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Other Health Matters ORGANISATION DESCRIPTION Action on Hearing Loss Formerly RNID, Action on Hearing Loss aims to make life better for deaf and hard of hearing people, by providing information and support on all aspects of deafness, hearing loss and tinnitus, services including residential care, communication support, assistive equipment, campaigning and involvement in biomedical, scientific and technical research. Checked June 12 Information Line: Tel: 0808 808 0123 Tinnitus Information Line: Tel: 0808 808 6666 Website: www.actiononhearingloss.org.uk Arthritis Care Tel: 0808 800 4050 (10.00am4.00pm, Mon-Fri) UK-wide voluntary organisation for people with arthritis. Checked June 12 Website: www.arthritiscare.org.uk Asthma UK Adviceline: Tel: 0800 121 62 44 Website: www.asthma.org.uk Backcare Helpline: Tel: 0845 130 2704 Website: www.backcare.org.uk The Bladder and Bowel Foundation Helpline: January 2012 © The British Polio Fellowship 2007 Asthma UK is the charity dedicated to improving the health and wellbeing of the 5.4 million people in the UK whose lives are affected by asthma. Checked June 12 Backcare provides information and education to all affected by back pain and funds research into its causes, prevention and management. Checked July 12 The Bladder and Bowel Foundation is the UK’s leading charity providing information and support for Useful Organisations List ORGANISATION Tel: 0845 345 0165 Website: www.bladderandbowelfoundation.o rg Boots Assisted Living Tel: 0845 070 8090 Website: http://www.boots.com/en/AssistedLiving_863841/ DESCRIPTION people with bladder and bowel control problems, their carers, families and healthcare professionals. Checked June 12 Boots Assisted Living is a free, national medication administration system designed to help residents living in extra care facilities maintain their independence. Regular medication is provided in 28-day pill packs, which are colour coded for the time of day. Checked June 12 Boots Medisure Boots Medisure is a free medicine management Speak to the Pharmacy Team at system available nationally you local Boots store from Boots. Tablets and Website: capsules are dispensed into http://www.boots.com/en/Medisure- 7-day pill packs, clearly Making-Medicines-Easier_864350/ separated for taking at different times of the day. Boots also offer free Medicines Checks and a free Prescription Collection Service. Checked June 12 Brain & Spine Foundation Helpline: Tel: 0808 808 1000 (9.00am2.00pm, Mon-Thurs, 9.00am1.00pm Fri) Information, advice, factsheets and other publications relating to neurological conditions. Checked June 12 Website: www.brainandspine.org.uk Breathe Easy - British Lung January 2012 © The British Polio Fellowship 2007 Breathe Easy support groups Useful Organisations List ORGANISATION Foundation Support Network BLF Helpline: Tel: 03000 030 555 (Mon-Fri, 10.00am-6.00pm) DESCRIPTION throughout the UK provide support and information for those living with a lung condition, and for those who look after them. Checked June 12 Website: www.lunguk.org British Association for Counselling & Psychotherapy Website: www.bacp.co.uk British Complementary Medicine Association Tel: 0845 345 5977 Website: www.bcma.co.uk British Pain Society Website: www.britishpainsociety.org British Snoring and Sleep Apnoea Association (BSSAA) Helpline: Tel: 0800 085 1097 Website includes lists of local counsellors and psychotherapists, factsheets and other publications as well as information about training, supervision and conferences. Checked June 12 The BCMA website provides information on different complementary/alternative therapies, a directory of registered practitioners, events and links. Checked June 12 Website includes information and resources about managing pain, including pain clinics, pain management programmes, publications and reading lists and links to other organisations. Checked June 12 BSSAA offers information on snoring and sleep apnoea causes and treatments and sells a range of clinically tested anti-snoring products. Website: www.britishsnoring.co.uk Checked June 12 Chartered Society of Physiotherapy The CSP represents the UK's 50,000 chartered physiotherapists, physiotherapy students and assistants. The website Tel: 020 7306 6666 Website: www.csp.org.uk January 2012 © The British Polio Fellowship 2007 Useful Organisations List ORGANISATION DESCRIPTION includes a database of private physiotherapists, library and information service and downloadable publications. Checked June 12 College of Sexual and