocate for the patient and their family. Also gives advice and support in life changing situations - Neuropsychologist/psychologist: focus on assessment, support, psychological treatments, crisis therapy, and assessment of cognitive functional limitations - Uroterapeut/sexologist: focus with problems with the bladder and sexual dysfunction - Dietist: work with the patient for a better diet and diet plan From pain rehab: - Medical Doctor: have the most comprehensive medical responsibility, and to select the optimal medicine for the patients. Be able to explain the reason for pain and to handle questions about medical insurance plans. - Psychiatric nurse: gives the patient the necessary tools to handle challenging situations, gives support, and increases the process of acceptance. - Psychologist: educate the patient about the effects of living with pain and the different areas it might influence on a daily basis, and to give treatments to improve daily functions. - Physical Therapist: focus on treatments that involve movements to increase/encourage well being and health. - Occupational Therapist: focus on encouraging the patient to become independent in daily activities. - Rehab assistant: improves living habits and gives pain/stress releasing treatments. Coordinator/Coach One of the team members is the appointed leader to organize the patient’s rehabilitation plan. This means that he/she coordinates the rehab process, and make sure the patient and everyone involved receives all the information and education that are needed. Also, the leader helps with facilitating patients and their families to participate in the rehabilitation. The patient meets with their coordinator regularly to discuss different aspect of the rehab plan. 9 The Rehabilitation Process Rehabgoal Patient and the team’s assessment The plan and its action Evaluation / assessment New The plan and Goal its action Outcome of rehab goals Followups The coordinator/coach and the patient go through the patient’s resources, limitations, and expectations together. The team’s decisions are based on the ICF model, the functional limitation, structure divergence, limitation around activity, participation, and the influence of environmental factors. The ICF model is used as a foundation to establish a rehabilitation plan with a rehabilitation goal and a partial rehabilitation goal. This is done together with the patient so he/she have the possibility to correct, and to influence the plan and its goals. The plan also describes the patient’s main goals and duration of time of care expected to be able to accomplish these goals. These goals are constantly reviewed and evaluated during the entire duration of the treatment. New goals can always be added and changed when necessary. The discharge and the plan after discharge are started ahead of time. The rehab goals are evaluated, and a potential follow-up is also planned. This is documented in the intial rehabilitation plan. Duration and Intensity of Care The specialized rehabilitation process is one part of the rehabilitation that the patient might need to be able to accomplish his/her goals. The content and the time needed for rehabilitation is decided by the necessity and individual conditions. It could be anything from a few weeks to many months. The median time for inpatient rehabilitation is about 30 days. The day rehabilitation is about 2-3 treatment days for 6 weeks. Besides the rehabilitation programs, the clinic also offers other programs and classes, for example, MS program, Stroke program and walking program. When the patient participates in these programs, and also in the pain rehabilitation program, then it follows the schedule for that particular program. The intensity of the treatments is individualized and varies over time, depending on what the patient needs. The usual treatment intensity for inpatients is 3 hours a day with a “paramedicinare”- this includes Physical, Occupational, and Speech Therapist, either individually or in a group. The usual treatment for day rehab is 2-3 hours/2-3 days per week with a “paramedicinare” either individually or in a group. In addition to these treatment periods there are also additional treatments by doctors, nurses and self training. Inpatients also have in-conjunction with the treatment period, an additional time in the evenings and the weekends with the in house health care professionals. Treatments The patient’s daily treatment program is individually based. Besides the treatments that are acquired for a better function, there could also include a plan to in some way find compensations for functional limitations and to adjust to environmental factors. Learning new ways to accomplish an activity can improve the patient’s possibilities for activities and participation. The treatment can also include pedagogical approach, advice, and support to help both the patient and the family to handle their life situation in the best possible way. Lab analyzes, X-ray, consultation, etc. Rehabilitation is included in council care and use the lab service, specialist operations, etc. available on the hospitals. Patient Responsible physicians provide notice of results to the patient. Rehabilitation has daily service from the pharmacy for drug delivery. See additional information on the website; “Landstinget Kronoberg”. 10 Follow-up and outcomes Follow-ups are based on the clinic’s routine to follow-up different rehabilitation programs and diagnosis, and are modified on individual necessity. The follow-ups are usually done 3, 6, 12 months after discharge. These are done either by an appointment at the clinic and/or a phone call. The progress is evaluated against the discharge plan, rehabilitation plan, changes in the patient’s function, and ability of activities and participation. Besides the follow-up of the entire rehabilitation period, there is also a follow-up using the different quality index, for example WebRehab and NRS model. Results and Statistics The clinic follows the clinical results regularly, and uses it for statistics for many different parameters. This is done to be able to follow the development over time to ensure the best quality of care. In the different guides: inpatient and outpatient, neurological, brain injury, and pain rehab, some of the results and statistics are identified. Integration Integration occurs in accordance to the patient’s wishes and needs. If the patient is in need of help from the community home care or another care taker, then the patient and his/her family is invited to a health care plan meeting. When necessary, the social insurance office, employment office, and the patients employer are invited to the meeting as well. Cost, Charges, and Fees The rehabilitation is financed through the social system. You can find more information about the different individual fees, high cost protection, and all other fees and charges at Landstinget’s homepage:”vårdguiden”, and read more at: Patiententavgifter i Kronoberg. Landstinget’s customer service might also be able to answer some questions about high cost limit cards, charges, invoices, payment plans etc. Tel 0470-589650. Food and medicine are included for the inpatient, but not for the outpatient. Treatment equipments are free during the ongoing rehabilitation period. There could potentially be a charge for social events, certifications, and materials. Travels Patient travels Travels are reimbursed by Landstinget for travels to and from the different health care’s within the region. Receive more information at: Landstingets hemsida, and if you still have more questions please contact the receptionist at the clinic: 0470-592250. Transport Service Sigfrid’s: One will find Service trip “dial a ride” between Växjö hospital and the Sigfrid’s campus. This needs to be booked in advance, at least an hour before departure. The trip is booked with Service trips 0775-77 77 00. Parking The rehabilitation clinic offers free parking close by. There are 7 handicap parking spaces around campus. For questions about the content of the guide, please contact the rehabilitation clinic in Växjö, at the front desk: 0470-592250. 11