Survey
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
Metch ley Pa rk Ro ad 76, 84, 448a, 448b, 636 University Station Shuttle Outpatients ad Vin cen ess Acc 76, 84 448a, 448b, 636, 64 Visitor and Patient re (BSMHFT) 76, 84 64 A ston Disabled drop-off / Taxi drop-off / non-emergency transport n Crescent ulev 38 61, 62, 63, 64 76, 84 64 ard sto Bristo l Ro ad A3 8 m gha Selly Oak ry’s sbu Sain Shuttle Old Queen Elizabeth Hospital in ard l Road A 38 Car Parking Charges 0 – 1hr £2.50 1 – 2hrs £3.60 2 – 3hrs £3.70 3 – 4hrs £4.30 4 – 5hrs £5.00 5 – 6hrs £5.60 6 – 8hrs £6.20 Over 8hrs £12.50 Weekly Pass £17.40 61, 62, 63, 64 Oak Tree Lane dA b Bo Birm ne Lane Br oa 61, 62, 63, 64 Web Bri Harbor Shuttle bus les hic ve Aston Webb Boulev ne Lane Walk Route The Oleaster (BSMHFT) Shuttle ak Selly O 11, 448a, 448b Harbor Bus Stop Centro / WM lR to For appointments in the old hospital, please visit the Information Desk for directions. Mindelsoh o ist c ve ri tD en c Vin 448a 448b 636 Parking The service runs from 07:00-19:00 Mon-Fri (excluding Bank Holidays). ed los New QEHB Parking – Car Park A Shuttle ve only t Dri dents The Barberry si for Vin ce nt Dr iv e Medical School Main Entrance Patient/ Visitor Fo ss eW ay 448a 448b 647 Disabled Parking 5 1 Selly Oak Hospital Classic Bartter Syndrome 11 Outpatients Area 1 Main Outpatients Building 2 Outpatients Area 2 Diabetic Unit 5 Outpatients Area 5 H.A.R.C Centre Oak Tree Lane 1 Post Graduate Centre 647 n Way Mindelsoh Ro Disabled Entrance Old Queen Elizabeth Hospital Cancer Centre ay lW ita osp wH Ne Ambulances & Buses only Entrance Entrance and Information Desk Shuttle A&E Staff Car Park B1 Way lsohn Minde Key CDU ) (one way only Way Mindelsohn Shuttle New Fosse Way Way Mindelsohn 448a 448b 636, 647 ark You can use the above contact details if you require further information or have any questions regarding Bartter Syndrome. orne [email protected] Nuffield House THQ New Queen Elizabeth Hospital Birmingham eP Steven Wise (Renal Metabolic Clinical Nurse Specialist) 07810654864 Visitor / Patient orn Useful contacts Shuttle Access to Busy Bees and Staff Car Park F only For all appointments in the Outpatients area of the new hospital, please enter through the main entrance and check in using the self check-in kiosks. Harb • www.barttersite.org • www.raredisease.org.uk • www.geneticalliance.org.uk New Queen Elizabeth Hospital Birmingham Staff Car Park F rb Where can I find more information? Old QE Parking – Car Park D Shuttle Birmingham Women’s Hospital Ha The frequency of these appointments may change and will be discussed with you in the clinic. 636 Busy Bees Nursery e We will review your blood results and medications to ensure you continue receive the appropriate treatment. We also aim to provide support for you and your family, and inform you of any other support that is available, such as charities and support groups. B15 2WB n ley La Metch You will be seen in the Renal Metabolic Clinic. We aim to provide an opportunity for you to have a specialist consultation, which will allow plenty of time for any questions you may have. www.uhb.nhs.uk Queen Elizabeth Hospitals Ne w What happens now? Raddlebarn 11 Road 2 rn Ra dd leb ar nR Selly Oak Hospital B29 6JD Fenced off area oa d Correct at 03 October 2011 Queen Elizabeth Hospital Birmingham Mindelsohn Way Edgbaston, Birmingham, B15 2WB Telephone: 0121 627 2000 (Old) Queen Elizabeth Hospital Edgbaston Birmingham, B15 2TH Telephone: 0121 627 2000 An information leaflet for patients and families Delivering the best in care UHB is a no smoking Trust To see all of our current patient information leaflets please visit PI11_1120_01 UHB/PI/1120 (Edition 1) Author: Steven Wise Date: October 2011 Review Date: October 2013 Bartter Syndrome is not a single disorder but rather a set of closely related disorders. Variants of Bartter Syndrome include: • Classic Bartter Syndrome • Gitelman’s Syndrome • Antenatal Bartter Syndrome This leaflet provides information about Classic Bartter Syndrome. What is Classic Bartter Syndrome? The kidneys, amongst many other things, are responsible for controlling the volume of body fluid and maintaining the level of important electrolytes such as potassium and sodium. Bartter Syndrome is a rare inherited condition that prevents the kidneys reabsorbing sodium, chloride and potassium. It is a condition that can affect males and females across all ethnic origins. What are the Symptoms? The symptoms of Bartter Syndrome include: • Tiredness • Increased urination • Increased thirst • General weakness • Salt cravings • Dehydration • Vomiting • Tetany (muscle contraction) • Confusion How is it diagnosed? Bartter Syndrome is usually diagnosed in childhood or adolescence. Diagnosis is based on physical examination and the results of blood and urine tests. What is the treatment? At present there is no cure for Bartter Syndrome. Treatment is mainly focused on correcting dehydration and low potassium levels through supplements. Medications such as Spironolactone and Triamterine may help to reduce the loss of potassium. Indomethacin can also be used to treat the effects of Bartter Syndrome. What effect will it have on my health? The long-term effect of Bartter Syndrome is uncertain. Many patients remain well, but in some cases Bartter Syndrome can impede growth in childhood and may eventually affect the way in which your kidneys filter toxins from the blood. However early diagnosis and appropriate treatment may improve growth and intellectual development. then that person will be a healthy carrier. If both parents are carriers of the same changed gene, they may pass on either their normal gene or their changed gene to their child. Each child of parents who both carry the Bartter gene therefore has a 25% chance of inheriting a changed gene from both parents and being affected by Bartter Syndrome. There is a 50% chance that the child will inherit just one copy of the Bartter gene. This means they will be healthy carriers like their parents. There is a 25% chance that the child will inherit both normal copies of the gene and will therefore not have Bartter Syndrome or be a carrier of Bartter Syndrome. The chance remains the same in every pregnancy and is the same for boys and girls. Autosomal recessive inheritance: both parents are carriers Parents What about my family? Bartter Syndrome is inherited in an autosomal recessive pattern. This means that a person must inherit two changed copies of the same gene in order to have Bartter Syndrome. If a person inherits one changed gene and one normal gene, Offspring Unaffected Carrier Carrier Affected