Formerly the British Relationship Therapists (COSRT) Association for Sexual and Relationship Therapy, Tel: 020 8543 2707 COSRT is the national Website: www.cosrt.org.uk charity for sexual and relationship therapy. The website includes lists of therapists, links and information for both therapists and the public. Checked June 12 Counselling Directory Website: www.counsellingdirectory.org.uk Department of Health Website: www.dh.gov.uk Depression Alliance Tel: 0845 123 23 20 Website: www.depressionalliance.org Scotland: Action on Depression Counselling Directory lists qualified and registered counsellors and psychotherapists throughout the UK. The website includes information about psychological therapies, useful articles and events for the public. Checked June 12 The Department of Health website contains information related to health issues, NHS and patient care. Checked June 12 Depression Alliance is the leading UK charity for people affected by depression, providing information and national and local support services. The website includes downloadable factsheets and details of other publications. Checked June 12 Tel: 0808 802 2020 January 2012 © The British Polio Fellowship 2007 Useful Organisations List ORGANISATION DESCRIPTION Website: www.dascot.org Wales: Journeys Tel: 029 2069 2891 Website: www.journeysonline.org.uk Northern Ireland: Aware Defeat Depression Helpline: Tel: 08451 20 29 61 Website: www.aware-ni.org.uk Diabetes UK Diabetes UK Careline: Tel: 0845 120 2960 (MondayFriday, 9.00am-5.00pm) Website: www.diabetes.org.uk Diabetes UK is the leading UK charity that cares for, connects with and campaigns on behalf of all people affected by and at risk of diabetes. Checked July 12 Dr Foster Dr Foster is the UK’s leading Website: www.drfosterhealth.co.uk provider of comparative information on health and social care services. Search the database for information on health conditions and treatments, hospitals, consultants and complementary practitioners or download the Hospital Guide. Checked June 12 Expert Patient Programme Community Interest Company January 2012 © The British Polio Fellowship 2007 Information about the NHS Expert Patient Programme Useful Organisations List ORGANISATION (EPPCIC) Tel: 0800 988 5550 Website: www.expertpatients.co.uk Fibromyalgia Association UK Helpline: Tel: 0844 887 2444 (Mon-Fri, 10.00am-4.00pm). Website: www.fibromyalgiaassociationuk.org General Medical Council Tel: 0161 923 6602 Website: www.gmc-uk.org DESCRIPTION with search facilities for courses, news and publications. Checked June 12 Fibromyalgia Association UK is a registered charity that provides information, advice and support to people with the condition, their families and medical professionals. Checked June 12 The GMC registers doctors in the UK. The website includes information on the Freedom of Information and Data Protection Acts, available publications, training and registration and making complaints. Checked June 12 General Optical Council Tel: 020 7580 3898 Website: www.optical.org The General Optical Council is the regulator for the optical professions in the UK. Search the website for opticians, optometrists and registered students. Checked June 12 Hard to Find Medicines Tel: 0800 567 0102 Website: www.hardtofindmedicines.co.uk Staffed by qualified pharmacists and technicians, Hard to Find Medicines provides a free nationwide sourcing and delivery service for NHS patients who have difficulty finding certain prescribed medications. Checked June 12 Health Professions Council Check January 2012 © The British Polio Fellowship 2007 HPCheck.org allows the public to check if a particular Useful Organisations List ORGANISATION Tel: 0845 300 6184 www.hpcheck.org DESCRIPTION health care professional is registered with the Health Professions Council. Enquirers may call the helpline or search online by profession and surname or registration number. Checked June 12 Healthcall Optical Services Tel: 0800 089 0166 Website: www.healthcalloptical.co.uk Healthcall Optical Services provides eye examinations at offices, nursing and residential homes and at home for people who are unable to visit a high street optician unaccompanied. Checked June 12 Help with health costs advice line Tel: 0845 850 1166 (MondayFriday, 8.00am-6.00pm). Hypnotherapy Directory Website: www.hypnotherapydirectory.org.uk IBS Network Tel: 0114 272 3253 Website: www.theibsnetwork.org This helpline advises NHS patients about entitlements to prescription charge exemptions and provides information on the requirements to qualify for charge exemption