Download Living With and Beyond Cancer

Living With and Beyond
Cancer
STP Workshop
May 2016
Who are we talking about?
‘Survivors are those people who are
living with or beyond cancer’
Includes those in remission after initial
treatment, those who are cured, and
those who may have active and
progressing disease
LWBC Programme
• The National Cancer Survivorship Initiative
the Living With and Beyond Cancer (LWBC)
Programme was set up in June 2014.
• 2 yr partnership between NHS England and
Macmillan Cancer Support to embed
priority findings and recommendations into
mainstream NHS commissioning and service
provision.
Outpatient Care - 2010
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Current services do not fulfil the needs of patient.
Poor value for money.
Inconsistent across cancer specific groups.
Not evidence-based.
Unsustainable.
Will not cope with increasing numbers.
• 2 million UK survivors, increasing by 3% each year (30,000 new
survivors per yr)
• This doesn’t mean they are living well
• Complex and varied needs
• 1 in 4 live with ill health or a disability as a consequence of
cancer treatment (Macmillan 2013)
Programme focusses on
• All cancer patients having access to Holistic Needs Assessment;
EOT summary; CCR; patient education & support event
• Developing and commissioning risk stratified pathways of post
treatment management.
• Promoting Health & Wellbeing including physical activity.
• Understanding and commissioning for improved management of
the consequences of treatment.
Recovery Package
Macmillan 2013
Clinical Risk Stratification
• Estimated number of
patients in each group
based on the test pilots
undertaken by
Macmillan is:
• Supported selfmanagement- 40%
(9,592)
• Shared care- 35%
(8,338)
• Complex case- 25%
(5,955)
Treatment
Active &
recurrent
disease
Managing
consequences
of treatment
Promoting
recovery
Sustaining
recovery
Aims of the Strategy
• More people having a positive experience
of care and support.
• More people having a better long-term
quality of life.
• Ambitious & stretching but need to act now
Priorities
• Transformation in support for people
living with and beyond cancer, so that
by 2020 every person with cancer should
have access to the Recovery Package and
follow-up care that responds to their
needs. Care providers will also become
more accountable for improving quality of
life, through the development of a new
metric to measure this.
STP footprints
• Opportunity to embed improving outcomes
for people with cancer locally, within the
context of the wider population.
• Chance to improve local pathways based
on information, data and experience from
the local population.
• Opportunity to streamline our patient
pathways
1 model does not fit all
Complex
Monitoring
Self manage
LWBC
• NHS England working
in partnership with
Macmillan to roll out
the RP nationally
• Risk statification
• Long term
consequences
• Holistic needs
assessment at point
of transition
What difference will it make ?
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Reduce unnecessary GP visits
Reduce unnecessary hospital admissions
Provide reassurance and support
Enable patients to learn self- management
Facilitate and advise on returning to work
Provides holistic care
Prepares patients for the long term
consequences of treatments
• Support lifestyle choices & changes
Referral to
LWABC
Late effects &
Follow up
Health & Wellbeing
Surveillance
Watch and Wait
Recovery
Package
Clinical
examination,
screening and
monitoring for
long term
consequences
Monitoring tumour
markers, physical
and psychological
support
Support Group,
Activities, Choir,
HOPE course,
Arts therapy,
Walking group
Our Vision
• Variety of support services as ‘one size
does not fit all’.
• Equitable access to the Living With &
Beyond Cancer service.
• LWBC to be an integral part of all tumour
site pathways.
• Collaborate working with primary care
Summary
All patients will have:
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HNA’s at key points in pathway
Individualised care plan/ risk stratification
Access to health & well being initiatives
Awareness of long term consequences of disease or
treatment
RECOVERY PACKAGE