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Play Picnics as a Solution for Fussy Eaters Alison Spurr August 2014 OUTLINE OF PRESENTATION o Normal Development Food continuum Role of sensory skills Problem Feeders – Prevalence Data Picky Eaters vs Problem Feeders Feeding Therapy Play Picnics SOS Approach NORMAL FEEDING DEVELOPMENT DEVELOPMENTAL FOOD CONTINUUM Breast/bottle Thin Baby food cereals Thicker Baby food cereals 0-12 months 5 months 6- 7 months and purees Soft Mashed Table Foods 8 months DEVELOPMENTAL FOOD CONTINUUM Hard Munchables Dissolvable Hard Solids Soft Cubes 8 months 9 months 10 months Soft Mashed Table Foods Soft Table Foods Hard Mechanicals 11 months 12-14 months 16-18 months DEVELOPMENTAL FOOD CONTINUUM The developmental progression in learning to eat various food textures requires advancing BOTH oral-motor functioning and sensory processing Taste Balance Smell Proprioception Sight Interoception Sound Touch Sensory processing requires the ability to take in information from all of the senses, process that information and then produce an adaptive response. Eating is the most difficult sensory task that children do SENSORY MEAL Eyes – visual information changes with every bite and every chew Smell – closely linked with preferences Touch- fingers, mouth ,tongue, internal Taste – pre, during and after swallow Sound – crunching, slurping etc. Causes of Feeding Problems FIELD, D., GARLAND, M. & WILLIAMS, K (2003) N = 349 CHILDREN Medical diagnosis GERD Neurological Cardiopulmonary Food allergy/intol Constipation Diarrhea Anatomical anomal Delayed emptying Renal Disease % 51 30 27 21 15 6 6 4 3 Major Feeding Issues Food refusal Oral/dysphagia dysphagia selectivity oral motor ARE FEEDING PROBLEMS CAUSED BY PARENTS? Gueron-Seal et al. (2011) N=55, ages 1-3 years, mean = 2 years 27 children in the feeding disorders group 28 children in the control group (Matched by age, gender, birth order, maternal education) “having a child with a feeding disorder puts the mother-child relationship at risk for more negative feeding interactions” p833 more intrusive and less structured The more worried a Mother was about her child’s weight, the more her interactions with her child at mealtimes were impacted Are Feeding Problems Caused by Environment? Pridham et. al (2001) 47 full-term; 52 preterm infants Videotaped at 1, 4, 8 and 12 months Looking at Mother’s working model of feeding her child, along with Mother’s positive affect, sensitivity and responsiveness. As the child’s weight became less deviant, a Mother’s feeding affect and behaviour BECAME more positive There were NO significant associations with Mother’s symptoms of depression in either group or across afes on the Mother’s feeding affect of behaviour WHAT DOES A FEEDING PROBLEM LOOK LIKE? EDMOND ET AL(2010) FEEDING SYMPTOMS, DIETARY PATTERNS, AND GROWTH IN YOUNG CHILDREN WITH AUTISM SPECTRUM DISORDERS, PAEDIATRICS, 126, 337-342 Avon Longitudinal Study of Parents and Children in England 14,062 live births: 13,971 survived to age 5 years Food Frequency questionnaires at 6, 15, 24, 38 and 54 months of age Content of diet assessed at 38 months Weighed and measured at 7 years of age PICKY EATERS VS PROBLEM FEEDERS Picky Eaters Decreased range/variety of foods but will eat > 30 foods Foods lost due to “burn out” usually Problem Feeders Restricted range or variety of foods, usually <20 foods foods lost are NOT re-acquired regained after 2 weeks Tolerates new foods on plate and cries/tantrums with new foods usually can touch or taste them Eats > 1 food from most all food refuses entire categories of food textures or texture groups or nutrition groups nutrition groups PICKY EATERS VS PROBLEM FEEDERS Picky Eaters Adds new foods to repertoire in Problem Feeders Adds new foods in > 25 steps 15-25 steps Typically eats with family, but frequently Usually eats different foods than family and eats different foods than family often eats alone Sometimes reported as “picky eater” Persistently reported as “picky eater” across at well child checks multiple well child checks Parental Practices for Problem feeders Force feeding – associated with lower child weight status in both cross-sectional and prospective studies (Farrow & Blissett, 2008; Keller, Pietrobelli, Johnson, & Faith, 2006) Distraction feeding – using toys, TV, and movies, and feed while child is distracted Use food as a reward Punishment feeding – taking rewards, toys away for poor feeding *Parents do what they are doing because it works for them on some level FEEDING THERAPY Play Picnics SOS Applied Behavioural Analysis (Behavioural modification) Inpatient Intensive Fussy feeding Tube Weaning Graz Inpatient tube wean Day patient program Unfortunately limited studies comparing different approaches to feeding therapy especially post discharge. PLAY PICNICS – PRIMARY GOALS Allow the child to