at dispensing chemists and pharmacies. Checked June 12 This website enables visitors to find a hypnotherapist close to where they live and appropriate for their needs. The site includes useful articles and FAQs. Checked June 12 The IBS Network is the national charity for people with Irritable Bowel Syndrome (IBS). The website includes information about campaigns, research and support groups. Checked June 12 January 2012 © The British Polio Fellowship 2007 Useful Organisations List ORGANISATION DESCRIPTION Independent Complaints Advocacy Service (ICAS) ICAS is a free, independent service that can help you make a formal complaint about your NHS health practitioner in England. Checked North East (Northumberland, Durham, Tyne & Wear): 0808 802 3000 July12 Yorkshire & Humberside: 0808 802 3000 North West (Cumbria, Lancashire, Merseyside, Cheshire): 0808 802 3000 West Midlands (Birmingham and Black Country): 0300 456 2370 West Midlands (Coventry, Warwickshire, Hereford and Worcester): 0300 456 2370 West Midlands (Shropshire and Staffordshire): 0300 456 2370 South West (Devon, Dorset and Cornwall): 0300 440 9003 South West (Bristol, Somerset, Wiltshire, Gloucestershire): 0300 440 9002 London: 0300 456 2370 Bedfordshire & Hertfordshire: 0300 456 2370 Essex: 0300 456 2370 Cambridge, Norfolk & Suffolk: 0300 456 2370 South East (Hampshire, Isle of Wight, Berkshire, Oxfordshire, Buckinghamshire): 0330 440 9001 South East (East and West Sussex, Surrey and Kent): 0330 440 9000 January 2012 © The British Polio Fellowship 2007 Useful Organisations List ORGANISATION DESCRIPTION East Midlands (Northamptonshire, Derbyshire, Nottinghamshire, Lincolnshire, Leicestershire): 0808 802 3000 Scotland: Contact your local Citizens Advice Bureau: www.cas.org.uk Your local NHS board will also be able to give you information on help from an independent advocate if you need help making your complaint. Wales: Your local Community Health Council may be found at www.patienthelp.wales.nhs.uk Each CHC has a Complaints Advocacy Service to deal with individual complaints. January 2012 © The British Polio Fellowship 2007 Useful Organisations List ORGANISATION DESCRIPTION Northern Ireland: Contact your local Citizens Advice Bureau: www.citizensadvice.co.uk The Patient and Client Council provides a voice for patients, clients, carers and communities on health and social care issues: www.patientclientcouncil.hscni.net lnstitute for Complementary and Natural Medicine (ICNM) Tel: 020 7922 7980 Website: www.i-c-m.org.uk Limbless Association Helpline: Tel: 0800 644 0186 Website: www.limblessassociation.org The ICNM provides the public with information about complementary medicine, administers the British Register of Complementary Practitioners and promotes good practice and research in the field. Checked June 12 The Limbless Association provides information, advice and support for people who are without one or more limbs. The website includes information about products and resources, including orthotics, grants and funding and assistive technology. Checked June 12 Lymphoedema Support Network Tel: 020 7351 0990 Website: www.lymphoedema.org The Lymphoedema Support Network is a national patientled organisation offering information and support to people with this condition. Checked June 12 Medline/PubMed Website: www.ncbi.nlm.nih.gov/pubmed January 2012 © The British Polio Fellowship 2007 This is a website of medical articles and abstracts. A search produced several Useful Organisations List ORGANISATION DESCRIPTION thousand items about polio! Checked June 12 Mental Health Information For all Royal College of Psychiatrists Website: http://www.rcpsych.ac.uk/mentalhe althinformation.aspx MIND Tel: 0300 123 3393 (MindinfoLine) Website: www.mind.org.uk Scotland: Scottish Association for Mental Health Tel: 0141 530 1000 Mental Health Information Online includes downloadable leaflets about various mental health problems, from alcohol and drug addiction to older people’s mental health. The website also includes links to relevant organisations and publications. Checked June 12 MIND is the leading mental health charity in England and Wales. Services include a confidential helpline, support network, counselling, befriending, advocacy, consultancy and training as well as campaigns and publications. Checked June 12 Website: www.samh.org.uk Northern Ireland: Northern Ireland Association for Mental Health Tel: 028 9032 8474 Website: www.niamhwellbeing.org National Institute for Health and Clinical Excellence (NICE) Website: www.nice.org.uk National Osteoporosis