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Patient information: Vestibulodynia Vestibulodynia What is vestibulodynia? You have been told that you are suffering from vestibulodynia. This is neither infectious nor cancerous but is a ‘vulval pain syndrome’. It is characterised by pain or pressure at the area around the vaginal opening (the vestibule). The cause is unknown but we think the nerve endings in the skin of the vulva become over-sensitive. Pain and discomfort occur during sexual intercourse or when inserting tampons. Patchy redness may be present in this area but this does not always occur and very often with this condition, the skin of the vulva usually looks normal. How is it treated? Many treatments have been used for this condition and your doctors may try you with some or all of the following: emollient creams (moisturisers), local anaesthetic gel, topical steroid creams, tricyclic antidepressant tablets. These are all prescribed to ease the pain that vestibulodynia causes. Antidepressant tablets act as painkillers in small doses and are particularly good for vulval pain. You should be aware that not all treatment works for everyone and it may take some time for your symptoms to improve. Contact the Vulval Pain Society for further information and advice www.vulvalpainsociety.org General care of your vulva Vulval skin is sensitive. It may react to irritants such as soaps, shower gels, bubble baths and wipes. The recommendations here are general for all types of vulval disease and should be used in addition to more specific treatment prescribed by the clinic doctor. Clothing The sort of clothing you wear may have an effect on your vulval disease. Always wear loose fitting underwear. Try to avoid tight outer garments such as cycling shorts or tight leggings. Vestibulodynia, September 2015 Page 1 of 2 Vestibulodynia Washing Avoid all contact with soap. You may find it beneficial to start washing your hair separately to the rest of your body as shampoo can irritate. Emulsifying ointment can used as a soap substitute for most vulval disorders. It can be used also as a local moisturiser. Emulsifying ointment can be bought ‘over the counter’ from your local pharmacy (chemist). Avoid contact with perfume and personal deodorants. What else can I do? Stress can make vestibulodynia worse. You may be referred to the local Pain Management Unit or for psychosexual counselling if appropriate. It is important to know that this condition is not life-threatening or contagious. Please feel free to discuss any questions or worries you may have with your doctor. Contact us www.royalberkshire.nhs.uk Department of Dermatology Outpatient Department West Berkshire Community Hospital London Road, Benham Hill Thatcham RG18 3AS Telephone 0118 322 5111 www.royalberkshire.nhs.uk Dermatology Secretary 0118 322 7417/ 8975/ 8145 Telephone 01635 273417 Fax 01635 273345 Department of Dermatology South Block Royal Berkshire Hospital London Road, Reading RG1 5AN For minor operations 0118 322 7581 Other Dermatology leaflets are available on the Trust website: This document can be made available in other languages and formats upon request. www.royalberkshire.nhs.uk DERM_994 Department of Dermatology Written: August 2003, Revised: September 2015. Review due: September 2017 Vestibulodynia, September 2015 2