lead, regain control and enjoyment of the feeding process To teach parents to allow the child to lead in feeding (and other areas) To promote the child’s curiosity in food by providing positive, non threatening, oral experiences. This, along with hunger, will provide internal motivation to eat and drink. PLAY PICNICS - SECONDARY GOALS Promote a positive carer-child relationship developing attachment, giving child better emotional health and relationship building skills. Reduce the severity of feeding problem. Increase the parent’s capacity to cope with child with severe feeding problems, due to both the treatment and the opportunity to meet other parents with issues in common. PLAY PICNICS - INCLUSION CRITERIA Age between 8 months to 18 months. Safe swallow for some type of oral intake Must have primary carer attend each time. Capable of self feeding- gross motor skills to access food/ fluid in exploration. Parent can then hold/support as necessary. If tube fed: Tolerating bolus feeds during the day, ideally at minimum of 3 hours apart. (ie child has sense of hunger) PLAY PICNICS - EXCLUSION CRITERIA NBM or high aspiration risk Infection Parents who can not commit to attendance Carefully watch and plan for Food Allergies FACILITATOR’S ROLES Coach parent re cue reading – child’s sensory preferences, aversion, preferences, enjoyment Select oral experiences/ available options for children- foods, textures, equipment. Look at oral defensiveness, oral hypersensitivity, coordination and strength of oromotor movements and swallow strategies (?referral to SP). Look at positioning (?referral to PT). Look at sensory aversion (?referral to OT). Conduct pre and post assessments PLAY PICNICS - PROCESS Age and allergy appropriate food placed on clean floor Children are placed on the floor with parents sitting around the outside Parents are not to intervene unless there is a safety issues Therapists provide support for parents and help with learning to read their child’s cues LET THE CHILDREN PLAY Anything goes Children define the rules All initiative is in the children’s hands Nothing has to happen No playing, just observing Not touching, just smelling Not eating, just playing No play picnic It is the child’s choice SOS approach Sequential – Oral - Sensory Dr Kay Toomey and Dr Erin Ross Designed to assess and address all the factors involved in feeding difficulties (examines and treats the “whole” child) Multi-disciplinary approach Based on normal development of feeding, accessing the cognitive development of the child and play-based therapy Systematic Desensitisation The use of competing relaxation responses during exposure to a graduated hierarchy of anxiety producing stimuli to help a patient learn to overcome their fears. SOS Treatment of feeding problem is based on the belief that the child is having a stress response because they can not manage the task. Therefore we try to teach the skills in a manner that respects the child’s readiness for the task There are 32 steps to food acceptance and children are encouraged to move up the hierarchy one step at a time If a child can not tolerate an exposure level, he/she “signals” the therapist who drops back to a “safe” level of interaction which allows the child to “relax” STEPS TO EATING – 32 steps to food acceptance 6 broad acceptance levels Eating Taste Touch Smells Interacts with Tolerates FOOD PLAYGROUP GOALS • • • • • Learn to have positive experiences with food Learn mealtime routines and cues to eating Decrease resistance to touching, tasting and swallowing food Increase range of foods a child will try Increase volume of food ingested (SKILL DRIVES VOLUME) Individual goals developed with parental input GROUP SCHEDULE Sensory Preparation– 15 minutes Children participate in ‘obstacle course’ for sensory organization and body awareness Children participate in sensory ‘calming’ singing songs (for the older children parents leave the room and watch behind a 1 way mirror) ** ENDORPHINS COUNTERACT ADRENALINE - We want to avoid a fear response as adrenaline is an appetite suppressant STARTING ROUTINE Every child washes & dries hands & face (tactile exercise, hygiene, facial warm up, establishes routine) then sits at table Blow bubbles: oro-motor exercise, endorphins, reinforcement Given a damp face washer and “clean the table” also use to wipe hands throughout session if needed (routine, sensory organisation) Each child is passed plates and napkins (social learning, turn taking, routine) Each child serves themselves from a plate/bag FEEDING Lead Therapist presents each food, one at a time (may also be a supporting therapist in the room to help and a therapist in the room with parents providing education) Therapists model sequence of steps to accepting new foods (begins with visual tolerance, interacting, smelling, touching, tasting, eating) Children are positively