Society January 2012 © The British Polio Fellowship 2007 An independent organisation providing national guidance on promoting good health and NHS procedures for preventing and treating ill health. Checked June 12 The National Osteoporosis Society is the only national Useful Organisations List ORGANISATION Osteoporosis Helpline: Tel: 0845 450 0230 (MondayFriday, 9.00am-5.00pm) Website: www.nos.org.uk National Voices Tel: 020 3176 0738 Website: www.nationalvoices.org.uk Neuropathy Trust Tel: 01270 611828 Website: www.neurocentre.com DESCRIPTION charity dedicated to the prevention, diagnosis and treatment of osteoporosis. The website has downloadable information sheets, details of other publications, research and support groups. Checked June 12 National Voices brings together all national voluntary organisations representing users of health and social care to give them a stronger voice in policymaking. Checked June 12 The Neuropathy Trust is a patient-led charity founded to provide a lifeline to people affected by peripheral neuropathy and neuropathic pain and to raise awareness amongst the public and medical professionals. Checked June 12 NHS Evidence Website: www.evidence.nhs.uk NHS Evidence contains a wealth of resources for NHS staff, patients and the public. All resources are free to use and everyone may access the majority of them. Checked June 12 NHS 24 (Scotland) Tel: 08454 24 24 24 Website: www.nhs24.co.uk NHS Choices Website: www.nhs.uk January 2012 © The British Polio Fellowship 2007 Provides confidential, out-ofhours health advice in Scotland. Checked June 12 NHS Choices provides information and advice on healthy lifestyle choices, has a Health A-Z listing more Useful Organisations List ORGANISATION DESCRIPTION than 800 conditions and treatments and enables visitors to access individual hospital facts and figures and patient opinions. Checked June 12 NHS Direct 24-hour nurse advice and health information service for England and Wales. Checked Tel: 0845 46 47 English Website: www.nhsdirect.nhs.uk June 12 Welsh Website: www.nhsdirect.wales.nhs.uk No Panic Tel: 0800 138 8889 (10.00am10.00pm) Answerphone service only: 10.00pm-10.00am No Panic is a charity helping people with panic attacks, phobias, obsessive compulsive and other anxiety disorders and also their families or carers. Checked June 12 Website: www.nopanic.org.uk The Outside Clinic Tel: 0800 85 44 77 Website: www.outsideclinic.com Pain Concern Helpline: Tel: 0300 123 0789 (Mon-Fri 10.00am-4.00pm). Website: www.painconcern.org.uk The Outside Clinic is the largest and longest established national provider of home eye testing in the UK. Checked June 12 Pain Concern is a membership charity providing information and support for those living with pain, their families and carers. The website includes information about coping and self-help, Q and As, relevant news and publications. Checked June 12 Pain UK Website: www.pain-uk.org January 2012 © The British Polio Fellowship 2007 Pain UK is an alliance providing a voice for people living with pain. Checked August 12 Useful Organisations List ORGANISATION DESCRIPTION PAPYRUS PAPYRUS is committed to the prevention of young suicide and the promotion of mental health and emotional well being. HOPELineUK: Tel: 08000 68 41 41 (10.00am to 5.00pm, 7.00pm to 10.00pm, Monday to Friday and 2.00pm to 5.00pm at weekends.) Website: www.papyrus-uk.org Patient Opinion Tel: 0800 122 31 35 support, practical advice and information to anyone who is concerned that a young person they know may be suicidal. Checked June 12 HOPELineUK gives Patient Opinion is a website where you can read what other patients are saying about hospitals and share your opinions as well. Checked June 12 Website: www.patientopinion.org.uk The Patients Association Helpline: Tel: 0845 608 4455 Website: www.patientsassociation.com PhysioFirst Website: www.physiofirst.org.uk The Patients Association is an independent charity that highlights the concerns and needs of patients. It aims to reduce health inequalities by helping patients to be better informed and by campaigning for them to have the right to be involved in decision-making. Checked June 12 PhysioFirst is an organisation of Chartered Physiotherapists in Private Practice (OCPPP). The website has a database of private physiotherapists, articles and events. Checked June 12 PINNT (Patients on Intravenous and Nasogastric Nutrition Therapy) Website: www.pinnt.com January 2012 © The British Polio Fellowship 2007 PINNT promotes greater understanding of intravenous and nasogastric nutrition amongst