reinforced for all levels of interaction (imitation, touch, praise, clapping, cheering, praise of others) CHILDREN ARE NEVER FORCED TO EAT FEEDING Parents and staff use positive language i.e. “you can” rather than “can you?” and “we” rather than “don’t” i.e. ‘we sit in our chairs’ rather than ‘don’t leave the table’ Rule for food presented: 1x meltable solid (i.e. green jelly) 1x hard munchable (ie green apple slices) 1x puree (apple puree) 1x drink: (green cordial) There should also be a: starch, protein, dairy, fruit/veg at each group & foods need to be linked in some way (i.e. colour, shape) FEEDING A recording sheet is used to track where each child enters (#1) and exits (#2) the steps to eating & recorded for progress SESSION # : TOLERATES FOOD: Tolerates food in room Tolerates food on OTHER side of table Tolerates food at MIDDLE of table Tolerates food on table JUST OUTSIDE their space Apple puree Biscuits Oranges Jelly Cordial 1 Tolerates food on plate or in personal space INTERACTS TOUCHES SMELLS & MOUTH AREA Touches food with napkin/utensil Touches food with another food Touches food with 1 finger Touches food with 2 or more fingers Touches food with whole hand Picks up food to wave/tap/manipulate Places food on back of hand, arm or shoulder 1 2 1 Puts food on chest, neck, head or ears Brings food/liquids in close proximity to nose/mouth or face (eg: smells, blow bubbles) Puts food on chin, cheek, forehead or nose Touches food to lips Hold food in lips Taps OR HOLDS food on teeth Licks lips or teeth: Scant taste from lips or teeth TASTES Touches food with tip of tongue Full tongue lick Holds food piece INSIDE of mouth Bites pressure/gnaws on food (creates no pieces) Bites food, THEN spits of drools out ALL (no other breakage or chewing of piece made with bite) Bites food, breaks/chews it in mouth, spits ALL EATS 2 Bites food, chews/manipulates it in mouth, THEN swallows some OF THE BOLUS, spits rest Bites food, chews it, swallows it ALL or takes puree /liquid into mouth and swallows ALL 12 2 12 PACK UP Leader signals “all done” Each child ‘kisses’ ‘blows’ 1 piece of each food in bin (helps to move further up the hierarchy) All other material thrown away Wash the table with cloth Each child washes & dries hands Good bye song DISCHARGE CRITERIA 30 different foods consistently in food repertoire Enters the Steps to Eating hierarchy at ‘tastes’ 8090% of the time, if presented with new food Child is on growth curve in which child’s lengthweight ratio is appropriate, and child has been able to maintain growth on or above that curve for at least 4-6 weeks Family no longer battles at most meals Prefer – at least one illness with weight loss and regain pattern seen in typically developing children SOS STUDIES Erin Creach, CCC-SLP (2006) N=10, age range=17-31 months 7 meals with same 7 foods SOS style therapy Behavioural coding system Results Signif increase in positive meal time behaviours eg.smiling, vocailizing, interactions with caregivers Sig increase in food interaction eg. Touch, stir, pick up No sig difference in self-feeding Sig decrease in neg meal-time behaviours SOS STUDIES Own data from SOS clinic 2000-2005 (internal audit) Average for children transitioning off G tubes, who entered Feeding Therapy with some oral intake = 12 months from start of treatment (depends on age and step on eating hierarchy that child entered) *cost for 1 x per week therapy for 12 months = approx $9500 for individual therapy and $4500 for groups QLD study due out next year LIMITATIONS OF SOS PROGRAM Parents need to be committed Adapting Regularly Be own structure at home attend able to learn ‘lessons’ in group Time/staff intensive – 2 therapists, 2 assistants Handouts Scoring Medical notes Planning Shopping Liaising with other professionals involved in care ABA Used with ASD for multiple social behaviours including teaching Child gets rewarded for eating/trying new foods – food rewards, or toy rewards Williams, Field and Seiverling (2010) Reviewed 38 treatment studies of Food Refusal from 1979-2008 218 Children across 38 studies (average= 5.7 children) 190 of 218 on supplemental tube feedings (87%) 113 of 190 (59%) weaned from tube feedings by study end = weeks to months depending on study INPATIENT FUSSY FEEDING Fay et al, (infants and young children, 9, 26-35, 1997) Study of 19 patients at Baylor Medical Centre with NG and G tubes 3 weeks inpatient Issues 12 out of 19 successful (failures = premature, Developmental delay and GORD) All children on pureed foods (no discussion about developmentally appropriate foods) Cost for 3 week intensive stay = $33,000 TUBE WEANING PROGRAMS Graz Inpatient wean Outpatient day service EARLY REFERRAL =PREVENTION Encouraging positive feeding relationships Ideas to provide pleasant oral experiences Assist in transition from tube to oral feeding Information about transitioning to solids