patients, potential patients and the medical profession through membership, support and Useful Organisations List ORGANISATION DESCRIPTION information. Checked June 12 Relate (England and Wales) Relate provides a confidential counselling service for people in marriage and other personal relationships. Checked June 12 Tel: 0300 100 1234 Website: www.relate.org.uk Scotland: Relationships Scotland Tel: 0845 119 2020 Website: www.relationshipsscotland.org.uk Northern Ireland: Relate Northern Ireland Tel: 028 9032 3454 Website: www.relateni.org RLS-UK/Ekbom Syndrome Association Helpline: Tel: 01634 260483 (Mon and Thurs, 9.00am-11.00am) Website: www.rls-uk.org. Provides information and support for those with Ekbom (Restless Leg) Syndrome and their families and raises awareness of the condition amongst the medical profession. The site includes diagnostic information and details of research. Checked June 12 Royal National Institute of Blind People (RNIB) Helpline: Tel: 0303 123 9999 RNIB is the UK's leading charity offering information, support and advice to almost two million people with sight loss. Checked June 12 Website: www.rnib.org.uk RSI (Repetitive Strain Injury) Awareness Tel: 023 8029 4500 Website: www.rsi.org.uk January 2012 © The British Polio Fellowship 2007 RSI Awareness is an information resource for those interested in musculoskeletal disorders. The website includes Useful Organisations List ORGANISATION DESCRIPTION downloadable factsheets on a variety of conditions, such as Carpal Tunnel Syndrome. Checked July 12 Samaritans Tel: 08457 90 90 90 Website: www.samaritans.org.uk Sane Saneline: Tel: 0845 767 8000 (6.00pm11.00pm, every day of the year) Website: www.sane.org.uk Scoliosis Association (SAUK) Helpline: Tel: 020 8964 1166 Website: www.sauk.org.uk Samaritans provides 24-hour confidential emotional support for people experiencing feelings of distress or despair, including those that may lead to suicide. Checked June 12 Sane is a charity campaigning to raise awareness of mental illness, providing information and emotional support to people experiencing mental health problems, their families and carers through its helpline, Saneline. Checked June 12 The Scoliosis Association is an independent support group for people with scoliosis in the UK, providing information and support though its helpline. It offers contacts for shared experiences and aims to educate the public about treatments and research. Checked June 12 Sexual Advice Association Helpline: Tel: 020 7486 7262 Website: www.sda.uk.net January 2012 © The British Polio Fellowship 2007 The Sexual Advice Association is a charity set up to help people with male and female sexual problems and their partners and to raise awareness of sexual conditions amongst both the public and the medical profession. Checked June 12 Useful Organisations List ORGANISATION DESCRIPTION The Sleep Council The Sleep Council aims to raise awareness of the importance of a good night's sleep to health and wellbeing, provide helpful advice and tips on how to improve sleep quality and how to choose the right bed for optimum sleeping comfort. Checked June 12 Tel: 0845 058 4595 Freephone leaflet line: Tel: 0800 018 7923 Insomnia Helpline: Tel: 020 8994 9874 (Monday to Friday, 6.00pm to 8.00pm). Website: www.sleepcouncil.com Society of Chiropodists & Podiatrists Tel: 020 7234 8620 Website: www.feetforlife.org The professional body for chiropodists and podiatrists in the UK. The website has a search facility for practitioners, FAQs, foot health information and downloadable leaflets. Checked June 12 The Stroke Association Stroke Helpline: Tel: 0303 3033 100 (MondayFriday, 9.00am-5.00pm) Website: www.stroke.org.uk Women’s Health Concern (WHC) Website: www.womens-healthconcern.org January 2012 © The British Polio Fellowship 2007 The Stroke Association is the only UK-wide charity solely concerned with combating stroke in people of all ages. It funds research into prevention, treatment and better methods of rehabilitation, and helps stroke patients and their families directly through its Rehabilitation and Support Services. Checked June 12 WHC provides an independent, unbiased service to advise, reassure and educate women about their health concerns and inform the medical profession. The website includes factsheets, FAQs and events. Checked June 12 Useful Organisations List ORGANISATION DESCRIPTION World Health Organisation The United Nations agency for health. Checked June 12 Website: www.who.int/en January 2012 © The British Polio Fellowship 2007 Useful Organisations List